Déficit, différence, ou les deux ? Autisme et neurodiversité.
Titre original en anglais : Deficit, difference, or both? Autism and neurodiversity.
Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E., & Hutman, T. (2012). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. https://doi.org/10.1037/a0028353
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Résumé
Le mouvement de la neurodiversité remet en question l'intérêt du modèle médical pour la causalité et la guérison, célébrant l'autisme comme un aspect indissociable de l'identité. À l'aide d'une enquête en ligne, nous avons examiné l'opposition perçue entre le modèle médical et le mouvement de la neurodiversité en évaluant les conceptions de l'autisme et de la neurodiversité chez des personnes ayant différentes relations avec l'autisme. Les participants (N = 657) comprenaient des personnes autistes, des proches et amis de personnes autistes, ainsi que des personnes sans relation spécifiée avec l'autisme. L'auto-identification comme personne autiste et la connaissance de la neurodiversité étaient associées au fait de considérer l'autisme comme une identité positive ne nécessitant aucune guérison, ce qui suggère des différences fondamentales entre le modèle médical et le mouvement de la neurodiversité. Néanmoins, les résultats suggéraient un chevauchement substantiel entre ces approches de l'autisme. La reconnaissance des aspects négatifs de l'autisme et l'adhésion à des pratiques parentales qui célèbrent et améliorent, sans toutefois éliminer, l'autisme ne différaient pas selon la relation avec l'autisme ou la connaissance de la neurodiversité. Ces résultats suggèrent une conception de l'autisme comme déficit en tant que différence, selon laquelle les conditions neurologiques peuvent représenter des voies également valables au sein de la diversité humaine. Des domaines potentiels de terrain d'entente dans la recherche et la pratique concernant l'autisme sont examinés.
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