Pratiques inclusives pour la recherche sur le neurodéveloppement

Titre original en anglais : Inclusive Practices for Neurodevelopmental Research

Fletcher‐Watson, S., Brook, K., Hallett, S., Murray, F., & Crompton, C. J. (2021). Inclusive Practices for Neurodevelopmental Research. Current Developmental Disorders Reports, 8(2), 88-97. https://doi.org/10.1007/s40474-021-00227-z

Date de publication: 08/04/2021 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
3 / 5 (60,0 %)

Résumé

Résumé Objectif de la revue La pratique de recherche inclusive est à la fois une obligation morale et un impératif pratique. Nous examinons ici sa pertinence pour l'étude de la diversité neurodéveloppementale en particulier, en décrivant brièvement une gamme de modèles de recherche inclusive et en justifiant leur utilisation. La revue elle-même est rédigée de manière inclusive en coautorat avec trois collaborateurs autistes et leaders communautaires qui possèdent tous une vaste expérience de la participation à la recherche. Résultats récents En nous appuyant sur des arguments théoriques et des projets exemplaires spécifiques, nous décrivons six considérations clés pour la mise en oeuvre de la recherche inclusive. Elles sont les suivantes : faire les premiers pas vers une pratique inclusive ; définir les attentes ; mesures d'inclusion propres à la communauté ; inclusion et intersectionnalité ; le rôle de l'autonomisation ; et échange de connaissances pour l'inclusion. Ensemble, ces sections fournissent un guide illustré des principes et du processus de la recherche inclusive. Résumé La pratique de recherche inclusive est à la fois bénéfique pour la recherche sur le neurodéveloppement et une exigence d'excellence dans ce domaine. Nous appelons les organismes d'attribution de subventions à s'engager davantage dans ce programme de recherche participative afin de faciliter une recherche non seulement inclusive, mais aussi émancipatrice.

Abstract Purpose of Review Inclusive research practice is both a moral obligation and a practical imperative. Here we review its relevance to the study of neurodevelopmental diversity in particular, briefly describing a range of inclusive research models and justifying their use. The review itself is inclusively co-authored with three autistic collaborators and community leaders who all have extensive experience of research involvement. Recent Findings Drawing on theoretical arguments and specific exemplar projects, we describe six key considerations in the delivery of inclusive research. These are the following: taking the first steps towards inclusive practice; setting expectations; community-specific inclusion measures; inclusion and intersectionality; the role of empowerment; and knowledge exchange for inclusion. Together, these sections provide an illustrated guide to the principles and process of inclusive research. Summary Inclusive research practice is both beneficial to and a requirement of excellence in neurodevelopmental research. We call for greater engagement in this participatory research agenda from grant-awarding bodies to facilitate not just inclusive but also emancipatory research.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
74
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
8 / 74 (10,8 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
18 / 316 (5,7 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 18 / 129 (14,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 14 / 277 (5,1 %).
Occurrences citées rattachées à la base AutiHub
129 / 316 (40,8 %)
Auteurices cité·es distinct·es rattaché·es : 93 / 277 (33,6 %)
Occurrences rattachées, non identifiées comme autistes
111 / 129 (86,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 111 / 316 (35,1 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 79 / 93 (84,9 %).
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