Identité autistique : une revue systématique de la recherche quantitative

Titre original en anglais : Autistic identity: A systematic review of quantitative research

Sources de métadonnées utilisées pour cette référence

OpenAlex Crossref OpenCitations
En savoir plus sur les sources utilisées

Davies, J., Cooper, K., Killick, E., Sam, E., Healy, M., Thompson, G., Mandy, W., Redmayne, B. J. M., & Crane, L. (2024). Autistic identity: A systematic review of quantitative research. Autism Research, 17(5), 874-897. https://doi.org/10.1002/aur.3105

Date de publication: 09/02/2024 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI) Texte intégral

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
9
Auteur·ices de la publication identifié·es comme autistes
1 / 9 (11,1 %)
  1. Jade Davies
  2. Kate Cooper
  3. Estelle Killick
  4. Evelyn Sam
  5. Molly Healy
  1. Grace Thompson *
  2. Will Mandy
  3. Benjamin Jack Michael Redmayne
  4. Laura Crane

Résumé

L’autisme peut être considéré à la fois comme une identité personnelle et sociale. Il est crucial d’identifier les facteurs contribuant au développement d’une identité autistique positive, compte tenu des implications potentielles pour la santé mentale et le bien-être. Dans cette revue systématique, nous avons cherché à synthétiser la littérature quantitative sur l’identité autistique afin d’identifier les facteurs (individuels et environnementaux) associés à l’identité autistique et de déterminer la relation entre l’identité autistique et la santé mentale et le bien-être. Au total, 3 617 études ont été examinées et 20 répondaient à nos critères d’inclusion. Les résultats indiquaient que les personnes développaient une identité autistique plus positive lorsqu’elles recevaient une acceptation externe de l’autisme et un soutien externe. Les associations entre les facteurs individuels et l’identité autistique étaient en grande partie non significatives ou non concluantes, soulignant la nécessité d’un soutien étendu répondant aux besoins d’un éventail de personnes autistes, plutôt que de sous-groupes spécifiques. Il est important de noter qu’une identité autistique positive était associée à une amélioration de la santé mentale et du bien-être. Le soutien par les pairs et/ou les ressources de soutien autodirigé peuvent constituer des mécanismes précieux pour aider les personnes autistes à cultiver une identité autistique positive. L’évaluation de ces formes de soutien, y compris de leurs effets à long terme sur le développement identitaire, constituera une voie essentielle pour les recherches futures.

Autism can be considered both a personal and social identity. Identifying the factors contributing to positive Autistic identity development is crucial given the potential implications for mental health and wellbeing. In this systematic review, we aimed to synthesize quantitative literature on Autistic identity to identify the (individual and environmental) factors associated with Autistic identity, and to ascertain the relationship between Autistic identity and mental health and wellbeing. A total of 3,617 studies were screened and 20 met our inclusion criteria. Results indicated that people developed a more positive Autistic identity when receiving external autism acceptance and external support. The association between individual factors and Autistic identity were largely nonsignificant or inconclusive, highlighting the need for broad support that meets the needs of a range of Autistic people, rather than specific subgroups. Importantly, positive Autistic identity was associated with improved mental health and wellbeing. Peer support and/or self-directed support resources may be valuable mechanisms for supporting Autistic people to cultivate a positive Autistic identity. The evaluation of such support, including the long-term impacts on identity development, will be a critical avenue for future research.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
123
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
17 / 123 (13,8 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
25 / 456 (5,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 25 / 172 (14,5 %). Auteurices cité·es distinct·es identifié·es comme autistes : 15 / 373 (4,0 %).
Occurrences citées rattachées à la base AutiHub
172 / 456 (37,7 %)
Auteurices cité·es distinct·es rattaché·es : 100 / 373 (26,8 %)
Occurrences rattachées, non identifiées comme autistes
147 / 172 (85,5 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 147 / 456 (32,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 85 / 100 (85,0 %).
  1. Colleen Kidney (2000). Rethinking Autism, Communication, and Community Involvement: Exploring Involvement in Online Communities, Communication Preference, Autistic Identity, and Self-Determination . Portland State University Library.
    Type: Rapport DOI: 10.15760/etd.2221 OpenAlex: https://openalex.org/W339267797
    OpenAlex
  2. Bappaditya Adak , Santoshi Halder (2017). Systematic Review on Prevalence for Autism Spectrum Disorder with Respect to Gender and Socio-Economic Status . Journal of Mental Disorders and Treatment, 03(01). OMICS Publishing Group.
    Type: Article DOI: 10.4172/2471-271x.1000133 OpenAlex: https://openalex.org/W2601532833
    Crossref OpenAlex OpenCitations
  4. Mary Jo Hatch , Majken Schultz (2004). Organizational identity: a reader .
    Type: Livre OpenAlex: https://openalex.org/W1513067964
    OpenAlex
  5. Flavia Albarello , Elisabetta Crocetti , Monica Rubini (2018). I and Us: A Longitudinal Study on the Interplay of Personal and Social Identity in Adolescence . Journal of Youth and Adolescence, 47(4), 689-702. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10964-017-0791-4 OpenAlex: https://openalex.org/W2770629029
    Crossref OpenAlex OpenCitations
  7. Shannon D. Snapp , Ryan J. Watson , Stephen T. Russell , Rafael M. Diaz , Caitlin Ryan (2015). Social Support Networks for LGBT Young Adults: Low Cost Strategies for Positive Adjustment . Family Relations, 64(3), 420-430. Wiley.
    Type: Article DOI: 10.1111/fare.12124 OpenAlex: https://openalex.org/W1565455326
    Crossref OpenAlex OpenCitations
  8. Arnold S. Huang Y. Higgins J. Hwang Y. I. Richdale A. Trollor J. &Lawson L. P. (2021). The Impact of Diagnosis Scale–Revised (IODS‐R). International Society for Autism Research 2021 Virtual Annual Meeting.
    Type: Autre
    Crossref
  9. David S. Mandell , JOHN LISTERUD , SUSAN E. LEVY , JENNIFER A. PINTO-MARTIN (2002). Race Differences in the Age at Diagnosis Among Medicaid-Eligible Children With Autism . Journal of the American Academy of Child & Adolescent Psychiatry, 41(12), 1447-1453. Elsevier BV.
    Type: Article DOI: 10.1097/00004583-200212000-00016 OpenAlex: https://openalex.org/W1998074079
    Crossref OpenAlex OpenCitations
  10. Carol J. Gill (1997). Four types of integration in disability identity development . Journal of Vocational Rehabilitation, 9(1), 39-46. SAGE Publications.
    Type: Article DOI: 10.3233/jvr-1997-9106 OpenAlex: https://openalex.org/W1787574528
    Crossref OpenAlex OpenCitations
  11. Samuel R. C. Arnold , Yunhe Huang , Ye In Hwang , Amanda L. Richdale , Julian N Trollor , Lauren P. Lawson (2020). “The Single Most Important Thing That Has Happened to Me in My Life”: Development of the Impact of Diagnosis Scale—Preliminary Revision . Autism in Adulthood, 2(1), 34-41. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2019.0059 OpenAlex: https://openalex.org/W3012051930
    Crossref OpenAlex OpenCitations
  12. Yunhe Huang , Samuel R. C. Arnold , Kitty‐Rose Foley , Julian N Trollor (2020). Diagnosis of autism in adulthood: A scoping review . Autism, 24(6), 1311-1327. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320903128 OpenAlex: https://openalex.org/W3008810253
    Crossref OpenAlex OpenCitations
  13. Michelle R. Nario-Redmond , Jeffrey G. Noel , Emily Fern (2013). Redefining Disability, Re-imagining the Self: Disability Identification Predicts Self-esteem and Strategic Responses to Stigma . Self and Identity, 12(5), 468-488. Informa UK Limited.
    Type: Article DOI: 10.1080/15298868.2012.681118 OpenAlex: https://openalex.org/W1972118986
    Crossref OpenAlex OpenCitations
  14. Asperger H. (1944). Autism and Asperger Syndrome . Autism and Asperger syndrome.
    Type: Autre
    Crossref
  15. Simon M. Bury , Alex Haschek , Michael Wenzel , Jennifer R. Spoor , Darren Hedley (2024). Brief Report: Learning About Autism: Is the Source of Autism Knowledge Associated with Differences in Autism Knowledge, Autism Identity, and Experiences of Stigma . Journal of Autism and Developmental Disorders, 54(11), 4346-4353. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-022-05823-5 OpenAlex: https://openalex.org/W4310092953
    Crossref OpenAlex OpenCitations
  16. Gayathri Embuldeniya , Paula Veinot , Emma Bell , Mary Bell , Joyce Nyhof-Young , Joanna E.M. Sale et al. (2013). The experience and impact of chronic disease peer support interventions: A qualitative synthesis . Patient Education and Counseling, 92(1), 3-12. Elsevier BV.
    Type: Article DOI: 10.1016/j.pec.2013.02.002 OpenAlex: https://openalex.org/W1974164086
    Crossref OpenAlex OpenCitations
  18. Allison B. Ratto , J. Steven Reznick , Lauren Turner-Brown (2016). Cultural Effects on the Diagnosis of Autism Spectrum Disorder Among Latinos . Focus on Autism and Other Developmental Disabilities, 31(4), 275-283. SAGE Publications.
    Type: Article DOI: 10.1177/1088357615587501 OpenAlex: https://openalex.org/W2411872284
    Crossref OpenAlex OpenCitations
  19. Leon Eisenberg (1992). Autism and Asperger syndrome . The Lancet, 339(8786), 186. Elsevier BV.
    Type: Article DOI: 10.1016/0140-6736(92)90257-4 OpenAlex: https://openalex.org/W1987955421
    OpenAlex
  20. Jessica L. Benham , James S. Kizer (2016). Aut-ors of our Experience: Interrogating Intersections of Autistic Identity . Canadian Journal of Disability Studies, 5(3), 77. University of Waterloo.
    Type: Article DOI: 10.15353/cjds.v5i3.298 OpenAlex: https://openalex.org/W2544897267
    Crossref OpenAlex OpenCitations
  21. D. Maxwell-McCaw , M. C. Zea (2011). The Deaf Acculturation Scale (DAS): Development and Validation of a 58-Item Measure . Journal of Deaf Studies and Deaf Education, 16(3), 325-342. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/deafed/enq061 OpenAlex: https://openalex.org/W2107480743
    Crossref OpenAlex OpenCitations
  22. Bryony Beresford , Suzanne Mukherjee , Emese Mayhew , Emily Heavey , A‐La Park , Lucy Stuttard et al. (2020). Evaluating specialist autism teams’ provision of care and support for autistic adults without learning disabilities: the SHAPE mixed-methods study . Health Services and Delivery Research, 8(48), 1-200. National Institute for Health and Care Research.
    Type: Article DOI: 10.3310/hsdr08480 OpenAlex: https://openalex.org/W3113131339
    Crossref OpenAlex OpenCitations
  23. Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.
    Type: Article DOI: 10.1002/ejsp.2297 OpenAlex: https://openalex.org/W2593228649
    Crossref OpenAlex OpenCitations
  24. Michelle R. Nario-Redmond , Kathryn C. Oleson (2016). Disability Group Identification and Disability-Rights Advocacy . Emerging Adulthood, 4(3), 207-218. SAGE Publications.
    Type: Article DOI: 10.1177/2167696815579830 OpenAlex: https://openalex.org/W2000062268
    Crossref OpenAlex OpenCitations
  25. Jan Blacher , Connie Kasari (2016). The intersection of autism spectrum disorder and intellectual disability . Journal of Intellectual Disability Research, 60(5), 399-400. Wiley.
    Type: Article DOI: 10.1111/jir.12294 OpenAlex: https://openalex.org/W2345157831
    Crossref OpenAlex OpenCitations
  27. Riia Luhtanen , Jennifer Crocker (1992). A Collective Self-Esteem Scale: Self-Evaluation of One's Social Identity . Personality and Social Psychology Bulletin, 18(3), 302-318. SAGE Publications.
    Type: Article DOI: 10.1177/0146167292183006 OpenAlex: https://openalex.org/W2022598112
    Crossref OpenAlex OpenCitations
  28. Borthwick J. Jaffey L. &Snell J. (2020). Exploration of Peer Support Models to Support LGBTQ+ People with their Mental Health. In Centre for Mental Health.
    Type: Autre
    Crossref
  29. C. Punshon , P. Skirrow , Glynis Murphy (2009). The `not guilty verdict' . Autism, 13(3), 265-283. SAGE Publications.
    Type: Article DOI: 10.1177/1362361309103795 OpenAlex: https://openalex.org/W2030351972
    Crossref OpenAlex OpenCitations
  30. Botha M. (2020). Autistic community connectedness as a buffer against the effects of minority stress. University of Surrey.
    Type: Autre
    Crossref
  31. Samuel Tromans , Verity Chester , Eli Gemegah , Kristian Roberts , Zoe Morgan , Guiqing Lily Yao et al. (2021). Autism identification across ethnic groups: a narrative review . Advances in Autism, 7(3), 241-255. Emerald.
    Type: Article DOI: 10.1108/aia-03-2020-0017 OpenAlex: https://openalex.org/W3039573567
    Crossref OpenAlex OpenCitations
  32. Opal Ousley , Tracy Cermak (2014). Autism Spectrum Disorder: Defining Dimensions and Subgroups . Current Developmental Disorders Reports, 1(1), 20-28. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40474-013-0003-1 OpenAlex: https://openalex.org/W2035132954
    Crossref OpenAlex OpenCitations
  34. Eya‐Mist Rødgaard , Kristian Jensen , Kamilla Woznica Miskowiak , Laurent Mottron (2022). Representativeness of autistic samples in studies recruiting through social media . Autism Research, 15(8), 1447-1456. Wiley.
    Type: Article DOI: 10.1002/aur.2777 OpenAlex: https://openalex.org/W4284991023
    Crossref OpenAlex OpenCitations
  35. Andrea W. M. Evers , Floris W. Kraaimaat , Wim van Lankveld , Peter J. H. Jongen , Johannes W. G. Jacobs , Johannes W. J. Bijlsma (2001). Beyond unfavorable thinking: The Illness Cognition Questionnaire for chronic diseases. Journal of Consulting and Clinical Psychology, 69(6), 1026-1036. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0022-006x.69.6.1026 OpenAlex: https://openalex.org/W2035920294
    Crossref OpenAlex OpenCitations
  37. James E. Marcia , Alan S. Waterman , David R. Matteson , Sally L. Archer , Jacob L. Orlofsky (1993). Ego Identity . Springer New York.
    Type: Livre DOI: 10.1007/978-1-4613-8330-7 OpenAlex: https://openalex.org/W4249290337
    Crossref OpenAlex OpenCitations
  38. Luisa Ruiz Calzada , Nancy Pistrang , Will Mandy (2012). High-Functioning Autism and Asperger’s Disorder: Utility and Meaning for Families . Journal of Autism and Developmental Disorders, 42(2), 230-243. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-011-1238-5 OpenAlex: https://openalex.org/W2076107462
    Crossref OpenAlex OpenCitations
  39. Jennifer Boyd Ritsher , Poorni G Otilingam , Monica Grajales (2003). Internalized stigma of mental illness: psychometric properties of a new measure . Psychiatry Research, 121(1), 31-49. Elsevier BV.
    Type: Article DOI: 10.1016/j.psychres.2003.08.008 OpenAlex: https://openalex.org/W2131115009
    Crossref OpenAlex OpenCitations
  40. Tiago S. Jesus (2022). Rigour and transparency in the family of systematic reviews: The International Journal of Health Planning and Management encourages prospective protocol registration . The International Journal of Health Planning and Management, 37(5), 2523-2527. Wiley.
    Type: Article DOI: 10.1002/hpm.3510 OpenAlex: https://openalex.org/W4281772564
    OpenCitations
  41. Rosalyn B. Darling , D. Alex Heckert (2010). Orientations Toward Disability: Differences over the lifecourse . International Journal of Disability, Development and Education, 57(2), 131-143. Informa UK Limited.
    Type: Article DOI: 10.1080/10349121003750489 OpenAlex: https://openalex.org/W2095950555
    Crossref OpenAlex OpenCitations
  42. Cindy J. Chang , Brian A. Feinstein , Steven Meanley , Dalmacio D. Flores , Ryan J. Watson (2021). The Role of LGBTQ Identity Pride in the Associations among Discrimination, Social Support, and Depression in a Sample of LGBTQ Adolescents . Annals of LGBTQ Public and Population Health, 2(3), 203-219. Springer Publishing Company.
    Type: Article DOI: 10.1891/lgbtq-2021-0020 OpenAlex: https://openalex.org/W3203924874
    Crossref OpenAlex OpenCitations
  44. Colin Wayne Leach , Martijn van Zomeren , Sven Zebel , Michael L. W. Vliek , Sjoerd F. Pennekamp , Bertjan Doosje et al. (2008). Group-level self-definition and self-investment: A hierarchical (multicomponent) model of in-group identification. Journal of Personality and Social Psychology, 95(1), 144-165. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0022-3514.95.1.144 OpenAlex: https://openalex.org/W2157069646
    Crossref OpenAlex OpenCitations
  45. James E. Marcia (1966). Development and validation of ego-identity status. Journal of Personality and Social Psychology, 3(5), 551-558. American Psychological Association (APA).
    Type: Article DOI: 10.1037/h0023281 OpenAlex: https://openalex.org/W2117009621
    Crossref OpenAlex OpenCitations
  46. Eilidh Cage , Jessica Di Monaco , Victoria Newell (2018). Experiences of Autism Acceptance and Mental Health in Autistic Adults . Journal of Autism and Developmental Disorders, 48(2), 473-484. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3342-7 OpenAlex: https://openalex.org/W2766434912
    Crossref OpenAlex OpenCitations
  47. Neil Humphrey , Sarah Lewis (2008). `Make me normal' . Autism, 12(1), 23-46. SAGE Publications.
    Type: Article DOI: 10.1177/1362361307085267 OpenAlex: https://openalex.org/W2119717901
    Crossref OpenAlex OpenCitations
  48. Eilidh Cage , Zoe Troxell-Whitman (2020). Understanding the Relationships Between Autistic Identity, Disclosure, and Camouflaging . Autism in Adulthood, 2(4), 334-338. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.0016 OpenAlex: https://openalex.org/W3073966041
    Crossref OpenAlex OpenCitations
  49. Laura Foran Lewis (2017). A Mixed Methods Study of Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults . Journal of Autism and Developmental Disorders, 47(8), 2410-2424. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3168-3 OpenAlex: https://openalex.org/W2615871753
    Crossref OpenAlex OpenCitations
  50. Judith Hebron , Neil Humphrey (2014). Mental health difficulties among young people on the autistic spectrum in mainstream secondary schools: a comparative study . Journal of Research in Special Educational Needs, 14(1), 22-32. Wiley.
    Type: Article DOI: 10.1111/j.1471-3802.2012.01246.x OpenAlex: https://openalex.org/W2125463549
    Crossref OpenAlex OpenCitations
  51. Mhairi Campbell , Joanne E McKenzie , Amanda Sowden , Srinivasa Vittal Katikireddi , Sue E Brennan , Simon Ellis et al. (2020). Synthesis without meta-analysis (SWiM) in systematic reviews: reporting guideline . BMJ, 368, l6890. BMJ.
    Type: Article DOI: 10.1136/bmj.l6890 OpenAlex: https://openalex.org/W2990648940
    Crossref OpenAlex OpenCitations
  52. Ilan H. Meyer (2003). Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: Conceptual issues and research evidence. Psychological Bulletin, 129(5), 674-697. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0033-2909.129.5.674 OpenAlex: https://openalex.org/W2125568653
    Crossref OpenAlex OpenCitations
  53. E. James Anthony (1969). Identity—Youth and Crisis . Journal of the American Academy of Child Psychiatry, 8(3), 559-562. Elsevier BV.
    Type: Article DOI: 10.1016/s0002-7138(09)62239-1 OpenAlex: https://openalex.org/W2128887760
    OpenAlex
  54. Kate Cooper , Will Mandy , Catherine Butler , Ailsa Russell (2023). Phenomenology of gender dysphoria in autism: a multiperspective qualitative analysis . Journal of Child Psychology and Psychiatry, 64(2), 265-276. Wiley.
    Type: Article DOI: 10.1111/jcpp.13691 OpenAlex: https://openalex.org/W4295234891
    Crossref OpenAlex OpenCitations
  55. Kate Cooper , Ailsa Russell , Jiedi Lei , Laura GE Smith (2023). The impact of a positive autism identity and autistic community solidarity on social anxiety and mental health in autistic young people . Autism, 27(3), 848-857. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221118351 OpenAlex: https://openalex.org/W4294605745
    Crossref OpenAlex OpenCitations
  56. Amal M Hussein , Elizabeth Pellicano , Laura Crane (2019). Understanding and awareness of autism among Somali parents living in the United Kingdom . Autism, 23(6), 1408-1418. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318813996 OpenAlex: https://openalex.org/W2903036379
    Crossref OpenAlex OpenCitations
  57. Mark Rubin , Miles Hewstone (1998). Social Identity Theory's Self-Esteem Hypothesis: A Review and Some Suggestions for Clarification . Personality and Social Psychology Review, 2(1), 40-62. SAGE Publications.
    Type: Article DOI: 10.1207/s15327957pspr0201_3 OpenAlex: https://openalex.org/W2170822944
    Crossref OpenAlex OpenCitations
  58. Rosalind Cooper , Kate Cooper , Ailsa Russell , Laura G. E. Smith (2021). “I’m Proud to be a Little Bit Different”: The Effects of Autistic Individuals’ Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem . Journal of Autism and Developmental Disorders, 51(2), 704-714. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04575-4 OpenAlex: https://openalex.org/W3036418460
    Crossref OpenAlex OpenCitations
  59. Jennifer L. Jones , Kami L. Gallus , Kacey L. Viering , Lauren M. Oseland (2015). ‘Are you by chance on the spectrum?’ Adolescents with autism spectrum disorder making sense of their diagnoses . Disability & Society, 30(10), 1490-1504. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2015.1108902 OpenAlex: https://openalex.org/W2204762645
    Crossref OpenAlex OpenCitations
  60. Kirsten Corden , Rebecca Brewer , Eilidh Cage (2021). Personal Identity After an Autism Diagnosis: Relationships With Self-Esteem, Mental Wellbeing, and Diagnostic Timing . Frontiers in Psychology, 12, 699335-699335. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2021.699335 OpenAlex: https://openalex.org/W3161811598
    Crossref OpenAlex OpenCitations
  61. Ella Perry , Will Mandy , Laura Hull , Eilidh Cage (2022). Understanding Camouflaging as a Response to Autism-Related Stigma: A Social Identity Theory Approach . Journal of Autism and Developmental Disorders, 52(2), 800-810. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-04987-w OpenAlex: https://openalex.org/W3150043110
    Crossref OpenAlex OpenCitations
  62. Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315588200 OpenAlex: https://openalex.org/W2227393071
    Crossref OpenAlex OpenCitations
  63. Léo Kanner (1943). Autistic disturbances of affective contact . Nervous Child, 2(3), 217.
    Type: Article OpenAlex: https://openalex.org/W2255119171
    Crossref OpenAlex
  64. Crenshaw K. (1989). Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine. Feminist Theory and Antiracist Politics University of Chicago Legal Forum.
    Type: Autre
    Crossref
  65. Audrey Thurm , Cristan Farmer , Emma Salzman , Catherine Lord , Somer Bishop (2019). State of the Field: Differentiating Intellectual Disability From Autism Spectrum Disorder . Frontiers in Psychiatry, 10, 526. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyt.2019.00526 OpenAlex: https://openalex.org/W2958993741
    Crossref OpenAlex OpenCitations
  66. Leen Oris , Jessica Rassart , Sofie Prikken , Margaux Verschueren , Liesbet Goubert , Philip Moons et al. (2016). Illness Identity in Adolescents and Emerging Adults With Type 1 Diabetes: Introducing the Illness Identity Questionnaire . Diabetes Care, 39(5), 757-763. American Diabetes Association.
    Type: Article DOI: 10.2337/dc15-2559 OpenAlex: https://openalex.org/W2299192123
    Crossref OpenAlex OpenCitations
  67. Lily Cresswell , Eilidh Cage (2019). ‘Who Am I?’: An Exploratory Study of the Relationships Between Identity, Acculturation and Mental Health in Autistic Adolescents . Journal of Autism and Developmental Disorders, 49(7), 2901-2912. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-019-04016-x OpenAlex: https://openalex.org/W2936722462
    Crossref OpenAlex OpenCitations
  69. Trevor Davis , Kim Gorgens , Janet Shriberg , Matthew Godleski , Laura Meyer (2014). Making Meaning in a Burn Peer Support Group . Journal of Burn Care & Research, 35(5), 416-425. Oxford University Press (OUP).
    Type: Article DOI: 10.1097/bcr.0000000000000011 OpenAlex: https://openalex.org/W2318662888
    Crossref OpenAlex OpenCitations
  70. Elisabetta Crocetti (2017). Identity Formation in Adolescence: The Dynamic of Forming and Consolidating Identity Commitments . Child Development Perspectives, 11(2), 145-150. Oxford University Press (OUP).
    Type: Article DOI: 10.1111/cdep.12226 OpenAlex: https://openalex.org/W2590287054
    Crossref OpenAlex OpenCitations
  71. Despina Papoudi , Clara Rübner Jørgensen , Karen Guldberg , Hedda Meadan (2021). Perceptions, Experiences, and Needs of Parents of Culturally and Linguistically Diverse Children with Autism: a Scoping Review . Review Journal of Autism and Developmental Disorders, 8(2), 195-212. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-020-00210-1 OpenAlex: https://openalex.org/W3036152761
    Crossref OpenAlex OpenCitations
  72. Laura Foran Lewis (2016). Exploring the Experience of Self-Diagnosis of Autism Spectrum Disorder in Adults . Archives of Psychiatric Nursing, 30(5), 575-580. Elsevier BV.
    Type: Article DOI: 10.1016/j.apnu.2016.03.009 OpenAlex: https://openalex.org/W2326293265
    Crossref OpenAlex OpenCitations
  74. Emeline Han , Katrina Scior , Kana Grace , Eric Loveland Heath , Simone Rae Dufresne , Laura Crane (2023). Who, When, How to Share: Pilot study of a new disclosure decision-making programme for autistic adults . Center for Open Science.
    Type: Prépublication DOI: 10.31219/osf.io/bztuq OpenAlex: https://openalex.org/W4378676367
    Crossref OpenAlex OpenCitations
  76. Ye In Hwang , Kitty‐Rose Foley , Julian N Trollor (2017). Aging well on the autism spectrum: the perspectives of autistic adults and carers . International Psychogeriatrics, 29(12), 2033-2046. Elsevier BV.
    Type: Article DOI: 10.1017/s1041610217001521 OpenAlex: https://openalex.org/W2743983420
    Crossref OpenAlex OpenCitations
  78. Joseph H. Hammer , Michael D. Toland (2017). Internal structure and reliability of the Internalized Stigma of Mental Illness Scale (ISMI-29) and Brief Versions (ISMI-10, ISMI-9) among Americans with depression. Stigma and Health, 2(3), 159-174. American Psychological Association (APA).
    Type: Article DOI: 10.1037/sah0000049 OpenAlex: https://openalex.org/W2462639064
    Crossref OpenAlex OpenCitations
  79. Ilan H. Meyer , Laura Dean * (1998). Internalized Homophobia, Intimacy, and Sexual Behavior among Gay and Bisexual Men . Dans Stigma and Sexual Orientation: Understanding Prejudice against Lesbians, Gay Men, and Bisexuals (pp. 160-186). SAGE Publications, Inc..
    Type: Chapitre de livre DOI: 10.4135/9781452243818.n8 OpenAlex: https://openalex.org/W2483143899
    Crossref OpenAlex OpenCitations
  80. Dawn Ee , Ye In Hwang , Simone Reppermund , Preeyaporn Srasuebkul , Julian N Trollor , Kitty‐Rose Foley et al. (2019). Loneliness in Adults on the Autism Spectrum . Autism in Adulthood, 1(3), 182-193. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2018.0038 OpenAlex: https://openalex.org/W2969135910
    Crossref OpenAlex OpenCitations
  81. Mette Elmose (2020). Understanding loneliness and social relationships in autism: The reflections of autistic adults . Nordic Psychology, 72(1), 3-22. Informa UK Limited.
    Type: Article DOI: 10.1080/19012276.2019.1625068 OpenAlex: https://openalex.org/W2952119950
    Crossref OpenAlex OpenCitations
  82. Rosemarie B. Wilson , Andrew R. Thompson , Georgina Rowse , Megan Freeth (2023). The experience of seeking, receiving, and reflecting upon a diagnosis of autism in the UK: A meta-synthesis of qualitative studies conducted with autistic individuals . Research in Autism Spectrum Disorders, 103, 102135. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2023.102135 OpenAlex: https://openalex.org/W4323923058
    Crossref OpenAlex OpenCitations
  83. Erikson E. H. (1950). Childhood and society . Childhood and society.
    Type: Autre
    Crossref
  84. Erikson E. H. (1968). Identity, youth and crisis . Identity: Youth and crisis.
    Type: Autre
    Crossref
  85. Kinga Ferenc , Mateusz Płatos , Katarzyna Byrka , Magdalena Ewa Król (2023). Looking through rainbow-rimmed glasses: Taking neurodiversity perspective is related to subjective well-being of autistic adults . Autism, 27(5), 1348-1361. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221135818 OpenAlex: https://openalex.org/W4308957609
    Crossref OpenAlex OpenCitations
  86. Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . The Lancet Psychiatry, 6(10), 819-829. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(19)30289-5 OpenAlex: https://openalex.org/W2936336589
    Crossref OpenAlex OpenCitations
  87. Liron Lamash , Sonya Meyer (2022). Work-Related Self-Efficacy and Illness Identity in Adults with Autism . International Journal of Environmental Research and Public Health, 20(1), 122. MDPI AG.
    Type: Article DOI: 10.3390/ijerph20010122 OpenAlex: https://openalex.org/W4312117440
    Crossref OpenAlex OpenCitations
  88. Helen McConachie , David Mason , Jeremy R. Parr , Deborah Garland , Colin Wilson , Jacqui Rodgers (2018). Enhancing the Validity of a Quality of Life Measure for Autistic People . Journal of Autism and Developmental Disorders, 48(5), 1596-1611. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3402-z OpenAlex: https://openalex.org/W2768942203
    Crossref OpenAlex OpenCitations
  89. Emeline Han , Katrina Scior , Eric Heath , Kana Grace , Laura Crane (2023). Development of stigma-related support for autistic adults: Insights from the autism community . Autism, 27(6), 1676-1689. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221143590 OpenAlex: https://openalex.org/W4313488509
    Crossref OpenAlex OpenCitations
  90. Yunhe Huang , Julian N Trollor , Kitty‐Rose Foley , Samuel R. C. Arnold (2023). “I've Spent My Whole Life Striving to Be Normal”: Internalized Stigma and Perceived Impact of Diagnosis in Autistic Adults . Autism in Adulthood, 5(4), 423-436. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2022.0066 OpenAlex: https://openalex.org/W4316037446
    Crossref OpenAlex OpenCitations
  91. Ginny Russell , Will Mandy , Daisy Elliott , Rhianna White , Tom Pittwood , Tamsin Ford (2019). Selection bias on intellectual ability in autism research: a cross-sectional review and meta-analysis . Molecular Autism, 10(1), 9. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-019-0260-x OpenAlex: https://openalex.org/W2927010782
    Crossref OpenAlex OpenCitations
  92. Catherine D. Tan (2018). “I'm a normal autistic person, not an abnormal neurotypical”: Autism Spectrum Disorder diagnosis as biographical illumination . Social Science & Medicine, 197, 161-167. Elsevier BV.
    Type: Article DOI: 10.1016/j.socscimed.2017.12.008 OpenAlex: https://openalex.org/W2774655211
    Crossref OpenAlex OpenCitations
  93. Miriam Harmens , Felicity Sedgewick , Hannah Hobson (2022). Autistic women’s diagnostic experiences: Interactions with identity and impacts on well-being . Women's Health, 18, 17455057221137477-17455057221137477. SAGE Publications.
    Type: Article DOI: 10.1177/17455057221137477 OpenAlex: https://openalex.org/W4309363025
    Crossref OpenAlex OpenCitations
  95. Kari McDonald (2018). Social Support and Mental Health in LGBTQ Adolescents: A review of the literature . Issues in Mental Health Nursing, 39(1), 16-29. Informa UK Limited.
    Type: Article DOI: 10.1080/01612840.2017.1398283 OpenAlex: https://openalex.org/W2782792996
    Crossref OpenAlex OpenCitations
  96. Lindsey M. Weiler , Annie K. Goerdt , Kalli B. Kremer , Emily Goldberg , Rebekah L. Hudock (2022). Social Validity and Preliminary Outcomes of a Mentoring Intervention for Adolescents and Adults With Autism . Focus on Autism and Other Developmental Disabilities, 37(4), 215-226. SAGE Publications.
    Type: Article DOI: 10.1177/10883576211073687 OpenAlex: https://openalex.org/W4207031498
    Crossref OpenAlex OpenCitations
  97. Vasiliki Kentrou , Danielle MJ de Veld , Kawita JK Mataw , Sander Begeer (2019). Delayed autism spectrum disorder recognition in children and adolescents previously diagnosed with attention-deficit/hyperactivity disorder . Autism, 23(4), 1065-1072. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318785171 OpenAlex: https://openalex.org/W2893641655
    Crossref OpenAlex OpenCitations
  98. Quan Nha Hong , Sergi Fàbregues , Gillian Bartlett , Felicity Boardman , Margaret Cargo , Pierre Dagenais et al. (2018). The Mixed Methods Appraisal Tool (MMAT) version 2018 for information professionals and researchers . Education for Information, 34(4), 285-291. SAGE Publications.
    Type: Article DOI: 10.3233/efi-180221 OpenAlex: https://openalex.org/W2901724277
    Crossref OpenAlex OpenCitations
  99. Florence YN Leung , Punit Shah , David Mason , Lucy A Livingston (2024). Re-examining the association between the age of learning one is autistic and adult outcomes . Autism, 28(2), 433-448. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231173056 OpenAlex: https://openalex.org/W4380607772
    Crossref OpenAlex OpenCitations
  100. Austin H. Johnson , Baker A. Rogers (2020). “We're the Normal Ones Here”: Community Involvement, Peer Support, and Transgender Mental Health . Sociological Inquiry, 90(2), 271-292. Wiley.
    Type: Article DOI: 10.1111/soin.12347 OpenAlex: https://openalex.org/W2995328502
    Crossref OpenAlex OpenCitations
  101. Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135-146. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319853442 OpenAlex: https://openalex.org/W2947577397
    Crossref OpenAlex OpenCitations
  102. Kidney C. A. (2015). Rethinking Autism Communication and Community Involvement: Exploring Involvement in Online Communities Communication Preference Autistic Identity and Self‐Determination. Portland State University.
    Type: Autre
    Crossref
  103. Lisa D. Wiggins , Maureen Durkin , Amy Esler , Li‐Ching Lee , Walter Zahorodny , Catherine Rice et al. (2020). Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors . Autism Research, 13(3), 464-473. Wiley.
    Type: Article DOI: 10.1002/aur.2255 OpenAlex: https://openalex.org/W2995074616
    Crossref OpenAlex OpenCitations
  104. P. B. Kuld , N. Frielink , M. Zijlmans , C. Schuengel , P. J. C. M. Embregts (2023). Promoting self‐determination of persons with severe or profound intellectual disabilities: a systematic review and meta‐analysis . Journal of Intellectual Disability Research, 67(7), 589-629. Wiley.
    Type: Article DOI: 10.1111/jir.13036 OpenAlex: https://openalex.org/W4376133183
    Crossref OpenAlex OpenCitations
  105. T.A.M. McDonald (2020). Autism Identity and the “Lost Generation”: Structural Validation of the Autism Spectrum Identity Scale and Comparison of Diagnosed and Self-Diagnosed Adults on the Autism Spectrum . Autism in Adulthood, 2(1), 13-23. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2019.0069 OpenAlex: https://openalex.org/W3006983109
    Crossref OpenAlex OpenCitations
  106. Dean M. Thompson , Lesley Booth , David Moore , Jonathan Mathers (2022). Peer support for people with chronic conditions: a systematic review of reviews . BMC Health Services Research, 22(1), 427-427. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12913-022-07816-7 OpenAlex: https://openalex.org/W4220685886
    Crossref OpenAlex OpenCitations
  107. William Nguyen , Tamara Ownsworth , Chelsea Nicol , David Zimmerman (2020). How I See and Feel About Myself: Domain-Specific Self-Concept and Self-Esteem in Autistic Adults . Frontiers in Psychology, 11, 913-913. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2020.00913 OpenAlex: https://openalex.org/W3024675062
    Crossref OpenAlex OpenCitations
  109. Cameron A Maitland , Sinéad Rhodes , Anne O’Hare , Mary E. Stewart (2021). Social identities and mental well-being in autistic adults . Autism, 25(6), 1771-1783. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211004328 OpenAlex: https://openalex.org/W3160089913
    Crossref OpenAlex OpenCitations
  112. Eric Rubenstein , Sarah Furnier (2021). #Bias: The Opportunities and Challenges of Surveys That Recruit and Collect Data of Autistic Adults Online . Autism in Adulthood, 3(2), 120-128. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.0031 OpenAlex: https://openalex.org/W3102111285
    Crossref OpenAlex OpenCitations
  113. Gayle L. Overton , Ferran Marsà-Sambola , Rachael Martin , Penny Cavenagh (2024). Understanding the Self-identification of Autism in Adults: a Scoping Review . Review Journal of Autism and Developmental Disorders, 11(4), 682-702. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-023-00361-x OpenAlex: https://openalex.org/W4323360123
    Crossref OpenAlex OpenCitations
  114. Heiko Schmengler , David Cohen , Sylvie Tordjman , Maria Melchior (2021). Autism Spectrum and Other Neurodevelopmental Disorders in Children of Immigrants: A Brief Review of Current Evidence and Implications for Clinical Practice . Frontiers in Psychiatry, 12, 566368-566368. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyt.2021.566368 OpenAlex: https://openalex.org/W3139249291
    Crossref OpenAlex OpenCitations
  115. McDonald T. A. M. (2016). Identity as a Mediator between Stigma and Stereotype Threat on Postsecondary Outcomes for Adults on the Autism Spectrum. University of Wisconsin‐Madison.
    Type: Autre
    Crossref
  116. Matthew J. Page , Joanne E. McKenzie , Patrick M. Bossuyt , Isabelle Boutron , Tammy C. Hoffmann , Cynthia D. Mulrow et al. (2021). The PRISMA 2020 statement: An updated guideline for reporting systematic reviews . International Journal of Surgery, 88, 105906. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1016/j.ijsu.2021.105906 OpenAlex: https://openalex.org/W3146142859
    Crossref OpenAlex
  117. Lise Mogensen , Jan Mason (2015). The meaning of a label for teenagers negotiating identity: experiences with autism spectrum disorder . Dans Children, Health and Well‐being (pp. 83-97). Wiley.
    Type: Chapitre de livre DOI: 10.1002/9781119069522.ch7 OpenAlex: https://openalex.org/W4233968228
    Crossref OpenAlex OpenCitations
  118. Ari Ne'eman * , Elizabeth Pellicano (2022). Neurodiversity as Politics . Human Development, 66(2), 149-157. S. Karger AG.
    Type: Article DOI: 10.1159/000524277 OpenAlex: https://openalex.org/W4221096330
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  119. Kana Grace , Anna Remington , Brynmor Lloyd‐Evans , Jade Davies , Laura Crane (2022). Loneliness in autistic adults: A systematic review . Autism, 26(8), 2117-2135. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221077721 OpenAlex: https://openalex.org/W4220790656
    Crossref OpenAlex OpenCitations
  120. Tajfel H. (1979). Organizational Identity: A Reader . Organizational Identity: A Reader, 56.
    Type: Autre
    Crossref
  121. Walker N. (2014). Neurodiversity: Some basic terms & definitions. Neuroqueer Https://Neuroqueer . Com/Neurodiversity-Terms-and-Definitions
    Type: Autre
    Crossref
  122. Marcia, James E. 1937- , Waterman, Alan S. , Matteson, David R. , Archer, Sally L. , Orlofsky, Jacob L. (1993). Ego identity a handbook for psychosocial research .
    Type: Article OpenAlex: https://openalex.org/W7046912564
    OpenAlex
  123. Zeldovich L. (2018). How History Forgot the Woman Who Defined Autism‐Scientific American. https://www.scientificamerican.com/article/how-history-forgot-the-woman-who-defined-autism/
    Type: Autre
    Crossref