Le cadre A3ReAcH (accessibilite de la recherche en sante pour les personnes autistes, TDAH et AuDHD) : principes pour une recherche inclusive en sante avec des personnes autistes, TDAH et AuDHD en radiographie et en technologie des rayonnements medicaux

Titre original en anglais : The A3ReAcH (Autistic, ADHD and AuDHD research accessibility in healthcare) framework: Principles for inclusive healthcare research with autistic, ADHD and AuDHD individuals in radiography and medical radiation technology

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Potts, B., Skelton, E., Pavlopoulou, G., Karaminis, T., & Malamateniou, C. (2025). The A3ReAcH (Autistic, ADHD and AuDHD research accessibility in healthcare) framework: Principles for inclusive healthcare research with autistic, ADHD and AuDHD individuals in radiography and medical radiation technology. Journal of Medical Imaging and Radiation Sciences, 56(5), 102009. https://doi.org/10.1016/j.jmir.2025.102009

Date de publication: 01/07/2025 Ajout dans AutiHub: 25/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. B. Potts *
  2. Emily Skelton
  3. Georgia Pavlopoulou
  4. Themis Karaminis
  5. C. Malamateniou

Résumé

CONTEXTE : Les personnes autistes, TDAH et AuDHD sont souvent exclues de la recherche en sante/radiographie en raison de methodologies inaccessibles et de biais systemiques, perpetuant des inegalites de sante bien documentees. Bien que les chercheurs puissent le reconnaitre, ils peuvent ne pas etre equipes pour y remedier efficacement. Cette revue narrative presente le cadre A3ReAcH (Autistic, ADHD and AuDHD Research Accessibility in Healthcare), qui fournit des orientations pratiques pour concevoir et mener une recherche accessible, inclusive et participative. METHODE : Deux recherches d'etudes evaluees par les pairs (2019-2024) ont ete menees a l'aide d'Emcare, MEDLINE, Social Policy and Practice, CINAHL, Psychology and Behavioral Sciences Collection, Google Scholar et PubMed. Les themes principaux ont ete identifies, et un cadre a ete synthetise, en alignement avec les differentes etapes du cycle de vie de la recherche (de la planification a la diffusion). RESULTATS : Les recherches ont permis de retrouver 86 articles : 54 methodologiques et 32 recherches originales. Les themes principaux sont presentes sous la forme d'un cadre comportant 12 elements. Le cadre A3ReAcH decrit des strategies pratiques telles que la diversification des equipes de recherche, la garantie d'un partage equitable du pouvoir, la priorisation des methodes participatives et l'adaptation des plans de recherche aux besoins neurodivergents. Il souligne egalement l'importance d'un recrutement accessible, d'une remuneration equitable et d'une diffusion inclusive. En outre, il met en lumiere le role de l'intersectionnalite dans le faconnement des experiences neurodivergentes et fournit des recommandations pour reduire les obstacles systemiques dans la recherche. CONCLUSION : Toute recherche en sante/radiographie devrait inclure et respecter les experiences neurodivergentes. Le cadre A3ReAcH permet aux chercheurs de produire une recherche plus equitable et exploitable en incluant les voix neurodivergentes et en demantelant les obstacles a la participation. En integrant ces principes, les chercheurs en sante/radiographie peuvent ameliorer l'experience des participants, renforcer la qualite des donnees et impulser un changement systemique dans la recherche en sante/radiographie, en allant vers des resultats qui representent veritablement la diversite de la population.

BACKGROUND: Autistic, ADHD and AuDHD individuals are often excluded from healthcare/radiography research due to inaccessible methodologies and systemic biases, perpetuating well-documented health inequalities. While researchers can recognise this, they may be unequipped to address it effectively. This narrative review introduces the A3ReAcH (Autistic, ADHD and AuDHD Research Accessibility in Healthcare) framework, which provides practical guidance for designing and conducting accessible, inclusive and participatory research. METHOD: Two searches of peer-reviewed studies (2019-2024) were conducted using Emcare, MEDLINE, Social Policy and Practice, CINAHL, the Psychology and Behavioral Sciences Collection, Google Scholar, and PubMed. The key themes were identified, and a framework was synthesised that aligns with different stages of the research lifecycle (planning to dissemination). RESULTS: The searches retrieved 86 articles: 54 methodological and 32 original research. Key themes are presented as a 12-item framework. The A3ReAcH framework outlines practical strategies such as diversifying research teams, ensuring equitable power-sharing, prioritising participatory methods, and adapting research designs to neurodivergent needs. It also emphasises the importance of accessible recruitment, fair compensation, and inclusive dissemination. Additionally, it highlights the role of intersectionality in shaping neurodivergent experiences and provides recommendations to reduce systemic barriers in research. CONCLUSION: All healthcare/radiography research should include and respect neurodivergent experiences. The A3ReAcH framework empowers researchers to produce more equitable and actionable research by including neurodivergent voices and dismantling barriers to participation. By integrating these principles, healthcare/radiography researchers can improve the participant experience, enhance data quality, and drive systemic change in healthcare/radiography research, moving towards findings that genuinely represent the diversity of the population.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 14:09.

Références citées
161
Avec un DOI
143
Sans DOI, à partir du texte brut de la bibliographie
18
61 / 161 (37,9 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
5 / 161 (3,1 %)
Références avec noms d’auteurices détectés
158 / 161 (98,1 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
3
Sans identifiant stable
15
Références avec noms bruts d’auteurices restant à vérifier
1
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
861
À partir du DOI ou de métadonnées externes
861
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
1
595 / 861 (69,1 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 266 / 861 (30,9 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
186 / 861 (21,6 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 186 / 595 (31,3 %). Personnes distinctes identifiées comme autistes : 110 / 660 (16,7 %).
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