La négligence scientifique à l'égard des adultes noirs autistes dans la recherche sur l'autisme

Titre original en anglais : The Scholarly Neglect of Black Autistic Adults in Autism Research

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Malone, K. M., Pearson, J. N., Palazzo, K. M., Manns, L. D. C., Rivera, A. Q., & Martin, D. M. (2022). The Scholarly Neglect of Black Autistic Adults in Autism Research. Autism in Adulthood, 4(4), 271-280. https://doi.org/10.1089/aut.2021.0086

Date de publication: 21/09/2022 Ajout dans AutiHub: 02/10/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Source OpenAlex

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Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)
  1. Kayla M. Malone
  2. Jamie N. Pearson
  3. K. M. Palazzo *
  1. Lonnie D. C. Manns
  2. Amelia Q. Rivera
  3. DeVoshia M. Martin

Résumé

Les personnes noires autistes, quel que soit leur âge, n'ont pas été placées au centre de la recherche sur l'autisme. Elles se trouvent plutôt souvent en marge, à la périphérie de la recherche sur l'autisme. En fait, les adultes noirs autistes sont largement absents de la littérature. La plupart des participants à la recherche sur l'autisme sont des personnes autistes et des familles majoritairement blanches. Dans cet article conceptuel, nous utilisons les théories de l'intersectionnalité, des Dis/ability Studies et de la Critical Race Theory pour contextualiser les expériences des adultes noirs autistes. Deuxièmement, nous soutenons que les disparités systémiques et les préoccupations méthodologiques sont deux facteurs contribuant à la négligence scientifique des adultes noirs autistes dans la recherche sur l'autisme. Troisièmement, nous proposons des lignes directrices pour aider les chercheurs à passer de la négligence à une recherche inclusive avec les adultes noirs autistes. Résumé communautaire Pourquoi ce sujet est-il important ? Les expériences des adultes noirs autistes ne sont pas bien représentées dans la recherche. Le manque de sensibilité culturelle dans la recherche sur l'autisme ignore les expériences nuancées des adultes noirs autistes, ce qui limite la capacité à comprendre leurs expériences et à répondre efficacement à leurs besoins. Quel est l'objectif de cet article ? L'objectif de cet article est de mettre en lumière le vide dans la recherche sur l'autisme concernant les adultes noirs autistes. Cet article est un appel à l'action en faveur d'une recherche inclusive des adultes noirs autistes. Plus précisément, nous (1) utilisons les théories de l'intersectionnalité, des Dis/ability Studies et de la Critical Race Theory pour contextualiser les expériences des adultes noirs autistes, (2) décrivons les disparités systémiques (par exemple, dans les soins de santé) qui contribuent à la négligence scientifique des adultes noirs autistes, et (3) proposons des lignes directrices pour aider les chercheurs à passer de la négligence à une recherche inclusive avec les adultes noirs autistes. Quelles perspectives personnelles ou professionnelles les auteurs apportent-ils à ce sujet ? Le premier auteur s'identifie comme une personne blanche, non binaire, doctorante en science appliquée du développement et en éducation spécialisée. La deuxième auteure s'identifie comme une femme noire cisgenre, professeure adjointe en éducation spécialisée. Le troisième auteur s'identifie comme une personne blanche, non binaire, autiste et chercheuse sur l'autisme. Le quatrième auteur s'identifie comme un homme noir cisgenre, doctorant en équité éducative. La cinquième auteure s'identifie comme une femme noire cisgenre, doctorante en équité éducative. La sixième auteure s'identifie comme une femme noire cisgenre, enseignante en éducation spécialisée titulaire de deux certifications et doctorante en équité éducative. Bien qu'aucun des auteurs ne vive l'expérience d'être à la fois noir et autiste, notre équipe de recherche s'engage à soutenir et à défendre les personnes noires autistes grâce à notre développement professionnel continu et à notre attachement à une recherche fondée sur les forces et centrée sur l'identité. Que sait-on déjà sur ce sujet ? Bien que nous connaissions les disparités touchant les enfants noirs autistes, peu de recherches se sont concentrées sur les expériences des adultes noirs autistes. La plupart de ce que nous savons sur les adultes autistes repose sur les expériences de participants blancs. Que recommandent les auteurs ? Premièrement, nous recommandons aux chercheurs de chercher à comprendre comment leurs propres perspectives, valeurs et expériences façonnent leurs recherches (par exemple, la réciprocité culturelle). Deuxièmement, nous recommandons aux chercheurs d'inclure intentionnellement les perspectives et les expériences des adultes noirs autistes. Cela peut inclure la collaboration à des recherches avec des chercheurs noirs autistes et la mise en avant de recherches dirigées par des personnes autistes et noires autistes. Enfin, nous plaidons en faveur de changements systémiques dans les établissements d'enseignement supérieur (par exemple, réduire les obstacles à l'admission) et dans les communautés (par exemple, des soutiens adaptés à la culture) afin de mieux répondre aux inégalités qui influent sur la représentation des adultes noirs autistes dans la recherche sur l'autisme. Comment ces recommandations aideront-elles les adultes autistes aujourd'hui ou à l'avenir ? Ces recommandations doteront les chercheurs de stratégies leur permettant de nouer efficacement des partenariats avec des adultes noirs autistes, d'une manière qui respecte leurs connaissances et leurs contributions au domaine. Par conséquent, les adultes noirs autistes seront davantage représentés dans la recherche sur l'autisme, à la fois en tant que participants et en tant que chercheurs de premier plan dans ce domaine. Nous espérons qu'une représentation plus inclusive des adultes noirs autistes mènera à des approches davantage adaptées à la culture dans la recherche sur l'autisme chez les adultes.

Black autistic individuals, regardless of age, have not been centered in autism research. Instead, they often exist on the margins—on the periphery of autism research. In fact, Black autistic adults are largely absent from the literature. Most participants in autism research are majority-white autistic individuals and families. In this conceptual article, we use intersectionality and Dis/ability Studies and Critical Race Theory theories to contextualize Black autistic adults' experiences. Second, we argue that systemic disparities and methodological concerns are two contributors to the scholarly neglect of Black autistic adults in autism research. Third, we provide guidelines to support researchers in moving from neglect to inclusive research with Black autistic adults. Community brief Why is this topic important? The experiences of Black autistic adults are not well represented in research. The lack of cultural responsiveness in autism research ignores the nuanced experiences of Black autistic adults, which limits the ability to understand their experiences and effectively meet their needs. What is the purpose of this article? The purpose of this article is to highlight the void in autism research concerning Black autistic adults. This article is a call to action for research that is inclusive of Black autistic adults. Specifically, we (1) use intersectionality and Dis/ability Studies and Critical Race Theory theories to contextualize Black autistic adults' experiences, (2) describe the systemic disparities (e.g., health care) that contribute to the scholarly neglect of Black autistic adults, and (3) provide guidelines to support researchers in moving from neglect to inclusive research with Black autistic adults. What personal or professional perspectives do the authors bring to this topic? The first author identifies as a white, non-binary, doctoral student in Applied Developmental Science and Special Education. The second author identifies as a Black, cisgender female, Assistant Professor of Special Education. The third author identifies as a white, non-binary, autistic autism researcher. The fourth author identifies as a Black, cisgender male, doctoral student in Educational Equity. The fifth author identifies as a black, cisgender female, doctoral student in Educational Equity. The sixth author identifies as a Black, cisgender female, dual-licensed special education teacher, and doctoral student in Educational Equity. Although none of the authors embody the lived experience of being both Black and autistic, our research team is committed to supporting and advocating for Black autistic individuals through our ongoing professional development and dedication to strength-based, and identity-centered research. What is already known about this topic? Although we know about disparities in Black autistic children, little research has focused on the experiences of Black autistic adults. Most of what we know about autistic adults is based on the experiences of white participants. What do the authors recommend? First, we recommend that researchers work to understand how their own perspectives, values, and experiences shape their research (e.g., cultural reciprocity). Second, we recommend that researchers intentionally include the perspectives and experiences of Black autistic adults. This can include collaborating on research with Black autistic scholars and highlighting autistic and Black autistic led research. Finally, we advocate for systemic changes in institutions of higher education (e.g., reduce barriers to admission) and in communities (e.g., culturally responsive supports) to better address the inequities that impact the representation of Black autistic adults in autism research. How will these recommendations help autistic adults now or in the future? These recommendations will prepare researchers with strategies to effectively build partnerships with Black autistic adults in ways that honor their knowledge and contributions to the field. As a result, Black autistic adults will have more representation in autism research, both as participants and as leading scholars in the field. We hope that more inclusive representation of Black autistic adults will lead to more culturally responsive approaches in adult autism research.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 08:14.

Références citées
107
Avec un DOI
83
Sans DOI, à partir du texte brut de la bibliographie
24
11 / 107 (10,3 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
11 / 107 (10,3 %)
Références avec noms d’auteurices détectés
101 / 107 (94,4 %)
Sans nom d’auteurice détecté
6
Sans titre structuré
10
Sans identifiant stable
24
Références avec noms bruts d’auteurices restant à vérifier
5
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
331
À partir du DOI ou de métadonnées externes
331
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
5
107 / 331 (32,3 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 224 / 331 (67,7 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
15 / 331 (4,5 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 15 / 107 (14,0 %). Personnes distinctes identifiées comme autistes : 15 / 314 (4,8 %).
  1. Maya Kalyanpur , Beth Harry (1997). A Posture of Reciprocity: A Practical Approach to Collaboration Between Professionals and Parents of Culturally Diverse Backgrounds . Journal of Child and Family Studies, 6(4), 487-509. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1023/a:1025001630436 OpenAlex: https://openalex.org/W13764023
    Crossref OpenAlex OpenCitations
  2. (s. d.). About autism. Autistic Self Advocacy Network. https://autisticadvocacy.org/about-asan/about-autism/ . Published n.d. (accessed June16 2022).
    Type: Autre
    Crossref
  3. Jamie N. Pearson , Hedda Meadan (2018). African American parents’ perceptions of diagnosis and services for children with autism . Education and Training in Autism and Developmental Disabilities,, 53(1), 17. SAGE Publications.
    Type: Article DOI: 10.1177/215416471805300103 OpenAlex: https://openalex.org/W2883343720
    Crossref OpenCitations
  4. Karen Burkett , Edith Morris , Patricia Manning-Courtney , Jean Anthony , Donna Shambley-Ebron (2015). African American Families on Autism Diagnosis and Treatment: The Influence of Culture . Journal of Autism and Developmental Disorders, 45(10), 3244-3254. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2482-x OpenAlex: https://openalex.org/W611786347
    Crossref OpenAlex OpenCitations
  6. Lauren Harris , Daniel Gilmore , Anne Longo , Brittany N. Hand (2021). Short report: Patterns of US federal autism research funding during 2017–2019 . Autism, 25(7), 2135-2139. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211003430 OpenAlex: https://openalex.org/W3138253050
    Crossref OpenAlex OpenCitations
  7. (2011). Digesting Race, Class, and Gender: Sugar as a Metaphor . Contemporary Sociology: A Journal of Reviews, 40(6), 778-778. SAGE Publications.
    Type: Article DOI: 10.1177/0094306111425021k OpenAlex: https://openalex.org/W653759793
    Crossref OpenAlex OpenCitations
  8. Straus JN. (2013). Autism as culture . In: Davis LJ, ed. The Disability Studies Reader. 4th ed. New York, NY: Routledge;, 460.
    Type: Autre
    Crossref
  9. Daniel J. Laxman , Julie Lounds Taylor , Leann Smith DaWalt , Jan S. Greenberg , Marsha R. Mailick (2019). Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study . Autism Research, 12(6), 911-921. Wiley.
    Type: Article DOI: 10.1002/aur.2113 OpenAlex: https://openalex.org/W2943778318
    Crossref OpenAlex OpenCitations
  10. Robert K. Merton (1972). Insiders and Outsiders: A Chapter in the Sociology of Knowledge . American Journal of Sociology, 78(1), 9-47. University of Chicago Press.
    Type: Article DOI: 10.1086/225294 OpenAlex: https://openalex.org/W1968097047
    Crossref OpenAlex OpenCitations
  11. Kan D (s. d.). Autism Spectrum Disorders: Advancing Positive Practices in Education . Autism Spectrum Disorders: Advancing Positive Practices in Education.
    Type: Autre
    Crossref
  13. Susanna Baldwin , Debra Costley , Anthony Warren (2014). Employment Activities and Experiences of Adults with High-Functioning Autism and Asperger’s Disorder . Journal of Autism and Developmental Disorders, 44(10), 2440-2449. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-014-2112-z OpenAlex: https://openalex.org/W1980367882
    Crossref OpenAlex OpenCitations
  15. Myles I. Durkee , Elizabeth R. Gazley , Elan C. Hope , Micere Keels (2019). Cultural invalidations: Deconstructing the “acting White” phenomenon among Black and Latinx college students. Cultural Diversity & Ethnic Minority Psychology, 25(4), 451-460. American Psychological Association (APA).
    Type: Article DOI: 10.1037/cdp0000288 OpenAlex: https://openalex.org/W2942482616
    Crossref OpenAlex OpenCitations
  16. Hae Yeon Choo , Myra Marx Ferree (2010). Practicing Intersectionality in Sociological Research: A Critical Analysis of Inclusions, Interactions, and Institutions in the Study of Inequalities . Sociological Theory, 28(2), 129-149. SAGE Publications.
    Type: Article DOI: 10.1111/j.1467-9558.2010.01370.x OpenAlex: https://openalex.org/W1985454503
    Crossref OpenAlex OpenCitations
  18. Jing Yuan , Minghui Li , Z. Kevin Lu (2021). Racial/Ethnic Disparities in the Prevalence and Trends of Autism Spectrum Disorder in US Children and Adolescents . JAMA Network Open, 4(3), e210771. American Medical Association (AMA).
    Type: Article DOI: 10.1001/jamanetworkopen.2021.0771 OpenAlex: https://openalex.org/W3134338023
    Crossref OpenAlex OpenCitations
  19. Timothy L. Edwards , Erin E. Watkins , Amin D. Lotfizadeh , Alan Poling (2012). Intervention research to benefit people with autism: How old are the participants? Research in Autism Spectrum Disorders, 6(3), 996-999. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2011.11.002 OpenAlex: https://openalex.org/W1997546530
    Crossref OpenAlex OpenCitations
  20. Shahar Shapira , Leeat Granek (2019). Negotiating psychiatric cisgenderism-ableism in the transgender- autism nexus . Feminism & Psychology, 29(4), 494-513. SAGE Publications.
    Type: Article DOI: 10.1177/0959353519850843 OpenAlex: https://openalex.org/W2951006088
    Crossref OpenAlex OpenCitations
  21. Juhani Vaivio (2012). Interviews – Learning the Craft of Qualitative Research Interviewing . European Accounting Review, 21(1), 186-189. Informa UK Limited.
    Type: Article DOI: 10.1080/09638180.2012.675165 OpenAlex: https://openalex.org/W2050762386
    OpenAlex
  22. Luther G. Kalb , Vini Singh , Ji Su Hong , Calliope Holingue , Natasha N. Ludwig , Danika Pfeiffer et al. (2022). Analysis of race and sex bias in the autism diagnostic observation schedule (ADOS-2) . JAMA Network Open, 5(4), e229498. American Medical Association (AMA).
    Type: Article DOI: 10.1001/jamanetworkopen.2022.9498 OpenAlex: https://openalex.org/W4224921390
    Crossref OpenAlex OpenCitations
  23. Scott D. Wright , Cheryl A. Wright , Valerie D’Astous , Amy Maida Wadsworth (2019). Autism aging . Gerontology & Geriatrics Education, 40(3), 322-338. Informa UK Limited.
    Type: Article DOI: 10.1080/02701960.2016.1247073 OpenAlex: https://openalex.org/W4211023613
    Crossref OpenAlex OpenCitations
  24. Penelope J. Moore , Susan D. Toliver (2010). Intraracial Dynamics of Black Professors’ and Black Students’ Communication in Traditionally White Colleges and Universities . Journal of Black Studies, 40(5), 932-945. SAGE Publications.
    Type: Article DOI: 10.1177/0021934708321107 OpenAlex: https://openalex.org/W2058163366
    Crossref OpenAlex OpenCitations
  25. Jamie N. Pearson , Hedda Meadan , Kayla M. Malone , Braelan M. Martin (2020). Parent and Professional Experiences Supporting African-American Children with Autism . Journal of Racial and Ethnic Health Disparities, 7(2), 305-315. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40615-019-00659-9 OpenAlex: https://openalex.org/W2990462208
    Crossref OpenAlex OpenCitations
  26. Claudia Hilton , Robert T. Fitzgerald , Kelley M. Jackson , Rolanda A. Maxim , Christopher C. Bosworth , Paul Shattuck et al. (2010). Brief Report: Under-Representation of African Americans in Autism Genetic Research: A Rationale for Inclusion of Subjects Representing Diverse Family Structures . Journal of Autism and Developmental Disorders, 40(5), 633-639. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-009-0905-2 OpenAlex: https://openalex.org/W2059936957
    Crossref OpenAlex OpenCitations
  27. John N. Constantino , Anna M. Abbacchi , Celine A. Saulnier , Cheryl Klaiman , DAVID S. MANDELL , Yi Zhang et al. (2020). Timing of the Diagnosis of Autism in African American Children . Pediatrics, 146(3), e20193629. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2019-3629 OpenAlex: https://openalex.org/W3080200451
    Crossref OpenAlex OpenCitations
  28. Marissa E. Yingling , Robert M. Hock , Bethany A. Bell (2018). Time-Lag Between Diagnosis of Autism Spectrum Disorder and Onset of Publicly-Funded Early Intensive Behavioral Intervention: Do Race–Ethnicity and Neighborhood Matter? Journal of Autism and Developmental Disorders, 48(2), 561-571. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3354-3 OpenAlex: https://openalex.org/W2765386891
    Crossref OpenAlex OpenCitations
  29. June L. Chen , Geraldine Leader , Connie Sung , Michael Leahy (2015). Trends in Employment for Individuals with Autism Spectrum Disorder: a Review of the Research Literature . Review Journal of Autism and Developmental Disorders, 2(2), 115-127. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-014-0041-6 OpenAlex: https://openalex.org/W2085992067
    Crossref OpenAlex OpenCitations
  30. Waganesh A. Zeleke , Tammy L. Hughes , Natalie Drozda (2019). Disparities in Diagnosis and Service Access for Minority Children with ASD in the United States . Journal of Autism and Developmental Disorders, 49(10), 4320-4331. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-019-04131-9 OpenAlex: https://openalex.org/W2963203262
    Crossref OpenAlex OpenCitations
  31. Laura Hull , K.V. Petrides , Carrie T. Allison , P. Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3166-5 OpenAlex: https://openalex.org/W2616560149
    Crossref OpenAlex OpenCitations
  32. Clem Adelman (1993). Kurt Lewin and the Origins of Action Research . Educational Action Research, 1(1), 7-24. Informa UK Limited.
    Type: Article DOI: 10.1080/0965079930010102 OpenAlex: https://openalex.org/W2087245619
    Crossref OpenAlex OpenCitations
  33. Sarah Dababnah , Wendy E. Shaia , Karen Campion , Helen M. Nichols (2018). “We Had to Keep Pushing”: Caregivers' Perspectives on Autism Screening and Referral Practices of Black Children in Primary Care . Intellectual and Developmental Disabilities, 56(5), 321-336. Informa UK Limited.
    Type: Article DOI: 10.1352/1934-9556-56.5.321 OpenAlex: https://openalex.org/W2894823838
    Crossref OpenAlex OpenCitations
  34. Jamie N. Pearson , Megan-Brette Hamilton , Hedda Meadan (2018). “We Saw Our Son Blossom” A Guide for Fostering Culturally Responsive Partnerships to Support African American Autistic Children and Their Families . Perspectives of the ASHA Special Interest Groups, 3(1), 84-97. American Speech Language Hearing Association.
    Type: Article DOI: 10.1044/persp3.sig1.84 OpenAlex: https://openalex.org/W2799326250
    Crossref OpenAlex OpenCitations
  35. Joseph W. Madaus , Stan F. Shaw (2006). The Impact of the IDEA 2004 on Transition to College for Students with Learning Disabilities . Learning Disabilities Research & Practice, 21(4), 273-281. SAGE Publications.
    Type: Article DOI: 10.1111/j.1540-5826.2006.00223.x OpenAlex: https://openalex.org/W2089733587
    Crossref OpenAlex OpenCitations
  36. (s. d.). Yee A. Autism research's overlooked racial bias. The Atlantic. https://www.theatlantic.com/health/archive/2016/05/autism-research-overlooked-racial-bias/481314/ Published May 5 2016. Accessed June11 2022.
    Type: Autre
    Crossref
  37. Jason Travers , Michael Krezmien (2018). Racial Disparities in Autism Identification in the United States During 2014 . Exceptional Children, 84(4), 403-419. SAGE Publications.
    Type: Article DOI: 10.1177/0014402918771337 OpenAlex: https://openalex.org/W2800777822
    Crossref OpenAlex OpenCitations
  38. Audrey A. Trainor , Elizabeth Graue (2014). Evaluating Rigor in Qualitative Methodology and Research Dissemination . Remedial and Special Education, 35(5), 267-274. SAGE Publications.
    Type: Article DOI: 10.1177/0741932514528100 OpenAlex: https://openalex.org/W2101583299
    Crossref OpenAlex OpenCitations
  39. Pearson JN (s. d.). Pearson JN,, Stewart-Ginsburg JH,, Malone KM, et al. Faith and FACES: Black parents' perceptions of autism, faith, and coping. Except Child. 2021:1–14. DOI: 10. 1080/09362835. 2022. 2100392 Except Child.
    Type: Autre
    Crossref
  40. Jennifer Vanderminden , Jennifer J. Esala (2019). Beyond Symptoms: Race and Gender Predict Anxiety Disorder Diagnosis . Society and Mental Health, 9(1), 111-125. SAGE Publications.
    Type: Article DOI: 10.1177/2156869318811435 OpenAlex: https://openalex.org/W2901182550
    Crossref OpenAlex OpenCitations
  41. Lisa A. Croen , Ousseny Zerbo , Yinge Qian , Maria L Massolo , Steve Rich , Stephen Sidney et al. (2015). The health status of adults on the autism spectrum . Autism, 19(7), 814-823. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315577517 OpenAlex: https://openalex.org/W2108322879
    Crossref OpenAlex OpenCitations
  42. Dietz PM (s. d.). Dietz PM,, Rose CE,, McArthur D, et al. National and state estimates of adults with autism spectrum disorder. J Autism Dev Disord. 2020;50(12);4258–4266. J Autism Dev Disord.
    Type: Autre
    Crossref
  43. Allison Shefcyk (2015). Count us in: Addressing gender disparities in autism research . Autism, 19(2), 131-132. SAGE Publications.
    Type: Article DOI: 10.1177/1362361314566585 OpenAlex: https://openalex.org/W2111029785
    Crossref OpenAlex OpenCitations
  44. Paul Shattuck , Sarah Carter Narendorf , Benjamin Cooper , Paul R. Sterzing , Mary Wagner , Julie Lounds Taylor (2012). Postsecondary Education and Employment Among Youth With an Autism Spectrum Disorder . Pediatrics, 129(6), 1042-1049. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2011-2864 OpenAlex: https://openalex.org/W2128138260
    Crossref OpenAlex OpenCitations
  45. Evan P. Apfelbaum , Michael I. Norton , Samuel R. Sommers (2012). Racial Color Blindness . Current Directions in Psychological Science, 21(3), 205-209. SAGE Publications.
    Type: Article DOI: 10.1177/0963721411434980 OpenAlex: https://openalex.org/W2149651081
    Crossref OpenAlex OpenCitations
  46. Jason C. Travers , Matt Tincani , Michael P. Krezmien (2013). A Multiyear National Profile of Racial Disparity in Autism Identification . The Journal of Special Education, 47(1), 41-49. SAGE Publications.
    Type: Article DOI: 10.1177/0022466911416247 OpenAlex: https://openalex.org/W2147847398
    Crossref OpenAlex OpenCitations
  47. Lovelace TS (s. d.). Lovelace TS,, Comis MP,, Tabb JM, et al. Missing from the narrative: A seven-decade scoping review of the inclusion of black autistic women and girls in autism research. Behav Anal Pract. 2021:1–13. DOI: 10. 31234/osf.io/d3v29 Behav Anal Pract.
    Type: Autre
    Crossref
  48. Claire Snell-Rood , Lisa Ruble , Harold Kleinert , John H McGrew , Medina Adams , Alexis Rodgers et al. (2020). Stakeholder perspectives on transition planning, implementation, and outcomes for students with autism spectrum disorder . Autism, 24(5), 1164-1176. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319894827 OpenAlex: https://openalex.org/W3002941098
    Crossref OpenAlex OpenCitations
  49. Sandra Magaña , Susan L. Parish , Roderick A. Rose , Maria Timberlake , Jamie G. Swaine (2012). Racial and Ethnic Disparities in Quality of Health Care Among Children with Autism and Other Developmental Disabilities . Intellectual and Developmental Disabilities, 50(4), 287-299. Informa UK Limited.
    Type: Article DOI: 10.1352/1934-9556-50.4.287 OpenAlex: https://openalex.org/W2168799966
    Crossref OpenAlex OpenCitations
  50. Carl C. Bell , Willie Mae Jackson , Briatta H. Bell (2015). Misdiagnosis of African-Americans with Psychiatric Issues – Part II . Journal of the National Medical Association, 107(3), 35-41. Elsevier BV.
    Type: Article DOI: 10.1016/s0027-9684(15)30049-3 OpenAlex: https://openalex.org/W2280188736
    OpenAlex
  51. (s. d.). Burkett C. ‘Autistic while black’: How autism amplifies stereotypes. Spectrum Autism Research News. January 20 2020. https://www.spectrumnews.org/opinion/viewpoint/autistic-while-black-how-autism-amplifies-stereotypes/ (accessed June16 2022).
    Type: Autre
    Crossref
  52. Jenna Sandler Eilenberg , Madison Paff , Ashley Johnson Harrison , Kristin A. Long (2019). Disparities Based on Race, Ethnicity, and Socioeconomic Status Over the Transition to Adulthood Among Adolescents and Young Adults on the Autism Spectrum: a Systematic Review . Current Psychiatry Reports, 21(5), 1. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11920-019-1016-1 OpenAlex: https://openalex.org/W2924533675
    Crossref OpenAlex OpenCitations
  53. Patricia Hill Collins , Philomena Essed (1992). Understanding Everyday Racism: An Interdisciplinary Theory. Contemporary Sociology, 21(6), 790. SAGE Publications.
    Type: Article DOI: 10.2307/2075626 OpenAlex: https://openalex.org/W2320014290
    Crossref OpenAlex OpenCitations
  54. Anne M. Roux , Jessica Rast , Kristy A. Anderson , Julianna A Rava , Paul Shuttuck (2015). Transition into Young Adulthood: National Autism Indicators Report . National Autism Indicators Report: Transition into young adulthood. A.J. Drexel Autism Institute.
    Type: Rapport DOI: 10.17918/nairtransition2015 OpenAlex: https://openalex.org/W4313567965
    Crossref OpenAlex OpenCitations
  55. Adolfo G. Cuevas , Kerth O'Brien , Somnath Saha (2016). African American experiences in healthcare: “I always feel like I’m getting skipped over”. Health Psychology, 35(9), 987-995. American Psychological Association (APA).
    Type: Article DOI: 10.1037/hea0000368 OpenAlex: https://openalex.org/W2383108889
    Crossref OpenAlex OpenCitations
  56. Alicia B. Becton , Amanda L. Foster , Roy K. Chen (2016). Postsecondary Educators’ Cultural and Institutional Awareness of Issues Faced by African American Students With Disabilities . Rehabilitation Research, Policy, and Education, 30(2), 129-147. Springer Publishing Company.
    Type: Article DOI: 10.1891/2168-6653.30.2.129 OpenAlex: https://openalex.org/W2398797452
    Crossref OpenAlex OpenCitations
  57. Ruqaiijah Yearby , Brietta Clark , José F. Figueroa (2022). Structural Racism In Historical And Modern US Health Care Policy . Health Affairs, 41(2), 187-194. Health Affairs Publishing, LLC.
    Type: Article DOI: 10.1377/hlthaff.2021.01466 OpenAlex: https://openalex.org/W4210928419
    Crossref OpenAlex OpenCitations
  58. Julia T. Caldwell , Chandra L. Ford , Steven P. Wallace , May C. Wang , Lois M. Takahashi (2016). Intersection of Living in a Rural Versus Urban Area and Race/Ethnicity in Explaining Access to Health Care in the United States . American Journal of Public Health, 106(8), 1463-1469. American Public Health Association.
    Type: Article DOI: 10.2105/ajph.2016.303212 OpenAlex: https://openalex.org/W2443964634
    Crossref OpenAlex OpenCitations
  59. Tina Goethals , Elisabeth De Schauwer , Geert Van Hove (2015). Weaving Intersectionality into Disability Studies Research: Inclusion, Reflexivity and Anti-Essentialism . DiGeSt. Journal of Diversity and Gender Studies, 2(1-2), 75. Ghent University.
    Type: Article DOI: 10.11116/jdivegendstud.2.1-2.0075 OpenAlex: https://openalex.org/W2460749820
    Crossref OpenAlex OpenCitations
  60. Marie K Deserno , Denny Borsboom , Sander Begeer , Hilde M. Geurts (2017). Multicausal systems ask for multicausal approaches: A network perspective on subjective well-being in individuals with autism spectrum disorder . Autism, 21(8), 960-971. SAGE Publications.
    Type: Article DOI: 10.1177/1362361316660309 OpenAlex: https://openalex.org/W2518496052
    Crossref OpenAlex OpenCitations
  61. Gillborn D. (2015). Intersectionality, critical race theory, and the primacy of racism: Race, class, gender, and disability in education . Sage J, 21(3), 277.
    Type: Autre
    Crossref
  62. Desiree R Jones , DAVID S. MANDELL (2020). To address racial disparities in autism research, we must think globally, act locally . Autism, 24(7), 1587-1589. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320948313 OpenAlex: https://openalex.org/W3090890396
    Crossref OpenAlex OpenCitations
  63. Subini Ancy Annamma , Darrell D. Jackson , Deb Morrison (2017). Conceptualizing color-evasiveness: using dis/ability critical race theory to expand a color-blind racial ideology in education and society . Race Ethnicity and Education, 20(2), 147-162. Informa UK Limited.
    Type: Article DOI: 10.1080/13613324.2016.1248837 OpenAlex: https://openalex.org/W2556989739
    Crossref OpenAlex OpenCitations
  66. Alisha Ohl , Mira Grice Sheff , Sarah Small , Jamie Nguyen , Kelly Paskor , Aliza Zanjirian (2017). Predictors of employment status among adults with Autism Spectrum Disorder . Work, 56(2), 345-355. SAGE Publications.
    Type: Article DOI: 10.3233/wor-172492 OpenAlex: https://openalex.org/W2589101104
    OpenAlex
  67. Steinbrenner JR (s. d.). Steinbrenner JR,, McIntyre N,, Rentschler LF, et al. Patterns in reporting and participant inclusion related to race and ethnicity in autism intervention literature: Data from a large-scale systematic review of evidence-based practices. Autism. 2022:136236132110725; DOI: 10. 1177/13623613211072593 Autism.
    Type: Autre
    Crossref
  68. Brinkmann S (s. d.). InterViews: Learning the Craft of Qualitative Research Interviewing, . InterViews: Learning the Craft of Qualitative Research Interviewing,.
    Type: Autre
    Crossref
  69. Lauren Rose Strand (2017). Charting Relations between Intersectionality Theory and the Neurodiversity Paradigm . Disability Studies Quarterly, 37(2). The Ohio State University Libraries.
    Type: Article DOI: 10.18061/dsq.v37i2.5374 OpenAlex: https://openalex.org/W2621248701
    Crossref OpenAlex OpenCitations
  70. Uma M. Jayakumar , Annie S. Adamian (2017). The Fifth Frame of Colorblind Ideology: Maintaining the Comforts of Colorblindness in the Context of White Fragility . Sociological Perspectives, 60(5), 912-936. SAGE Publications.
    Type: Article DOI: 10.1177/0731121417721910 OpenAlex: https://openalex.org/W2741639306
    Crossref OpenAlex OpenCitations
  71. Crenshaw K. (1989). Demarginalizing the intersection of race and sex: A black feminist critique of antidiscrimination doctrine, feminist theory, and antiracist politics . Feminist Legal Theory, (1), 57.
    Type: Autre
    Crossref
  72. Danielle Wallace , Jessica Herbert , ELIZABETH M. HASSRICK , Sarah E. Kabourek (2022). The frequency and clustering of autism-related behaviors during encounters between the police and the autism community . Policing: An International Journal, 45(3), 403-420. Emerald.
    Type: Article DOI: 10.1108/pijpsm-10-2021-0141 OpenAlex: https://openalex.org/W4280561607
    Crossref OpenAlex OpenCitations
  73. Connors DJ. (2008). Not so strange bedfellows: The promise of disability studies and critical race theory . In: Gabel SL, Danforth S, eds. Disability and the Politics of Education: An Internal Reader. New York: Peter Lang;, 453.
    Type: Autre
    Crossref
  74. Jessica R Steinbrenner , Nancy S. McIntyre , Lindsay F Rentschler , Jamie N. Pearson , Paul Luelmo , Maria Elizabeth Jaramillo et al. (2022). Patterns in reporting and participant inclusion related to race and ethnicity in autism intervention literature: Data from a large-scale systematic review of evidence-based practices . Autism, 26(8), 2026-2040. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211072593 OpenAlex: https://openalex.org/W4206976357
    OpenAlex OpenCitations
  75. Teal W. Benevides , Henry J. Carretta , George Rust , Lindsay Shea (2021). Racial and ethnic disparities in benefits eligibility and spending among adults on the autism spectrum: A cohort study using the Medicare Medicaid Linked Enrollees Analytic Data Source . PLOS ONE, 16(5), e0251353. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0251353 OpenAlex: https://openalex.org/W3165120403
    Crossref OpenAlex OpenCitations
  77. Matthew Hollocks , Jian Wei Lerh , Iliana Magiati , Richard Meiser-Stedman , Traolach Brugha (2019). Anxiety and depression in adults with autism spectrum disorder: a systematic review and meta-analysis . Psychological Medicine, 49(4), 559-572. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s0033291718002283 OpenAlex: https://openalex.org/W2889987209
    Crossref OpenAlex OpenCitations
  78. Jones N. (s. d.). Jones N. “I was aggressive for the streets, pretty for the pictures.” Gender Soc. 2009;23(1):89–93. Gender Soc.
    Type: Autre
    Crossref
  79. M. Ariel Cascio , Jonathan Weiss , Éric Racine (2021). Making Autism Research Inclusive by Attending to Intersectionality: a Review of the Research Ethics Literature . Review Journal of Autism and Developmental Disorders, 8(1), 22-36. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-020-00204-z OpenAlex: https://openalex.org/W3025970378
    Crossref OpenAlex OpenCitations
  80. Foster K. (2017). Pick two . In: Brown LXZ, Ashkenazy E, Morénike GO, eds. All the Weight of Our Dreams: On Living Racialized Autism. London: DragonBee Press;, 244.
    Type: Autre
    Crossref
  81. Paul Wehman , Carol Schall , Jennifer McDonough , Adam Sima , Alissa Brooke , Whitney Ham et al. (2020). Competitive Employment for Transition-Aged Youth with Significant Impact from Autism: A Multi-site Randomized Clinical Trial . Journal of Autism and Developmental Disorders, 50(6), 1882-1897. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-019-03940-2 OpenAlex: https://openalex.org/W2920655089
    OpenAlex
  82. Sara Bernstein (2020). The metaphysics of intersectionality . Philosophical Studies, 177(2), 321-335. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11098-019-01394-x OpenAlex: https://openalex.org/W2996673336
    Crossref OpenAlex OpenCitations
  83. Temple Lovelace , Mary P. Comis , JoVonne M. Tabb , Olajumoke E. Oshokoya (2022). Missing from the Narrative: A Seven-Decade Scoping Review of the Inclusion of Black Autistic Women and Girls in Autism Research . Behavior Analysis in Practice, 15(4), 1093-1105. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40617-021-00654-9 OpenAlex: https://openalex.org/W3177117256
    OpenAlex OpenCitations
  84. Cho S. (2009). Post-racialism . Iowa Law Rev, 9(5), 1589.
    Type: Autre
    Crossref
  87. Bonilla-Silva E. (2021). 6th ed . 6th ed.
    Type: Autre
    Crossref
  88. Melissa N. McLeod , Daliah Heller , Meredith G. Manze , Sandra E. Echeverria (2020). Police Interactions and the Mental Health of Black Americans: a Systematic Review . Journal of Racial and Ethnic Health Disparities, 7(1), 10-27. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40615-019-00629-1 OpenAlex: https://openalex.org/W2971652078
    Crossref OpenAlex OpenCitations
  89. Brown LXZ. (2017). I, too, am racialized . In: Brown LXZ, Ashkenazy E, Morénike GO, eds. All the Weight of Our Dreams: On Living Racialized Autism. London: DragonBee Press;, 414.
    Type: Autre
    Crossref
  91. Carl C. Bell , Willie Mae Jackson , Briatta H. Bell (2015). Misdiagnosis of African-Americans with psychiatric issues—Part II . J Natl Med Assoc, 107(3), 34. Elsevier BV.
    Type: Article DOI: 10.1016/s0027-9684(15)30048-1 OpenAlex: https://openalex.org/W4244543047
    Crossref OpenAlex
  92. Jamie N. Pearson , Jared H. Stewart-Ginsburg , Kayla M. Malone , Lonnie D. C. Manns , DeVoshia M. Martin , Danyale Sturdivant (2023). Best FACES Forward: Outcomes of an Advocacy Intervention for Black Parents Raising Autistic Youth . Exceptionality, 31(2), 135-148. Informa UK Limited.
    Type: Article DOI: 10.1080/09362835.2022.2100392 OpenAlex: https://openalex.org/W4287147349
    OpenAlex OpenCitations
  93. Patricia M. Dietz , Charles E. Rose , Dedria McArthur , Matthew Maenner (2020). National and State Estimates of Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 50(12), 4258-4266. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04494-4 OpenAlex: https://openalex.org/W3021253625
    OpenAlex OpenCitations
  94. (s. d.). Nodjimbadem K. The long painful history of police brutality in the U. S. [Internet]. Smithsonian. [cited November 19 2017]. http://www.smithsonianmag.com.libproxy.lib.unc.edu/smithsonian-institution/long-painful-history-police-brutality-in-the-us-180964098/ (accessed June16 2022).
    Type: Autre
    Crossref
  95. Megan M. Parry , Jessica Huff (2022). Divergent perspectives: autistic adults' perceptions of the police . Policing: An International Journal, 45(3), 509-523. Emerald.
    Type: Article DOI: 10.1108/pijpsm-10-2021-0144 OpenAlex: https://openalex.org/W4214815463
    Crossref OpenAlex OpenCitations
  96. (s. d.). Fatal Force: 2018 police shootings database [Internet]. Wash. Post. [cited July 10 2018]. https://www-washingtonpost-com.libproxy.lib.unc.edu/graphics/2018/national/police-shootings-2018/ (accessed June16 2022).
    Type: Autre
    Crossref
  97. Caroline O'Hara , Catherine Y. Chang , Amanda L. Giordano (2021). Multicultural Competence in Counseling Research: The Cornerstone of Scholarship . Journal of Counseling & Development, 99(2), 200-209. Wiley.
    Type: Article DOI: 10.1002/jcad.12367 OpenAlex: https://openalex.org/W3134547839
    Crossref OpenAlex OpenCitations
  98. Jamie N. Pearson , Hedda Meadan (2021). FACES: An Advocacy Intervention for African American Parents of Children With Autism . Intellectual and Developmental Disabilities, 59(2), 155-171. Informa UK Limited.
    Type: Article DOI: 10.1352/1934-9556-59.2.155 OpenAlex: https://openalex.org/W3139955341
    OpenAlex
  99. Aniek van Herwaarden , Nienke Peters-Scheffer , Robert Didden (2022). Eudaimonic well-being in individuals with mild to moderate intellectual disability . Research in Developmental Disabilities, 128, 104273. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2022.104273 OpenAlex: https://openalex.org/W4281626682
    Crossref OpenAlex OpenCitations
  100. Marisse Sonido , Ye In (Jane) Hwang , Preeyaporn Srasuebkul , Julian Trollor , Samuel R. C. Arnold (2022). Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum . Journal of Autism and Developmental Disorders, 52(7), 2997-3014. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05178-3 OpenAlex: https://openalex.org/W3178332225
    Crossref OpenAlex OpenCitations
  101. Molinsky A. (2007). Cross-cultural code-switching: The psychological challenges of adapting behavior in foreign cultural interactions . Acad Manage, 32(2), 622.
    Type: Autre
    Crossref
  102. Ed-Dee Williams , Matthew J. Smith , Kari L. Sherwood , Temple Lovelace , Lauren Bishop (2022). Brief Report: Initial Evidence of Depressive Symptom Disparities among Black and White Transition Age Autistic Youth . Journal of Autism and Developmental Disorders, 52(8), 3740-3745. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05242-y OpenAlex: https://openalex.org/W3193954280
    Crossref OpenAlex OpenCitations
  103. Brandon S. Aylward , Diana E. Gal-Szabo , Sharief Taraman (2021). Racial, Ethnic, and Sociodemographic Disparities in Diagnosis of Children with Autism Spectrum Disorder . Journal of Developmental & Behavioral Pediatrics, 42(8), 682-689. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/dbp.0000000000000996 OpenAlex: https://openalex.org/W3199889683
    Crossref OpenAlex OpenCitations
  104. Nikki Jones (2009). “I was Aggressive for the Streets, Pretty for the Pictures” . Gender & Society, 23(1), 89-93. SAGE Publications.
    Type: Article DOI: 10.1177/0891243208326676
    OpenCitations
  105. Oh A (2017). Predictors of employment status among adults with autism spectrum disorder . Work (Reading, Mass.), 56(2), 345.
    Type: Autre
    Crossref
  106. Wheman P (2020). Competitive employment for transition-aged youth with significant impact from autism: A multi-site randomized clinical trial . J Autism Dev Disord, 50(6), 1573.
    Type: Autre
    Crossref
  107. Hall BL. (1992). (1992) . From margins to center? The development and purpose of participatory research. Am Sociol., 23(4), 15.
    Type: Autre
    Crossref