« Peut-être que personne ne sait que nous avons besoin d’aide » : comprendre les expériences des mères autistes qui travaillent en Australie

Titre original en anglais : “Maybe No One Knows We Need Help”: Understanding the Experiences of Autistic Working Mothers in Australia

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Gore, K., Hayward, S. M., Flower, R. L., Gilbert, M., & Barbaro, J. (2023). “Maybe No One Knows We Need Help”: Understanding the Experiences of Autistic Working Mothers in Australia. Autism in Adulthood, 6(1), 47-59. https://doi.org/10.1089/aut.2022.0089

Date de publication: 16/05/2023 Ajout dans AutiHub: 07/09/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Katherine Gore
  2. Susan M Hayward
  3. Rebecca L. Flower
  4. Melissa Gilbert
  5. Josephine Barbaro *

Résumé

Contexte : Bien qu’il n’existe aucune étude connue examinant les mères autistes qui travaillent, la recherche a montré que la gestion de l’emploi et de la maternité dans les populations non autistes présente des difficultés spécifiques, tout comme l’emploi dans les populations autistes. Cette étude dirigée par des personnes autistes visait à examiner l’expérience des mères autistes qui travaillent afin d’identifier les avantages, les difficultés et les besoins de soutien. Méthodes : Nous avons utilisé une perspective épistémologique subjectiviste pour connaître les expériences des mères autistes qui travaillent. Nous avons recruté 10 mères autistes qui travaillent, âgées de 34 à 50 ans, par le biais d’annonces sur les réseaux sociaux ; elles ont participé à un entretien semi-structuré de 45 à 60 minutes, au cours duquel nous avons posé des questions élaborées en consultation avec un groupe de référence communautaire. Nous avons transcrit les entretiens, puis les avons analysés au moyen d’une analyse thématique réflexive inductive. Résultats : Nous avons identifié trois thèmes clés. Le premier thème, « Bien-être : le travail me donne un but », examine la manière dont l’emploi soutient le bien-être mental. Le deuxième thème, « Difficultés : il est difficile d’être une mère autiste qui travaille », comprend les difficultés liées à l’équilibre entre le travail et la prise en charge, la culpabilité associée au fait d’être une mère qui travaille, et les problèmes liés au travail à temps partiel. Le troisième thème, « Le handicap invisible : tout le monde pense que j’ai l’air d’aller bien », examine le manque de compréhension des difficultés des participantes, les suppositions selon lesquelles elles s’en sortent, ainsi que le manque de soutiens qui a conduit certaines participantes à ne plus demander d’aide. Conclusions : Les réponses des femmes autistes ayant participé soutiennent l’idée que les mères autistes qui travaillent peuvent rencontrer certaines difficultés semblables à celles des mères non autistes qui travaillent, notamment le stress lié à la conciliation des rôles de prise en charge et de travail. Elles ont identifié des difficultés supplémentaires liées à leur genre et à leur identité autiste, notamment un manque de compréhension de la présentation féminine, ou « intériorisée », de l’autisme. Ces résultats aideront les mères autistes qui travaillent en favorisant une meilleure compréhension de leurs expériences et de leurs difficultés lorsqu’elles s’adressent à des professionnels de santé, aux pouvoirs publics et aux employeurs pour obtenir du soutien et des aménagements.

Background: Although there are no known studies investigating autistic working mothers, research has demonstrated that managing employment and motherhood in non-autistic populations has specific challenges, as does employment in autistic populations. This autistic-led study aimed at investigating the experience of autistic working mothers to identify benefits, challenges, and support needs. Methods: We utilized a subjectivist epistemological perspective to learn about the experiences of autistic working mothers. We recruited 10 autistic working mothers (aged 34–50 years) via social media advertisements, who participated in a 45- to 60-minute semi-structured interview where we asked questions developed in consultation with a community reference group. We transcribed interviews and then analyzed them using inductive reflexive thematic analysis. Results: We identified three key themes. The first theme, “Wellbeing: Work gives me purpose,” discusses how employment supports mental well-being. The second theme, “Challenges: It's hard being an autistic working mother,” includes the challenges of balancing work and caregiving, guilt related to being a working mother, and issues with part-time work. The third theme, “The invisible disability: Everyone thinks I look okay,” discusses the lack of understanding of participants' challenges, with assumptions they are coping, and the lack of supports that led to some participants no longer seeking assistance. Conclusions: The responses of the autistic women who took part support a view that autistic working mothers may experience some similar challenges to non-autistic working mothers, including stress in juggling caring and work roles. They identified additional challenges related to their gender and their autistic identity, including a lack of understanding of the female (or “internalized”) presentation of autism. These findings will help autistic working mothers by promoting a better understanding of their experiences and challenges when they speak with health professionals, government, and employers seeking support and accommodations.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 07:09.

Références citées
98
Avec un DOI
78
Sans DOI, à partir du texte brut de la bibliographie
20
9 / 98 (9,2 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
13 / 98 (13,3 %)
Références avec noms d’auteurices détectés
85 / 98 (86,7 %)
Sans nom d’auteurice détecté
13
Sans titre structuré
13
Sans identifiant stable
19
Références avec noms bruts d’auteurices restant à vérifier
13
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
330
À partir du DOI ou de métadonnées externes
330
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
15
137 / 330 (41,5 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 193 / 330 (58,5 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
28 / 330 (8,5 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 28 / 137 (20,4 %). Personnes distinctes identifiées comme autistes : 25 / 290 (8,6 %).
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