« Ce n’est pas qu’elles ne veulent pas accéder au soutien... c’est l’impact de l’autisme » : l’expérience des services pour les troubles des conduites alimentaires du point de vue de femmes autistes, de parents et de professionnels de santé

Titre original en anglais : ‘It’s not that they don’t want to access the support... it’s the impact of the autism’: The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Babb, C., Brede, J., Jones, C. R. G., Elliott, M., Zanker, C., Tchanturia, K., Serpell, L., Mandy, W., & Fox, J. R. E. (2021). ‘It’s not that they don’t want to access the support... it’s the impact of the autism’: The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals. Autism, 25(5), 1409-1421. https://doi.org/10.1177/1362361321991257

Date de publication: 15/02/2021 Ajout dans AutiHub: 04/10/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
9
Auteur·ices de la publication identifié·es comme autistes
1 / 9 (11,1 %)
  1. Charli Babb
  2. Janina Brede
  3. Catherine R G Jones
  4. Mair Elliott *
  5. Cathy Zanker
  1. Kate Tchanturia
  2. Lucy Serpell
  3. William Mandy
  4. John R. E. Fox

Résumé

Cette étude explore les expériences de femmes autistes des services pour les troubles des conduites alimentaires. Les estimations suggèrent que 20 % à 30 % des femmes traitées pour une anorexie mentale présentent des caractéristiques diagnostiques propres à l’autisme. Les recherches suggèrent que les besoins des personnes autistes ne sont pas satisfaits par les traitements standards de l’anorexie mentale. Dans la présente étude, des entretiens approfondis ont été menés auprès de 15 femmes autistes ayant une expérience de l’anorexie mentale, de 12 parents de femmes autistes souffrant d’anorexie mentale et de 11 professionnels de santé spécialisés dans les troubles des conduites alimentaires. Au moyen d’une analyse thématique, trois thèmes généraux ont été identifiés : la méconnaissance de l’autisme et des traits autistiques, un même traitement ne convient pas à toutes, et l’amélioration de l’accessibilité et de l’engagement au sein des services. Nous avons constaté que les femmes autistes étaient confrontées à divers obstacles lors du traitement de l’anorexie mentale, lesquels étaient accentués par un manque de compréhension de l’autisme au sein des services pour les troubles des conduites alimentaires. Les recherches futures devraient se concentrer sur le développement d’interventions adaptées aux besoins spécifiques des personnes autistes souffrant d’anorexie mentale. Résumé grand public Cette étude explore les expériences de femmes autistes des services pour les troubles des conduites alimentaires. Environ 20 % à 30 % des personnes souffrant d’anorexie mentale sont également autistes, et les traitements actuels semblent moins bien fonctionner pour elles. Nous avons interrogé 15 femmes autistes ayant une expérience de l’anorexie mentale, 12 parents de femmes autistes souffrant d’anorexie mentale et 11 professionnels de santé travaillant dans des services pour les troubles des conduites alimentaires. Nous avons interrogé les femmes autistes et les parents sur leurs expériences des services pour les troubles des conduites alimentaires, et nous avons interrogé les professionnels de santé sur leurs expériences du traitement de femmes autistes souffrant d’anorexie mentale. Les points de vue des participants ont été représentés par trois thèmes généraux : la méconnaissance de l’autisme et des traits autistiques, un même traitement ne convient pas à toutes, et l’amélioration de l’accessibilité et de l’engagement au sein des services. Nous avons constaté que les femmes autistes font face à de nombreux obstacles lors du traitement de l’anorexie mentale, souvent en raison d’un manque de compréhension de l’autisme au sein des services pour les troubles des conduites alimentaires. Les recherches futures devraient examiner le développement de traitements de l’anorexie mentale susceptibles d’aider spécifiquement les personnes autistes.

This study explores autistic women’s experiences of eating disorder services. Estimates suggest that 20%–30% of women in treatment for anorexia nervosa display diagnostic features characteristic of autism. Research suggests that autistic individuals’ needs are not being met by standard anorexia nervosa treatments. In the current study, in-depth interviews were conducted with 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 eating disorder healthcare professionals. Using thematic analysis, three overarching themes were identified: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that there were diverse barriers facing autistic women when in treatment for anorexia nervosa, and these were accentuated by a lack of autism understanding within eating disorder services. Future research should focus on developing interventions that are tailored to the specific needs of autistic individuals with anorexia nervosa. Lay Abstract This study explores autistic women’s experiences of eating disorder services. About 20%–30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants’ views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 23/10/2026 07:59.

Références citées
57
Avec un DOI
51
Sans DOI, à partir du texte brut de la bibliographie
6
4 / 57 (7,0 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
3 / 57 (5,3 %)
Références avec noms d’auteurices détectés
55 / 57 (96,5 %)
Sans nom d’auteurice détecté
2
Sans titre structuré
3
Sans identifiant stable
5
Références avec noms bruts d’auteurices restant à vérifier
2
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
243
À partir du DOI ou de métadonnées externes
243
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
2
91 / 243 (37,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 152 / 243 (62,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
9 / 243 (3,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 9 / 91 (9,9 %). Personnes distinctes identifiées comme autistes : 9 / 205 (4,4 %).
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