Qu'est-ce que l'epuisement autistique ? Une analyse thematique de publications sur deux plateformes en ligne

Titre original en anglais : What Is Autistic Burnout? A Thematic Analysis of Posts on Two Online Platforms

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Mantzalas, J., Richdale, A., Adikari, A., Lowe, J., & Dissanayake, C. (2021). What Is Autistic Burnout? A Thematic Analysis of Posts on Two Online Platforms. Autism in Adulthood, 4(1), 52-65. https://doi.org/10.1089/aut.2021.0021

Date de publication: 21/09/2021 Ajout dans AutiHub: 30/08/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Source OpenAlex

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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Jane Mantzalas
  2. Amanda Richdale
  3. Achini Adikari
  4. Jennifer Lowe *
  5. Cheryl Dissanayake

Résumé

Contexte : Par rapport aux adultes de la population generale, les adultes autistes sont plus susceptibles de connaitre une mauvaise sante mentale, ce qui peut contribuer a une suicidalite accrue. Bien que la communaute autiste identifie depuis longtemps l'epuisement autistique comme un risque important pour la sante mentale, a ce jour, une seule etude a ete publiee. Les premieres recherches ont mis en evidence l'impact nocif de l'epuisement autistique chez les adultes autistes et le besoin urgent de mieux comprendre ce phenomene. Methodes : Afin de comprendre les experiences vecues des adultes autistes, nous avons utilise l'extraction de donnees pour extraire des publications publiques sur l'epuisement autistique provenant de 2 plateformes en ligne, publiees entre 2005 et 2019, ce qui a permis d'obtenir 1127 publications. En utilisant une analyse thematique reflexive et une approche inductive ascendante, nous avons cherche a comprendre l'etiologie, les symptomes et l'impact de l'epuisement autistique, ainsi que les strategies de prevention et de retablissement. Deux chercheurs autistes ayant une experience auto-declaree d'epuisement autistique ont examine les themes et fourni des eclairages et des retours. Resultats : Nous avons identifie huit themes principaux et trois sous-themes dans l'ensemble des donnees. (1) Manque systemique et generalise de sensibilisation a l'autisme. (1.1) Discrimination et stigmatisation. (2) Une affection chronique ou recurrente. (3) Impact direct sur la sante et le bien-etre. (4) Une vie non vecue. (5) Une benediction deguisee ? (6) La conscience de soi et le controle personnel influencent le risque. (6.1) « Il faut suffisamment de ballons pour gerer le poids des rochers. » (7) Masquage : condamne si vous le faites, condamne si vous ne le faites pas. (8) Demandez aux experts. (8.1) Plus forts ensemble. Le theme general etait qu'un manque generalise de sensibilisation et la stigmatisation concernant l'autisme sous-tendent l'epuisement autistique. Conclusions : Nous avons identifie un ensemble de facteurs distincts mais interdependants qui caracterisent l'epuisement autistique comme une affection recurrente pouvant, directement et indirectement, avoir un impact sur le fonctionnement, la sante mentale, la qualite de vie et le bien-etre des personnes autistes. Les resultats suggerent qu'une sensibilisation et une acceptation accrues de l'autisme pourraient etre essentielles a la prevention et au retablissement apres l'epuisement.

Background: Compared with adults in the general population, autistic adults are more likely to experience poor mental health, which can contribute to increased suicidality. While the autistic community has long identified autistic burnout as a significant mental health risk, to date, only one study has been published. Early research has highlighted the harmful impact of autistic burnout among autistic adults and the urgent need to better understand this phenomenon. Methods: To understand the lived experiences of autistic adults, we used data scraping to extract public posts about autistic burnout from 2 online platforms shared between 2005 and 2019, which yielded 1127 posts. Using reflexive thematic analysis and an inductive “bottom-up” approach, we sought to understand the etiology, symptoms, and impact of autistic burnout, as well as prevention and recovery strategies. Two autistic researchers with self-reported experience of autistic burnout reviewed the themes and provided insight and feedback. Results: We identified eight primary themes and three subthemes across the data. (1) Systemic, pervasive lack of autism awareness. (1.1) Discrimination and stigma. (2) A chronic or recurrent condition. (3) Direct impact on health and well-being. (4) A life unlived. (5) A blessing in disguise? (6) Self-awareness and personal control influence risk. (6.1) “You need enough balloons to manage the weight of the rocks.” (7) Masking: Damned if you do, damned if you don't. (8) Ask the experts. (8.1) Stronger together. The overarching theme was that a pervasive lack of awareness and stigma about autism underlie autistic burnout. Conclusions: We identified a set of distinct yet interrelated factors that characterize autistic burnout as a recurring condition that can, directly and indirectly, impact autistic people's functioning, mental health, quality of life, and well-being. The findings suggest that increased awareness and acceptance of autism could be key to burnout prevention and recovery.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 18:17.

Références citées
76
Avec un DOI
68
Sans DOI, à partir du texte brut de la bibliographie
8
14 / 76 (18,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
7 / 76 (9,2 %)
Références avec noms d’auteurices détectés
69 / 76 (90,8 %)
Sans nom d’auteurice détecté
7
Sans titre structuré
6
Sans identifiant stable
8
Références avec noms bruts d’auteurices restant à vérifier
6
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
248
À partir du DOI ou de métadonnées externes
248
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
6
124 / 248 (50,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 124 / 248 (50,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
21 / 248 (8,5 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 21 / 124 (16,9 %). Personnes distinctes identifiées comme autistes : 13 / 204 (6,4 %).
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