L'epuisement tel qu'il est vecu par les personnes autistes : une revue systematique

Titre original en anglais : Burnout as experienced by autistic people: A systematic review

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Ali, D., Bougoure, M., Cooper, B., Quinton, A. M. G., Tan, D., Brett, J., Mandy, W., Maybery, M., Magiati, I., & Happé, F. (2025). Burnout as experienced by autistic people: A systematic review. Clinical Psychology Review, 122, 102669. https://doi.org/10.1016/j.cpr.2025.102669

Publication date: 04/11/2025 Ajout dans AutiHub: 14/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
10
Auteur·ices de la publication identifié·es comme autistes
1 / 10 (10,0 %)
  1. Dorota Ali *
  2. Mackenzie Bougoure
  3. Brodie Cooper
  4. Alice M. G. Quinton
  5. Diana Tan
  1. Jack Brett
  2. Will Mandy
  3. Murray Maybery
  4. Iliana Magiati
  5. Francesca Happé

Résumé

L'« epuisement autistique » est decrit comme un etat debilitant d'epuisement vecu par les personnes autistes du fait de vivre dans un monde qui manque souvent d'amenagements et de comprehension de leurs besoins. Cette revue systematique a synthetise thematiquement les recherches sur la maniere dont les personnes autistes comprennent et vivent l'epuisement. Nous avons examine 48 etudes (30 qualitatives, sept quantitatives et 11 a methodes mixtes), qui incluaient environ 4000 personnes autistes, principalement des adultes autistes blancs, de sexe feminin, diagnostiques tardivement, ayant des capacites intellectuelles et/ou verbales au moins moyennes. Nos resultats suggerent que l'epuisement, tel qu'il est vecu par ces personnes autistes, se composait d'un epuisement debilitant et d'une augmentation du handicap, pouvant etre chronique avec des crises intermittentes. La surcharge sensorielle et sociale, le camouflage, l'ignorance et la stigmatisation, les difficultes de la vie quotidienne et l'alexithymie contribuaient a l'epuisement. L'epuisement entrainait des consequences negatives pour la sante et le bien-etre, la participation communautaire et le maintien de l'espoir pour l'avenir. Disposer d'un cadre plus precis pour se comprendre soi-meme, repondre aux besoins de repos, de solitude et de soulagement sensoriel, et beneficier d'un soutien individuel et communautaire aidaient au retablissement. Pour traiter efficacement l'epuisement, il faudra des strategies individuelles d'adaptation, une reconnaissance clinique et une sensibilisation et une acceptation plus larges de la societe afin de soutenir la diversite des besoins et des manieres d'etre. Les recherches futures devraient etudier l'epuisement et les facteurs qui y sont associes dans des echantillons autistes plus representatifs.

'Autistic burnout' is described as a debilitating state of exhaustion experienced by autistic people due to living in a world that often lacks accommodations and understanding of their needs. This systematic review thematically synthesised research on how autistic people understand and experience burnout. We reviewed 48 studies (30 qualitative, seven quantitative, and 11 mixed methods), which included approximately 4000 autistic people, predominantly featuring White, female, late-diagnosed autistic adults with at least average intellectual and/or verbal abilities. Our findings suggest that burnout, as experienced by these autistic people, consisted of debilitating exhaustion and increased disability, which could be chronic with intermittent crises. Sensory and social overwhelm, camouflaging, ignorance and stigma, everyday life challenges, and alexithymia contributed to burnout. Burnout held negative consequences for health and well-being, community involvement, and maintaining hope for the future. Having a more accurate framework for self-understanding, meeting the needs for rest, solitude, and sensory relief, and having individual and community support helped with recovery. Addressing burnout effectively will require individual coping strategies, clinical recognition, and broader societal awareness and acceptance of supporting diverse needs and ways of being. Future research should investigate burnout and its associated factors in more representative autistic samples.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 19/09/2026 01:01.

Références citées
105
Avec un DOI
86
Sans DOI, à partir du texte brut de la bibliographie
19
31 / 105 (29,5 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
0 / 105 (0,0 %)
Références avec noms d’auteurices détectés
105 / 105 (100,0 %)
Sans nom d’auteurice détecté
0
Sans titre structuré
0
Sans identifiant stable
19
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
445
À partir du DOI ou de métadonnées externes
445
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
236 / 445 (53,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 209 / 445 (47,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
71 / 445 (16,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 71 / 236 (30,1 %). Personnes distinctes identifiées comme autistes : 50 / 384 (13,0 %).
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