« Un groupe de compagnons de route qui comprennent » : entretiens avec des personnes autistes sur le soutien par les pairs après le diagnostic à l’âge adulte

Titre original en anglais : “A Group of Fellow Travellers Who Understand”: Interviews With Autistic People About Post-diagnostic Peer Support in Adulthood

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Crompton, C. J., Hallett, S., McAuliffe, C., Stanfield, A. C., & Fletcher-Watson, S. (2022). “A Group of Fellow Travellers Who Understand”: Interviews With Autistic People About Post-diagnostic Peer Support in Adulthood. Frontiers in Psychology, 13, 831628-831628. https://doi.org/10.3389/fpsyg.2022.831628

Date de publication: 07/03/2022 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Catherine J. Crompton
  2. Sonny Hallett *
  3. Christine McAuliffe
  4. Andrew C. Stanfield
  5. Sue Fletcher-Watson

Résumé

Recevoir un diagnostic d’autisme à l’âge adulte peut être un événement qui change la vie, ayant un impact sur l’identité, les relations et la santé mentale. Un manque de soutien après le diagnostic a été mis en évidence par des adultes autistes, leurs alliés, des cliniciens et des prestataires de services. Il peut être une source de détresse pour les adultes autistes, renforçant les sentiments d’isolement social et de rejet. Le soutien par les pairs pourrait constituer un modèle rentable, flexible et durable pour fournir un soutien communautaire aux adultes autistes. Cependant, il existe peu de recherches sur la valeur du soutien par les pairs, malgré les appels de la communauté autiste. Cette étude qualitative a exploré les expériences et les besoins des personnes autistes après le diagnostic, en identifiant des façons spécifiques dont le soutien par les pairs peut leur être bénéfique et en explorant les limites du soutien par les pairs. Douze adultes autistes ayant tous reçu un diagnostic d’autisme à l’âge adulte ont réalisé un entretien semi-structuré portant sur l’expérience diagnostique, le soutien nécessaire et fourni après le diagnostic, l’engagement auprès de la communauté autiste et le soutien par les pairs après le diagnostic. L’analyse thématique des transcriptions d’entretiens a abouti à quatre thèmes : (1) inadéquation entre le soutien nécessaire et le soutien fourni ; (2) connexion communautaire ; (3) soutien flexible et personnalisé ; et (4) durabilité. Les participants ont indiqué que le soutien par les pairs peut constituer un mécanisme utile pour soutenir les adultes autistes après le diagnostic et offre des possibilités uniques qui ne sont pas disponibles par d’autres canaux de soutien. Bien qu’un soutien informel par les pairs existe, il pourrait être plus durable et plus efficace s’il était bien soutenu et financé.

Receiving a diagnosis of autism in adulthood can be a life changing event, impacting identity, relationships, and mental health. A lack of post-diagnostic support has been highlighted by autistic adults, their allies, clinicians, and service providers. It can be a source of distress for autistic adults, reinforcing feelings of social isolation and rejection. Peer support could be a cost-effective, flexible, and sustainable model to provide community-based support for autistic adults. However, there is little research on the value of peer support, despite calls from the autistic community. This qualitative study explored autistic experiences and needs post-diagnosis, identifying specific ways that peer support may benefit them, and exploring the limitations of peer support. Twelve autistic adults who had all received an autism diagnosis in adulthood completed a semi-structured interview focussing on the diagnostic experience, post-diagnostic support needed and provided, engagement with the autistic community, and post-diagnostic peer support. Thematic analysis of interview transcripts resulted in four themes: (1) Mismatch in support needed and provided; (2) Community connection; (3) Flexible and personalised support; and (4) Sustainability. Participants indicated that peer support may be a useful mechanism to support autistic adults' post-diagnosis and offers unique opportunities not available through other support channels. Though informal peer support exists, it could be more sustainable and effective if well-supported and funded.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 11:54.

Références citées
69
Avec un DOI
62
Sans DOI, à partir du texte brut de la bibliographie
6
14 / 69 (20,3 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
1 / 69 (1,4 %)
Références avec noms d’auteurices détectés
69 / 69 (100,0 %)
Sans nom d’auteurice détecté
0
Sans titre structuré
1
Sans identifiant stable
6
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
225
À partir du DOI ou de métadonnées externes
225
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
112 / 225 (49,8 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 113 / 225 (50,2 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
16 / 225 (7,1 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 16 / 112 (14,3 %). Personnes distinctes identifiées comme autistes : 15 / 194 (7,7 %).
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