« Les gens devraient être autorisés à faire ce qu’ils aiment » : points de vue et expériences d’adultes autistes concernant le stimming

Titre original en anglais : ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming

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Kapp, S. K., Steward, R., Crane, L., Elliott, D., Elphick, C., Pellicano, E., & Russell, G. (2019). ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming. Autism, 23(7), 1782-1792. https://doi.org/10.1177/1362361319829628

Date de publication: 28/02/2019 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI) Texte intégral

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Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
2 / 7 (28,6 %)
  1. Steven K. Kapp *
  2. Robyn Steward *
  3. Laura Crane
  4. Daisy Elliott
  1. Chris Elphick
  2. Elizabeth Pellicano
  3. Ginny Russell

Résumé

Les « mouvements moteurs stéréotypés ou répétitifs » sont caractérisés comme des éléments centraux du diagnostic de l’autisme, mais de nombreux adultes autistes (et le mouvement de la neurodiversité) se les sont réappropriés sous le terme de « stimming ». Soutenus par un corpus croissant de recherches scientifiques, les adultes autistes soutiennent que ces comportements peuvent servir de mécanismes d’adaptation utiles, mais peu de recherches ont examiné le stimming du point de vue des adultes autistes. Au moyen d’entretiens et de groupes de discussion, nous avons demandé à 32 adultes autistes de partager leurs perceptions et leurs expériences du stimming, y compris les raisons pour lesquelles ils pratiquent le stimming, toute valeur que cela peut avoir pour eux et leurs perceptions des réactions des autres au stimming. À l’aide d’une analyse thématique, nous avons identifié deux thèmes : le stimming comme (1) un mécanisme d’autorégulation et (2) un comportement dépourvu d’acceptation sociale, mais qui peut devenir accepté grâce à la compréhension. Les adultes autistes ont souligné l’importance du stimming comme mécanisme adaptatif qui les aide à s’apaiser ou à communiquer des émotions ou des pensées intenses et se sont donc opposés à un traitement visant à éliminer ce comportement.

'Stereotyped or repetitive motor movements' are characterised as core features in the diagnosis of autism, yet many autistic adults (and the neurodiversity movement) have reclaimed them as 'stimming'. Supported by a growing body of scientific research, autistic adults argue that these behaviours may serve as useful coping mechanisms, yet little research has examined stimming from the perspective of autistic adults. Through interviews and focus groups, we asked 32 autistic adults to share their perceptions and experiences of stimming, including the reasons they stim, any value doing so may hold for them and their perceptions of others' reactions to stimming. Using thematic analysis, we identified two themes: stimming as (1) a self-regulatory mechanism and (2) lacking in social acceptance, but can become accepted through understanding. Autistic adults highlighted the importance of stimming as an adaptive mechanism that helps them to soothe or communicate intense emotions or thoughts and thus objected to treatment that aims to eliminate the behaviour.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
70
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
7 / 70 (10,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
7 / 150 (4,7 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 7 / 33 (21,2 %). Auteurices cité·es distinct·es identifié·es comme autistes : 5 / 139 (3,6 %).
Occurrences citées rattachées à la base AutiHub
33 / 150 (22,0 %)
Auteurices cité·es distinct·es rattaché·es : 28 / 139 (20,1 %)
Occurrences rattachées, non identifiées comme autistes
26 / 33 (78,8 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 26 / 150 (17,3 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 23 / 28 (82,1 %).
1 entrée de bibliographie citée n’a pas pu être entièrement enrichie à partir des métadonnées DOI.
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