Prendre en compte l'avantage Autistique dans la recherche qualitative : les forces des chercheurs Autistiques

Titre original en anglais : Considering the Autistic advantage in qualitative research: the strengths of Autistic researchers

Sources de métadonnées utilisées pour cette référence

OpenAlex Crossref OpenCitations
En savoir plus sur les sources utilisées

Grant, A. & Kara, H. (2021). Considering the Autistic advantage in qualitative research: the strengths of Autistic researchers. Contemporary Social Science, 16(5), 589-603. https://doi.org/10.1080/21582041.2021.1998589

Date de publication: 08/11/2021 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI) Texte intégral

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
2
Auteur·ices de la publication identifié·es comme autistes
1 / 2 (50,0 %)
  1. Aimee Grant *
  2. Helen Kara

Résumé

L'autisme est souvent considéré comme une déficience, empêchant les personnes Autistiques de réussir dans le monde. Nous soutenons que l'Autisme peut constituer un atout, en particulier dans certains contextes professionnels, notamment la recherche qualitative. Toutefois, les personnes Autistiques connaissent des taux plus élevés de chômage et de sous-emploi (compétences inférieures/temps partiel). Le modèle social de la neurodiversité met en évidence le rôle des lieux de travail et des pratiques inaccessibles. Parallèlement, le concept d'« avantage Autistique », un modèle fondé sur les forces, souligne les façons dont les personnes Autistiques constituent des atouts pour les structures sociales dans lesquelles elles existent. Deux femmes Autistiques diagnostiquées tardivement, reconnues comme expertes en recherche qualitative, passent en revue la littérature sur le handicap, la neurodiversité et la recherche ; présentent leurs propres forces professionnelles ; examinent leurs forces professionnelles à la lumière de la littérature ; et formulent des recommandations à l'intention des chercheurs Autistiques et de leurs collègues neurotypiques. Les caractéristiques et préférences Autistiques peuvent être des forces dans les équipes de recherche qualitative. Cela comprend de longues périodes de concentration (hyperfocalisation), conduisant à un « flux » et à une pensée créative, l'attention aux détails, ainsi qu'une connaissance détaillée des domaines thématiques qui intéressent la personne. Nous concluons que les équipes de recherche qualitative peuvent tirer profit d'une collaboration inclusive avec des chercheurs Autistiques. Nous présentons des orientations pour faciliter un travail inclusif, sans lesquelles les chercheurs Autistiques peuvent être handicapés par leur environnement de travail.

Autism is often viewed as an impairment, preventing Autistic individuals from achieving success in the world. We argue that, Autism can be an enhancement, particularly in some professional contexts, including qualitative research. However, Autistic people experience higher rates of unemployment and underemployment (lower skills/part-time). The social model of neurodiversity highlights the role of inaccessible workplaces and practices. Alongside this, the concept of the ‘Autistic Advantage', a strengths-based model, emphasises the ways in which Autistic people are assets to the social structures in which they exist. Two late diagnosed Autistic women, acknowledged as qualitative research experts, review the literature on Disability, neurodiversity and research; outline their own professional strengths; discuss their professional strengths in the light of the literature; and make recommendations for Autistic researchers and their neurotypical colleagues. Autistic qualities and preferences can be strengths in qualitative research teams. This includes long periods of concentration (hyperfocus), leading to ‘flow’ and creative thinking, attention to detail, and detailed knowledge of topic areas that are of interest to the individual. We conclude that qualitative research teams can benefit from working inclusively with Autistic researchers. We present guidance to facilitate inclusive working, without which Autistic researchers may be Disabled by their work environment

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
73
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
21 / 73 (28,8 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
40 / 178 (22,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 40 / 94 (42,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 25 / 152 (16,4 %).
Occurrences citées rattachées à la base AutiHub
94 / 178 (52,8 %)
Auteurices cité·es distinct·es rattaché·es : 70 / 152 (46,1 %)
Occurrences rattachées, non identifiées comme autistes
54 / 94 (57,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 54 / 178 (30,3 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 45 / 70 (64,3 %).
  1. Phil Cotterell , Carolyn Morris (2011). The capacity, impact and challenge of service users' experiential knowledge . Dans Critical Perspectives on User Involvement (pp. 57-69). Policy Press.
    Type: Chapitre de livre DOI: 10.1332/policypress/9781847427519.003.0006 OpenAlex: https://openalex.org/W178117149
    OpenAlex
  2. Clare Sarah Allely (2019). Understanding and recognising the female phenotype of autism spectrum disorder and the “camouflage” hypothesis: a systematic PRISMA review . Advances in Autism, 5(1), 14-37. Emerald.
    Type: Article DOI: 10.1108/aia-09-2018-0036 OpenAlex: https://openalex.org/W2906540201
    Crossref OpenAlex OpenCitations
  3. Laura S. DeThorne (2020). Revealing the Double Empathy Problem . The ASHA Leader, 25(3), 58-65. American Speech Language Hearing Association.
    Type: Article DOI: 10.1044/leader.ftr2.25042020.58 OpenAlex: https://openalex.org/W3014173079
    Crossref OpenAlex OpenCitations
  4. Damian Milton * (2013). ‘Filling in the Gaps’: A Micro-Sociological Analysis of Autism . Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(2), 1.
    Type: Article OpenAlex: https://openalex.org/W1520062856
    OpenAlex
  5. Anna Arstein-Kerslake , Yvette Maker , Eilionóir Flynn , Olympia Ward , Ruby Bell , Theresia Degener (2020). Introducing a Human Rights-based Disability Research Methodology . Human Rights Law Review, 20(3), 412-432. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/hrlr/ngaa021 OpenAlex: https://openalex.org/W3081532149
    Crossref OpenAlex OpenCitations
  6. Rosemarie Garland‐Thomson (2005). Feminist Disability Studies . Signs: Journal of Women in Culture and Society, 30(2), 1557-1587. University of Chicago Press.
    Type: Article DOI: 10.1086/423352 OpenAlex: https://openalex.org/W2039165908
    Crossref OpenAlex OpenCitations
  7. Jeanne Ericsson Lewin (1986). Emergence: Labeled Autistic Emergence: Labeled Autistic GrandinTemple and ScarianoMargaret M. (1986). Arena Press, 20 Commercial Blvd., Novato, CA 94947-6191. 183 pp., &8.95. American Journal of Occupational Therapy, 40(7), 503-503. SAGE Publications.
    Type: Article DOI: 10.5014/ajot.40.7.503b OpenAlex: https://openalex.org/W1586670382
    OpenAlex
  8. Moya Bailey , Izetta Autumn Mobley (2019). Work in the Intersections: A Black Feminist Disability Framework . Gender & Society, 33(1), 19-40. SAGE Publications.
    Type: Article DOI: 10.1177/0891243218801523 OpenAlex: https://openalex.org/W2897030654
    Crossref OpenAlex OpenCitations
  9. null (2016). null . Philosophy Study, 6(9). David Publishing Company.
    Type: Article DOI: 10.17265/2159-5313/2016.09.003 OpenAlex: https://openalex.org/W2567289819
    Crossref OpenAlex OpenCitations
  10. Margit Mayr (2013). Critical perspectives on user involvement . International Journal of Integrated Care, 13(3). Ubiquity Press, Ltd..
    Type: Article DOI: 10.5334/ijic.1204 OpenAlex: https://openalex.org/W1603665280
    OpenAlex
  11. Helen Kara (2013). Mental health service user involvement in research: where have we come from, where are we going? Journal of Public Mental Health, 12(3), 122-135. Emerald.
    Type: Article DOI: 10.1108/jpmh-01-2013-0001 OpenAlex: https://openalex.org/W1841361340
    Crossref OpenAlex OpenCitations
  13. Patty Douglas , Carla Rice , K. Runswick-Cole , A. Easton , M. F. Gibson , J. Gruson-Wood et al. (2021). Re-storying autism: a body becoming disability studies in education approach . International Journal of Inclusive Education, 25(5), 605-622. Informa UK Limited.
    Type: Article DOI: 10.1080/13603116.2018.1563835 OpenAlex: https://openalex.org/W2907326216
    Crossref OpenAlex OpenCitations
  14. Rosemary Telford , Alison Faulkner (2004). Learning about service user involvement in mental health research . Journal of Mental Health, 13(6), 549-559. Informa UK Limited.
    Type: Article DOI: 10.1080/09638230400017137 OpenAlex: https://openalex.org/W1978595742
    Crossref OpenAlex OpenCitations
  16. Niamat Khan , Lutz Binder , D. V. Krishna Pantakani , Abdul R. Asif (2017). MPA Modulates Tight Junctions' Permeability via Midkine/PI3K Pathway in Caco-2 Cells: A Possible Mechanism of Leak-Flux Diarrhea in Organ Transplanted Patients . Frontiers in Physiology, 8, 438. Frontiers Media SA.
    Type: Article DOI: 10.3389/fphys.2017.00438 OpenAlex: https://openalex.org/W2625403026
    Crossref OpenAlex OpenCitations
  17. Peter Taylor‐Gooby (2013). Why Do People Stigmatise the Poor at a Time of Rapidly Increasing Inequality, and What Can Be Done About It? The Political Quarterly, 84(1), 31-42. Wiley.
    Type: Article DOI: 10.1111/j.1467-923x.2013.02435.x OpenAlex: https://openalex.org/W2017403528
    Crossref OpenAlex OpenCitations
  19. Melanie Nind (2017). The practical wisdom of inclusive research . Qualitative Research, 17(3), 278-288. SAGE Publications.
    Type: Article DOI: 10.1177/1468794117708123 OpenAlex: https://openalex.org/W2567578451
    Crossref OpenAlex OpenCitations
  21. Broido E. (2020). CIT0008 Journal of Postsecondary Education and Disability, 33(3), 275.
    Type: Autre
    Crossref
  22. Nick J. Fox , Pam Alldred (2015). New materialist social inquiry: designs, methods and the research-assemblage . International Journal of Social Research Methodology, 18(4), 399-414. Informa UK Limited.
    Type: Article DOI: 10.1080/13645579.2014.921458 OpenAlex: https://openalex.org/W2159454496
    Crossref OpenAlex OpenCitations
  23. Robert Chapman * (2020). Defining neurodiversity for research and practice . Dans Neurodiversity Studies (pp. 218-220). Routledge.
    Type: Chapitre de livre DOI: 10.4324/9780429322297-21 OpenAlex: https://openalex.org/W3034044232
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  24. Vickie Curtis (2018). Who Takes Part in Online Citizen Science? Dans Online Citizen Science and the Widening of Academia (pp. 45-68). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-319-77664-4_3 OpenAlex: https://openalex.org/W2801365658
    Crossref OpenAlex OpenCitations
  25. Ellen Giarelli , Lisa D. Wiggins , Catherine E. Rice , Susan E. Levy , Russell S. Kirby , Jennifer Pinto-Martin et al. (2010). Sex differences in the evaluation and diagnosis of autism spectrum disorders among children . Disability and Health Journal, 3(2), 107-116. Elsevier BV.
    Type: Article DOI: 10.1016/j.dhjo.2009.07.001 OpenAlex: https://openalex.org/W2064689669
    Crossref OpenAlex OpenCitations
  26. Cotterell P (2012). Critical perspectives on user involvement . Critical perspectives on user involvement, 57.
    Type: Autre
    Crossref
  27. Darren Hedley , Ru Ying Cai , Mirko Uljarević , Mathilda Wilmot , Jennifer R. Spoor , Amanda L. Richdale et al. (2018). Transition to work: Perspectives from the autism spectrum . Autism, 22(5), 528-541. SAGE Publications.
    Type: Article DOI: 10.1177/1362361316687697 OpenAlex: https://openalex.org/W2605204670
    Crossref OpenAlex OpenCitations
  29. Laura Crane , Fern Adams , Georgia Harper , Jack Welch , Elizabeth Pellicano (2019). ‘Something needs to change’: Mental health experiences of young autistic adults in England . Autism, 23(2), 477-493. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318757048 OpenAlex: https://openalex.org/W2787370458
    Crossref OpenAlex OpenCitations
  31. Crenshaw K. (1989). CIT0012 University of Chicago Legal Forum, 1(8), 139.
    Type: Autre
    Crossref
  32. Aimee Grant * (2016). “I…don’t want to see you flashing your bits around”: Exhibitionism, othering and good motherhood in perceptions of public breastfeeding . Geoforum, 71, 52-61. Elsevier BV.
    Type: Article DOI: 10.1016/j.geoforum.2016.03.004 OpenAlex: https://openalex.org/W2301041904
    Crossref OpenAlex OpenCitations
  33. Crenshaw K. (1994). The public nature of private violence . The public nature of private violence, 93.
    Type: Autre
    Crossref
  34. Demie Kurz , Martha Fineman , Roxanne Mykitiuk (1995). The Public Nature of Private Violence. Contemporary Sociology, 24(5), 666. SAGE Publications.
    Type: Article DOI: 10.2307/2077388 OpenAlex: https://openalex.org/W2317688750
    OpenAlex
  35. Aimee Grant * (2013). Welfare reform, increased conditionality and discretion: Jobcentre Plus advisers’ experiences of targets and sanctions . Journal of Poverty and Social Justice, 21(2), 165-176. Bristol University Press.
    Type: Article DOI: 10.1332/175982713x668935 OpenAlex: https://openalex.org/W2322151737
    Crossref OpenAlex OpenCitations
  36. Herwig Czech (2018). Hans Asperger, National Socialism, and “race hygiene” in Nazi-era Vienna . Molecular Autism, 9(1), 29-29. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-018-0208-6 OpenAlex: https://openalex.org/W2801876565
    Crossref OpenAlex OpenCitations
  38. Kimberle Crenshaw (1991). Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color . Stanford Law Review, 43(6), 1241. JSTOR.
    Type: Article DOI: 10.2307/1229039 OpenAlex: https://openalex.org/W2337002970
    OpenAlex
  40. Kerri P. Nowell , Courtney J. Bernardin , Cynthia Brown , Stephen Kanne (2021). Characterization of Special Interests in Autism Spectrum Disorder: A Brief Review and Pilot Study Using the Special Interests Survey . Journal of Autism and Developmental Disorders, 51(8), 2711-2724. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04743-6 OpenAlex: https://openalex.org/W3092239336
    Crossref OpenAlex OpenCitations
  41. Christopher A. Riddle (2013). The Ontology of Impairment: Rethinking How We Define Disability . Dans Emerging Perspectives on Disability Studies (pp. 23-39). Palgrave Macmillan US.
    Type: Chapitre de livre DOI: 10.1057/9781137371973_2 OpenAlex: https://openalex.org/W2357391903
    Crossref OpenAlex OpenCitations
  42. Helen Kara (2018). Research Ethics in the Real World . Policy Press.
    Type: Livre DOI: 10.51952/9781447344780 OpenAlex: https://openalex.org/W4289291446
    Crossref OpenAlex OpenCitations
  44. Aimee Grant * , Dawn Mannay , Ruby Marzella (2018). ‘People try and police your behaviour’: the impact of surveillance on mothers and grandmothers’ perceptions and experiences of infant feeding . Families, Relationships and Societies, 7(3), 431-447. Bristol University Press.
    Type: Article DOI: 10.1332/204674317x14888886530223 OpenAlex: https://openalex.org/W2590871662
    Crossref OpenAlex OpenCitations
  46. Frost N. (2010). Secrecy and silence in the research process: Feminist reflections . Secrecy and silence in the research process: Feminist reflections, 42.
    Type: Autre
    Crossref
  48. J.F. Wilson , V. Lodhia , D.P. Courtney , I.J. Kirk , J.P. Hamm (2017). Evidence of hyper-plasticity in adults with Autism Spectrum Disorder . Research in Autism Spectrum Disorders, 43-44, 40-52. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2017.09.005 OpenAlex: https://openalex.org/W2762187642
    Crossref OpenAlex OpenCitations
  49. Temple Grandin , Margaret Scariano (1986). Emergence: labeled autistic .
    Type: Livre OpenAlex: https://openalex.org/W1545781466
    Crossref
  50. Aimee Grant * , Melanie Morgan , Dunla Gallagher , Dawn Mannay (2020). Smoking during pregnancy, stigma and secrets: Visual methods exploration in the UK . Women and Birth, 33(1), 70-76. Elsevier BV.
    Type: Article DOI: 10.1016/j.wombi.2018.11.012 OpenAlex: https://openalex.org/W2902874976
    Crossref OpenAlex OpenCitations
  51. Grant A. (2011). CIT0026 Research, Policy and Planning, 28(3), 161.
    Type: Autre
    Crossref
  53. Aimee Grant * (2018). Doing Excellent Social Research with Documents . Routledge.
    Type: Livre DOI: 10.4324/9781315177274 OpenAlex: https://openalex.org/W2890830473
    Crossref OpenAlex
  54. Tom Shakespeare (2017). Disability . Routledge.
    Type: Livre DOI: 10.4324/9781315624839 OpenAlex: https://openalex.org/W2889351463
    OpenAlex
  55. HM Government. (2021). The national strategy for autistic children, young people and adults: 2021 to 2026. https://www.gov.uk/government/publications/national-strategy-for-autistic-children-young-people-and-adults-2021-to-2026 viewed 6. 8. 21
    Type: Autre
    Crossref
  57. Aisling Irwin (2018). No PhDs needed: how citizen science is transforming research . Nature, 562(7728), 480-482. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/d41586-018-07106-5 OpenAlex: https://openalex.org/W2896619433
    Crossref OpenAlex OpenCitations
  58. Nancy A. Naples , Laura Mauldin , Heather Dillaway (2019). From the Guest Editors: Gender, Disability, and Intersectionality . Gender & Society, 33(1), 5-18. SAGE Publications.
    Type: Article DOI: 10.1177/0891243218813309 OpenAlex: https://openalex.org/W2905143434
    Crossref OpenAlex OpenCitations
  60. Helen Kara (2020). Creative Research Methods . Bristol University Press.
    Type: Livre DOI: 10.51952/9781447356769 OpenAlex: https://openalex.org/W4285652685
    Crossref OpenAlex OpenCitations
  61. John Law (2004). After Method . Routledge.
    Type: Livre DOI: 10.4324/9780203481141 OpenAlex: https://openalex.org/W2764540120
    Crossref OpenAlex OpenCitations
  62. Mannay D. (2017). CIT0040 Journal of Contemporary Ethnography.
    Type: Autre
    Crossref
  63. Nicola Martin (2020). Practical scholarship . Dans Neurodiversity Studies (pp. 143-155). Routledge.
    Type: Chapitre de livre DOI: 10.4324/9780429322297-14 OpenAlex: https://openalex.org/W2994963214
    Crossref OpenAlex OpenCitations
  64. Larry R. Arnold * (2020). Autonomy, the Critical Journal of Interdisciplinary Autism Studies . Dans Autistic Community and the Neurodiversity Movement (pp. 211-220). Springer Singapore.
    Type: Chapitre de livre DOI: 10.1007/978-981-13-8437-0_15 OpenAlex: https://openalex.org/W2983661291
    AutiHub · Chercheur·euses autistes OpenAlex
  65. Milton D. (2013). CIT0042 Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(2).
    Type: Autre
    Crossref
  66. Murray, D. (1997). ‘Normal and otherwise’, inLiving and Learning with Autism: Perspectives from the Individual, the Family and the Professional3-14 (conference proceedings). The Autism Research Unit.
    Type: Autre
    Crossref
  67. Edith Sheffer (2018). Asperger's Children: The Origins of Autism in Nazi Vienna .
    Type: Livre OpenAlex: https://openalex.org/W3087085253
    Crossref OpenAlex
  68. ONS (2021). (viewed 6.8.21) . (viewed 6.8.21).
    Type: Autre
    Crossref
  69. Ellen M. Broido (2020). Making Disability Research Useful (Practice Brief). The Journal of Postsecondary Education and Disability, 33(3), 275-281.
    Type: Article OpenAlex: https://openalex.org/W3171888717
    OpenAlex
  70. Purkis J. (2018). Spectrum women: Walking to the beat of autism . Spectrum women: Walking to the beat of autism, 133.
    Type: Autre
    Crossref
  71. Anna Remington (2017). An internship programme for Autistic graduates at Deutsche Bank, UK. Centre for research in Autism and education . An internship programme for Autistic graduates at Deutsche Bank, UK. Centre for research in Autism and education.
    Type: Autre
    Crossref
  72. (2008). Journal of Contemporary Ethnography . The SAGE Encyclopedia of Qualitative Research Methods. SAGE Publications, Inc..
    Type: Autre DOI: 10.4135/9781412963909.n241 OpenAlex: https://openalex.org/W4233928625
    OpenAlex
  73. Shakespeare T. (2018). Disability: The basics . Disability: The basics.
    Type: Autre
    Crossref