« Je ne me sens pas comme un genre, je me sens comme moi-meme » : des personnes autistes elevees comme des filles explorent leur identite de genre

Titre original en anglais : “I Don't Feel Like a Gender, I Feel Like Myself”: Autistic Individuals Raised as Girls Exploring Gender Identity

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Kourti, M. & MacLeod, A. (2018). “I Don't Feel Like a Gender, I Feel Like Myself”: Autistic Individuals Raised as Girls Exploring Gender Identity. Autism in Adulthood, 1(1), 52-59. https://doi.org/10.1089/aut.2018.0001

Date de publication: 18/04/2018 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
2
Auteur·ices de la publication identifié·es comme autistes
1 / 2 (50,0 %)
  1. Marianthi Kourti *
  2. Andrea MacLeod

Résumé

Resume Contexte : Cet article comble une lacune dans la recherche actuelle en examinant les perceptions du genre chez des adultes autistes eleves comme des filles. Methodes : Nous rendons compte d'un groupe de discussion en ligne, dans lequel 21 personnes ayant ete elevees comme des filles ont discute de leurs identites de genre. Cette discussion faisait partie d'une etude plus vaste, impliquant 43 participants de huit pays. Nous avons utilise une approche emancipatrice dans laquelle les participants definissaient leur propre ordre du jour, soulignant ainsi directement que l'identite de genre etait importante pour eux. La discussion est restee ouverte pendant 2 semaines, apres quoi la transcription a ete analysee au moyen de l'Analyse thematique appliquee. Resultats : Les participants ont indique ne pas s'identifier aux presentations typiques du genre feminin pour diverses raisons, liees a la fois a l'autisme et aux attentes socioculturelles. Les participants ont decrit des enfances passees a etre des garcons manques ou a vouloir etre un garcon, des difficultes a se conformer aux attentes sociales fondees sur le genre et de fortes identifications a leurs interets personnels. Conclusions : Les manieres dont les personnes autistes se conforment aux roles genrees, ou y resistent, sont examinees, de meme que les implications pour la formation de l'identite chez les personnes autistes elevees comme des filles. La conception emancipatrice innovante s'est averee efficace pour donner une voix a un groupe qui a ete peu present dans les communautes universitaires et medicales et, grace a son utilisation de plateformes en ligne, pour mobiliser un grand echantillon de participants international. Cet article met en evidence a la fois l'importance d'aborder l'autisme dans une perspective intersectionnelle qui tient davantage compte du contexte, et les contributions uniques que les personnes autistes peuvent apporter aux compréhensions actuelles dans la recherche sur l'autisme. Resume non technique Contexte : Cet article essaie d'examiner une nouvelle partie de la recherche sur l'autisme. Il rend compte de ce que des adultes autistes qui ont ete eleves comme des filles disent de leurs sentiments lies a leur genre : s'ils se sentent davantage comme des femmes typiques, davantage comme des hommes typiques, ou differemment des deux. Methode : La recherche a utilise des groupes de discussion en ligne. Quarante-trois personnes ayant ete elevees comme des filles ont choisi de rejoindre le groupe et de participer a la recherche. Des participants de huit pays ont decide de ce dont ils parleraient. Cela signifie qu'ils ont choisi le sujet de l'identite de genre comme un sujet important pour eux. Nous avons analyse les commentaires que les personnes ont faits dans la discussion sur le genre. Resultats : La plupart ont dit ne pas avoir le sentiment d'etre semblables aux femmes typiques et ont donne differentes raisons a cela. Certaines pensaient que c'etait parce qu'elles etaient autistes et d'autres pensaient que cela avait a voir avec les personnes autour d'elles qui exercaient une pression sur elles pour qu'elles soient plus « feminines ». Les participants ont souvent dit qu'ils avaient ete des garcons manques ou qu'ils voulaient etre un garcon en grandissant, et que leurs interets personnels etaient tres importants pour eux. Conclusions : La discussion examine comment les personnes autistes sont parfois forcees d'agir de certaines manieres pour s'integrer, et comment cela peut les faire se sentir confuses et deprimees. La conception de la recherche etait dirigee par les participants, ce qui signifiait qu'un groupe auquel on a rarement demande son avis a pu s'exprimer. Comme la recherche etait entierement en ligne, le groupe de participants pouvait etre plus grand que d'habitude et provenait du monde entier. Cet article montre qu'il est important de comprendre l'environnement d'une personne pour vraiment comprendre comment l'autisme l'affecte. Il montre egalement que les personnes autistes peuvent fournir des informations importantes qui aident les autres a mieux les comprendre, et que la seule maniere d'obtenir ce type d'informations est de demander aux personnes autistes.

Abstract Background: This article addresses a gap in current research by considering perceptions of gender within autistic adults raised as girls. Methods: We report on an online focus group, in which 21 individuals who had been raised as girls discussed their gender identities. This discussion was part of a larger study, involving 43 participants from eight countries. We used an emancipatory approach wherein participants set their own agenda, thereby highlighting directly that gender identity was significant for them. The discussion was open for 2 weeks, after which the transcript was analyzed using Applied Thematic Analysis. Results: Participants reported not identifying with typical presentations of the female gender for a variety of reasons, linked both to autism and to sociocultural expectations. Participants described childhoods of being a tomboy or wanting to be a boy, having difficulties conforming to gender-based social expectations and powerful identifications with their personal interests. Conclusions: Consideration is given to the ways in which autistic individuals conform to, or resist, gendered roles, as well as the implications for identity formation within autistic individuals raised as girls. The innovative emancipatory design proved effective in giving voice to a group who have had little presence within the academic and medical communities and, through its use of online platforms, in engaging a large and internationally based participant sample. This article highlights both the importance of approaching autism from an intersectional perspective that takes greater account of context, and the unique contributions that autistic individuals can make to current understandings within autism research. Lay Summary Background: This article tries to look at a new part of autism research. It reports on what autistic adults who were raised as girls say about their feelings in relation to their gender—whether they feel more like typical women, more like typical men, or feel differently to both. Method: The research used online discussion groups. Forty-three individuals who had been raised as girls chose to join the group and be part of the research. Participants from eight countries decided what they would talk about. This means that they chose the topic of gender identity as one that was important to them. We analyzed the comments that people made in the discussion about gender. Results: Most said that they did not feel like they were similar to typical women and they gave different reasons for this. Some thought it was because they were autistic and some thought it was to do with people around them putting pressure on them to be more “girly.” Participants often said they had been tomboys or wanted to be a boy growing up and their personal interests were very important to them. Conclusions: The discussion looks at how autistic people are sometimes forced to act in certain ways to fit in, and how this can make them feel confused and depressed. The research design was led by the participants and this meant that a group who have rarely been asked their opinion were able to have a say. Because the research was all online, the participant group could be larger than usual and came from all over the world. This article shows that it is important to understand a person's environment, to really understand how autism affects them. It also shows that autistic people can give important information that helps others understand them better, and the only way to get this type of information is to ask autistic people.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
59
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
8 / 59 (13,6 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
16 / 129 (12,4 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 16 / 54 (29,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 10 / 113 (8,8 %).
Occurrences citées rattachées à la base AutiHub
54 / 129 (41,9 %)
Auteurices cité·es distinct·es rattaché·es : 40 / 113 (35,4 %)
Occurrences rattachées, non identifiées comme autistes
38 / 54 (70,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 38 / 129 (29,5 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 30 / 40 (75,0 %).
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