« Il faut que quelque chose change » : expériences en matière de santé mentale de jeunes adultes autistes en Angleterre

Titre original en anglais : ‘Something needs to change’: Mental health experiences of young autistic adults in England

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Crane, L., Adams, F., Harper, G., Welch, J., & Pellicano, E. (2018). ‘Something needs to change’: Mental health experiences of young autistic adults in England. Autism, 23(2), 477-493. https://doi.org/10.1177/1362361318757048

Publication date: 07/02/2018 Ajout dans AutiHub: 14/09/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Laura Crane
  2. Fern Adams
  3. Georgia Harper *
  4. Jack Welch
  5. Elizabeth Pellicano

Résumé

La fréquence et la prévalence des problèmes de santé mentale sont élevées chez les jeunes, plusieurs obstacles à la recherche d’aide ayant été relevés dans ce groupe. Des taux élevés de problèmes de santé mentale ont également été rapportés chez les enfants et les adultes sur le spectre de l’autisme. Pris ensemble, les jeunes autistes peuvent constituer un groupe particulièrement vulnérable en matière de santé mentale. Pourtant, très peu de travaux ont porté sur les besoins et les expériences en matière de santé mentale des jeunes adultes autistes (16–25 ans). En adoptant une approche de recherche participative communautaire (CBPR), dans laquelle des chercheurs universitaires et de jeunes adultes autistes ont collaboré dans le cadre d’un partenariat de recherche équitable, nous avons exploré les expériences des jeunes autistes concernant les problèmes de santé mentale et leurs points de vue sur le soutien qu’ils ont recherché, le cas échéant, pour ces problèmes. Au total, 130 jeunes adultes autistes ont participé à la recherche : 109 ont répondu à une enquête en ligne et 21 ont participé à des entretiens détaillés. Les résultats soulignent que les jeunes autistes éprouvent des difficultés à évaluer leur santé mentale, subissent des niveaux élevés de stigmatisation et rencontrent souvent de graves obstacles lorsqu’ils tentent d’accéder à un soutien en santé mentale. Les résultats montrent également qu’écouter les jeunes autistes et apprendre d’eux est essentiel pour garantir que leurs besoins en matière de santé mentale soient satisfaits.

There is a high incidence and prevalence of mental health problems among young people, with several barriers to help-seeking noted in this group. High rates of mental health problems have also been reported in children and adults on the autism spectrum. Taken together, young autistic people may be a particularly vulnerable group when it comes to mental health. Yet, there has been remarkably little work on the mental health needs and experiences of young autistic adults (16–25 years). Adopting a community-based participatory research (CBPR) approach – in which academic researchers and young autistic adults collaborated in an equitable research partnership – we explored young autistic people’s experiences of mental health problems and their perspectives on the support they sought, if any, for these problems. A total of 130 young autistic adults took part in the research: 109 completed an online survey and 21 took part in detailed interviews. The results highlight how young autistic people find it difficult to evaluate their mental health, experience high levels of stigma and often face severe obstacles when trying to access mental health support. The findings also demonstrate how listening to – and learning from – young autistic people is crucial in ensuring that their mental health needs are met.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 14/09/2026 18:08.

Références citées
75
Avec un DOI
65
Sans DOI, à partir du texte brut de la bibliographie
10
6 / 75 (8,0 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
6 / 75 (8,0 %)
Références avec noms d’auteurices détectés
72 / 75 (96,0 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
5
Sans identifiant stable
9
Références avec noms bruts d’auteurices restant à vérifier
2
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
276
À partir du DOI ou de métadonnées externes
276
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
4
97 / 276 (35,1 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 179 / 276 (64,9 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
17 / 276 (6,2 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 17 / 97 (17,5 %). Personnes distinctes identifiées comme autistes : 7 / 223 (3,1 %).
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