Une revue systématique des obstacles et facilitateurs qui empêchent et permettent l'accès aux services de soins de santé physique pour les adultes autistes

Titre original en anglais : A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults

Mason, D., Ingham, B., Urbanowicz, A., Michael, C., Birtles, H., Woodbury‐Smith, M., Brown, T., James, I. A., Scarlett, C., Nicolaidis, C., & Parr, J. R. (2019). A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults. Journal of Autism and Developmental Disorders, 49(8), 3387-3400. https://doi.org/10.1007/s10803-019-04049-2

Date de publication: 23/05/2019 Ajout dans AutiHub: 18/07/2026 Type: Article Langue de l’article: Anglais

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Auteurs

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Résumé

Les personnes autistes sont plus susceptibles : de recevoir un diagnostic pour un éventail d'affections de santé physique (c.-à-d. les maladies cardio-vasculaires) ; de connaître une mortalité prématurée (pour la plupart des catégories de maladies) ; et de rencontrer des obstacles à un accès efficace aux soins de santé. Cette revue systématique visait à identifier les études qui rendent compte des obstacles et des facilitateurs de l'accès aux soins de santé physique pour les personnes autistes. Au total, 3111 documents ont été examinés et six études ont été incluses : deux études quantitatives, deux études qualitatives et deux études à méthodologie mixte. La communication patient-prestataire, les sensibilités sensorielles et les difficultés de fonctionnement exécutif/de planification sont apparues comme d'importants obstacles aux soins de santé. Des recommandations destinées aux cliniciens et aux personnes planifiant les services sont examinées.

Autistic people are more likely to: be diagnosed with a range of physical health conditions (i.e. cardio-vascular disease); experience premature mortality (for most disease categories); and experience barriers to effectively accessing healthcare. This systematic review sought to identify studies that report on barriers and facilitators to physical healthcare access for autistic people. A total of 3111 records were screened and six studies were included: two quantitative, two qualitative, and two mixed-methodology studies. Patient-provider communication, sensory sensitivities, and executive functioning/planning issues emerged as important barriers to healthcare. Recommendations for clinicians and those planning services are discussed.

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