Faire le lien entre la neurodiversite et la science ouverte : comment des valeurs partagees peuvent orienter les meilleures pratiques en matiere d'integrite de la recherche, de justice sociale et d'education fondee sur des principes

Titre original en anglais : Bridging Neurodiversity and Open Scholarship: How Shared Values Can Guide Best Practices for Research Integrity, Social Justice, and Principled Education

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». trois auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Phan, J. M., Middleton, S. L., Azevedo, F., Iley, B., Grose‐Hodge, M., Tyler, S. L., Kapp, S. K., Yeung, S. K., Shaw, J. J., Hartmann, H., & FORRT (2025). Bridging Neurodiversity and Open Scholarship: How Shared Values Can Guide Best Practices for Research Integrity, Social Justice, and Principled Education. Journal of Social Issues, 81(4). https://doi.org/10.1111/josi.70035

Date de publication: 21/10/2025 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
11
Auteur·ices de la publication identifié·es comme autistes
3 / 11 (27,3 %)
  1. Jenny Mai Phan *
  2. Sara Lil Middleton
  3. Flavio Azevedo
  4. Bethan Iley *
  1. Magdalena Grose‐Hodge
  2. Samantha Lily Tyler
  3. Steven K. Kapp *
  4. Siu Kit Yeung
  1. John J. Shaw
  2. Helena Hartmann
  3. FORRT

Résumé

RESUME Toutes les personnes ne se conforment pas aux normes socialement construites, et elles ne devraient pas avoir a le faire. La neurodiversite, la variation naturelle des cerveaux humains et de la cognition, est fondamentale pour comprendre le comportement humain ; pourtant, les personnes neurodivergentes dans le milieu universitaire sont souvent stigmatisees, sous-evaluees ou poussees a masquer leurs differences. Cette prise de position, redigee majoritairement par des universitaires neurodivergents, examine comment l'alignement des valeurs du mouvement de la neurodiversite sur les pratiques de la science ouverte (OSch) peut favoriser une plus grande integrite et rigueur de la recherche, ainsi que la responsabilite sociale et la justice, la diversite, l'equite, l'inclusivite et l'accessibilite dans le milieu universitaire. Nous examinons les obstacles systemiques auxquels sont confrontes les chercheurs neurodivergents, allant des dilemmes lies a la divulgation aux attentes du curriculum cache, en passant par les desavantages intersectionnels, et nous identifions comment les principes de l'OSch (transparence, accessibilite, collaboration) peuvent aider a attenuer ces difficultes. En nous appuyant sur des experiences vecues et sur les recherches actuelles, nous proposons des reformes concretes, notamment l'adoption de la conception universelle dans la communication savante, la promotion de methodes de recherche participative et la mise en oeuvre de politiques de soutien (p. ex., des modalites de travail flexibles, des codes de conduite inclusifs). En tirant parti des valeurs partagees d'ouverture et de neuro-inclusion, le milieu universitaire peut devenir plus juste et plus equitable sur le plan epistemique. Nos recommandations tracent une voie vers une culture universitaire dans laquelle les universitaires neurodivergents peuvent s'epanouir ouvertement, au profit tant de la rigueur scientifique que de la justice sociale.

ABSTRACT Not all people conform to socially constructed norms, nor should they have to. Neurodiversity, the natural variation in human brains and cognition, is fundamental to understanding human behavior, yet neurodivergent individuals in academia are often stigmatized, undervalued, or pressured to mask their differences. This position statement, authored predominantly by neurodivergent scholars, explores how aligning the values of the neurodiversity movement with practices of Open Scholarship (OSch) can foster greater research integrity, rigor, social responsibility and justice, diversity, equity, inclusivity, and accessibility in academia. We review systemic barriers faced by neurodivergent researchers—from disclosure dilemmas and hidden curriculum expectations to intersectional disadvantages—and identify how OSch principles (transparency, accessibility, collaboration) can help mitigate these challenges. Drawing on lived experiences and current research, we propose concrete reforms, including adopting universal design in scholarly communication, promoting participatory research methods, and enacting supportive policies (e.g., flexible work arrangements, inclusive codes of conduct). By leveraging shared values of openness and neuro‐inclusion, academia can become more just and epistemically equitable. Our recommendations chart a path toward an academic culture where neurodivergent scholars can thrive openly, to the benefit of scientific rigor and social justice alike.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 08:03.

Références citées
189
Avec un DOI
163
Sans DOI, à partir du texte brut de la bibliographie
25
50 / 189 (26,5 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
13 / 189 (6,9 %)
Références avec noms d’auteurices détectés
176 / 189 (93,1 %)
Sans nom d’auteurice détecté
13
Sans titre structuré
13
Sans identifiant stable
21
Références avec noms bruts d’auteurices restant à vérifier
12
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
1266
À partir du DOI ou de métadonnées externes
1266
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
12
361 / 1266 (28,5 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 905 / 1266 (71,5 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
110 / 1266 (8,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 110 / 361 (30,5 %). Personnes distinctes identifiées comme autistes : 70 / 1047 (6,7 %).
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