Préoccupations profondes concernant l’« autisme profond » : dangers des échelles de sévérité et des étiquettes de fonctionnement pour les besoins de soutien

Titre original en anglais : Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs

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Kapp, S. K. (2023). Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs. Education Sciences, 13(2), 106. https://doi.org/10.3390/educsci13020106

Date de publication: 19/01/2023 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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1 / 1 (100,0 %)
  1. Steven K. Kapp *

Résumé

Récemment, The Lancet a publié une Commission sur l’avenir des soins et de la recherche clinique sur l’autisme, qui comprenait un encadré plaidant pour l’adoption de l’« autisme profond », un terme destiné à décrire les personnes autistes qui nécessitent une supervision ou des soins constants, qui seraient généralement considérées comme ayant une déficience intellectuelle importante, un langage limité ou absent, et une incapacité à défendre leurs propres intérêts. Cette revue de pointe déconstruit les problèmes liés aux sous-étiquettes de l’autisme telles que l’« autisme profond » et les étiquettes de faible et de haut fonctionnement. Elle examine ensuite les capacités communicatives et cognitives des personnes autistes peu parlantes, constatant que ces personnes peuvent communiquer (en particulier avec des partenaires réceptifs) et nécessitent des évaluations non verbales qui leur permettent de démontrer leurs forces potentielles. Elle conclut par la capacité des personnes autistes peu parlantes à défendre leurs propres intérêts, ainsi que par les influences d’autres personnes susceptibles à la fois de soutenir et d’entraver leur communication.

Recently the Lancet published a Commission on the future of care and clinical research of autism, which included a side panel arguing for the adoption of “profound autism”, a term in- tended to describe autistic people who require constant supervision or care, thought to usually have significant intellectual disability, limited or no language, and an inability to advocate for themselves. This state-of-the-art review deconstructs problems with autism sublabels such as “profound autism” and low- and high-functioning labels. It then examines the communicative and cognitive capacities of minimally speaking autistic people, finding that such individuals can communicate (especially with responsive partners) and need nonverbal testing that allows them to demonstrate their potential strengths. It concludes with the ability of minimally speaking autistic people to self-advocate, and the influences of other people to both support and frustrate their communication.

Bibliographie citée par cette référence

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Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
225
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
27 / 225 (12,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
70 / 864 (8,1 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 70 / 268 (26,1 %). Auteurices cité·es distinct·es identifié·es comme autistes : 52 / 686 (7,6 %).
Occurrences citées rattachées à la base AutiHub
268 / 864 (31,0 %)
Auteurices cité·es distinct·es rattaché·es : 182 / 686 (26,5 %)
Occurrences rattachées, non identifiées comme autistes
198 / 268 (73,9 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 198 / 864 (22,9 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 130 / 182 (71,4 %).
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