L'autoreprésentation autistique et le mouvement de la neurodiversité : implications pour la recherche et la pratique en matière d'intervention précoce dans l'autisme

Titre original en anglais : Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». deux auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Leadbitter, K., Buckle, K. L., Ellis, C., & Dekker, M. (2021). Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice. Frontiers in Psychology, 12, 635690-635690. https://doi.org/10.3389/fpsyg.2021.635690

Date de publication: 12/04/2021 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
2 / 4 (50,0 %)
  1. Kathy Leadbitter
  2. Karen Leneh Buckle *
  3. Ceri Ellis
  4. Martijn Dekker *

Résumé

La croissance de l'autoreprésentation autistique et du mouvement de la neurodiversité a suscité de nouveaux débats éthiques, théoriques et idéologiques au sein de la théorie, de la recherche et de la pratique relatives à l'autisme. Ces débats ont eu un impact réel dans certains domaines de la recherche sur l'autisme, mais leur influence est moins manifeste dans la recherche sur l'intervention précoce. Dans cet article, nous soutenons que toutes les parties prenantes des interventions dans l'autisme doivent comprendre et prendre activement en compte les points de vue des personnes autistes ainsi que la neurodiversité en tant que concept et mouvement. Ce faisant, les chercheurs et praticiens en intervention sont tenus de s'éloigner d'un programme normatif et d'accorder une attention diligente à l'adéquation avec l'environnement, aux trajectoires développementales autistiques, aux moteurs internes et aux expériences, ainsi qu'aux cibles d'intervention prioritaires pour les personnes autistes. Les chercheurs en intervention dans l'autisme doivent répondre à ces débats en recadrant l'efficacité, en développant des outils pour mesurer les résultats prioritaires pour les personnes autistes et en formant des partenariats avec les personnes autistes. Il existe un besoin urgent d'une réflexion et d'une explicitation accrues sur la manière dont les pratiques d'intervention s'alignent sur un cadre de neurodiversité, ainsi que d'une plus grande emphase, au sein des programmes d'intervention, sur les processus développementaux naturels, les stratégies d'adaptation, l'autonomie et le bien-être.

The growth of autistic self-advocacy and the neurodiversity movement has brought about new ethical, theoretical and ideological debates within autism theory, research and practice. These debates have had genuine impact within some areas of autism research but their influence is less evident within early intervention research. In this paper, we argue that all autism intervention stakeholders need to understand and actively engage with the views of autistic people and with neurodiversity as a concept and movement. In so doing, intervention researchers and practitioners are required to move away from a normative agenda and pay diligence to environmental goodness-of-fit, autistic developmental trajectories, internal drivers and experiences, and autistic prioritized intervention targets. Autism intervention researchers must respond to these debates by reframing effectiveness, developing tools to measure autistic prioritized outcomes, and forming partnerships with autistic people. There is a pressing need for increased reflection and articulation around how intervention practices align with a neurodiversity framework and greater emphasis within intervention programmes on natural developmental processes, coping strategies, autonomy, and well-being.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 17:07.

Références citées
81
Avec un DOI
60
Sans DOI, à partir du texte brut de la bibliographie
19
17 / 81 (21,0 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
14 / 81 (17,3 %)
Références avec noms d’auteurices détectés
67 / 81 (82,7 %)
Sans nom d’auteurice détecté
14
Sans titre structuré
13
Sans identifiant stable
19
Références avec noms bruts d’auteurices restant à vérifier
9
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
311
À partir du DOI ou de métadonnées externes
311
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
9
173 / 311 (55,6 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 138 / 311 (44,4 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
25 / 311 (8,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 25 / 173 (14,5 %). Personnes distinctes identifiées comme autistes : 20 / 241 (8,3 %).
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