Revue annuelle de la recherche : Passage de la « science normale » à la neurodiversité dans la science de l’autisme

Titre original en anglais : Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science

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Pellicano, E. & Houting, J. d. (2021). Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science. Journal of Child Psychology and Psychiatry, 63(4), 381-396. https://doi.org/10.1111/jcpp.13534

Date de publication: 03/11/2021 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
2
Auteur·ices de la publication identifié·es comme autistes
1 / 2 (50,0 %)
  1. Elizabeth Pellicano
  2. Jacquiline den Houting *

Résumé

Depuis sa description initiale, le concept d’autisme est fermement ancré dans le paradigme médical conventionnel de la psychiatrie de l’enfant. De plus en plus, la communauté autiste et, plus récemment, des chercheurs non autistes appellent à repenser la manière dont la science de l’autisme est conceptualisée et menée. La neurodiversité, selon laquelle l’autisme est considéré comme une forme de variation parmi une diversité d’esprits, a été proposée comme paradigme alternatif potentiel. Dans cette revue, nous nous concentrons sur trois défis majeurs au paradigme médical conventionnel : une focalisation excessive sur les déficits, une importance accordée à l’individu plutôt qu’à son contexte plus large et une étroitesse de perspective, chacun limitant nécessairement ce que nous pouvons savoir sur l’autisme et la manière dont nous pouvons le connaître. Nous exposons ensuite les façons dont des éléments fondamentaux du paradigme de la neurodiversité peuvent potentiellement aider les chercheurs à répondre aux limites du modèle médical. Nous concluons en examinant les implications d’un passage vers le paradigme de la neurodiversité pour la science de l’autisme.

Since its initial description, the concept of autism has been firmly rooted within the conventional medical paradigm of child psychiatry. Increasingly, there have been calls from the autistic community and, more recently, nonautistic researchers, to rethink the way in which autism science is framed and conducted. Neurodiversity, where autism is seen as one form of variation within a diversity of minds, has been proposed as a potential alternative paradigm. In this review, we concentrate on three major challenges to the conventional medical paradigm - an overfocus on deficits, an emphasis on the individual as opposed to their broader context and a narrowness of perspective - each of which necessarily constrains what we can know about autism and how we are able to know it. We then outline the ways in which fundamental elements of the neurodiversity paradigm can potentially help researchers respond to the medical model's limitations. We conclude by considering the implications of a shift towards the neurodiversity paradigm for autism science.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
220
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
37 / 220 (16,8 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
56 / 644 (8,7 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 56 / 311 (18,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 30 / 493 (6,1 %).
Occurrences citées rattachées à la base AutiHub
311 / 644 (48,3 %)
Auteurices cité·es distinct·es rattaché·es : 183 / 493 (37,1 %)
Occurrences rattachées, non identifiées comme autistes
255 / 311 (82,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 255 / 644 (39,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 153 / 183 (83,6 %).
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