Examen de l'utilisation de la recherche participative auprès de jeunes autistes dans les écoles ordinaires/publiques : une revue exploratoire
Titre original en anglais : Examining the utilization of participatory research with autistic youth in mainstream/public schools: a scoping review
Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.
À propos de la mention auteur·ice autisteNewson, A., Quinn, S., & Nese, R. N. T. (2024). Examining the utilization of participatory research with autistic youth in mainstream/public schools: a scoping review. Frontiers in Education, 8. https://doi.org/10.3389/feduc.2023.1308664
Cette publication est intégrée dans AutiHub via :
Auteurs
Résumé
Objectif Cette revue exploratoire examine l'utilisation de la recherche participative auprès de jeunes autistes dans des contextes d'écoles publiques/ordinaires de la maternelle à la terminale. Méthodes Une revue exploratoire a été réalisée afin de déterminer la fréquence d'utilisation des méthodologies de recherche participative dans des contextes d'écoles publiques/ordinaires de la maternelle à la terminale avec des élèves autistes, les forces, les obstacles et les recommandations que les chercheurs rapportent concernant l'utilisation de méthodologies de recherche participative avec des élèves autistes dans des contextes d'écoles publiques de la maternelle à la terminale, ainsi que le type d'informations démographiques incluses dans les études. Résultats Cinq études portant sur la recherche participative auprès de jeunes autistes dans des contextes d'écoles publiques ou ordinaires de la maternelle à la terminale ont été incluses dans la revue. Les études ont utilisé un éventail de méthodologies de recherche participative pour explorer les expériences de jeunes autistes, principalement de sexe masculin, au Royaume-Uni et en Australie. Les forces, les difficultés et les recommandations relevées comprenaient des possibilités d'autonomisation, une appropriation accrue, des problèmes liés aux enseignants, une réflexion critique sur la communication et la collaboration avec des partenaires. Conclusion La recherche participative auprès de jeunes autistes d'âge scolaire est une pratique émergente. Cela est attesté par le petit nombre d'études incluses dans cette revue. Les résultats mettent en évidence des préoccupations concernant le manque de représentation des filles autistes et des élèves ayant des identités raciales historiquement marginalisées dans la recherche sur l'autisme. Les recommandations concernant l'inclusion de ces groupes dans la recherche sur l'autisme, les implications et les limites sont examinées.
Bibliographie citée par cette référence
Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.
Vue d’ensemble de la bibliographie citée
Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 02:39.
- Avec un DOI
- 114
- Sans DOI, à partir du texte brut de la bibliographie
- 8
- Références avec noms d’auteurices détectés
- 125 / 125 (100,0 %)
- Sans nom d’auteurice détecté
- 0
- Sans titre structuré
- 5
- Sans identifiant stable
- 7
- Références avec noms bruts d’auteurices restant à vérifier
- 0
- Références avec problème de récupération des métadonnées externes
- 1
- À partir du DOI ou de métadonnées externes
- 547
- À partir du texte brut validé de la bibliographie
- 0
- Noms bruts déjà validés
- 0
- Noms bruts restant à vérifier
- 0
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Barry J. Fishman , William R. Penuel , Anna-Ruth Allen , Britte Haugan Cheng , Nora Sabelli (2013). Design-Based Implementation Research: An Emerging Model for Transforming the Relationship of Research and Practice . Teachers College Record: The Voice of Scholarship in Education, 115(14), 136-156. SAGE Publications.Crossref OpenAlex OpenCitations
-
Ajodhia-Andrews (2015). B1 Bridging understandings of differences, learning, and inclusion: Voices of minoritized students..Type: AutreCrossref
-
Jessica Zoe Zanuttini (2023). Capturing the perspectives of students with autism on their educational experiences: A systematic review . International Journal of Educational Research, 117, 102115. Elsevier BV.Crossref OpenAlex OpenCitations
-
Kathleen Lynne Lane , Jemma Robertson Kalberg , Allison Leigh Bruhn , Steven A. Driscoll , Joseph H. Wehby , Stephen N. Elliott (2009). Assessing Social Validity of School-wide Positive Behavior Support Plans: Evidence for the Reliability and Structure of the Primary Intervention Rating Scale . School Psychology Review, 38(1), 135-144. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Jennifer Ames , Elizabeth Morgan , Morénike Giwa Onaiwu *Auteur·ice autiste. En savoir plus… , Yinge Qian , Maria L Massolo , Lisa A. Croen (2022). Racial/Ethnic Differences in Psychiatric and Medical Diagnoses Among Autistic Adults . Autism in Adulthood, 4(4), 290-305. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Amber M Davis , Marjorie Solomon , Harolyn Belcher (2022). Examination of Race and Autism Intersectionality Among African American/Black Young Adults . Autism in Adulthood, 4(4), 306-314. SAGE Publications.Crossref OpenAlex OpenCitations
-
Gregory P. Hanley (2010). Toward Effective and Preferred Programming: A Case for the Objective Measurement of Social Validity with Recipients of Behavior-Change Programs . Behavior Analysis in Practice, 3(1), 13-21. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Yolanda Anyon , Kimberly Bender , Heather Kennedy , Jonah Dechants (2018). A Systematic Review of Youth Participatory Action Research (YPAR) in the United States: Methodologies, Youth Outcomes, and Future Directions . Health Education & Behavior, 45(6), 865-878. SAGE Publications.Crossref OpenAlex OpenCitations
-
Anila M. D'Mello , Isabelle R. Frosch , Cindy E. Li , Annie L. Cardinaux , John D.E. Gabrieli (2022). Exclusion of females in autism research: Empirical evidence for a “leaky” recruitment‐to‐research pipeline . Autism Research, 15(10), 1929-1940. Wiley.Crossref OpenAlex OpenCitations
-
Nour Dados , Raewyn Connell (2012). The Global South . Contexts, 11(1), 12-13. SAGE Publications.Crossref OpenAlex OpenCitations
-
Sherry R. Arnstein (1969). A Ladder Of Citizen Participation . Journal of the American Institute of Planners, 35(4), 216-224. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Montrose M. Wolf (1978). SOCIAL VALIDITY: THE CASE FOR SUBJECTIVE MEASUREMENT or HOW APPLIED BEHAVIOR ANALYSIS IS FINDING ITS HEART 1 . Journal of Applied Behavior Analysis, 11(2), 203-214. Wiley.Crossref OpenAlex OpenCitations
-
Damian Milton *Auteur·ice autiste. En savoir plus… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Maria Ashworth , Laura Crane , Robyn Steward *Auteur·ice autiste. En savoir plus… , Melissa Bovis , Elizabeth Pellicano (2020). Towards empathetic autism research: Developing an autism-specific Research Passport . Towards empathetic autism research: Developing an autism-specific Research Passport. Center for Open Science.Crossref OpenAlex OpenCitations
-
Damian Milton *Auteur·ice autiste. En savoir plus… , Tara Sims (2016). How is a sense of well-being and belonging constructed in the accounts of autistic adults? Disability & Society, 31(4), 520-534. Informa UK Limited.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
DAVID S. MANDELL , Lisa D. Wiggins , Laura Arnstein Carpenter , Julie Daniels , Carolyn DiGuiseppi , Maureen S. Durkin et al. (2009). Racial/Ethnic Disparities in the Identification of Children With Autism Spectrum Disorders . American Journal of Public Health, 99(3), 493-498. American Public Health Association.Crossref OpenAlex OpenCitations
-
Kirsty Bastable , Sandra Klopper , Alecia Samuels , Shakila Dada (2021). How Are Stakeholders With Autism Spectrum Disorder Included in the Social Validation of Augmentative and Alternative Communication Research? A Scoping Review . American Journal of Speech-Language Pathology, 30(2), 817-832. American Speech Language Hearing Association.Crossref OpenAlex OpenCitations
-
Alan E. Kazdin (1977). Assessing the Clinical or Applied Importance of Behavior Change through Social Validation . Behavior Modification, 1(4), 427-452. SAGE Publications.Crossref OpenAlex OpenCitations
-
Teal W. Benevides , Stephen Mark Shore *Auteur·ice autiste. En savoir plus… , Kate Palmer , Patricia Duncan , Alex Plank *Auteur·ice autiste. En savoir plus… , May-Lynn Andresen et al. (2020). Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project . Autism, 24(4), 822-833. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Sue Fletcher-Watson , Jonathan Adams *Auteur·ice autiste. En savoir plus… , Kabie Brook *Auteur·ice autiste. En savoir plus… , Tony Charman , Laura Crane , James Cusack *Auteur·ice autiste. En savoir plus… et al. (2019). Making the future together: Shaping autism research through meaningful participation . Autism, 23(4), 943-953. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Penny Lamb , Dianna Firbank , David Aldous (2016). Capturing the world of physical education through the eyes of children with autism spectrum disorders . Sport, Education and Society, 21(5), 698-722. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Monique Botha *Auteur·ice autiste. En savoir plus… (2021). Academic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Production . Frontiers in Psychology, 12(727542), 727542. Frontiers Media SA.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Kaitlin H. Koffer Miller , Dylan S. Cooper , Wei Song , Lindsay Shea (2022). Self-reported service needs and barriers reported by autistic adults: Differences by gender identity . Research in Autism Spectrum Disorders, 92, 101916. Elsevier BV.Crossref OpenAlex OpenCitations
-
Monique Botha *Auteur·ice autiste. En savoir plus… , David M. Frost (2020). Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population . Society and Mental Health, 10(1), 20-34. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Rita George , Mark A. Stokes (2018). Gender identity and sexual orientation in autism spectrum disorder . Autism, 22(8), 970-982. SAGE Publications.Crossref OpenAlex OpenCitations
-
Monique Botha *Auteur·ice autiste. En savoir plus… , Jacqueline Hanlon , Gemma Williams *Auteur·ice autiste. En savoir plus… (2023). Does Language Matter? Identity-First Versus Person-First Language Use in Autism Research: A Response to Vivanti . Journal of Autism and Developmental Disorders, 53(2), 870-878. Springer Science and Business Media LLC.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Christopher Frauenberger , Judith Good , Wendy Keay-Bright (2010). Phenomenology, a framework for participatory design . Proceedings of the 11th Biennial Participatory Design Conference, 187-190. ACM.Crossref OpenAlex OpenCitations
-
Dinah Murray *Auteur·ice autiste. En savoir plus… , Mike Lesser *Auteur·ice autiste. En savoir plus… , Wenn Lawson *Auteur·ice autiste. En savoir plus… (2005). Attention, monotropism and the diagnostic criteria for autism . Autism, 9(2), 139-156. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Bottema-Beutel (2023). A systematic review of social validation rrocedures in intervention research with transition-age autistic youth. Except. Child., 2023.Type: AutreCrossref
-
LAURA STERPONI , JENNIFER SHANKEY (2014). Rethinking echolalia: repetition as interactional resource in the communication of a child with autism . Journal of Child Language, 41(2), 275-304. Cambridge University Press (CUP).Crossref OpenAlex OpenCitations
-
Simon Bury , Darren Hedley , Mirko Uljarevic , Eynat Gal (2020). The autism advantage at work: A critical and systematic review of current evidence . Research in Developmental Disabilities, 105, 103750. Elsevier BV.Crossref OpenAlex OpenCitations
-
Joanne Danker , Iva Strnadová , Therese M. Cumming (2019). Picture my well-being: Listening to the voices of students with autism spectrum disorder . Research in Developmental Disabilities, 89, 130-140. Elsevier BV.Crossref OpenAlex OpenCitations
-
Samuel Capozzi *Auteur·ice autiste. En savoir plus… , Dillan Barmache *Auteur·ice autiste. En savoir plus… , Emma Cladis *Auteur·ice autiste. En savoir plus… , Edlyn Vallejo Peña , Jodie Kocur (2019). The Significance of Involving Nonspeaking Autistic Peer Mentors in Educational Programs . Autism in Adulthood, 1(3), 170-172. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Taucia E. Gonzalez , David I. Hernandez-Saca , Alfredo J. Artiles (2017). In search of voice: theory and methods in K-12 student voice research in the US, 1990–2010 . Educational Review, 69(4), 451-473. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Elizabeth Pellicano , Marc Stears (2011). Bridging autism, science and society: moving toward an ethically informed approach to autism research . Autism Research, 4(4), 271-282. Wiley.
-
Limarys Caraballo , Brian D. Lozenski , Jamila J. Lyiscott , Ernest Morrell (2017). YPAR and Critical Epistemologies: Rethinking Education Research . Review of Research in Education, 41(1), 311-336. American Educational Research Association (AERA).Crossref OpenAlex OpenCitations
-
Keith McAllister , Sean Sloan (2016). Designed by the pupils, for the pupils: an autism‐friendly school . British Journal of Special Education, 43(4), 330-357. Wiley.Crossref OpenAlex OpenCitations
-
Melissa Kirkovski , Peter G. Enticott , Paul B. Fitzgerald (2013). A Review of the Role of Female Gender in Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 43(11), 2584-2603. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Clare Carroll , Miriam Twomey (2021). Voices of Children with Neurodevelopmental Disorders in Qualitative Research: a Scoping Review . Journal of Developmental and Physical Disabilities, 33(5), 709-724. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Eric Shyman (2016). The Reinforcement of Ableism: Normality, the Medical Model of Disability, and Humanism in Applied Behavior Analysis and ASD . Intellectual and Developmental Disabilities, 54(5), 366-376. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Robin Mason , Marie Boutilier (1996). The Challenge of Genuine Power Sharing in Participatory Research: The Gap Between Theory and Practice . Canadian Journal of Community Mental Health, 15(2), 145-152. Canadian Periodical for Community Studies.Crossref OpenAlex OpenCitations
-
Carter (2019). B16 The social validity manual: Subjective evaluation of interventions..Type: AutreCrossref
-
Rene Jamison , Somer Bishop , Marisela Huerta , Alycia Halladay (2017). The clinician perspective on sex differences in autism spectrum disorders . Autism, 21(6), 772-784. SAGE Publications.Crossref OpenAlex OpenCitations
-
CAROLINE C. WANG (1999). Photovoice: A Participatory Action Research Strategy Applied to Women's Health . Journal of Women's Health, 8(2), 185-192. SAGE Publications.Crossref OpenAlex OpenCitations
-
M. Ariel Cascio , Jonathan Weiss , Éric Racine , and the Autism Research Ethics Task Force (2020). Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities . Autism, 24(7), 1676-1690. SAGE Publications.Crossref OpenAlex OpenCitations
-
Nadi Suprapto , Titin Sunarti , Suliyanah Suliyanah , Desi Wulandari , Hasan Nuurul Hidayaatullaah , Alif Syaiful Adam et al. (2020). A systematic review of photovoice as participatory action research strategies . International Journal of Evaluation and Research in Education (IJERE), 9(3), 675. Institute of Advanced Engineering and Science.Crossref OpenAlex OpenCitations
-
Jamil Jivraj , Lori‐Ann R. Sacrey , Amanda S. Newton , David Nicholas , Lonnie Zwaigenbaum (2014). Assessing the influence of researcher–partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: A scoping review . Autism, 18(7), 782-793. SAGE Publications.
-
M. Ariel Cascio , Jonathan Weiss , Éric Racine (2021). Making Autism Research Inclusive by Attending to Intersectionality: a Review of the Research Ethics Literature . Review Journal of Autism and Developmental Disorders, 8(1), 22-36. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Nathan V. Mallipeddi , Rachel A. VanDaalen (2022). Intersectionality Within Critical Autism Studies: A Narrative Review . Autism in Adulthood, 4(4), 281-289. SAGE Publications.Crossref OpenAlex OpenCitations
-
Christopher Frauenberger , Judith Good , Wendy Keay-Bright (2011). Designing technology for children with special needs: bridging perspectives through participatory design . CoDesign, 7(1), 1-28. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Amandine Catala *Auteur·ice autiste. En savoir plus… , Luc Faucher , Pierre Poirier (2021). Autism, epistemic injustice, and epistemic disablement: a relational account of epistemic agency . Synthese, 199(3-4), 9013-9039. Springer Science and Business Media LLC.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Cat StEvens (2024). The lived experience of autistic teachers: a review of the literature . International Journal of Inclusive Education, 28(9), 1871-1885. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Robert H. Horner , Edward G. Carr , James Halle , Gail McGee , Samuel Odom , Mark Wolery (2005). The Use of Single-Subject Research to Identify Evidence-Based Practice in Special Education . Exceptional Children, 71(2), 165-179. SAGE Publications.Crossref OpenAlex OpenCitations
-
Nicholas Chown *Auteur·ice autiste. En savoir plus… , Shona Murphy *Auteur·ice autiste. En savoir plus… , Elsa Suckle (2023). The autism worldview dilemma: to normalise or not to normalise, that is the question. Good Autism Pract., 24(2), 5. Center for Open Science.
-
Kristen Gillespie-Lynch , Patrick Dwyer *Auteur·ice autiste. En savoir plus… , Christopher Constantino , Steven K. Kapp *Auteur·ice autiste. En savoir plus… , Emily Hotez , Ariana Riccio et al. (2020). Can We Broaden the Neurodiversity Movement without Weakening It? Participatory Approaches as a Framework for Cross-disability Alliance Building . Dans Disability alliances and allies (pp. 189-223). Emerald Publishing Limited.Type: Chapitre de livre DOI: 10.1108/s1479-354720200000012013 OpenAlex: https://openalex.org/W3043629707AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Roger A. Hart (1992). Children's participation: from tokenism to citizenship . RePEc: Research Papers in Economics.Type: Prépublication OpenAlex: https://openalex.org/W2144277299OpenAlex
-
Nicholas Chown *Auteur·ice autiste. En savoir plus… , Jackie Robinson , Luke Beardon , Jillian Downing , Elizabeth Hughes *Auteur·ice autiste. En savoir plus… , Julia Leatherland *Auteur·ice autiste. En savoir plus… et al. (2017). Improving research about us, with us: a draft framework for inclusive autism research . Disability & Society, 32(5), 720-734. Informa UK Limited.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2014). What should autism research focus upon? Community views and priorities from the United Kingdom . Autism, 18(7), 756-770. SAGE Publications.
-
Shana R. Cohen , Kohrissa Joseph , Sarah Levinson , Jan Blacher , Abbey Eisenhower (2022). My autism is my own”: autistic identity and intersectionality in the school context . Autism Adulthood, 4(4), 315-327. SAGE Publications.Crossref OpenAlex OpenCitations
-
Erin Felepchuk (2021). Stimming, Improvisation, and COVID-19: (Re)negotiating Autistic Sensory Regulation During a Pandemic . Disability Studies Quarterly, 41(3). The Ohio State University Libraries.Crossref OpenAlex OpenCitations
-
Dana L. Mitra , Steven Jay Gross (2009). Increasing Student Voice in High School Reform . Educational Management Administration & Leadership, 37(4), 522-543. SAGE Publications.Crossref OpenAlex OpenCitations
-
Cook-Sather (2018). Tracing the evolution of student voice in educational research. Radical collegiality through student voice. Educ. Exp. Policy Pract., 2018, 17.Type: AutreCrossref
-
Tiago S. Jesus (2022). Rigour and transparency in the family of systematic reviews: The International Journal of Health Planning and Management encourages prospective protocol registration . The International Journal of Health Planning and Management, 37(5), 2523-2527. Wiley.OpenCitations
-
Casey Woodfield , Christine Ashby (2016). ‘The right path of equality’: supporting high school students with autism who type to communicate . International Journal of Inclusive Education, 20(4), 435-454. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Catherine J. Crompton , Sonny Hallett *Auteur·ice autiste. En savoir plus… , Danielle Ropar , Emma G. Flynn , Sue Fletcher-Watson (2020). ‘I never realised everybody felt as happy as I do when I am around autistic people’: A thematic analysis of autistic adults’ relationships with autistic and neurotypical friends and family . Autism, 24(6), 1438-1448. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Adam Rosenblatt (2018). Autism, Advocacy Organizations, and Past Injustice . Disability Studies Quarterly, 38(4). The Ohio State University Libraries.Crossref OpenAlex OpenCitations
-
Catherine J. Crompton , Danielle Ropar , Claire VM Evans-Williams *Auteur·ice autiste. En savoir plus… , Emma G. Flynn , Sue Fletcher-Watson (2020). Autistic peer-to-peer information transfer is highly effective . Autism, 24(7), 1704-1712. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Joanne Danker , Iva Strnadová , Therese M. Cumming (2016). School Experiences of Students With Autism Spectrum Disorder Within the Context of Student Wellbeing: A Review and Analysis of the Literature . Australasian Journal of Special Education, 40(1), 59-78. Cambridge University Press (CUP).Crossref OpenAlex OpenCitations
-
Clare Cummins , Elizabeth Pellicano , Laura Crane (2020). Autistic adults’ views of their communication skills and needs . International Journal of Language & Communication Disorders, 55(5), 678-689. Wiley.Crossref OpenAlex OpenCitations
-
Laura Roche , Dawn Adams , Megan L. E. Clark (2021). Research priorities of the autism community: A systematic review of key stakeholder perspectives . Autism, 25(2), 336-348. SAGE Publications.
-
Joanne Danker , Iva Strnadová , Therese M. Cumming (2017). Engaging Students With Autism Spectrum Disorder in Research Through Participant-Driven Photo-Elicitation Research Technique . Australasian Journal of Special Education, 41(1), 35-50. Cambridge University Press (CUP).Crossref OpenAlex OpenCitations
-
Andrea C. Tricco , Erin Lillie , Wasifa Zarin , Kelly K. O'Brien , Heather Colquhoun , Danielle Levac et al. (2018). PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation . Annals of Internal Medicine, 169(7), 467-473. American College of Physicians.Crossref OpenAlex OpenCitations
-
Georgina Warner , Jeremy R. Parr , James Cusack *Auteur·ice autiste. En savoir plus… (2019). Workshop Report: Establishing Priority Research Areas to Improve the Physical Health and Well-Being of Autistic Adults and Older People . Autism in Adulthood, 1(1), 20-26. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Rachel Loomes , Laura Hull , Will Mandy (2017). What Is the Male-to-Female Ratio in Autism Spectrum Disorder? A Systematic Review and Meta-Analysis . Journal of the American Academy of Child & Adolescent Psychiatry, 56(6), 466-474. Elsevier BV.Crossref OpenAlex OpenCitations
-
Thomas W Frazier , Géraldine Dawson , Donna S. Murray , Andy J. Shih , Jessica Snyder Sachs , Angela Geiger (2018). Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders . Journal of Autism and Developmental Disorders, 48(11), 3965-3971. Springer Science and Business Media LLC.
-
Jacquiline den Houting *Auteur·ice autiste. En savoir plus… , Julianne M. Higgins *Auteur·ice autiste. En savoir plus… , Kathy Isaacs *Auteur·ice autiste. En savoir plus… , Joanne Mahony *Auteur·ice autiste. En savoir plus… , Elizabeth Pellicano (2021). ‘I’m not just a guinea pig’: Academic and community perceptions of participatory autism research . Autism, 25(1), 148-163. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Rainart Fayette , Caroline Bond (2018). A systematic literature review of qualitative research methods for eliciting the views of young people with ASD about their educational experiences . European Journal of Special Needs Education, 33(3), 349-365. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Nancy Doyle , Almuth McDowall , Uzma Waseem (2022). Intersectional Stigma for Autistic People at Work: A Compound Adverse Impact Effect on Labor Force Participation and Experiences of Belonging . Autism in Adulthood, 4(4), 340-356. SAGE Publications.Crossref OpenAlex OpenCitations
-
Beverley Tyrrell , Kevin Woods (2018). Gathering the views of children and young people with ASD: a systematic literature review . British Journal of Special Education, 45(3), 302-328. Wiley.Crossref OpenAlex OpenCitations
-
Amanda Ajodhia-Andrews (2014). Bridging Understandings of Differences, Learning and Inclusion: Voices of Minoritized Students . TSpace (University of Toronto).Type: Thèse OpenAlex: https://openalex.org/W2625137500OpenAlex
-
Maureen S. Durkin , Matthew J. Maenner , Jon Baio , Deborah Christensen , Julie Daniels , Robert Fitzgerald et al. (2017). Autism Spectrum Disorder Among US Children (2002–2010): Socioeconomic, Racial, and Ethnic Disparities . American Journal of Public Health, 107(11), 1818-1826. American Public Health Association.Crossref OpenAlex
-
Daria P. Shamrova , Cristy E. Cummings (2017). Participatory action research (PAR) with children and youth: An integrative review of methodology and PAR outcomes for participants, organizations, and communities . Children and Youth Services Review, 81, 400-412. Elsevier BV.Crossref OpenAlex OpenCitations
-
Lino Faccini , Clare S. Allely (2021). Dealing with Trauma in Individuals with Autism Spectrum Disorders: Trauma Informed Care, Treatment, and Forensic Implications . Journal of Aggression, Maltreatment & Trauma, 30(8), 1082-1092. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Lisa D. Wiggins , Maureen S. Durkin , Amy Esler , Li‐Ching Lee , Walter Zahorodny , Catherine Rice et al. (2020). Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors . Autism Research, 13(3), 464-473. Wiley.Crossref OpenAlex OpenCitations
-
Julia L. Ferguson , Joseph H. Cihon , Justin B. Leaf , Sarah M. Van Meter , John McEachin , Ronald Leaf (2019). Assessment of social validity trends in the journal of applied behavior analysis . European Journal of Behavior Analysis, 20(1), 146-157. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Melinda R. Snodgrass , Moon Y. Chung , Hedda Meadan , James W. Halle (2018). Social validity in single-case research: A systematic literature review of prevalence and application . Research in Developmental Disabilities, 74, 160-173. Elsevier BV.Crossref OpenAlex OpenCitations
-
Ashleigh Hillier , Nicholas Gallop , Eva Mendes , Dylan Tellez , Abigail Buckingham , Afreen Nizami et al. (2020). LGBTQ + and autism spectrum disorder: Experiences and challenges . International Journal of Transgender Health, 21(1), 98-110. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Laura P. Forsythe , Kristin L. Carman , Victoria Szydlowski , Lauren Fayish , Laurie Davidson , David H. Hickam et al. (2019). Patient Engagement In Research: Early Findings From The Patient-Centered Outcomes Research Institute . Health Affairs, 38(3), 359-367. Health Affairs Publishing, LLC.Crossref OpenAlex OpenCitations
-
Hannah Hobson , Audrey Linden , Laura Crane , Tamara Kalandadze (2023). Towards reproducible and respectful autism research: Combining open and participatory autism research practices . Research in Autism Spectrum Disorders, 106, 102196. Elsevier BV.
-
Hannah Pickard , Elizabeth Pellicano , Jacquiline den Houting *Auteur·ice autiste. En savoir plus… , Laura Crane (2022). Participatory autism research: Early career and established researchers’ views and experiences . Autism, 26(1), 75-87. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Craig Goodall (2020). Inclusion is a feeling, not a place: a qualitative study exploring autistic young people’s conceptualisations of inclusion . International Journal of Inclusive Education, 24(12), 1285-1310. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis , Dora M. Raymaker *Auteur·ice autiste. En savoir plus… , Katherine McDonald , Emily M. Lund , Sandra M. Leotti , Steven K. Kapp *Auteur·ice autiste. En savoir plus… et al. (2020). Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations . Autism in Adulthood, 2(1), 61-76. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Tina Cook (2019). Community-based participatory research for health: advancing social and health equity . Educational Action Research, 27(1), 144-145. Informa UK Limited.OpenAlex
-
Rebecca Wood (2024). Happier on the outside? Discourses of exclusion, disempowerment and belonging from former autistic school staff . Journal of Research in Special Educational Needs, 24(1), 39-52. Wiley.Crossref OpenAlex OpenCitations
-
Danielle Lake , Joel Wendland (2018). Practical, epistemological, and ethical challenges of participatory action research: A cross-disciplinary review of the literature. J. High. Educ. Outreach Engage., 22(3), 11.Type: Article OpenAlex: https://openalex.org/W2895033913Crossref OpenAlex
-
Craig Goodall , Alison MacKenzie (2019). Title: what about my voice? Autistic young girls’ experiences of mainstream school . European Journal of Special Needs Education, 34(4), 499-513. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Jasmine Phung , Melanie Penner , Clémentine Pirlot *Auteur·ice autiste. En savoir plus… , Christie Welch (2021). What I Wish You Knew: Insights on Burnout, Inertia, Meltdown, and Shutdown From Autistic Youth . Frontiers in Psychology, 12, 741421. Frontiers Media SA.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Hart (1992). B52 Children’s participation: From tokenism to citizenship.Type: AutreCrossref
-
Christine McAuliffe , Reubs J. Walsh , Eilidh Cage (2023). My whole life has been a process of finding labels that fit”: a thematic analysis of autistic LGBTQIA+ identity and inclusion in the LGBTQIA+ community . Autism Adulthood, 5(2), 127-138. SAGE Publications.Crossref OpenAlex OpenCitations
-
Steven K. Kapp *Auteur·ice autiste. En savoir plus… , Robyn Steward *Auteur·ice autiste. En savoir plus… , Laura Crane , Daisy Elliott , Chris Elphick , Elizabeth Pellicano et al. (2019). ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming . Autism, 23(7), 1782-1792. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Kayla Malone , Jamie N. Pearson , Kayla Palazzo *Auteur·ice autiste. En savoir plus… , Lonnie D. Manns , Amelia Q. Rivera , DeVoshia L. Mason Martin (2022). The scholarly neglect of black autistic adults in autism research . Autism Adulthood, 4(4), 271. SAGE Publications.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis , Dora M. Raymaker *Auteur·ice autiste. En savoir plus… , Steven K. Kapp *Auteur·ice autiste. En savoir plus… , Mel Baggs *Auteur·ice autiste. En savoir plus… , Elesia Ashkenazy *Auteur·ice autiste. En savoir plus… , Katherine McDonald et al. (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants . Autism, 23(8), 2007. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Philippa L Howard , Felicity Sedgewick (2021). ‘Anything but the phone!’: Communication mode preferences in the autism community . Autism, 25(8), 2265-2278. SAGE Publications.Crossref OpenAlex OpenCitations
-
Laura Hull , K.V. Petrides , Will Mandy (2020). The Female Autism Phenotype and Camouflaging: a Narrative Review . Review Journal of Autism and Developmental Disorders, 7(4), 306-317. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Rebecca Wood , Francesca Happé (2020). Do Autistic Children Need Autistic Teachers? Findings from an Online Survey in the UK . SocArXiv. Center for Open Science.Crossref OpenAlex OpenCitations
-
Desiree R Jones , DAVID S. MANDELL (2020). To address racial disparities in autism research, we must think globally, act locally . Autism, 24(7), 1587-1589. SAGE Publications.Crossref OpenAlex OpenCitations
-
Stacy L. Carter , John J. Wheeler (2019). The Social Validity Manual: Subjective Evaluation of Interventions .Type: Livre OpenAlex: https://openalex.org/W2981623571OpenAlex
-
Imene Zoulikha Kassous (2023). Researching autism in the Global South (MENA region): To what extent is Western autism research inclusive towards the Global South? Women’s Health, 19, 17455057231156315-17455057231156315. SAGE Publications.Crossref OpenAlex
-
Elizabeth Pellicano (2020). Commentary: Broadening the research remit of participatory methods in autism science – a commentary on Happé and Frith (2020) . Journal of Child Psychology and Psychiatry, 61(3), 233-235. Wiley.
-
Kristina Lopez , Christina Nicolaidis , Arianne Garcia , TC Waisman *Auteur·ice autiste. En savoir plus… , M. Ariel Cascio , Bin Feng (2022). An Expert Roundtable Discussion on Intersectionality and Autism in Adulthood . Autism in Adulthood, 4(4), 258-264. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Kristina Lopez (2022). Intersectionality on the Horizon: Exploring Autism in Adulthood from a Unique Vantage Point . Autism in Adulthood, 4(4), 255-257. SAGE Publications.Crossref OpenAlex OpenCitations
-
Owen McGill *Auteur·ice autiste. En savoir plus… , Anna Robinson (2021). “Recalling hidden harms”: autistic experiences of childhood applied behavioural analysis (ABA) . Advances in Autism, 7(4), 269-282. Emerald.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Elizabeth Pellicano , Wenn Lawson *Auteur·ice autiste. En savoir plus… , Gabrielle Hall *Auteur·ice autiste. En savoir plus… , Joanne Mahony *Auteur·ice autiste. En savoir plus… , Rozanna Lilley , Melanie Heyworth *Auteur·ice autiste. En savoir plus… et al. (2022). “I Knew She'd Get It, and Get Me”: Participants' Perspectives of a Participatory Autism Research Project . Autism in Adulthood, 4(2), 120-129. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Melissa Maye , Brian A. Boyd , Frances Martínez-Pedraza , Alycia Halladay , Audrey Thurm , DAVID S. MANDELL (2022). Biases, barriers, and possible solutions: Steps towards addressing autism researchers’ under-engagement with racially, ethnically, and socioeconomically diverse communities . Journal of Autism and Developmental Disorders, 52(9), 4206. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Jessica Monahan *Auteur·ice autiste. En savoir plus… , Brian Freedman , Kerry Pini , Rebecca Lloyd (2023). Autistic Input in Social Skills Interventions for Young Adults: a Systematic Review of the Literature . Review Journal of Autism and Developmental Disorders, 10(1), 1-21. Springer Science and Business Media LLC.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Peter Mitchell , Elizabeth Sheppard , Sarah Cassidy (2021). Autism and the double empathy problem: Implications for development and mental health . British Journal of Developmental Psychology, 39(1), 1-18. Wiley.Crossref OpenAlex OpenCitations
-
Matthew J. Page , Joanne E. McKenzie , Patrick M. Bossuyt , Isabelle Boutron , Tammy C. Hoffmann , Cynthia D. Mulrow et al. (2021). The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. Int. J. Surg., 88, 105906. Ovid Technologies (Wolters Kluwer Health).Crossref OpenAlex
-
Schieve, Laura A. , Daniels, Julie , Christensen, Deborah , Yeargin-Allsopp, Marshalyn , Imm, Pamela , Baio, Jon et al. (2017). Autism Spectrum Disorder Among US Children (2002–2010): Socioeconomic, Racial, and Ethnic Disparities . UNC Libraries. The University of North Carolina at Chapel Hill University Libraries.OpenCitations
-
Heta Pukki *Auteur·ice autiste. En savoir plus… , Jorn Bettin *Auteur·ice autiste. En savoir plus… , Avery Grey Outlaw *Auteur·ice autiste. En savoir plus… , Joshua Hennessy *Auteur·ice autiste. En savoir plus… , Kabie Brook *Auteur·ice autiste. En savoir plus… , Martijn Dekker *Auteur·ice autiste. En savoir plus… et al. (2022). Autistic Perspectives on the Future of Clinical Autism Research . Autism in Adulthood, 4(2), 93-101. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Danielle Rudd , Se Kwang Hwang (2022). Participatory research in a pandemic: The impact of Covid-19 on co-designing research with autistic people . Qualitative Social Work, 21(5), 869-879. SAGE Publications.Crossref OpenAlex OpenCitations
-
Arsenio Paez (2017). Gray literature: An important resource in systematic reviews . Journal of Evidence-Based Medicine, 10(3), 233-240. Wiley.Crossref OpenAlex OpenCitations
-
Rebecca E. Poulsen *Auteur·ice autiste. En savoir plus… , Charlotte Brownlow , Wenn Lawson *Auteur·ice autiste. En savoir plus… , Elizabeth Pellicano (2022). Meaningful research for autistic people? Ask autistics! Autism, 26(1), 3-5. SAGE Publications.AutiHub · Contributions académiques de personnes autistes sur l’autisme AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
-
Rachel K. Schuck , Patrick Dwyer *Auteur·ice autiste. En savoir plus… , Kaitlynn M. P. Baiden , Zachary J. Williams *Auteur·ice autiste. En savoir plus… , Mian Wang (2024). Social Validity of Pivotal Response Treatment for Young Autistic Children: Perspectives of Autistic Adults . Journal of Autism and Developmental Disorders, 54(2), 423-441. Springer Science and Business Media LLC.
-
Snow (2011). B105 Interpreting Asperger Syndrome through an analysis of students’ engagement with “majoritarian” narratives..Type: AutreCrossref
-
Wallerstein (2017). B111 Community-Based Participatory Research for Health: Advancing Social and Health Equity..Type: AutreCrossref