« Des pois dans une cosse » : réflexions d'histoire orale sur l'identité Autiste dans la famille et la communauté par des adultes ayant reçu un diagnostic tardif

Auteurs

Résumé

Dans cet article, nous rendons compte d'une étude participative d'histoire orale documentant la vie d'adultes autistes ayant reçu un diagnostic tardif en Australie. Nous avons interrogé 26 adultes autistes sur leur parcours de vie et l'impact du diagnostic tardif. Tous ont reçu leur diagnostic après l'âge de 35 ans, ayant grandi à une époque où l'autisme était peu connu. En utilisant une analyse thématique réflexive, nous avons mis au jour un riche ensemble de réflexions sur l'identité Autiste partagée et identifié trois thèmes majeurs au sein de cet ensemble de données : « conceptualiser la famille Autiste », « créer une communauté Autiste » et « contester l'identité Autiste ». Dans l'ensemble, l'étude apporte des éclairages sur la création active d'une identité Autiste partagée et sur l'importance de la communauté Autiste pour ces adultes autistes ayant reçu un diagnostic tardif.

1. Jim Sinclair *Auteur·ice autiste. En savoir plus… (2010). Being Autistic Together . Disability Studies Quarterly, 30(1). The Ohio State University Libraries.

   Type: Article DOI: 10.18061/dsq.v30i1.1075 OpenAlex: https://openalex.org/W1565875767

   AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
2. Daniel A. Abrams , Charles J. Lynch , Katherine M. Cheng , Jennifer Phillips , Kaustubh Supekar , Srikanth Ryali et al. (2013). Underconnectivity between voice-selective cortex and reward circuitry in children with autism . Proceedings of the National Academy of Sciences, 110(29), 12060-12065. National Academy of Sciences.

   Type: Article DOI: 10.1073/pnas.1302982110 OpenAlex: https://openalex.org/W2028201432

   Crossref OpenAlex OpenCitations
3. Rebecca Winnard , Mark Roy , Hannah Butler-Coyne (2022). Motherhood: Female Perspectives and Experiences of Being a Parent with ASC . Journal of Autism and Developmental Disorders, 52(5), 2314-2324. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1007/s10803-021-05122-5 OpenAlex: https://openalex.org/W3172915465

   Crossref OpenAlex OpenCitations
4. J Piven , P Palmer , D Jacobi , D Childress , S Arndt (1997). Broader autism phenotype: evidence from a family history study of multiple-incidence autism families . American Journal of Psychiatry, 154(2), 185-190. American Psychiatric Association Publishing.

   Type: Article DOI: 10.1176/ajp.154.2.185 OpenAlex: https://openalex.org/W1627088906

   Crossref OpenAlex OpenCitations
5. American Psychiatric Association (1980). Diagnostic and statistical manual of mental disorders . Diagnostic and statistical manual of mental disorders.

   Type: Autre

   Crossref
6. Yunhe Huang , Ye In Hwang , Samuel R. C. Arnold , Lauren P. Lawson , Amanda L. Richdale , Julian N Trollor (2022). Autistic Adults’ Experiences of Diagnosis Disclosure . Journal of Autism and Developmental Disorders, 52(12), 5301-5307. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1007/s10803-021-05384-z OpenAlex: https://openalex.org/W4206778082

   Crossref OpenAlex OpenCitations
7. Damian Milton *Auteur·ice autiste. En savoir plus… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.

   Type: Article DOI: 10.1080/09687599.2012.710008 OpenAlex: https://openalex.org/W1968949608

   AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
8. American Psychiatric Association (1994). Diagnostic and Statistical Manual of Mental Disorders . Diagnostic and Statistical Manual of Mental Disorders.

   Type: Autre

   Crossref
9. Matthew de Broize , Kiah Evans , Andrew Whitehouse , John Wray , Valsamma Eapen , Anna Urbanowicz (2022). Exploring the Experience of Seeking an Autism Diagnosis as an Adult . Autism in Adulthood, 4(2), 130-140. SAGE Publications.

   Type: Article DOI: 10.1089/aut.2021.0028 OpenAlex: https://openalex.org/W4200092124

   Crossref OpenAlex OpenCitations
10. Edward Ritvo , Anne M. Brothers , B. J. Freeman , Carmen Pingree (1988). Eleven possibly autistic parents . Journal of Autism and Developmental Disorders, 18(1), 139-143. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/bf02211824 OpenAlex: https://openalex.org/W1978795665

    Crossref OpenAlex OpenCitations
11. American Psychiatric Association (2000). Diagnostic and statistical manual of mental disorders . Diagnostic and statistical manual of mental disorders.

    Type: Autre

    Crossref
12. Elizabeth Pellicano , Marc Stears (2011). Bridging autism, science and society: moving toward an ethically informed approach to autism research . Autism Research, 4(4), 271-282. Wiley.

    Type: Article DOI: 10.1002/aur.201 OpenAlex: https://openalex.org/W2032506266

    AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
13. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.

    Type: Article DOI: 10.1191/1478088706qp063oa OpenAlex: https://openalex.org/W1979290264

    Crossref OpenAlex OpenCitations
14. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.

    Type: Livre DOI: 10.1176/appi.books.9780890425596 OpenAlex: https://openalex.org/W4247665917

    Crossref OpenAlex OpenCitations
15. Laura F. Lewis (2017). “We will never be normal”: The Experience of Discovering a Partner Has Autism Spectrum Disorder . Journal of Marital and Family Therapy, 43(4), 631-643. Wiley.

    Type: Article DOI: 10.1111/jmft.12231 OpenAlex: https://openalex.org/W2606735068

    Crossref OpenAlex OpenCitations
16. Winnie Lau , Candida C. Peterson (2011). Adults and children with Asperger syndrome: Exploring adult attachment style, marital satisfaction and satisfaction with parenthood . Research in Autism Spectrum Disorders, 5(1), 392-399. Elsevier BV.

    Type: Article DOI: 10.1016/j.rasd.2010.06.001 OpenAlex: https://openalex.org/W1986288125

    Crossref OpenAlex OpenCitations
17. James Anderson , Charles Marley , Karri Gillespie‐Smith , Leonie Carter , Ken MacMahon (2020). When the mask comes off: Mothers’ experiences of parenting a daughter with autism spectrum condition . Autism, 24(6), 1546-1556. SAGE Publications.

    Type: Article DOI: 10.1177/1362361320913668 OpenAlex: https://openalex.org/W3019947059

    Crossref OpenAlex OpenCitations
18. Steven D. Stagg , Hannah Belcher (2019). Living with autism without knowing: receiving a diagnosis in later life . Health Psychology and Behavioral Medicine, 7(1), 348-361. Informa UK Limited.

    Type: Article DOI: 10.1080/21642850.2019.1684920 OpenAlex: https://openalex.org/W2988639281

    Crossref OpenAlex OpenCitations
19. Joyce Davidson , Victoria L. Henderson (2010). ‘Coming out’ on the spectrum: autism, identity and disclosure . Social & Cultural Geography, 11(2), 155-170. Informa UK Limited.

    Type: Article DOI: 10.1080/14649360903525240 OpenAlex: https://openalex.org/W1989287842

    Crossref OpenAlex OpenCitations
20. Gray Atherton , Emma Edisbury , Andrea Piovesan , Liam Cross (2022). Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life . Journal of Autism and Developmental Disorders, 52(8), 3639-3654. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-021-05235-x OpenAlex: https://openalex.org/W3191831555

    Crossref OpenAlex OpenCitations
21. Jemina Napier (2002). The D/deaf-H/hearing Debate . Sign Language Studies, 2(2), 141-149. Project MUSE.

    Type: Article DOI: 10.1353/sls.2002.0006 OpenAlex: https://openalex.org/W1998266267

    Crossref OpenAlex OpenCitations
22. Nancy Bagatell (2010). From Cure to Community: Transforming Notions of Autism . Ethos, 38(1), 33-55. Wiley.

    Type: Article DOI: 10.1111/j.1548-1352.2009.01080.x OpenAlex: https://openalex.org/W2085448344

    Crossref OpenAlex OpenCitations
23. David E. Gray (1994). Lay conceptions of autism: Parents’ explanatory models . Medical Anthropology, 16(1-4), 99-118. Informa UK Limited.

    Type: Article DOI: 10.1080/01459740.1994.9966111 OpenAlex: https://openalex.org/W2012930664

    Crossref OpenAlex OpenCitations
24. Sarah Bargiela , Robyn Steward *Auteur·ice autiste. En savoir plus… , Will Mandy (2016). The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype . Journal of Autism and Developmental Disorders, 46(10), 3281-3294. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-016-2872-8 OpenAlex: https://openalex.org/W2494524772

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
25. Amber-Sophie Dugdale , Andrew R. Thompson , Alexandra Leedham , Nigel Beail , Megan Freeth (2021). Intense connection and love: The experiences of autistic mothers . Autism, 25(7), 1973-1984. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211005987 OpenAlex: https://openalex.org/W3154030996

    Crossref OpenAlex OpenCitations
26. Lise Mogensen , Jan Mason (2015). The meaning of a label for teenagers negotiating identity: experiences with autism spectrum disorder . Sociology of Health & Illness, 37(2), 255-269. Wiley.

    Type: Article DOI: 10.1111/1467-9566.12208 OpenAlex: https://openalex.org/W2019639281

    Crossref OpenAlex OpenCitations
27. Jessica L. Benham , James S. Kizer (2016). Aut-ors of our Experience: Interrogating Intersections of Autistic Identity . Canadian Journal of Disability Studies, 5(3), 77. University of Waterloo.

    Type: Article DOI: 10.15353/cjds.v5i3.298 OpenAlex: https://openalex.org/W2544897267

    Crossref OpenAlex OpenCitations
28. Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.

    Type: Article DOI: 10.1002/ejsp.2297 OpenAlex: https://openalex.org/W2593228649

    Crossref OpenAlex OpenCitations
29. Raphael Bernier , Jennifer Gerdts , Jeff Munson , Géraldine Dawson , Annette Estes (2012). Evidence for broader autism phenotype characteristics in parents from multiple‐incidence autism families . Autism Research, 5(1), 13-20. Wiley.

    Type: Article DOI: 10.1002/aur.226 OpenAlex: https://openalex.org/W2042808169

    Crossref OpenAlex OpenCitations
30. Rozanna Lilley (2011). MATERNAL INTIMACIES . Australian Feminist Studies, 26(68), 207-224. Informa UK Limited.

    Type: Article DOI: 10.1080/08164649.2011.574600 OpenAlex: https://openalex.org/W2321619662

    Crossref OpenAlex OpenCitations
31. Edward R. Ritvo , Ria Ritvo , B.J. Freeman , Anne Mason-Brothers (1994). Clinical characteristics of mild autism in adults . Comprehensive Psychiatry, 35(2), 149-156. Elsevier BV.

    Type: Article DOI: 10.1016/0010-440x(94)90061-l OpenAlex: https://openalex.org/W2029913278

    Crossref OpenAlex OpenCitations
32. Hanna Bertilsdotter Rosqvist *Auteur·ice autiste. En savoir plus… (2012). Normal for an Asperger: Notions of the Meanings of Diagnoses Among Adults with Asperger Syndrome . Intellectual and Developmental Disabilities, 50(2), 120-128. Informa UK Limited.

    Type: Article DOI: 10.1352/1934-9556-50.2.120 OpenAlex: https://openalex.org/W2059961465

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
33. Janette Dinishak (2021). Autistic autobiography and hermeneutical injustice . Metaphilosophy, 52(5), 556-569. Wiley.

    Type: Article DOI: 10.1111/meta.12514 OpenAlex: https://openalex.org/W3198748761

    Crossref OpenAlex OpenCitations
34. C. Punshon , P. Skirrow , Glynis Murphy (2009). The `not guilty verdict' . Autism, 13(3), 265-283. SAGE Publications.

    Type: Article DOI: 10.1177/1362361309103795 OpenAlex: https://openalex.org/W2030351972

    Crossref OpenAlex OpenCitations
35. Hanna Bertilsdotter Rosqvist *Auteur·ice autiste. En savoir plus… , Charlotte Brownlow , Lindsay O’Dell (2015). “What’s the point of having friends?”: Reformulating Notions of the Meaning of Friends and Friendship among Autistic People . Disability Studies Quarterly, 35(4). The Ohio State University Libraries.

    Type: Article DOI: 10.18061/dsq.v35i4.3254 OpenAlex: https://openalex.org/W2213804446

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
36. Mathias Lasgaard , Annette Nielsen , Mette E. Eriksen , Luc Goossens (2010). Loneliness and Social Support in Adolescent Boys with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 40(2), 218-226. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-009-0851-z OpenAlex: https://openalex.org/W2101718074

    Crossref OpenAlex OpenCitations
37. Hanna Bertilsdotter Rosqvist *Auteur·ice autiste. En savoir plus… , Charlotte Brownlow , Lindsay O’Dell (2013). Mapping the social geographies of autism – online and off-line narratives of neuro-shared and separate spaces . Disability & Society, 28(3), 367-379. Informa UK Limited.

    Type: Article DOI: 10.1080/09687599.2012.714257 OpenAlex: https://openalex.org/W2073738690

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
38. Elinor Ochs , Olga Solomon (2010). Autistic Sociality . Ethos, 38(1), 69-92. Wiley.

    Type: Article DOI: 10.1111/j.1548-1352.2009.01082.x OpenAlex: https://openalex.org/W4243094908

    Crossref OpenAlex OpenCitations
39. Lydia Jones , Lorna Goddard , Elisabeth L. Hill , Lucy A. Henry , Laura Crane (2014). Experiences of Receiving a Diagnosis of Autism Spectrum Disorder: A Survey of Adults in the United Kingdom . Journal of Autism and Developmental Disorders, 44(12), 3033-3044. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-014-2161-3 OpenAlex: https://openalex.org/W2032693111

    Crossref OpenAlex OpenCitations
40. (s. d.). Blume, H. (1997, June 30). Autistics are communicating in cyberspace. New York times. https://archive.nytimes.com/www.nytimes.com/library/cyber/techcol/063097techcol.html

    Type: Autre

    Crossref
41. Laura Foran Lewis (2017). A Mixed Methods Study of Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults . Journal of Autism and Developmental Disorders, 47(8), 2410-2424. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-017-3168-3 OpenAlex: https://openalex.org/W2615871753

    Crossref OpenAlex OpenCitations
42. Micah Mazurek (2013). Social media use among adults with autism spectrum disorders . Computers in Human Behavior, 29(4), 1709-1714. Elsevier BV.

    Type: Article DOI: 10.1016/j.chb.2013.02.004 OpenAlex: https://openalex.org/W2040955219

    Crossref OpenAlex OpenCitations
43. P. Bolton , H. Macdonald , Andrew Pickles , P. Rios , S. Goode , M. Crowson et al. (1994). A Case‐Control Family History Study of Autism . Journal of Child Psychology and Psychiatry, 35(5), 877-900. Wiley.

    Type: Article DOI: 10.1111/j.1469-7610.1994.tb02300.x OpenAlex: https://openalex.org/W2142343384

    Crossref OpenAlex OpenCitations
44. Janet E. Lainhart , Sally Ozonoff , Hilary Coon , Lori Krasny , Elena Dinh , Julie Nice et al. (2002). Autism, regression, and the broader autism phenotype . American Journal of Medical Genetics, 113(3), 231-237. Wiley.

    Type: Article DOI: 10.1002/ajmg.10615 OpenAlex: https://openalex.org/W2162656577

    Crossref OpenAlex OpenCitations
45. Monique Botha *Auteur·ice autiste. En savoir plus… , Bridget Dibb , David M. Frost (2022). "Autism is me": an investigation of how autistic individuals make sense of autism and stigma . Disability & Society, 37(3), 427-453. Informa UK Limited.

    Type: Article DOI: 10.1080/09687599.2020.1822782 OpenAlex: https://openalex.org/W3092648145

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
46. Hsiu-Man Chiu , Cheng-Te Chen , Ching-Hong Tsai , Hsing-Jung Li , Chin-Chin Wu , Chien-Yu Huang et al. (2023). Theory of Mind Predicts Social Interaction in Children with Autism Spectrum Disorder: A Two-Year Follow-Up Study . Journal of Autism and Developmental Disorders, 53(9), 3659-3669. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-022-05662-4 OpenAlex: https://openalex.org/W4285085299

    OpenCitations
47. Charlotte Brownlow , Hanna Bertilsdotter Rosqvist *Auteur·ice autiste. En savoir plus… , Lindsay O’Dell (2015). Exploring the potential for social networking among people with autism: challenging dominant ideas of ‘friendship’ . Scandinavian Journal of Disability Research, 17(2), 188-193. Stockholm University Press.

    Type: Article DOI: 10.1080/15017419.2013.859174 OpenAlex: https://openalex.org/W2045490287

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
48. Monique Botha *Auteur·ice autiste. En savoir plus… , Bridget Dibb , David M. Frost (2022). ‘It’s being a part of a grand tradition, a grand counter-culture which involves communities’: A qualitative investigation of autistic community connectedness . Autism, 26(8), 2151-2164. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221080248 OpenAlex: https://openalex.org/W4221109625

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
49. Michele Friedner , Pamela Block (2017). Deaf studies meets autistic studies . The Senses and Society, 12(3), 282-300. Informa UK Limited.

    Type: Article DOI: 10.1080/17458927.2017.1369716 OpenAlex: https://openalex.org/W2765683967

    Crossref OpenAlex OpenCitations
50. Georgia Lockwood Estrin , Victoria Milner , Debbie Spain , Francesca Happé , Emma Colvert (2021). Barriers to Autism Spectrum Disorder Diagnosis for Young Women and Girls: a Systematic Review . Review Journal of Autism and Developmental Disorders, 8(4), 454-470. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s40489-020-00225-8 OpenAlex: https://openalex.org/W3095823263

    Crossref OpenAlex OpenCitations
51. Charlotte Brownlow , Lindsay O’Dell (2002). Ethical Issues for Qualitative Research in On-line Communities . Disability & Society, 17(6), 685-694. Informa UK Limited.

    Type: Article DOI: 10.1080/0968759022000010452 OpenAlex: https://openalex.org/W2060353191

    Crossref OpenAlex OpenCitations
52. Virginia Braun , Victoria Clarke (2019). Novel insights into patients' life-worlds: the value of qualitative research . The Lancet Psychiatry, 6(9), 720-721. Elsevier BV.

    Type: Article DOI: 10.1016/s2215-0366(19)30296-2 OpenAlex: https://openalex.org/W2963458965

    Crossref OpenAlex OpenCitations
53. Francesca Happé , Uta Frith (2020). Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research . Journal of Child Psychology and Psychiatry, 61(3), 218-232. Wiley.

    Type: Article DOI: 10.1111/jcpp.13176 OpenAlex: https://openalex.org/W3003423347

    Crossref OpenAlex OpenCitations
54. Marian Reiff , Eva Bugos , Ellen Giarelli , Barbara A. Bernhardt , Nancy B. Spinner , Pamela L. Sankar et al. (2017). “Set in Stone” or “Ray of Hope”: Parents’ Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD . Journal of Autism and Developmental Disorders, 47(5), 1453-1463. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-017-3067-7 OpenAlex: https://openalex.org/W2590770650

    Crossref OpenAlex OpenCitations
55. Meng-Chuan Lai , Michael Lombardo , Amber Ruigrok , Bhismadev Chakrabarti , Bonnie Auyeung , Péter Szatmári et al. (2017). Quantifying and exploring camouflaging in men and women with autism . Autism, 21(6), 690-702. SAGE Publications.

    Type: Article DOI: 10.1177/1362361316671012 OpenAlex: https://openalex.org/W2543847144

    Crossref OpenAlex OpenCitations
56. Coralie Chevallier , Gregor Kohls , Vanessa Troiani , Edward S. Brodkin , Robert T. Schultz (2012). The social motivation theory of autism . Trends in Cognitive Sciences, 16(4), 231-239. Elsevier BV.

    Type: Article DOI: 10.1016/j.tics.2012.02.007 OpenAlex: https://openalex.org/W2091028497

    Crossref OpenAlex OpenCitations
57. Simon M. Bury , Rachel Jellett , Jennifer R. Spoor , Darren Hedley (2023). “It Defines Who I Am” or “It’s Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer? Journal of Autism and Developmental Disorders, 53(2), 677-687. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-020-04425-3 OpenAlex: https://openalex.org/W3007056653

    Crossref OpenAlex OpenCitations
58. Andrew Whitehouse , Hilary Coon , Judith S. Miller , Bryanna Salisbury , Dorothy V.M. Bishop (2010). Narrowing the broader autism phenotype . Autism, 14(6), 559-574. SAGE Publications.

    Type: Article DOI: 10.1177/1362361310382107 OpenAlex: https://openalex.org/W2163802358

    Crossref OpenAlex OpenCitations
59. Jennifer Gerdts , Raphael Bernier (2011). The Broader Autism Phenotype and Its Implications on the Etiology and Treatment of Autism Spectrum Disorders . Autism Research and Treatment, 2011, 1-19. Wiley.

    Type: Article DOI: 10.1155/2011/545901 OpenAlex: https://openalex.org/W2095109051

    Crossref OpenAlex OpenCitations
60. Eilidh Cage , Jessica Di Monaco , Victoria Newell (2018). Experiences of Autism Acceptance and Mental Health in Autistic Adults . Journal of Autism and Developmental Disorders, 48(2), 473-484. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-017-3342-7 OpenAlex: https://openalex.org/W2766434912

    Crossref OpenAlex OpenCitations
61. Jessy Erin Fletcher-Randle (2022). Where are all the Autistic Parents? A Thematic Analysis of Autistic Parenting Discourse within the Narrative of Parenting and Autism in Online Media . Studies in Social Justice, 16(2), 389-406. Brock University Library.

    Type: Article DOI: 10.26522/ssj.v16i2.2701 OpenAlex: https://openalex.org/W4220711464

    Crossref OpenAlex OpenCitations
62. Christina Nicolaidis , Dora M Raymaker *Auteur·ice autiste. En savoir plus… , Katherine McDonald , Sebastian Dern , Elesia Ashkenazy *Auteur·ice autiste. En savoir plus… , W. Cody Boisclair *Auteur·ice autiste. En savoir plus… et al. (2011). Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships: Lessons From an Academic–Community Partnership With Autistic Self-Advocates . Progress in Community Health Partnerships: Research, Education, and Action, 5(2), 143-150. Project MUSE.

    Type: Article DOI: 10.1353/cpr.2011.0022 OpenAlex: https://openalex.org/W2112020878

    AutiHub · Chercheur·euses autistes AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
63. Caitlin C. Clements , Alisa R. Zoltowski , Lisa D. Yankowitz , Benjamin E. Yerys , Robert T. Schultz , John D. Herrington (2018). Evaluation of the Social Motivation Hypothesis of Autism . JAMA Psychiatry, 75(8), 797. American Medical Association (AMA).

    Type: Article DOI: 10.1001/jamapsychiatry.2018.1100 OpenAlex: https://openalex.org/W2808454091

    Crossref OpenAlex OpenCitations
64. Melanie Heyworth *Auteur·ice autiste. En savoir plus… , Simon Brett , Jacquiline den Houting *Auteur·ice autiste. En savoir plus… , Iliana Magiati , Robyn Steward *Auteur·ice autiste. En savoir plus… , Anna Urbanowicz et al. (2023). “I'm the Family Ringmaster and Juggler”: Autistic Parents' Experiences of Parenting During the COVID-19 Pandemic . Autism in Adulthood, 5(1), 24-36. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2021.0097 OpenAlex: https://openalex.org/W4280653010

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
65. Andrea MacLeod , Ann Lewis , Christopher Robertson (2013). ‘Why should I be like bloody R ain M an?!’ Navigating the autistic identity . British Journal of Special Education, 40(1), 41-49. Wiley.

    Type: Article DOI: 10.1111/1467-8578.12015 OpenAlex: https://openalex.org/W2113280512

    Crossref OpenAlex OpenCitations
66. Julia Cook , Laura Hull , Laura Crane , Will Mandy (2021). Camouflaging in autism: A systematic review . Clinical Psychology Review, 89, 102080. Elsevier BV.

    Type: Article DOI: 10.1016/j.cpr.2021.102080 OpenAlex: https://openalex.org/W3198172085

    Crossref OpenAlex OpenCitations
67. TRUCE T. ORDONA (1989). Handbook of Autism and Pervasive Developmental Disorders . American Journal of Psychiatry, 146(6), 793-794. American Psychiatric Association Publishing.

    Type: Article DOI: 10.1176/ajp.146.6.793 OpenAlex: https://openalex.org/W2117283549

    OpenAlex
68. Phillipa Raymond-Barker , Gemma Maria Griffith , Richard P. Hastings (2018). Biographical disruption: Experiences of mothers of adults assessed for autism spectrum disorder . Journal of Intellectual & Developmental Disability, 43(1), 83-92. Informa UK Limited.

    Type: Article DOI: 10.3109/13668250.2016.1262011 OpenAlex: https://openalex.org/W2560224029

    Crossref OpenAlex OpenCitations
69. Joyce Davidson (2008). Autistic culture online: virtual communication and cultural expression on the spectrum . Social & Cultural Geography, 9(7), 791-806. Informa UK Limited.

    Type: Article DOI: 10.1080/14649360802382586 OpenAlex: https://openalex.org/W2118419532

    Crossref OpenAlex OpenCitations
70. Rosalind Cooper , Kate Cooper , Ailsa Russell , Laura G. E. Smith (2021). “I’m Proud to be a Little Bit Different”: The Effects of Autistic Individuals’ Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem . Journal of Autism and Developmental Disorders, 51(2), 704-714. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-020-04575-4 OpenAlex: https://openalex.org/W3036418460

    Crossref OpenAlex OpenCitations
71. N. Micali , S. Chakrabarti , Éric Fombonne (2004). The Broad Autism Phenotype . Autism, 8(1), 21-37. SAGE Publications.

    Type: Article DOI: 10.1177/1362361304040636 OpenAlex: https://openalex.org/W2120408660

    Crossref OpenAlex OpenCitations
72. Kirsten Corden , Rebecca Brewer , Eilidh Cage (2021). Personal Identity After an Autism Diagnosis: Relationships With Self-Esteem, Mental Wellbeing, and Diagnostic Timing . Frontiers in Psychology, 12, 699335-699335. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyg.2021.699335 OpenAlex: https://openalex.org/W3161811598

    Crossref OpenAlex OpenCitations
73. Steven K. Kapp *Auteur·ice autiste. En savoir plus… , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).

    Type: Article DOI: 10.1037/a0028353 OpenAlex: https://openalex.org/W2124715426

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
74. Laura Crane , Richard Batty , Hanna Adeyinka , Lorna Goddard , Lucy A. Henry , Elisabeth L. Hill (2018). Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals . Journal of Autism and Developmental Disorders, 48(11), 3761-3772. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-018-3639-1 OpenAlex: https://openalex.org/W2808369589

    Crossref OpenAlex OpenCitations
75. Noah J. Sasson , Kristen SL Lam , Morgan Parlier , Julie L Daniels , Joseph Piven (2013). Autism and the broad autism phenotype: familial patterns and intergenerational transmission . Journal of Neurodevelopmental Disorders, 5(1), 1. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/1866-1955-5-11 OpenAlex: https://openalex.org/W2125592770

    Crossref OpenAlex OpenCitations
76. Laura Crane , Lok Man Lui , Jade Davies , Elizabeth Pellicano (2021). Autistic parents’ views and experiences of talking about autism with their autistic children . Autism, 25(4), 1161-1167. SAGE Publications.

    Type: Article DOI: 10.1177/1362361320981317 OpenAlex: https://openalex.org/W3120478003

    Crossref OpenAlex OpenCitations
77. Meng-Chuan Lai , Simon Baron-Cohen (2015). Identifying the lost generation of adults with autism spectrum conditions . The Lancet Psychiatry, 2(11), 1013-1027. Elsevier BV.

    Type: Article DOI: 10.1016/s2215-0366(15)00277-1 OpenAlex: https://openalex.org/W2128937542

    Crossref OpenAlex OpenCitations
78. Serena Cribb , Lorcan Kenny , Elizabeth Pellicano (2019). ‘I definitely feel more in control of my life’: The perspectives of young autistic people and their parents on emerging adulthood . Autism, 23(7), 1765-1781. SAGE Publications.

    Type: Article DOI: 10.1177/1362361319830029 OpenAlex: https://openalex.org/W2918237446

    Crossref OpenAlex OpenCitations
79. Karen Hurlbutt , Lynne Chalmers (2002). Adults With Autism Speak Out . Focus on Autism and Other Developmental Disabilities, 17(2), 103-111. SAGE Publications.

    Type: Article DOI: 10.1177/10883576020170020501 OpenAlex: https://openalex.org/W2130225517

    Crossref OpenAlex OpenCitations
80. Catherine J. Crompton , Sonny Hallett *Auteur·ice autiste. En savoir plus… , Danielle Ropar , Emma G. Flynn , Sue Fletcher‐Watson (2020). ‘I never realised everybody felt as happy as I do when I am around autistic people’: A thematic analysis of autistic adults’ relationships with autistic and neurotypical friends and family . Autism, 24(6), 1438-1448. SAGE Publications.

    Type: Article DOI: 10.1177/1362361320908976 OpenAlex: https://openalex.org/W3009630179

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
81. Rozanna Lilley , Wenn Lawson *Auteur·ice autiste. En savoir plus… , Gabrielle Hall *Auteur·ice autiste. En savoir plus… , Joanne Mahony , Hayley Clapham *Auteur·ice autiste. En savoir plus… , Melanie Heyworth *Auteur·ice autiste. En savoir plus… et al. (2022). ‘A way to be me’: Autobiographical reflections of autistic adults diagnosed in mid-to-late adulthood . Autism, 26(6), 1395-1408. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211050694 OpenAlex: https://openalex.org/W3206782425

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
82. Joseph Piven , Pat Palmer , Rebecca Landa , Susan Santangelo , Dinah Jacobi , Deb Childress (1997). Personality and language characteristics in parents from multiple-incidence autism families . American Journal of Medical Genetics, 74(4), 398-411. Wiley.

    Type: Article DOI: 10.1002/(sici)1096-8628(19970725)74:4<398::aid-ajmg11>3.0.co;2-d OpenAlex: https://openalex.org/W2132292769

    Crossref OpenAlex OpenCitations
83. Catherine J. Crompton , Sonny Hallett *Auteur·ice autiste. En savoir plus… , Christine McAuliffe , Andrew C. Stanfield , Sue Fletcher‐Watson (2022). “A Group of Fellow Travellers Who Understand”: Interviews With Autistic People About Post-diagnostic Peer Support in Adulthood . Frontiers in Psychology, 13, 831628-831628. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyg.2022.831628 OpenAlex: https://openalex.org/W4221114197

    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
84. Sula Wolff , Sukhdev Narayan , Barbara Moyes (1988). PERSONALITY CHARACTERISTICS OF PARENTS OF AUTISTIC CHILDREN: A CONTROLLED STUDY . Journal of Child Psychology and Psychiatry, 29(2), 143-153. Wiley.

    Type: Article DOI: 10.1111/j.1469-7610.1988.tb00699.x OpenAlex: https://openalex.org/W2136462247

    Crossref OpenAlex OpenCitations
85. David C Giles (2014). ‘ DSM-V is taking away our identity’: The reaction of the online community to the proposed changes in the diagnosis of Asperger’s disorder . Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 18(2), 179-195. SAGE Publications.

    Type: Article DOI: 10.1177/1363459313488006 OpenAlex: https://openalex.org/W2146027190

    Crossref OpenAlex OpenCitations
86. Andres De Los Reyes , Elizabeth Talbott , Thomas J. Power , Jeremy J. Michel , Clayton R. Cook , Sarah J. Racz et al. (2022). The Needs-to-Goals Gap: How informant discrepancies in youth mental health assessments impact service delivery . Clinical Psychology Review, 92, 102114. Elsevier BV.

    Type: Article DOI: 10.1016/j.cpr.2021.102114 OpenAlex: https://openalex.org/W4200105018

    OpenCitations
87. Nurit Yirmiya , Michal Shaked (2005). Psychiatric disorders in parents of children with autism: a meta‐analysis . Journal of Child Psychology and Psychiatry, 46(1), 69-83. Wiley.

    Type: Article DOI: 10.1111/j.1469-7610.2004.00334.x OpenAlex: https://openalex.org/W2156078552

    Crossref OpenAlex OpenCitations
88. Dekker, M. (1999). On our own terms: Emerging autistic culture. Autism99 online conference. http://www.autscape.org/2015/programme/handouts/Autistic-Culture-07-Oct-1999.pdf

    Type: Autre

    Crossref
89. Rayna Rapp , Faye Ginsburg (2011). Reverberations: Disability and the New Kinship Imaginary . Anthropological Quarterly, 84(2), 379-410. Project MUSE.

    Type: Article DOI: 10.1353/anq.2011.0030 OpenAlex: https://openalex.org/W2160747314

    Crossref OpenAlex OpenCitations
90. Jacquiline den Houting *Auteur·ice autiste. En savoir plus… , Julianne M. Higgins *Auteur·ice autiste. En savoir plus… , Kathy Isaacs *Auteur·ice autiste. En savoir plus… , Joanne Mahony , Elizabeth Pellicano (2021). ‘I’m not just a guinea pig’: Academic and community perceptions of participatory autism research . Autism, 25(1), 148-163. SAGE Publications.

    Type: Article DOI: 10.1177/1362361320951696 OpenAlex: https://openalex.org/W3082254080

    AutiHub · Chercheur·euses autistes AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
91. Cheryl Dissanayake , Amanda L. Richdale , Natasha Kolivas , Lindsay Pamment (2020). An Exploratory Study of Autism Traits and Parenting . Journal of Autism and Developmental Disorders, 50(7), 2593-2606. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-019-03984-4 OpenAlex: https://openalex.org/W2922468422

    Crossref OpenAlex OpenCitations
92. Martha E. Gimenez , Anthony Giddens (1993). The Transformation of Intimacy: Sexuality, Love and Eroticism in Modern Societies. Social Forces, 72(1), 271. Oxford University Press (OUP).

    Type: Article DOI: 10.2307/2580173 OpenAlex: https://openalex.org/W2167274150

    OpenAlex
93. Sue Fletcher‐Watson , Jonathan Adams *Auteur·ice autiste. En savoir plus… , Kabie Brook *Auteur·ice autiste. En savoir plus… , Tony Charman , Laura Crane , James Cusack *Auteur·ice autiste. En savoir plus… et al. (2019). Making the future together: Shaping autism research through meaningful participation . Autism, 23(4), 943-953. SAGE Publications.

    Type: Article DOI: 10.1177/1362361318786721 OpenAlex: https://openalex.org/W2807975560

    AutiHub · Chercheur·euses autistes AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
94. E. Sucksmith , I. Roth , Rosa A. Hoekstra (2011). Autistic Traits Below the Clinical Threshold: Re-examining the Broader Autism Phenotype in the 21st Century . Neuropsychology Review, 21(4), 360-389. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s11065-011-9183-9 OpenAlex: https://openalex.org/W2167857465

    Crossref OpenAlex OpenCitations
95. Tracy Finch , Joan Mackintosh , Alex Petrou , Helen McConachie , Ann Le Couteur , Deborah Garland et al. (2022). “We couldn’t think in the box if we tried. We can’t even find the damn box”: A qualitative study of the lived experiences of autistic adults and relatives of autistic adults . PLOS ONE, 17(3), e0264932. Public Library of Science (PLoS).

    Type: Article DOI: 10.1371/journal.pone.0264932 OpenAlex: https://openalex.org/W4221104382

    Crossref OpenAlex OpenCitations
96. Laura Foran Lewis (2016). Realizing a diagnosis of autism spectrum disorder as an adult . International Journal of Mental Health Nursing, 25(4), 346-354. Wiley.

    Type: Article DOI: 10.1111/inm.12200 OpenAlex: https://openalex.org/W2290256687

    Crossref OpenAlex OpenCitations
97. Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.

    Type: Article DOI: 10.1177/1362361315588200 OpenAlex: https://openalex.org/W2227393071

    Crossref OpenAlex OpenCitations
98. Jennifer C. Sarrett (2016). Biocertification and Neurodiversity: the Role and Implications of Self-Diagnosis in Autistic Communities . Neuroethics, 9(1), 23-36. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s12152-016-9247-x OpenAlex: https://openalex.org/W2252287480

    Crossref OpenAlex OpenCitations
99. Catherine Lord , Mayada Elsabbagh , Gillian Baird , Jeremy Veenstra‐VanderWeele (2018). Autism spectrum disorder . The Lancet, 392(10146), 508-520. Elsevier BV.

    Type: Article DOI: 10.1016/s0140-6736(18)31129-2 OpenAlex: https://openalex.org/W2886989735

    Crossref OpenAlex OpenCitations
100. Sarah M. Parsloe (2015). Discourses of Disability, Narratives of Community: Reclaiming an Autistic Identity Online . Journal of Applied Communication Research, 43(3), 336-356. Informa UK Limited.

     Type: Article DOI: 10.1080/00909882.2015.1052829 OpenAlex: https://openalex.org/W2253794361

     Crossref OpenAlex OpenCitations
101. Morton Ann Gernsbacher (2017). Editorial Perspective: The use of person‐first language in scholarly writing may accentuate stigma . Journal of Child Psychology and Psychiatry, 58(7), 859-861. Wiley.

     Type: Article DOI: 10.1111/jcpp.12706 OpenAlex: https://openalex.org/W2626162561

     Crossref OpenAlex OpenCitations
102. Trevor Powell , Louise Acker (2016). Adults’ Experience of an Asperger Syndrome Diagnosis . Focus on Autism and Other Developmental Disabilities, 31(1), 72-80. SAGE Publications.

     Type: Article DOI: 10.1177/1088357615588516 OpenAlex: https://openalex.org/W2266169933

     Crossref OpenAlex OpenCitations
103. Daniel Navon , Gil Eyal (2016). Looping Genomes: Diagnostic Change and the Genetic Makeup of the Autism Population . American Journal of Sociology, 121(5), 1416-1471. University of Chicago Press.

     Type: Article DOI: 10.1086/684201 OpenAlex: https://openalex.org/W2294041653

     Crossref OpenAlex OpenCitations
104. Giddens, Anthony 1938- (1992). The transformation of intimacy sexuality, love, and eroticism in modern societies . The transformation of intimacy: Sexuality, love, and eroticism in modern societies.

     Type: Autre OpenAlex: https://openalex.org/W7015701476

     Crossref OpenAlex
105. Damian Milton *Auteur·ice autiste. En savoir plus… , Tara Sims (2016). How is a sense of well-being and belonging constructed in the accounts of autistic adults? Disability & Society, 31(4), 520-534. Informa UK Limited.

     Type: Article DOI: 10.1080/09687599.2016.1186529 OpenAlex: https://openalex.org/W2415653571

     AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
106. Elizabeth Pellicano , Simon Brett , Jacquiline den Houting *Auteur·ice autiste. En savoir plus… , Melanie Heyworth *Auteur·ice autiste. En savoir plus… , Iliana Magiati , Robyn Steward *Auteur·ice autiste. En savoir plus… et al. (2022). COVID-19, social isolation and the mental health of autistic people and their families: A qualitative study . Autism, 26(4), 914-927. SAGE Publications.

     Type: Article DOI: 10.1177/13623613211035936 OpenAlex: https://openalex.org/W3193139887

     AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
107. Joyce Davidson , Michael Orsini (2013). Capturing Diagnostic Journeys of Life on the Autism Spectrum . Dans Worlds of Autism (pp. 191-212). University of Minnesota Press.

     Type: Chapitre de livre DOI: 10.5749/minnesota/9780816688883.003.0009 OpenAlex: https://openalex.org/W2500491034

     OpenAlex
108. Brett Heasman , Alex Gillespie (2019). Neurodivergent intersubjectivity: Distinctive features of how autistic people create shared understanding . Autism, 23(4), 910-921. SAGE Publications.

     Type: Article DOI: 10.1177/1362361318785172 OpenAlex: https://openalex.org/W2886786591

     Crossref OpenAlex OpenCitations
109. Aoife Hickey , Jason Crabtree , Joshua Stott (2018). ‘Suddenly the first fifty years of my life made sense’: Experiences of older people with autism . Autism, 22(3), 357-367. SAGE Publications.

     Type: Article DOI: 10.1177/1362361316680914 OpenAlex: https://openalex.org/W2588184259

     Crossref OpenAlex OpenCitations
110. Yunhe Huang , Samuel R. C. Arnold , Kitty‐Rose Foley , Julian N Trollor (2022). Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia . Journal of Autism and Developmental Disorders, 52(7), 2984-2996. Springer Science and Business Media LLC.

     Type: Article DOI: 10.1007/s10803-021-05169-4 OpenAlex: https://openalex.org/W3178785782

     Crossref OpenAlex OpenCitations
111. Jennifer Cross (2017). NeuroTribes: The Legacy of Autism and the Future of Neurodiversity . Journal of Developmental & Behavioral Pediatrics, 38(2), 119-119. Ovid Technologies (Wolters Kluwer Health).

     Type: Article DOI: 10.1097/dbp.0000000000000378 OpenAlex: https://openalex.org/W2567564743

     OpenAlex
112. Yunhe Huang , Samuel R. C. Arnold , Kitty‐Rose Foley , Lauren P. Lawson , Amanda L. Richdale , Julian N Trollor (2021). Factors associated with age at autism diagnosis in a community sample of Australian adults . Autism Research, 14(12), 2677-2687. Wiley.

     Type: Article DOI: 10.1002/aur.2610 OpenAlex: https://openalex.org/W3199221538

     Crossref OpenAlex OpenCitations
113. Laura Hull , K. V. Petrides , Carrie Allison , Paula Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.

     Type: Article DOI: 10.1007/s10803-017-3166-5 OpenAlex: https://openalex.org/W2616560149

     Crossref OpenAlex OpenCitations
114. Wenn Lawson *Auteur·ice autiste. En savoir plus… (2020). Adaptive Morphing and Coping with Social Threat in Autism: An Autistic Perspective . Journal of Intellectual Disability - Diagnosis and Treatment, 8(3), 519-526. Lifescience Global.

     Type: Article DOI: 10.6000/2292-2598.2020.08.03.29 OpenAlex: https://openalex.org/W3089250252

     AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
115. Cara Ryan Idriss (2021). Invisible Autistic Infrastructure: Ethnographic Reflections on an Autistic Community . Medical Anthropology, 40(2), 129-140. Informa UK Limited.

     Type: Article DOI: 10.1080/01459740.2020.1849185 OpenAlex: https://openalex.org/W3099841821

     Crossref OpenAlex OpenCitations
116. B Ingersoll (2014). Handbook of Autism and pervasive developmental disorders . Handbook of Autism and pervasive developmental disorders, 28.

     Type: Autre

     Crossref
117. Alice Turnock , Kate Langley , Catherine R.G. Jones (2022). Understanding Stigma in Autism: A Narrative Review and Theoretical Model . Autism in Adulthood, 4(1), 76-91. SAGE Publications.

     Type: Article DOI: 10.1089/aut.2021.0005 OpenAlex: https://openalex.org/W4214570045

     Crossref OpenAlex OpenCitations
118. Vikram K. Jaswal , Nameera Akhtar (2019). Being versus appearing socially uninterested: Challenging assumptions about social motivation in autism . Behavioral and Brain Sciences, 42, Article e82, 1. Cambridge University Press (CUP).

     Type: Article DOI: 10.1017/s0140525x18001826 OpenAlex: https://openalex.org/W2809138493

     Crossref OpenAlex OpenCitations
119. Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–50. http://mail.neurodiversity.com/library_kanner_1943.pdf

     Type: Autre

     Crossref
120. Steven K. Kapp *Auteur·ice autiste. En savoir plus… , Ari Ne'eman *Auteur·ice autiste. En savoir plus… (2020). Lobbying Autism’s Diagnostic Revision in the DSM-5 . Dans Autistic Community and the Neurodiversity Movement (pp. 167-194). Springer Singapore.

     Type: Chapitre de livre DOI: 10.1007/978-981-13-8437-0_13 OpenAlex: https://openalex.org/W2985343932

     Crossref OpenAlex OpenCitations
121. Catherine D. Tan (2018). “I'm a normal autistic person, not an abnormal neurotypical”: Autism Spectrum Disorder diagnosis as biographical illumination . Social Science & Medicine, 197, 161-167. Elsevier BV.

     Type: Article DOI: 10.1016/j.socscimed.2017.12.008 OpenAlex: https://openalex.org/W2774655211

     Crossref OpenAlex OpenCitations
122. Eric Rubenstein , Devika Chawla (2018). Broader Autism Phenotype in Parents of Children with Autism: A Systematic Review of Percentage Estimates . Journal of Child and Family Studies, 27(6), 1705-1720. Springer Science and Business Media LLC.

     Type: Article DOI: 10.1007/s10826-018-1026-3 OpenAlex: https://openalex.org/W2789908782

     Crossref OpenAlex OpenCitations
123. Victoria Milner , Hollie McIntosh , Emma Colvert , Francesca Happé (2019). A Qualitative Exploration of the Female Experience of Autism Spectrum Disorder (ASD) . Journal of Autism and Developmental Disorders, 49(6), 2389-2402. Springer Science and Business Media LLC.

     Type: Article DOI: 10.1007/s10803-019-03906-4 OpenAlex: https://openalex.org/W2917614824

     Crossref OpenAlex OpenCitations
124. Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135-146. SAGE Publications.

     Type: Article DOI: 10.1177/1362361319853442 OpenAlex: https://openalex.org/W2947577397

     Crossref OpenAlex OpenCitations
125. Hannah Legg , Anna Tickle , Alinda Gillott , Sarah Wilde (2023). Exploring the Experiences of Parents Whose Child has Received a Diagnosis of Autistic Spectrum Disorder in Adulthood . Journal of Autism and Developmental Disorders, 53(1), 205-215. Springer Science and Business Media LLC.

     Type: Article DOI: 10.1007/s10803-021-05296-y OpenAlex: https://openalex.org/W4206136272

     Crossref OpenAlex OpenCitations
126. Elizabeth Pellicano , Jacquiline den Houting *Auteur·ice autiste. En savoir plus… , Lee du Plooy , Rozanna Lilley (2019). Knowing autism: The place of experiential expertise . Behavioral and Brain Sciences, 42. Cambridge University Press (CUP).

     Type: Article DOI: 10.1017/s0140525x18002376 OpenAlex: https://openalex.org/W2963454387

     AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
127. Elizabeth Pellicano , Wenn Lawson *Auteur·ice autiste. En savoir plus… , Gabrielle Hall *Auteur·ice autiste. En savoir plus… , Joanne Mahony , Rozanna Lilley , Catherine Davis et al. (2020). Documenting the untold histories of late-diagnosed autistic adults: a qualitative study protocol using oral history methodology . BMJ Open, 10(5), e037968. BMJ.

     Type: Article DOI: 10.1136/bmjopen-2020-037968 OpenAlex: https://openalex.org/W3032426661

     AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
128. Cameron A Maitland , Sinéad Rhodes , Anne O’Hare , Mary E. Stewart (2021). Social identities and mental well-being in autistic adults . Autism, 25(6), 1771-1783. SAGE Publications.

     Type: Article DOI: 10.1177/13623613211004328 OpenAlex: https://openalex.org/W3160089913

     Crossref OpenAlex OpenCitations
129. Vered Seidmann (2021). On blogs, autistic bloggers, and autistic space . Information, Communication & Society, 24(15), 2277-2292. Informa UK Limited.

     Type: Article DOI: 10.1080/1369118x.2020.1754878 OpenAlex: https://openalex.org/W3020275884

     Crossref OpenAlex OpenCitations
130. Elizabeth Pellicano , Jacquiline den Houting *Auteur·ice autiste. En savoir plus… (2022). Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science . Journal of Child Psychology and Psychiatry, 63(4), 381-396. Wiley.

     Type: Article DOI: 10.1111/jcpp.13534 OpenAlex: https://openalex.org/W3208557763

     AutiHub · Chercheur·euses autistes AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
131. (s. d.). Oral History Association. (2009, October). Principles and best practices for oral history. https://www.oralhistory.org/about/principles-and-practices-revised-2009/

     Type: Autre

     Crossref
132. Silberman S (2016). Neurotribes: the legacy of autism and the future of neurodiversity . Choice Reviews Online, 53(08), 53-3753-53-3753. American Library Association.

     Type: Article DOI: 10.5860/choice.194735 OpenAlex: https://openalex.org/W3152449083

     Crossref OpenAlex
133. Ling Zhou , Jiebiao Wang , Jin Huang (2022). Brief Report: Health Expenditures for Children with Autism and Family Financial Well-Being in China . Journal of Autism and Developmental Disorders, 52(8), 3712-3717. Springer Science and Business Media LLC.

     Type: Article DOI: 10.1007/s10803-021-05214-2 OpenAlex: https://openalex.org/W3186840061

     OpenCitations
134. Thomas A. Widiger (2000). Diagnostic and Statistical Manual of Mental Disorders. Dans Encyclopedia of Psychology, Vol. 3. (pp. 32-35). Oxford University Press.

     Type: Chapitre de livre DOI: 10.1037/10518-009 OpenAlex: https://openalex.org/W3196369884

     OpenAlex
135. Sara Ryan (2014). Worlds of autism: across the spectrum of neurological difference . Choice Reviews Online, 51(10), 51-5873-51-5873. American Library Association.

     Type: Article DOI: 10.5860/choice.51-5873 OpenAlex: https://openalex.org/W4240717879

     Crossref OpenAlex
136. J Singer (1999). Disability discourse . Disability discourse, 59.

     Type: Autre

     Crossref
137. American Psychiatric Association (2022). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association Publishing.

     Type: Livre DOI: 10.1176/appi.books.9780890425787 OpenAlex: https://openalex.org/W4281687410

     OpenAlex
138. World Health Organization (2019). International statistical classification of diseases and related health problems (11th ed.). https://icd.who.int/

     Type: Autre

     Crossref