« Des pois dans une cosse » : réflexions d'histoire orale sur l'identité Autiste dans la famille et la communauté par des adultes ayant reçu un diagnostic tardif

Auteurs

Résumé

Dans cet article, nous rendons compte d'une étude participative d'histoire orale documentant la vie d'adultes autistes ayant reçu un diagnostic tardif en Australie. Nous avons interrogé 26 adultes autistes sur leur parcours de vie et l'impact du diagnostic tardif. Tous ont reçu leur diagnostic après l'âge de 35 ans, ayant grandi à une époque où l'autisme était peu connu. En utilisant une analyse thématique réflexive, nous avons mis au jour un riche ensemble de réflexions sur l'identité Autiste partagée et identifié trois thèmes majeurs au sein de cet ensemble de données : « conceptualiser la famille Autiste », « créer une communauté Autiste » et « contester l'identité Autiste ». Dans l'ensemble, l'étude apporte des éclairages sur la création active d'une identité Autiste partagée et sur l'importance de la communauté Autiste pour ces adultes autistes ayant reçu un diagnostic tardif.

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