Un appel en faveur d'une recherche dirigée par des personnes autistes explorant les définitions du rétablissement chez les personnes autistes atteintes d'un trouble des conduites alimentaires

Titre original en anglais : A call for autism‐led research exploring definitions of recovery in Autistic individuals with an eating disorder

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Nimbley, E., Maloney, E., & Duffy, F. (2023). A call for autism‐led research exploring definitions of recovery in Autistic individuals with an eating disorder. International Journal of Eating Disorders, 56(7), 1335-1340. https://doi.org/10.1002/eat.23953

Date de publication: 12/04/2023 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)
  1. Emy Nimbley
  2. Ellen Maloney *
  3. Fiona Duffy

Résumé

LACUNE DE RECHERCHE : Il est désormais établi que les définitions du rétablissement dans les troubles des conduites alimentaires (TCA) devraient être éclairées par l'expérience vécue/en cours de vie des personnes et prendre en compte un large éventail de facteurs physiques, comportementaux et psychologiques. L'autisme est une condition concomitante fréquente dans les TCA, reflétant des besoins et des expériences uniques ; toutefois, à ce jour, très peu de recherches ont exploré les définitions du rétablissement des TCA dans les populations autistes. Le présent article examinera brièvement ce que nous savons de l'autisme et des TCA, avant d'aborder la manière dont nous pouvons appliquer et étendre ce que nous savons de la recherche plus large sur le rétablissement des TCA aux besoins uniques des personnes autistes atteintes de TCA. APPROCHE PROPOSÉE : Nous proposons que de futures études soient menées de toute urgence afin d'explorer les définitions et les conceptualisations du rétablissement chez les personnes autistes atteintes de TCA, en s'appuyant sur des approches de recherche participative dirigées par des personnes autistes et en intégrant des facteurs physiques, comportementaux et psychologiques. DISCUSSION : Les avantages et les obstacles possibles à la mise en œuvre de l'approche proposée sont examinés, avant que les auteurs ne présentent des suggestions spécifiques concernant les plans participatifs et les objectifs de futures études. Des approches multidimensionnelles et à méthodes mixtes du rétablissement des TCA contribueront à intégrer des résultats mesurables en clinique aux perspectives fondées sur l'expérience vécue/en cours de vie. IMPORTANCE PUBLIQUE : Les TCA sont fréquents chez les personnes autistes ; toutefois, on sait très peu de choses sur les définitions du rétablissement des TCA dans cette population. Des définitions transdisciplinaires, fondées sur la recherche et impliquant l'expérience vécue/en cours de vie à toutes les étapes du processus de recherche, généreront une recherche pertinente et translationnelle.

RESEARCH GAP: It is now established that definitions of recovery in eating disorders (EDs) should be informed by the lived/living experience of individuals and consider a broad range of physical, behavioral, and psychological factors. Autism is a common co-occurring condition in EDs reflecting unique needs and experiences; however, very little research to date has explored definitions of recovery from EDs in Autistic populations. The current article will briefly review what we know about autism and EDs, before addressing how we can apply and extend what we know about broader ED recovery research to the unique needs of Autistic individuals with ED. SUGGESTED APPROACH: We propose that future studies are urgently required exploring definitions and conceptualizations of recovery in Autistic individuals with EDs, rooted in autism-led, participatory research approaches and incorporating physical, behavioral, and psychological factors. DISCUSSION: Benefits and possible obstacles of implementing the proposed approach are discussed, before the authors outline specific suggestions for participatory designs and targets for future studies. Multidimensional and mixed method approaches to ED recovery will work toward integrating clinically measurable outcomes with lived/living experience perspectives. PUBLIC SIGNIFICANCE: EDs are common in Autistic individuals, however, very little is known about definitions of ED recovery in this population. Cross-disciplinary, research-driven definitions involving lived/living experience at all stages of the research process will generate meaningful and translational research.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
42
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
4 / 42 (9,5 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
7 / 204 (3,4 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 7 / 40 (17,5 %). Auteurices cité·es distinct·es identifié·es comme autistes : 5 / 183 (2,7 %).
Occurrences citées rattachées à la base AutiHub
40 / 204 (19,6 %)
Auteurices cité·es distinct·es rattaché·es : 27 / 183 (14,8 %)
Occurrences rattachées, non identifiées comme autistes
33 / 40 (82,5 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 33 / 204 (16,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 22 / 27 (81,5 %).
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