Pouvons-nous élargir le mouvement de la neurodiversité sans l'affaiblir ? Les approches participatives comme cadre pour la construction d'alliances inter-handicaps

Titre original en anglais : Can We Broaden the Neurodiversity Movement without Weakening It? Participatory Approaches as a Framework for Cross-disability Alliance Building

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». quatre auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Gillespie-Lynch, K., Dwyer, P., Constantino, C., Kapp, S. K., Hotez, E., Riccio, A., DeNigris, D., Kofner, B., & Endlich, E. (2020). Can We Broaden the Neurodiversity Movement without Weakening It? Participatory Approaches as a Framework for Cross-disability Alliance Building. In Disability Alliances and Allies (pp. 189-223). Emerald Publishing Limited. https://doi.org/10.1108/s1479-354720200000012013 · ISBN : 9781839093227

Date de publication: 27/10/2020 Ajout dans AutiHub: 05/07/2026 Type: Chapitre de livre Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
9
Auteur·ices de la publication identifié·es comme autistes
4 / 9 (44,4 %)
  1. Kristen Gillespie-Lynch
  2. Patrick Dwyer *
  3. Christopher Constantino
  4. Steven K. Kapp *
  5. Emily Hotez
  1. Ariana Riccio
  2. Danielle DeNigris
  3. Bella Kofner *
  4. Eric Endlich *

Résumé

Résumé Objectif : Nous examinons de manière critique l'idée de la neurodiversité, ou l'unicité de tous les cerveaux, comme fondement du mouvement de la neurodiversité, qui a débuté comme un mouvement pour les droits des personnes autistes. Nous explorons le potentiel du mouvement de la neurodiversité à soutenir des alliances inter-handicaps pouvant transformer les cultures. Méthodes/Approche : Une équipe neurodiverse a examiné la littérature sur l'histoire du mouvement de la neurodiversité et les méthodologies de recherche participative associées, et s'est appuyée sur nos expériences d'orientation de programmes dirigés, à des degrés divers, par des personnes neurodivergentes. Nous mettons en évidence deux programmes destinés aux étudiants universitaires autistes, l'un créé par et pour des personnes autistes et l'autre élaboré en collaboration avec des étudiants autistes et non autistes. Ces programmes sont comparés à un groupe national d'entraide créé par et pour des personnes qui bégaient et qui inclut des « neurotypiques ». Résultats : Des pratiques alignées sur la neurodiversité ont émergé dans diverses communautés. Des avantages et des difficultés similaires liés à la construction d'alliances au sein des neurotypes, par opposition à celle entre les neurotypes, étaient apparents dans des communautés qui n'avaient pas été en contact étroit. La neurodiversité fournit un cadre que les personnes présentant diverses conditions peuvent utiliser pour s'identifier et travailler ensemble afin de remettre en question des formes d'oppression partagées. Toutefois, les personnes interprètent le mouvement de la neurodiversité de diverses manières. En nous concentrant sur les aspects fondamentaux du paradigme de la neurodiversité, nous pouvons favoriser des alliances entre diverses perspectives. Implications/Valeurs : Prendre conscience des déséquilibres de pouvoir et œuvrer à les rectifier est essentiel pour construire des alliances efficaces entre les neurotypes. Un espace et un temps suffisants sont nécessaires pour créer des alliances saines. Les approches participatives, ainsi que les approches dirigées uniquement par des personnes neurodivergentes, peuvent commencer à répondre aux préoccupations relatives au pouvoir et à la représentation au sein du mouvement de la neurodiversité tout en modifiant la compréhension du public.

Abstract Purpose: We critically examine the idea of neurodiversity, or the uniqueness of all brains, as the foundation for the neurodiversity movement, which began as an autism rights movement. We explore the neurodiversity movement's potential to support cross-disability alliances that can transform cultures. Methods/Approach: A neurodiverse team reviewed literature about the history of the neurodiversity movement and associated participatory research methodologies and drew from our experiences guiding programs led, to varying degrees, by neurodivergent people. We highlight two programs for autistic university students, one started by and for autistics and one developed in collaboration with autistic and nonautistic students. These programs are contrasted with a national self-help group started by and for stutterers that is inclusive of “neurotypicals.” Findings: Neurodiversity-aligned practices have emerged in diverse communities. Similar benefits and challenges of alliance building within versus across neurotypes were apparent in communities that had not been in close contact. Neurodiversity provides a framework that people with diverse conditions can use to identify and work together to challenge shared forms of oppression. However, people interpret the neurodiversity movement in diverse ways. By honing in on core aspects of the neurodiversity paradigm, we can foster alliances across diverse perspectives. Implications/ Values: Becoming aware of power imbalances and working to rectify them is essential for building effective alliances across neurotypes. Sufficient space and time are needed to create healthy alliances. Participatory approaches, and approaches solely led by neurodivergent people, can begin to address concerns about power and representation within the neurodiversity movement while shifting public understanding.

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Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 03/10/2026 01:00.

Références citées
173
Avec un DOI
117
Sans DOI, à partir du texte brut de la bibliographie
55
28 / 173 (16,2 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
13 / 173 (7,5 %)
Références avec noms d’auteurices détectés
160 / 173 (92,5 %)
Sans nom d’auteurice détecté
13
Sans titre structuré
13
Sans identifiant stable
52
Références avec noms bruts d’auteurices restant à vérifier
13
Références avec problème de récupération des métadonnées externes
0
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Noms d’auteurices détectés dans la bibliographie citée
566
À partir du DOI ou de métadonnées externes
566
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
13
263 / 566 (46,5 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 303 / 566 (53,5 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
43 / 566 (7,6 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 43 / 263 (16,3 %). Personnes distinctes identifiées comme autistes : 31 / 467 (6,6 %).
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