Préférences linguistiques liées à l’autisme chez des personnes anglophones à travers le monde : une étude par méthodes mixtes

Titre original en anglais : Autism‐related language preferences of English‐speaking individuals across the globe: A mixed methods investigation

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Keating, C. T., Hickman, L., Leung, J., Monk, R., Montgomery, A., Heath, H., & Sowden, S. (2022). Autism‐related language preferences of English‐speaking individuals across the globe: A mixed methods investigation. Autism Research, 16(2), 406-428. https://doi.org/10.1002/aur.2864

Date de publication: 06/12/2022 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
1 / 7 (14,3 %)
  1. Connor Tom Keating
  2. Lydia Hickman
  3. Joan Leung
  4. Ruth Monk *
  1. Alicia Montgomery
  2. Hannah Heath
  3. Sophie Sowden

Résumé

Au cours des deux dernières décennies, les discussions sur les termes à utiliser pour parler de l’autisme se sont multipliées. Bien que ces discussions aient largement porté sur la pertinence du langage centré sur l’identité et du langage centré sur la personne, plus récemment, ce débat s’est élargi pour englober d’autres terminologies liées à l’autisme (p. ex., « haut niveau de fonctionnement »). À ce jour, les études universitaires n’ont pas examiné les préférences linguistiques des personnes autistes en dehors du Royaume-Uni ou de l’Australie, ni comparé les niveaux d’adhésion entre les pays. Par conséquent, la présente étude a adopté une approche par méthodes mixtes, employant à la fois des techniques quantitatives et qualitatives, afin d’explorer les préférences linguistiques de 654 adultes autistes anglophones à travers le monde. Malgré des variations des niveaux d’adhésion entre les pays, nous avons constaté que les termes les plus populaires étaient similaires : les termes « Autisme », « Personne autiste », « Est autiste », « Différence neurologique/cérébrale », « Différences », « Défis », « Difficultés », « Personnes neurotypiques » et « Neurotypiques » étaient systématiquement privilégiés dans tous les pays. Malgré un consensus relatif entre les groupes, nos données quantitatives et qualitatives démontrent qu’il n’existe pas de manière universellement acceptée de parler de l’autisme. Notre analyse thématique a révélé les raisons sous-jacentes aux préférences des participants, générant six thèmes principaux, et a mis en lumière un principe directeur important : respecter les préférences personnelles. Ces résultats ont des implications importantes pour orienter les pratiques, la recherche et les politiques linguistiques à l’échelle mondiale.

Over the past two decades, there have been increasing discussions around which terms should be used to talk about autism. Whilst these discussions have largely revolved around the suitability of identity-first language and person-first language, more recently this debate has broadened to encompass other autism-related terminology (e.g., 'high-functioning'). To date, academic studies have not investigated the language preferences of autistic individuals outside of the United Kingdom or Australia, nor have they compared levels of endorsement across countries. Hence, the current study adopted a mixed-methods approach, employing both quantitative and qualitative techniques, to explore the linguistic preferences of 654 English-speaking autistic adults across the globe. Despite variation in levels of endorsement between countries, we found that the most popular terms were similar-the terms 'Autism', 'Autistic person', 'Is autistic', 'Neurological/Brain Difference', 'Differences', 'Challenges', 'Difficulties', 'Neurotypical people', and 'Neurotypicals' were consistently favored across countries. Despite relative consensus across groups, both our quantitative and qualitative data demonstrate that there is no universally accepted way to talk about autism. Our thematic analysis revealed the reasons underlying participants' preferences, generating six core themes, and illuminated an important guiding principle-to respect personal preferences. These findings have significant implications for informing practice, research and language policy worldwide.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
81
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
11 / 81 (13,6 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
47 / 248 (19,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 47 / 138 (34,1 %). Auteurices cité·es distinct·es identifié·es comme autistes : 43 / 212 (20,3 %).
Occurrences citées rattachées à la base AutiHub
138 / 248 (55,6 %)
Auteurices cité·es distinct·es rattaché·es : 105 / 212 (49,5 %)
Occurrences rattachées, non identifiées comme autistes
91 / 138 (65,9 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 91 / 248 (36,7 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 62 / 105 (59,0 %).
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