« Cette sorte de sentiment de peur imminente » : expériences de l'interaction sociale du point de vue d'adultes autistes

Titre original en anglais : “That impending dread sort of feeling”: Experiences of social interaction from the perspectives of autistic adults

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Black, M. H., Clarke, P., Deane, E., Smith, D., Wiltshire, G., Yates, E. D., Lawson, W., & Chen, N. T. M. (2022). “That impending dread sort of feeling”: Experiences of social interaction from the perspectives of autistic adults. Research in Autism Spectrum Disorders, 101, 102090. https://doi.org/10.1016/j.rasd.2022.102090

Date de publication: 20/12/2022 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
1 / 8 (12,5 %)
  1. Melissa H. Black
  2. Patrick Clarke
  3. Evangeline Deane
  4. Dayna Smith
  1. Grace Wiltshire
  2. Emily D. Yates
  3. Wenn Lawson *
  4. Nigel T. M. Chen

Résumé

Les recherches quantitatives suggèrent de plus en plus que de nombreux adultes autistes présentent des niveaux accrus d'anxiété lors des interactions sociales. Bien que l'anxiété liée aux interactions sociales soit prévalente dans la population autiste, on sait peu de choses sur la manière dont les personnes autistes vivent les situations sociales, depuis les étapes anticipatoires jusqu'au traitement in vivo et post-événement, et sur la manière dont ces expériences peuvent être liées à l'anxiété sociale dans le contexte spécifique des populations d'adultes autistes. Cette étude visait à explorer qualitativement les perspectives de personnes autistes concernant leur expérience des situations sociales, dans le but d'examiner comment ces expériences peuvent être liées à l'anxiété lors des interactions sociales. Des entretiens semi-structurés ont été menés auprès de 12 adultes autistes, les données étant analysées à l'aide de l'Analyse thématique réflexive afin d'identifier des thèmes pertinents pour chaque étape de l'interaction sociale. Les thèmes issus des participants adultes autistes suggèrent que plusieurs processus liés à l'anxiété peuvent être à l'œuvre dans l'autisme, influençant les expériences d'interaction sociale. Plus précisément, l'environnement sensoriel, le sujet de conversation et l'interlocuteur ont été identifiés comme influençant la réussite perçue et le confort des interactions. Les sentiments d'anxiété, ainsi que l'auto-surveillance et le morphing adaptatif, ont souvent été identifiés comme épuisants. Les résultats indiquent qu'il est nécessaire de prendre en compte la manière dont l'anxiété et les facteurs environnementaux influencent les expériences d'interaction sociale et de communication chez les adultes autistes.

Quantitative research increasingly suggests that many autistic adults experience heightened levels of anxiety during social interaction. While anxiety related to social interactions is prevalent in the autistic population, little is known about how autistic individuals experience social situations – from anticipatory stages, through to in-vivo and post-event processing, and how these experiences may relate to social anxiety within the specific context of autistic adult populations. This study sought to qualitatively explore the perspectives of autistic individuals in relation to their experience of social situations, with the aim of examining how these experiences may relate to anxiety during social interactions. Semi-structured interviews were conducted with 12 autistic adults with data being analysed using Reflexive Thematic Analysis to identify themes relevant to each stage of social interaction. Themes derived from autistic adult participants suggest that several anxiety-related processes may be operating in autism, influencing social interaction experiences. Specifically, the sensory environment, topic of conversation and conversation partner, were identified as influencing the perceived success and comfort of interactions. Feelings of anxiety, as well as self-monitoring and adaptive morphing were often identified as exhausting. Findings indicate a need to consider how anxiety and environmental factors influence the experiences of social interaction and communication for autistic adults.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
49
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
6 / 49 (12,2 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
8 / 124 (6,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 8 / 50 (16,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 6 / 106 (5,7 %).
Occurrences citées rattachées à la base AutiHub
50 / 124 (40,3 %)
Auteurices cité·es distinct·es rattaché·es : 34 / 106 (32,1 %)
Occurrences rattachées, non identifiées comme autistes
42 / 50 (84,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 42 / 124 (33,9 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 28 / 34 (82,4 %).
  1. Brenna B. Maddox , Susan W. White (2015). Comorbid Social Anxiety Disorder in Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 45(12), 3949-3960. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2531-5 OpenAlex: https://openalex.org/W1111367364
    Crossref OpenAlex OpenCitations
  2. American Psychiatric Association (2000). Diagnostic and statistical manual of mental disorders: DSM-IV-TR . Diagnostic and statistical manual of mental disorders (DSM-IV-TR).
    Type: Autre
    Crossref
  3. Stefan G. Hofmann (2007). Cognitive Factors that Maintain Social Anxiety Disorder: a Comprehensive Model and its Treatment Implications . Cognitive Behaviour Therapy, 36(4), 193-209. Informa UK Limited.
    Type: Article DOI: 10.1080/16506070701421313 OpenAlex: https://openalex.org/W2080211335
    Crossref OpenAlex OpenCitations
  4. Gerald Amada (1996). Social Phobia: Diagnosis, Assessment, and Treatment . American Journal of Psychotherapy, 50(3), 373-374. American Psychiatric Association Publishing.
    Type: Article DOI: 10.1176/appi.psychotherapy.1996.50.3.373 OpenAlex: https://openalex.org/W1546975047
    OpenAlex
  5. American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders (DSM-5®) .
    Type: Autre
    Crossref
  6. Stephanos PH. Vassilopoulos (2005). Anticipatory processing plays a role in maintaining social anxiety . Anxiety, Stress & Coping, 18(4), 321-332. Informa UK Limited.
    Type: Article DOI: 10.1080/10615800500258149 OpenAlex: https://openalex.org/W2039667716
    Crossref OpenAlex OpenCitations
  8. Jonathan S Beck , Rebecca A Lundwall , Terisa Gabrielsen , Jonathan C Cox , Mikle South (2020). Looking good but feeling bad: “Camouflaging” behaviors and mental health in women with autistic traits . Autism, 24(4), 809-821. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320912147 OpenAlex: https://openalex.org/W3028258828
    Crossref OpenAlex OpenCitations
  9. Aslak Hjeltnes , Christian Moltu , Elisabeth Schanche , Per-Einar Binder (2016). What Brings You Here? Exploring Why Young Adults Seek Help for Social Anxiety . Qualitative Health Research, 26(12), 1705-1720. SAGE Publications.
    Type: Article DOI: 10.1177/1049732315596151 OpenAlex: https://openalex.org/W2224173576
    Crossref OpenAlex OpenCitations
  10. Julie Causton-Theoharis , Christine Ashby , Meghan Cosier (2009). Islands of Loneliness: Exploring Social Interaction Through the Autobiographies of Individuals With Autism . Intellectual and Developmental Disabilities, 47(2), 84-96. Informa UK Limited.
    Type: Article DOI: 10.1352/1934-9556-47.2.84 OpenAlex: https://openalex.org/W1995863584
    Crossref OpenAlex OpenCitations
  11. Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.
    Type: Article DOI: 10.1080/2159676x.2019.1628806 OpenAlex: https://openalex.org/W2950504429
    Crossref OpenAlex OpenCitations
  12. Will Mandy (2019). Social camouflaging in autism: Is it time to lose the mask? Autism, 23(8), 1879-1881. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319878559 OpenAlex: https://openalex.org/W2975468007
    Crossref OpenAlex OpenCitations
  13. Ronald M. Rapee , Richard G. Heimberg (1997). A cognitive-behavioral model of anxiety in social phobia . Behaviour Research and Therapy, 35(8), 741-756. Elsevier BV.
    Type: Article DOI: 10.1016/s0005-7967(97)00022-3 OpenAlex: https://openalex.org/W2000465322
    Crossref OpenAlex OpenCitations
  14. Olivia M. Rifai , Sue Fletcher‐Watson , Lorena Jiménez‐Sánchez , Catherine J. Crompton (2022). Investigating Markers of Rapport in Autistic and Nonautistic Interactions . Autism in Adulthood, 4(1), 3-11. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2021.0017 OpenAlex: https://openalex.org/W3199323078
    Crossref OpenAlex OpenCitations
  15. Laura Dannahy , Lusia Stopa (2007). Post-event processing in social anxiety . Behaviour Research and Therapy, 45(6), 1207-1219. Elsevier BV.
    Type: Article DOI: 10.1016/j.brat.2006.08.017 OpenAlex: https://openalex.org/W2016045606
    Crossref OpenAlex OpenCitations
  16. Nigel T. M. Chen , Patrick Clarke (2017). Gaze-Based Assessments of Vigilance and Avoidance in Social Anxiety: a Review . Current Psychiatry Reports, 19(9), 59. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11920-017-0808-4 OpenAlex: https://openalex.org/W2739079456
    Crossref OpenAlex OpenCitations
  17. Erika S. Penney , Maree J. Abbott (2014). Anticipatory and Post-Event Rumination in Social Anxiety Disorder: A Review of the Theoretical and Empirical Literature . Behaviour Change, 31(2), 79-101. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/bec.2014.3 OpenAlex: https://openalex.org/W2018625410
    Crossref OpenAlex OpenCitations
  18. Clark (1995). A cognitive model of social phobia .
    Type: Autre
    Crossref
  19. Rachel S. Kelly , Mary-Pat O’Malley , Stanislava Antonijevic (2018). ‘Just trying to talk to people … It’s the hardest’: Perspectives of adolescents with high-functioning autism spectrum disorder on their social communication skills . Child Language Teaching and Therapy, 34(3), 319-334. SAGE Publications.
    Type: Article DOI: 10.1177/0265659018806754 OpenAlex: https://openalex.org/W2895868616
    Crossref OpenAlex OpenCitations
  23. Laura Hull , Lily Levy , Meng-Chuan Lai , K. V. Petrides , Simon Baron-Cohen , Carrie Allison et al. (2021). Is social camouflaging associated with anxiety and depression in autistic adults? Molecular Autism, 12(1), 13-13. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-021-00421-1 OpenAlex: https://openalex.org/W3132619758
    Crossref OpenAlex OpenCitations
  24. Clare Cummins , Elizabeth Pellicano , Laura Crane (2020). Autistic adults’ views of their communication skills and needs . International Journal of Language & Communication Disorders, 55(5), 678-689. Wiley.
    Type: Article DOI: 10.1111/1460-6984.12552 OpenAlex: https://openalex.org/W3038420360
    Crossref OpenAlex OpenCitations
  25. Hanna Kallio , Anna‐Maija Pietilä , Martin Johnson , Mari Kangasniemi (2016). Systematic methodological review: developing a framework for a qualitative semi‐structured interview guide . Journal of Advanced Nursing, 72(12), 2954-2965. Wiley.
    Type: Article DOI: 10.1111/jan.13031 OpenAlex: https://openalex.org/W2396339611
    Crossref OpenAlex OpenCitations
  26. Beth A. Pontari , Ellen J. Glenn (2012). Engaging in Less Protective Self-Presentation: The Effects of a Friend's Presence on the Socially Anxious . Basic and Applied Social Psychology, 34(6), 516-526. Informa UK Limited.
    Type: Article DOI: 10.1080/01973533.2012.728112 OpenAlex: https://openalex.org/W2085531916
    Crossref OpenAlex OpenCitations
  27. Neil Humphrey , Sarah Lewis (2008). `Make me normal' . Autism, 12(1), 23-46. SAGE Publications.
    Type: Article DOI: 10.1177/1362361307085267 OpenAlex: https://openalex.org/W2119717901
    Crossref OpenAlex OpenCitations
  28. Brett Heasman , Alex Gillespie (2019). Neurodivergent intersubjectivity: Distinctive features of how autistic people create shared understanding . Autism, 23(4), 910-921. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318785172 OpenAlex: https://openalex.org/W2886786591
    Crossref OpenAlex OpenCitations
  29. W Lawson (2013). Autism spectrum conditions: the pathophysiological basis for inattention and the new Diagnostic and Statistical Manual of Mental Disorders (DSM-V) . OA Autism, 1(1). Open Access Publishing London.
    Type: Article DOI: 10.13172/2052-7810-1-1-343 OpenAlex: https://openalex.org/W2156225995
    Crossref OpenAlex
  30. Heimberg (2010). A cognitive behavioral model of social anxiety disorder: Update and extension .
    Type: Autre
    Crossref
  31. Michelle Griffin (2002). Understanding and Working with the Spectrum of Autism: An Insider's View . British Journal of Learning Disabilities, 30(2), 90-90. Wiley.
    Type: Article DOI: 10.1046/j.1468-3156.2002.00178.x OpenAlex: https://openalex.org/W2160454370
    OpenAlex
  32. Alliyza Lim , Robyn L. Young , Neil Brewer (2022). Autistic Adults May Be Erroneously Perceived as Deceptive and Lacking Credibility . Journal of Autism and Developmental Disorders, 52(2), 490-507. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-04963-4 OpenAlex: https://openalex.org/W3139218803
    Crossref OpenAlex OpenCitations
  33. Marilyn L. Piccirillo , M. Taylor Dryman , Richard G. Heimberg (2016). Safety Behaviors in Adults With Social Anxiety: Review and Future Directions . Behavior Therapy, 47(5), 675-687. Elsevier BV.
    Type: Article DOI: 10.1016/j.beth.2015.11.005 OpenAlex: https://openalex.org/W2199802081
    Crossref OpenAlex OpenCitations
  34. Lorelli S. Nowell , Jill M. Norris , Deborah E. White , Nancy J. Moules (2017). Thematic Analysis . International Journal of Qualitative Methods, 16(1). SAGE Publications.
    Type: Article DOI: 10.1177/1609406917733847 OpenAlex: https://openalex.org/W2763766763
    Crossref OpenAlex OpenCitations
  35. Katie Howard , Napoleon Katsos , Jenny Gibson (2019). Using interpretative phenomenological analysis in autism research . Autism, 23(7), 1871-1876. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318823902 OpenAlex: https://openalex.org/W2913614870
    Crossref OpenAlex OpenCitations
  36. Wenn Lawson * (2020). Adaptive Morphing and Coping with Social Threat in Autism: An Autistic Perspective . Journal of Intellectual Disability - Diagnosis and Treatment, 8(3), 519-526. Lifescience Global.
    Type: Article DOI: 10.6000/2292-2598.2020.08.03.29 OpenAlex: https://openalex.org/W3089250252
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  37. Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315588200 OpenAlex: https://openalex.org/W2227393071
    Crossref OpenAlex OpenCitations
  38. Debbie Spain , Jacqueline Sin , Kai B. Linder , Johanna McMahon , Francesca Happé (2018). Social anxiety in autism spectrum disorder: A systematic review . Research in Autism Spectrum Disorders, 52, 51-68. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2018.04.007 OpenAlex: https://openalex.org/W2803156436
    Crossref OpenAlex OpenCitations
  39. Laura Hull , K. V. Petrides , Carrie Allison , Paula Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3166-5 OpenAlex: https://openalex.org/W2616560149
    Crossref OpenAlex OpenCitations
  40. Jason Landon , Daniel Shepherd , Veema Lodhia (2016). A qualitative study of noise sensitivity in adults with autism spectrum disorder . Research in Autism Spectrum Disorders, 32, 43-52. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2016.08.005 OpenAlex: https://openalex.org/W2513369649
    Crossref OpenAlex OpenCitations
  41. Matthew Modini , Maree J. Abbott (2016). A Comprehensive Review of the Cognitive Determinants of Anxiety and Rumination in Social Anxiety Disorder . Behaviour Change, 33(3), 150-171. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/bec.2016.10 OpenAlex: https://openalex.org/W2532885131
    Crossref OpenAlex OpenCitations
  42. Vikram K. Jaswal , Nameera Akhtar (2019). Being versus appearing socially uninterested: Challenging assumptions about social motivation in autism . Behavioral and Brain Sciences, 42, Article e82, 1. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s0140525x18001826 OpenAlex: https://openalex.org/W2809138493
    Crossref OpenAlex OpenCitations
  43. Rebecca S. Vine Foggo , Amanda A. Webster (2017). Understanding the social experiences of adolescent females on the autism spectrum . Research in Autism Spectrum Disorders, 35, 74-85. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2016.11.006 OpenAlex: https://openalex.org/W2564364624
    Crossref OpenAlex OpenCitations
  44. Peter Mitchell , Elizabeth Sheppard , Sarah Cassidy (2021). Autism and the double empathy problem: Implications for development and mental health . British Journal of Developmental Psychology, 39(1), 1-18. Wiley.
    Type: Article DOI: 10.1111/bjdp.12350 OpenAlex: https://openalex.org/W3119501104
    Crossref OpenAlex OpenCitations
  45. Lawson (2001). Understanding and working with the spectrum of autism: An insider's view .
    Type: Autre
    Crossref
  46. Wenn Lawson * (2010). The Passionate Mind: How People with Autism Learn .
    Type: Livre OpenAlex: https://openalex.org/W2945422391
    Crossref OpenAlex
  47. Flora Ma (2020). Diagnostic and Statistical Manual of Mental Disorders-5 (DSM-5) . Dans Encyclopedia of Gerontology and Population Aging (pp. 1-12). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-319-69892-2_419-1 OpenAlex: https://openalex.org/W4248319548
    OpenAlex
  48. QSR International. (2018). NVivo Qualitative Data Analysis Software (12) (Software). https://qsrinternational.com/nvivo/nvivo-products/〉 .
    Type: Autre
    Crossref
  49. Amy S. Walker (2012). Throw away the master’s tools: Liberating ourselves from the pathology paradigm . Loud Hands Autistic People Speaking, 225.
    Type: Autre
    Crossref