Priorités de recherche sur l'autisme adulte et conceptualisation dans la recherche en informatique : invitation à codiriger avec des adultes autistes

Titre original en anglais : Adult Autism Research Priorities and Conceptualization in Computing Research: Invitation to Co-lead with Autistic Adults

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

À propos de la mention auteur·ice autiste

Morgado Ramirez, D. Z., Barbareschi, G., & Holloway, C. (2024). Adult Autism Research Priorities and Conceptualization in Computing Research: Invitation to Co-lead with Autistic Adults. ACM Transactions on Computer-Human Interaction, 31(4), 1-47. https://doi.org/10.1145/3635148

Date de publication: 24/01/2024 Ajout dans AutiHub: 17/10/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)

Résumé

La recherche sur l'autisme cible principalement les enfants et la normalisation des traits autistiques. Nous avons réalisé une revue de la littérature sur la recherche en informatique concernant l'autisme adulte, en nous concentrant sur l'identification des priorités de recherche établies par les adultes autistes et leurs alliés, la détermination des niveaux de participation, l'identification de la manière dont l'autisme est conceptualisé, ainsi que des types de technologies conçues et de leurs finalités. Nous avons constaté : (1) que la recherche en informatique sur l'autisme adulte ne représente ni les adultes plus âgés et non binaires, ni les adultes autistes vivant en dehors des Etats-Unis et de l'Europe ; (2) un manque de technologies orientées vers les priorités établies par les adultes autistes et leurs alliés ; et (3) que la recherche en informatique considère principalement l'autisme adulte comme un déficit médical et développe des solutions de conception et des technologies qui suivent ce récit marginalisant. Nous examinons le statu quo et fournissons des recommandations aux chercheurs en informatique afin d'encourager une recherche fondée sur les besoins des utilisateurs et respectueuse des adultes autistes.

Autism research is primarily targeted toward children and at normalizing autistic traits. We conducted a literature review of computing research on adult autism, focusing on identifying research priorities set by autistic adults and their allies, determining participation levels, identifying how autism is conceptualized, and the types of technologies designed and their purposes. We found: (1) that computing research in adult autism is neither representative of older and non-binary adults nor of autistic adults living outside the USA and Europe; (2) a lack of technologies geared towards the priorities set by autistic adults and their allies; and (3) that computing research primarily views adult autism as a medical deficit and builds design solutions and technologies that follow this marginalizing narrative. We discuss the status quo and provide recommendations for computing researchers to encourage research built on user needs and that is respectful of autistic adults.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 17/10/2026 01:28.

Références citées
253
Avec un DOI
214
Sans DOI, à partir du texte brut de la bibliographie
37
60 / 253 (23,7 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
27 / 253 (10,7 %)
Références avec noms d’auteurices détectés
226 / 253 (89,3 %)
Sans nom d’auteurice détecté
27
Sans titre structuré
13
Sans identifiant stable
35
Références avec noms bruts d’auteurices restant à vérifier
23
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
928
À partir du DOI ou de métadonnées externes
928
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
48
506 / 928 (54,5 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 422 / 928 (45,5 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
143 / 928 (15,4 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 143 / 506 (28,3 %). Personnes distinctes identifiées comme autistes : 110 / 755 (14,6 %).
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