L'autoreprésentation autistique et le mouvement de la neurodiversité : implications pour la recherche et la pratique en matière d'intervention précoce dans l'autisme

Titre original en anglais : Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice

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Leadbitter, K., Buckle, K. L., Ellis, C., & Dekker, M. (2021). Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice. Frontiers in Psychology, 12, 635690-635690. https://doi.org/10.3389/fpsyg.2021.635690

Date de publication: 12/04/2021 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
2 / 4 (50,0 %)
  1. Kathy Leadbitter
  2. Karen Leneh Buckle *
  3. Ceri Ellis
  4. Martijn Dekker *

Résumé

La croissance de l'autoreprésentation autistique et du mouvement de la neurodiversité a suscité de nouveaux débats éthiques, théoriques et idéologiques au sein de la théorie, de la recherche et de la pratique relatives à l'autisme. Ces débats ont eu un impact réel dans certains domaines de la recherche sur l'autisme, mais leur influence est moins manifeste dans la recherche sur l'intervention précoce. Dans cet article, nous soutenons que toutes les parties prenantes des interventions dans l'autisme doivent comprendre et prendre activement en compte les points de vue des personnes autistes ainsi que la neurodiversité en tant que concept et mouvement. Ce faisant, les chercheurs et praticiens en intervention sont tenus de s'éloigner d'un programme normatif et d'accorder une attention diligente à l'adéquation avec l'environnement, aux trajectoires développementales autistiques, aux moteurs internes et aux expériences, ainsi qu'aux cibles d'intervention prioritaires pour les personnes autistes. Les chercheurs en intervention dans l'autisme doivent répondre à ces débats en recadrant l'efficacité, en développant des outils pour mesurer les résultats prioritaires pour les personnes autistes et en formant des partenariats avec les personnes autistes. Il existe un besoin urgent d'une réflexion et d'une explicitation accrues sur la manière dont les pratiques d'intervention s'alignent sur un cadre de neurodiversité, ainsi que d'une plus grande emphase, au sein des programmes d'intervention, sur les processus développementaux naturels, les stratégies d'adaptation, l'autonomie et le bien-être.

The growth of autistic self-advocacy and the neurodiversity movement has brought about new ethical, theoretical and ideological debates within autism theory, research and practice. These debates have had genuine impact within some areas of autism research but their influence is less evident within early intervention research. In this paper, we argue that all autism intervention stakeholders need to understand and actively engage with the views of autistic people and with neurodiversity as a concept and movement. In so doing, intervention researchers and practitioners are required to move away from a normative agenda and pay diligence to environmental goodness-of-fit, autistic developmental trajectories, internal drivers and experiences, and autistic prioritized intervention targets. Autism intervention researchers must respond to these debates by reframing effectiveness, developing tools to measure autistic prioritized outcomes, and forming partnerships with autistic people. There is a pressing need for increased reflection and articulation around how intervention practices align with a neurodiversity framework and greater emphasis within intervention programmes on natural developmental processes, coping strategies, autonomy, and well-being.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
81
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
15 / 81 (18,5 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
21 / 311 (6,8 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 21 / 140 (15,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 16 / 241 (6,6 %).
Occurrences citées rattachées à la base AutiHub
140 / 311 (45,0 %)
Auteurices cité·es distinct·es rattaché·es : 87 / 241 (36,1 %)
Occurrences rattachées, non identifiées comme autistes
119 / 140 (85,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 119 / 311 (38,3 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 71 / 87 (81,6 %).
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