Neurodivergence, intersectionnalité et troubles des conduites alimentaires : une revue narrative axée sur l'expérience vécue

Titre original en anglais : Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». trois auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Cobbaert, L., Millichamp, A., Elwyn, R., Silverstein, S., Schweizer, K., Thomas, E., & Miskovic‐Wheatley, J. (2024). Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review. Journal of Eating Disorders, 12(1), 187-187. https://doi.org/10.1186/s40337-024-01126-5

Date de publication: 20/11/2024 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
3 / 7 (42,9 %)
  1. Laurence Cobbaert *
  2. Anna Millichamp
  3. Rosiel Elwyn *
  4. Scout Silverstein
  1. Kai Schweizer *
  2. Elysia Thomas
  3. Jane Miskovic‐Wheatley

Résumé

Les personnes autistes et celles présentant un trouble du déficit de l'attention avec hyperactivité courent un risque élevé de développer un trouble des conduites alimentaires. Bien que les données concernant la relation entre d'autres formes de neurodivergence et les troubles des conduites alimentaires soient limitées, la recherche suggère des associations entre la surdouance, la déficience intellectuelle, le trouble obsessionnel-compulsif, la psychose, le syndrome de Tourette et l'alimentation désordonnée. Les facteurs sous-jacents à l'alimentation désordonnée et/ou au risque de trouble des conduites alimentaires chez les personnes neurodivergentes sont multiples et complexes, englobant un large éventail de processus psychosociaux, environnementaux et biologiques étroitement imbriqués. En outre, la recherche montre que les personnes neurodivergentes présentent de moins bons résultats thérapeutiques que les personnes neurotypiques. Cependant, la recherche dans ce domaine demeure globalement rare. Plus spécifiquement, la recherche axée sur l'expérience vécue reste rare, malgré son rôle essentiel dans l'amélioration de la prise en charge individualisée des troubles des conduites alimentaires, ainsi que des soins de santé mentale plus largement. En effet, l'importance de l'individualisation de la prise en charge des troubles des conduites alimentaires est de plus en plus reconnue, particulièrement dans le contexte de la neurodivergence, compte tenu de l'hétérogénéité des expériences et des besoins de soutien des personnes neurodivergentes concernées par l'alimentation désordonnée et/ou les troubles des conduites alimentaires. En outre, malgré les chevauchements documentés entre diverses formes de neurodivergence (par exemple, l'autisme et le trouble du déficit de l'attention avec hyperactivité concomitants), les recherches examinant les troubles des conduites alimentaires dans le contexte de la neurodivergence selon une perspective transdiagnostique sont rares. Cette revue narrative axée sur l'expérience vécue vise à mettre en lumière les facteurs intersectionnels sous-jacents au risque accru d'alimentation désordonnée et/ou de trouble des conduites alimentaires chez les personnes neurodivergentes. Tout d'abord, un aperçu des données de prévalence est présenté, suivi d'un cadre thématique identifiant les facteurs sous-jacents à l'alimentation désordonnée et/ou au risque de trouble des conduites alimentaires en lien avec la neurodivergence. Une évaluation critique de la recherche et de la prise en charge actuelles des troubles des conduites alimentaires est ensuite proposée, avant que des suggestions ne soient formulées pour une prise en charge des troubles des conduites alimentaires qui affirme la neurodiversité. Dans cette perspective, cet article fournit une base pour de futurs travaux empiriques dans ce domaine d'investigation émergent en présentant un compte rendu des troubles des conduites alimentaires dans le contexte de la neurodivergence axé sur l'expérience vécue, transdiagnostique et intersectionnel.

Autistic people and those with attention deficit hyperactivity disorder are at a high risk of developing an eating disorder. While there is limited evidence on the relationship between other forms of neurodivergence and eating disorders, research suggests associations between giftedness, intellectual disability, obsessive-compulsive disorder, psychosis, Tourette's syndrome, and disordered eating. Factors underlying disordered eating and/or eating disorder risk for neurodivergent people are multifaceted and complex, encompassing a wide range of intertwined psychosocial, environmental, and biological processes. Moreover, research shows that neurodivergent individuals experience poorer treatment outcomes compared to neurotypical individuals. However, there is a paucity of research in this area overall. More specifically, lived experience-led research remains rare, despite its critical role for improving individualised eating disorder care, as well as mental healthcare more broadly. Indeed, the importance of eating disorder care individuation is increasingly being recognised, particularly within the context of neurodivergence, given the heterogeneous experiences and support needs of neurodivergent people affected by disordered eating and/or eating disorders. Furthermore, despite documented overlaps between various forms of neurodivergence (e.g., co-occurring autism and attention deficit hyperactivity disorder), research looking at eating disorders in the context of neurodivergence through a transdiagnostic perspective is scarce. This lived experience-led narrative review aims to shed light on the intersectional factors underlying elevated disordered eating and/or eating disorder risk for neurodivergent individuals. First, an overview of prevalence data is provided, followed by a thematic framework identifying factors underlying disordered eating and/or eating disorder risk in relation to neurodivergence. A critical appraisal of current eating disorder research and care is then offered before suggestions for neurodiversity-affirming eating disorder care are made. In this view, this paper offers a foundation for future empirical work in this nascent field of inquiry by providing a lived experience-led, transdiagnostic, and intersectional account of eating disorders in the context of neurodivergence.

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Références citées
464
Avec un DOI
430
Sans DOI, à partir du texte brut de la bibliographie
34
63 / 464 (13,6 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
38 / 464 (8,2 %)
Références avec noms d’auteurices détectés
438 / 464 (94,4 %)
Sans nom d’auteurice détecté
26
Sans titre structuré
38
Sans identifiant stable
34
Références avec noms bruts d’auteurices restant à vérifier
26
Références avec problème de récupération des métadonnées externes
5
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
2454
À partir du DOI ou de métadonnées externes
2454
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
33
542 / 2454 (22,1 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 1912 / 2454 (77,9 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
118 / 2454 (4,8 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 118 / 542 (21,8 %). Personnes distinctes identifiées comme autistes : 89 / 2025 (4,4 %).
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