Pratiques inclusives pour la recherche sur le neurodéveloppement

Titre original en anglais : Inclusive Practices for Neurodevelopmental Research

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». trois auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Fletcher-Watson, S., Brook, K., Hallett, S., Murray, F., & Crompton, C. J. (2021). Inclusive Practices for Neurodevelopmental Research. Current Developmental Disorders Reports, 8(2), 88-97. https://doi.org/10.1007/s40474-021-00227-z

Date de publication: 08/04/2021 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
3 / 5 (60,0 %)
  1. Sue Fletcher-Watson
  2. Kabie Brook *
  3. Sonny Hallett *
  4. Fergus Murray *
  5. Catherine J. Crompton

Résumé

Résumé Objectif de la revue La pratique de recherche inclusive est à la fois une obligation morale et un impératif pratique. Nous examinons ici sa pertinence pour l'étude de la diversité neurodéveloppementale en particulier, en décrivant brièvement une gamme de modèles de recherche inclusive et en justifiant leur utilisation. La revue elle-même est rédigée de manière inclusive en coautorat avec trois collaborateurs autistes et leaders communautaires qui possèdent tous une vaste expérience de la participation à la recherche. Résultats récents En nous appuyant sur des arguments théoriques et des projets exemplaires spécifiques, nous décrivons six considérations clés pour la mise en oeuvre de la recherche inclusive. Elles sont les suivantes : faire les premiers pas vers une pratique inclusive ; définir les attentes ; mesures d'inclusion propres à la communauté ; inclusion et intersectionnalité ; le rôle de l'autonomisation ; et échange de connaissances pour l'inclusion. Ensemble, ces sections fournissent un guide illustré des principes et du processus de la recherche inclusive. Résumé La pratique de recherche inclusive est à la fois bénéfique pour la recherche sur le neurodéveloppement et une exigence d'excellence dans ce domaine. Nous appelons les organismes d'attribution de subventions à s'engager davantage dans ce programme de recherche participative afin de faciliter une recherche non seulement inclusive, mais aussi émancipatrice.

Abstract Purpose of Review Inclusive research practice is both a moral obligation and a practical imperative. Here we review its relevance to the study of neurodevelopmental diversity in particular, briefly describing a range of inclusive research models and justifying their use. The review itself is inclusively co-authored with three autistic collaborators and community leaders who all have extensive experience of research involvement. Recent Findings Drawing on theoretical arguments and specific exemplar projects, we describe six key considerations in the delivery of inclusive research. These are the following: taking the first steps towards inclusive practice; setting expectations; community-specific inclusion measures; inclusion and intersectionality; the role of empowerment; and knowledge exchange for inclusion. Together, these sections provide an illustrated guide to the principles and process of inclusive research. Summary Inclusive research practice is both beneficial to and a requirement of excellence in neurodevelopmental research. We call for greater engagement in this participatory research agenda from grant-awarding bodies to facilitate not just inclusive but also emancipatory research.

Bibliographie citée par cette référence

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Références citées
74
Avec un DOI
60
Sans DOI, à partir du texte brut de la bibliographie
12
12 / 74 (16,2 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
12 / 74 (16,2 %)
Références avec noms d’auteurices détectés
65 / 74 (87,8 %)
Sans nom d’auteurice détecté
9
Sans titre structuré
12
Sans identifiant stable
12
Références avec noms bruts d’auteurices restant à vérifier
9
Références avec problème de récupération des métadonnées externes
0
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Noms d’auteurices détectés dans la bibliographie citée
316
À partir du DOI ou de métadonnées externes
316
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
18
140 / 316 (44,3 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 176 / 316 (55,7 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
28 / 316 (8,9 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 28 / 140 (20,0 %). Personnes distinctes identifiées comme autistes : 21 / 276 (7,6 %).
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