Priorités des adultes autistes pour les futures recherches sur l'emploi et l'autisme : perspectives du Royaume-Uni

Titre original en anglais : Autistic Adults' Priorities for Future Autism Employment Research: Perspectives from the United Kingdom

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». trois auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Davies, J., Romualdez, A. M., Malyan, D., Heasman, B., Livesey, A., Walker, A. S., Pellicano, E., & Remington, A. (2023). Autistic Adults' Priorities for Future Autism Employment Research: Perspectives from the United Kingdom. Autism in Adulthood, 6(1), 72-85. https://doi.org/10.1089/aut.2022.0087

Date de publication: 17/05/2023 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
3 / 8 (37,5 %)
  1. Jade Davies
  2. Anna Melissa Romualdez
  3. Danae Malyan
  4. Brett Heasman *
  1. Adam Livesey *
  2. Amy S. Walker *
  3. Elizabeth Pellicano
  4. Anna Remington

Résumé

Contexte : Un nombre croissant de recherches ont cherché à comprendre les priorités de recherche des personnes autistes. Plusieurs de ces études ont identifié l'emploi comme une priorité de recherche majeure. Cependant, peu de tentatives ont été faites pour identifier des priorités spécifiques et concrètes dans ce domaine. Méthodes : Au moyen d'une enquête en ligne, nous avons interrogé 197 personnes autistes au Royaume-Uni sur leurs priorités pour les futures recherches sur l'autisme et l'emploi. Résultats : Les participants ont évoqué leurs difficultés à obtenir et à conserver un emploi valorisant et ont appelé les chercheurs à mener des recherches qui aboutissent à des améliorations directes des expériences d'emploi. Concernant leurs priorités de recherche, les participants ont indiqué la nécessité de recherches couvrant tous les aspects du parcours de l'emploi, de l'accès à l'emploi à la transition hors de l'emploi. Il est important de noter que les participants ont également discuté de la manière dont ces recherches devraient être menées : avec des personnes autistes en tant que co-chercheurs et en veillant à ce qu'un éventail diversifié de personnes autistes soit écouté. Conclusion : Bien qu'une grande partie des recherches existantes sur l'autisme et l'emploi semble correspondre aux priorités décrites dans cette étude, une attention apparemment minimale a été accordée aux étapes ultérieures du parcours professionnel (par exemple, progresser vers des postes plus élevés ou quitter le travail). En identifiant les écarts entre les priorités des personnes autistes et les recherches menées, nous pouvons aider les personnes autistes à orienter le programme de recherche et veiller à ce que les recherches sur l'autisme et l'emploi aient un impact positif sur la communauté qu'elles visent à servir.

Background: A growing body of research has sought to understand autistic people's research priorities. Several of these studies have identified employment as a key research priority. Yet, there have been a few attempts to identify specific, actionable priorities within this area. Methods: Using an online survey, we asked 197 autistic people in the United Kingdom about their priorities for future autism-employment research. Results: Participants spoke of their challenges in gaining and sustaining meaningful employment and called for researchers to conduct research that results in direct improvements to employment experiences. Regarding their research priorities, participants indicated a need for research covering all aspects of the employment lifecycle from accessing employment to transitioning out of employment. Importantly, participants also discussed how such research should be conducted: with autistic people as co-researchers and ensuring a diverse range of autistic people are listened to. Conclusion: While much existing autism-employment research appears to align with the priorities outlined in this study, seemingly minimal attention has been paid to later stages of the work lifecycle (e.g., progressing into more senior job roles or transitioning out of work). By identifying disparities between autistic people's priorities and the research being conducted, we can support autistic people to drive the research agenda and ensure autism-employment research positively impacts the community it aims to serve.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 17:07.

Références citées
100
Avec un DOI
80
Sans DOI, à partir du texte brut de la bibliographie
20
14 / 100 (14,0 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
14 / 100 (14,0 %)
Références avec noms d’auteurices détectés
87 / 100 (87,0 %)
Sans nom d’auteurice détecté
13
Sans titre structuré
14
Sans identifiant stable
19
Références avec noms bruts d’auteurices restant à vérifier
13
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
378
À partir du DOI ou de métadonnées externes
378
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
26
176 / 378 (46,6 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 202 / 378 (53,4 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
32 / 378 (8,5 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 32 / 176 (18,2 %). Personnes distinctes identifiées comme autistes : 23 / 306 (7,5 %).
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