Faire le lien entre la neurodiversite et la science ouverte : comment des valeurs partagees peuvent orienter les meilleures pratiques en matiere d'integrite de la recherche, de justice sociale et d'education fondee sur des principes

Auteurs

Résumé

RESUME Toutes les personnes ne se conforment pas aux normes socialement construites, et elles ne devraient pas avoir a le faire. La neurodiversite, la variation naturelle des cerveaux humains et de la cognition, est fondamentale pour comprendre le comportement humain ; pourtant, les personnes neurodivergentes dans le milieu universitaire sont souvent stigmatisees, sous-evaluees ou poussees a masquer leurs differences. Cette prise de position, redigee majoritairement par des universitaires neurodivergents, examine comment l'alignement des valeurs du mouvement de la neurodiversite sur les pratiques de la science ouverte (OSch) peut favoriser une plus grande integrite et rigueur de la recherche, ainsi que la responsabilite sociale et la justice, la diversite, l'equite, l'inclusivite et l'accessibilite dans le milieu universitaire. Nous examinons les obstacles systemiques auxquels sont confrontes les chercheurs neurodivergents, allant des dilemmes lies a la divulgation aux attentes du curriculum cache, en passant par les desavantages intersectionnels, et nous identifions comment les principes de l'OSch (transparence, accessibilite, collaboration) peuvent aider a attenuer ces difficultes. En nous appuyant sur des experiences vecues et sur les recherches actuelles, nous proposons des reformes concretes, notamment l'adoption de la conception universelle dans la communication savante, la promotion de methodes de recherche participative et la mise en oeuvre de politiques de soutien (p. ex., des modalites de travail flexibles, des codes de conduite inclusifs). En tirant parti des valeurs partagees d'ouverture et de neuro-inclusion, le milieu universitaire peut devenir plus juste et plus equitable sur le plan epistemique. Nos recommandations tracent une voie vers une culture universitaire dans laquelle les universitaires neurodivergents peuvent s'epanouir ouvertement, au profit tant de la rigueur scientifique que de la justice sociale.

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