« Pour moi, l’anorexie n’est qu’un symptôme, et la cause est l’autisme » : étude des troubles alimentaires restrictifs chez les femmes autistes

Titre original en anglais : “For Me, the Anorexia is Just a Symptom, and the Cause is the Autism”: Investigating Restrictive Eating Disorders in Autistic Women

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

À propos de la mention auteur·ice autiste

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Brede, J., Babb, C., Jones, C. R. G., Elliott, M., Zanker, C., Tchanturia, K., Serpell, L., Fox, J. R. E., & Mandy, W. (2020). “For Me, the Anorexia is Just a Symptom, and the Cause is the Autism”: Investigating Restrictive Eating Disorders in Autistic Women. Journal of Autism and Developmental Disorders, 50(12), 4280-4296. https://doi.org/10.1007/s10803-020-04479-3

Date de publication: 09/04/2020 Ajout dans AutiHub: 04/10/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
9
Auteur·ices de la publication identifié·es comme autistes
1 / 9 (11,1 %)
  1. Janina Brede
  2. Charli Babb
  3. Catherine R G Jones
  4. Mair Elliott *
  5. Cathy Zanker
  1. Kate Tchanturia
  2. Lucy Serpell
  3. John R. E. Fox
  4. William Mandy

Résumé

Résumé Les femmes autistes sont surreprésentées parmi les personnes traitées pour une anorexie mentale (AN). La présente étude visait à : (1) mieux comprendre comment l’AN se développe et persiste chez les personnes autistes du point de vue des femmes autistes, des parents et des professionnels de santé ; (2) élaborer un modèle théorique des difficultés alimentaires restrictives dans l’autisme. Nous avons mené 44 entretiens semi-structurés et utilisé l’analyse thématique pour identifier des schémas de signification à travers les données. Les thèmes étaient liés aux sensibilités sensorielles, aux interactions sociales et aux relations, au sentiment de soi et à l’identité, aux difficultés avec les émotions, aux styles de pensée, ainsi qu’à un besoin de contrôle et de prévisibilité. Nous avons élaboré un modèle de mécanismes potentiels spécifiques à l’autisme sous-jacents aux difficultés alimentaires restrictives. Cette étude a généré de nouvelles perspectives, susceptibles d’éclairer des adaptations des traitements après des tests empiriques.

Abstract Autistic women are overrepresented among people in treatment for Anorexia Nervosa (AN). The current study aimed to: (1) better understand how AN develops and persists in autistic individuals from the perspective of autistic women, parents and healthcare professionals; (2) derive a theoretical model of restrictive eating difficulties in autism. We conducted 44 semi-structured interviews and used Thematic Analysis to identify patterns of meaning across the data. Themes related to sensory sensitivities, social interaction and relationships, sense of self and identity, difficulties with emotions, thinking styles, and a need for control and predictability. We developed a model of potential autism-specific mechanisms underlying restrictive eating difficulties. This study generated novel insights, which have the potential to inform treatment adaptations following empirical testing.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 23/10/2026 07:59.

Références citées
73
Avec un DOI
65
Sans DOI, à partir du texte brut de la bibliographie
5
2 / 73 (2,7 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
4 / 73 (5,5 %)
Références avec noms d’auteurices détectés
70 / 73 (95,9 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
4
Sans identifiant stable
5
Références avec noms bruts d’auteurices restant à vérifier
3
Références avec problème de récupération des métadonnées externes
0
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Noms d’auteurices détectés dans la bibliographie citée
269
À partir du DOI ou de métadonnées externes
269
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
6
70 / 269 (26,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 199 / 269 (74,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
2 / 269 (0,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 2 / 70 (2,9 %). Personnes distinctes identifiées comme autistes : 2 / 210 (1,0 %).
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