Centrer l'expérience intérieure de l'autisme : élaboration de l'Auto-évaluation des traits autistiques

Titre original en anglais : Centering the Inner Experience of Autism: Development of the Self-Assessment of Autistic Traits

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Ratto, A. B., Bascom, J., daVanport, S., Strang, J. F., Anthony, L. G., Verbalis, A., Pugliese, C. E., Nadwodny, N., Brown, L. X. M. Z., Cruz, M., Hector, B. L., Kapp, S. K., Giwa Onaiwu, M., Raymaker, D. M., Robison, J. E., Stewart, C., Stone, R., Whetsell, E., Pelphrey, K. A., & Kenworthy, L. (2022). Centering the Inner Experience of Autism: Development of the Self-Assessment of Autistic Traits. Autism in Adulthood, 5(1), 93-105. https://doi.org/10.1089/aut.2021.0099

Date de publication: 01/11/2022 Ajout dans AutiHub: 04/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
20
Auteur·ices de la publication identifié·es comme autistes
12 / 20 (60,0 %)
  1. Allison B. Ratto
  2. Julia Bascom *
  3. Sharon daVanport *
  4. John F. Strang
  5. Laura G. Anthony
  6. Alyssa Verbalis
  7. Cara E. Pugliese
  1. Nicole Nadwodny
  2. Ly Xīnzhèn M. Zhǎngsūn Brown *
  3. Mallory Cruz *
  4. Becca Lory Hector *
  5. Steven K. Kapp *
  6. Morénike Giwa Onaiwu *
  7. Dora M Raymaker *
  1. John Elder Robison *
  2. Catriona Stewart *
  3. Ren Stone *
  4. Emma Whetsell *
  5. Kevin A. Pelphrey
  6. Lauren Kenworthy

Résumé

Les outils actuels d'identification de l'autisme sont critiqués pour leur manque de spécificité et de sensibilité, en particulier chez les personnes autistes plus âgées, ayant des capacités verbales plus élevées ou des compétences compensatoires importantes, et qui ne sont pas des garçons cisgenres. Cela peut refléter les éléments suivants : l'accent historique de la recherche sur l'autisme sur les enfants blancs, de sexe masculin (cisgenres), issus des classes supérieures et moyennes ; l'intérêt limité porté à l'expérience intérieure et vécue de l'autisme ; et la prédominance d'un modèle de l'autisme fondé sur les déficits. Nous présentons ici la première tentative dont nous ayons connaissance visant à élaborer une mesure clinique auto-rapportée des traits autistiques tels qu'ils sont décrits par les personnes autistes. Nous estimons qu'il s'agit d'une avancée méthodologique, car les travaux antérieurs portant sur l'élaboration de mesures des traits autistiques ou de mesures diagnostiques ont privilégié les perspectives de cliniciens et de scientifiques non autistes. La mesure a été élaborée sous la direction de deux chercheurs autistes et construite en s'appuyant sur des descriptions de l'autisme par des personnes autistes afin de générer des items conçus pour englober l'éventail de l'expérience autistique, en utilisant un langage accessible fondé sur les forces. L'équipe a utilisé des retours itératifs d'un panel d'experts autistes afin d'affiner et d'améliorer la mesure, appelée Self Assessment of Autistic Traits (SAAT). Elle est destinée aux personnes âgées de 16 ans ou plus et utilise un format conçu pour accroître son accessibilité et son acceptabilité pour les répondants autistes. Des travaux futurs rendront compte des propriétés psychométriques préliminaires du SAAT, avec pour objectif à long terme de faire progresser notre compréhension de l'expérience autistique intérieure et d'améliorer l'évaluation clinique et scientifique de l'autisme.

Current tools for identifying autism are critiqued for their lack of specificity and sensitivity, especially in autistic people who are older, have higher verbal ability or significant compensatory skills, and are not cisgender boys. This may reflect the following: the historical focus of autism research on White (cisgender) male, upper and middle class children; limited interest in the inner, lived experience of autism; and the predominance of a deficit-based model of autism. We report here on the first attempt of which we are aware to develop a clinical self-report measure of autistic traits as described by autistic people. We believe this is an advance in methodology because prior work in the development of autistic trait/diagnostic measures has prioritized the perspectives of nonautistic clinicians and scientists. The measure was developed under the leadership of two autistic researchers and constructed by leveraging descriptions of autism by autistic people to generate items designed to encompass the range of the autistic experience, using strength-based, accessible language. The team utilized iterative feedback from a panel of autistic experts to refine and enhance the measure, called the Self Assessment of Autistic Traits (SAAT). It is intended for people 16 years or older and uses a format that is designed to increase its accessibility and acceptability for autistic respondents. Future work will report on the preliminary psychometrics of the SAAT, with a long-term goal of advancing our understanding of the inner autistic experience and enhancing the clinical and scientific assessment of autism.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
68
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
12 / 68 (17,6 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
24 / 367 (6,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 24 / 168 (14,3 %). Auteurices cité·es distinct·es identifié·es comme autistes : 15 / 302 (5,0 %).
Occurrences citées rattachées à la base AutiHub
168 / 367 (45,8 %)
Auteurices cité·es distinct·es rattaché·es : 109 / 302 (36,1 %)
Occurrences rattachées, non identifiées comme autistes
144 / 168 (85,7 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 144 / 367 (39,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 94 / 109 (86,2 %).
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