Une revue systématique des obstacles et facilitateurs qui empêchent et permettent l'accès aux services de soins de santé physique pour les adultes autistes

Titre original en anglais : A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». deux auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

À propos de la mention auteur·ice autiste

Sources de métadonnées utilisées pour cette référence

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En savoir plus sur les sources utilisées

Mason, D., Ingham, B., Urbanowicz, A., Michael, C., Birtles, H., Woodbury-Smith, M., Brown, T., James, I. A., Scarlett, C., Nicolaidis, C., & Parr, J. R. (2019). A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults. Journal of Autism and Developmental Disorders, 49(8), 3387-3400. https://doi.org/10.1007/s10803-019-04049-2

Date de publication: 23/05/2019 Ajout dans AutiHub: 18/07/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
11
Auteur·ices de la publication identifié·es comme autistes
2 / 11 (18,2 %)
  1. David Mason *
  2. Barry Ingham
  3. Anna Urbanowicz
  4. Cos Michael *
  1. Heather Birtles
  2. Marc Woodbury-Smith
  3. Toni Brown
  4. Ian A James
  1. Clare Scarlett
  2. Christina Nicolaidis
  3. Jeremy R. Parr

Résumé

Les personnes autistes sont plus susceptibles : de recevoir un diagnostic pour un éventail d'affections de santé physique (c.-à-d. les maladies cardio-vasculaires) ; de connaître une mortalité prématurée (pour la plupart des catégories de maladies) ; et de rencontrer des obstacles à un accès efficace aux soins de santé. Cette revue systématique visait à identifier les études qui rendent compte des obstacles et des facilitateurs de l'accès aux soins de santé physique pour les personnes autistes. Au total, 3111 documents ont été examinés et six études ont été incluses : deux études quantitatives, deux études qualitatives et deux études à méthodologie mixte. La communication patient-prestataire, les sensibilités sensorielles et les difficultés de fonctionnement exécutif/de planification sont apparues comme d'importants obstacles aux soins de santé. Des recommandations destinées aux cliniciens et aux personnes planifiant les services sont examinées.

Autistic people are more likely to: be diagnosed with a range of physical health conditions (i.e. cardio-vascular disease); experience premature mortality (for most disease categories); and experience barriers to effectively accessing healthcare. This systematic review sought to identify studies that report on barriers and facilitators to physical healthcare access for autistic people. A total of 3111 records were screened and six studies were included: two quantitative, two qualitative, and two mixed-methodology studies. Patient-provider communication, sensory sensitivities, and executive functioning/planning issues emerged as important barriers to healthcare. Recommendations for clinicians and those planning services are discussed.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 13:58.

Références citées
54
Avec un DOI
50
Sans DOI, à partir du texte brut de la bibliographie
3
6 / 54 (11,1 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
3 / 54 (5,6 %)
Références avec noms d’auteurices détectés
51 / 54 (94,4 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
3
Sans identifiant stable
3
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
228
À partir du DOI ou de métadonnées externes
228
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
7
98 / 228 (43,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 130 / 228 (57,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
20 / 228 (8,8 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 20 / 98 (20,4 %). Personnes distinctes identifiées comme autistes : 7 / 184 (3,8 %).
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