Adult Autism Research Priorities and Conceptualization in Computing Research: Invitation to Co-lead with Autistic Adults

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Morgado Ramirez, D. Z., Barbareschi, G., & Holloway, C. (2024). Adult Autism Research Priorities and Conceptualization in Computing Research: Invitation to Co-lead with Autistic Adults. ACM Transactions on Computer-Human Interaction, 31(4), 1-47. https://doi.org/10.1145/3635148

Publication date: 24 Jan 2024 Added to AutiHub: 17 Oct 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)
  1. Dafne Zuleima Morgado Ramirez *
  2. Giulia Barbareschi
  3. Cathy Holloway

Abstract

Autism research is primarily targeted toward children and at normalizing autistic traits. We conducted a literature review of computing research on adult autism, focusing on identifying research priorities set by autistic adults and their allies, determining participation levels, identifying how autism is conceptualized, and the types of technologies designed and their purposes. We found: (1) that computing research in adult autism is neither representative of older and non-binary adults nor of autistic adults living outside the USA and Europe; (2) a lack of technologies geared towards the priorities set by autistic adults and their allies; and (3) that computing research primarily views adult autism as a medical deficit and builds design solutions and technologies that follow this marginalizing narrative. We discuss the status quo and provide recommendations for computing researchers to encourage research built on user needs and that is respectful of autistic adults.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 17 Oct 2026 01:28.

Cited references
253
With a DOI
214
Without a DOI, from raw bibliography text
37
60 / 253 (23.7%) cited references include at least one author identified as autistic.
References with data to complete
27 / 253 (10.7%)
References with detected author names
226 / 253 (89.3%)
Without detected author names
27
Without a structured title
13
Without a stable identifier
35
References with raw author names still to review
23
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
928
From DOI or external metadata
928
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
48
506 / 928 (54.5%) names are linked to an author already present in AutiHub. 422 / 928 (45.5%) names are not yet linked.
Names linked to a person identified as autistic
143 / 928 (15.4%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 143 / 506 (28.3%). Distinct people identified as autistic: 110 / 755 (14.6%).
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