Le fait d’apprendre que l’on est autiste à un plus jeune âge conduit-il à de meilleurs résultats à l’âge adulte ? Une exploration participative des perspectives d’étudiants universitaires autistes

Titre original en anglais : Does learning you are autistic at a younger age lead to better adult outcomes? A participatory exploration of the perspectives of autistic university students

Sources de métadonnées utilisées pour cette référence

OpenAlex Crossref OpenCitations
En savoir plus sur les sources utilisées

Oredipe, T., Kofner, B., Riccio, A., Cage, E., Vincent, J., Kapp, S. K., Dwyer, P., & Gillespie-Lynch, K. (2022). Does learning you are autistic at a younger age lead to better adult outcomes? A participatory exploration of the perspectives of autistic university students. Autism, 27(1), 200-212. https://doi.org/10.1177/13623613221086700

Date de publication: 11/04/2022 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI)

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
2 / 8 (25,0 %)
  1. Tomisin Oredipe
  2. Bella Kofner
  3. Ariana Riccio
  4. Eilidh Cage
  1. Jonathan Vincent
  2. Steven K. Kapp *
  3. Patrick Dwyer *
  4. Kristen Gillespie-Lynch

Résumé

De nombreuses personnes autistes n’apprennent qu’à l’âge adulte qu’elles sont autistes. Les parents peuvent attendre pour dire à un enfant qu’il est autiste jusqu’à ce qu’ils estiment que l’enfant est « prêt ». Dans cette étude, une équipe participative de chercheurs autistes et non autistes a examiné si le fait d’apprendre que l’on est autiste à un plus jeune âge est associé à un bien-être accru et à une qualité de vie spécifique à l’autisme chez des étudiants universitaires autistes. Des étudiants autistes (n = 78) ont répondu à une enquête en ligne. Ils ont indiqué quand et comment ils ont appris qu’ils étaient autistes, ce qu’ils ressentaient à propos de l’autisme lorsqu’ils ont appris pour la première fois qu’ils étaient autistes et maintenant, ainsi que le moment auquel ils diraient à des enfants autistes qu’ils sont autistes. Le fait d’apprendre plus tôt que l’on est autiste était associé à une qualité de vie et à un bien-être accrus à l’âge adulte. Cependant, le fait d’apprendre que l’on est autiste à un âge plus avancé était associé à des émotions plus positives à propos de l’autisme lorsqu’on apprenait pour la première fois que l’on est autiste. Les participants ont exprimé des émotions à la fois positives et négatives à propos de l’autisme et ont mis en évidence des facteurs contextuels à prendre en compte lorsqu’on dit à un enfant qu’il est autiste. Les résultats suggèrent que dire à un enfant qu’il est autiste à un plus jeune âge lui donne les moyens d’agir en lui donnant accès à du soutien et une base pour la compréhension de soi qui l’aide à s’épanouir à l’âge adulte. Résumé vulgarisé Les personnes apprennent à des âges différents qu’elles sont autistes. Nous voulions savoir si dire plus tôt aux enfants qu’ils sont autistes les aide à se sentir mieux dans leur vie lorsqu’ils grandissent. Nous sommes une équipe d’étudiants et de professeurs autistes et non autistes. Soixante-dix-huit étudiants universitaires autistes ont répondu à notre enquête en ligne. Ils ont expliqué comment ils ont appris qu’ils étaient autistes et ce qu’ils ressentaient à l’idée d’être autistes. Ils ont également expliqué ce qu’ils ressentent maintenant à propos de leur vie. Un nombre à peu près égal d’étudiants ont appris qu’ils étaient autistes par des médecins et par leurs parents. Les étudiants qui ont appris qu’ils étaient autistes lorsqu’ils étaient plus jeunes se sentaient plus heureux de leur vie que les personnes qui l’ont appris lorsqu’elles étaient plus âgées. Les étudiants qui ont appris qu’ils étaient autistes lorsqu’ils étaient plus âgés se sentaient plus heureux d’être autistes lorsqu’ils l’ont appris pour la première fois que les personnes qui n’ont pas eu à attendre aussi longtemps. Notre étude montre qu’il est probablement préférable de dire aux personnes qu’elles sont autistes dès que possible. Les étudiants qui ont participé à notre étude ne pensaient pas qu’il était judicieux d’attendre que les enfants soient adultes pour leur dire qu’ils sont autistes. Ils ont dit que les parents devraient dire à leurs enfants qu’ils sont autistes de manières qui les aident à comprendre et à se sentir bien à propos de qui ils sont.

Many autistic people do not learn they are autistic until adulthood. Parents may wait to tell a child they are autistic until they feel the child is “ready.” In this study, a participatory team of autistic and non-autistic researchers examined whether learning one is autistic at a younger age is associated with heightened well-being and Autism-Specific Quality of Life among autistic university students. Autistic students ( n = 78) completed an online survey. They shared when and how they learned they were autistic, how they felt about autism when first learning they are autistic and now, and when they would tell autistic children about their autism. Learning one is autistic earlier was associated with heightened quality of life and well-being in adulthood. However, learning one is autistic at an older age was associated with more positive emotions about autism when first learning one is autistic. Participants expressed both positive and negative emotions about autism and highlighted contextual factors to consider when telling a child about autism. Findings suggest that telling a child that they are autistic at a younger age empowers them by providing access to support and a foundation for self-understanding that helps them thrive in adulthood. Lay abstract People learn they are autistic at different ages. We wanted to know if telling kids they are autistic earlier helps them feel better about their lives when they grow up. We are a team of autistic and non-autistic students and professors. Seventy-eight autistic university students did our online survey. They shared how they found out they were autistic and how they felt about being autistic. They also shared how they feel about their lives now. Around the same number of students learned they were autistic from doctors and parents. Students who learned they were autistic when they were younger felt happier about their lives than people who learned they were autistic when they were older. Students who learned they were autistic when they were older felt happier about being autistic when they first found out than people who did not have to wait as long. Our study shows that it is probably best to tell people they are autistic as soon as possible. The students who did our study did not think it was a good idea to wait until children are adults to tell them they are autistic. They said that parents should tell their children they are autistic in ways that help them understand and feel good about who they are.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
74
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
11 / 74 (14,9 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
16 / 267 (6,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 16 / 110 (14,5 %). Auteurices cité·es distinct·es identifié·es comme autistes : 11 / 237 (4,6 %).
Occurrences citées rattachées à la base AutiHub
110 / 267 (41,2 %)
Auteurices cité·es distinct·es rattaché·es : 85 / 237 (35,9 %)
Occurrences rattachées, non identifiées comme autistes
94 / 110 (85,5 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 94 / 267 (35,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 74 / 85 (87,1 %).
  1. Nikki C Gratton , Jessica Myring , Prisca Middlemiss , Deborah Shears , Diana Wellesley , Sarah Wynn et al. (2016). Children with sex chromosome trisomies: parental disclosure of genetic status . European Journal of Human Genetics, 24(5), 638-644. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/ejhg.2015.168 OpenAlex: https://openalex.org/W1902925605
    Crossref OpenAlex OpenCitations
  2. Anastasia H. Anderson , Mark Carter , Jennifer Stephenson (2018). Perspectives of University Students with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 48(3), 651-665. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3257-3 OpenAlex: https://openalex.org/W2741060690
    Crossref OpenAlex OpenCitations
  3. Micah Mazurek , Alicia Brewer Curran , Courtney Burnette , Kristin Sohl (2019). ECHO Autism STAT: Accelerating Early Access to Autism Diagnosis . Journal of Autism and Developmental Disorders, 49(1), 127-137. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-018-3696-5 OpenAlex: https://openalex.org/W2884055252
    Crossref OpenAlex OpenCitations
  4. David S. Mandell , Maytali M. Novak , Cynthia D. Zubritsky (2005). Factors Associated With Age of Diagnosis Among Children With Autism Spectrum Disorders . Pediatrics, 116(6), 1480-1486. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2005-0185 OpenAlex: https://openalex.org/W1969616719
    Crossref OpenAlex OpenCitations
  5. Samuel R. C. Arnold , Yunhe Huang , Ye In Hwang , Amanda L. Richdale , Julian N Trollor , Lauren P. Lawson (2020). “The Single Most Important Thing That Has Happened to Me in My Life”: Development of the Impact of Diagnosis Scale—Preliminary Revision . Autism in Adulthood, 2(1), 34-41. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2019.0059 OpenAlex: https://openalex.org/W3012051930
    Crossref OpenAlex OpenCitations
  7. Shinichi Nakagawa (2004). A farewell to Bonferroni: the problems of low statistical power and publication bias . Behavioral Ecology, 15(6), 1044-1045. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/beheco/arh107 OpenAlex: https://openalex.org/W1986694300
    Crossref OpenAlex OpenCitations
  8. Jillian E. Austin , Ratka Galijot , W. Hobart Davies (2018). Evaluating Parental Autism Disclosure Strategies . Journal of Autism and Developmental Disorders, 48(1), 103-109. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3302-2 OpenAlex: https://openalex.org/W2755782536
    Crossref OpenAlex OpenCitations
  9. Laura Crane , Lydia Jones , Rachel Prosser , Morvarid Taghrizi , Elizabeth Pellicano (2019). Parents’ views and experiences of talking about autism with their children . Autism, 23(8), 1969-1981. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319836257 OpenAlex: https://openalex.org/W2923929016
    Crossref OpenAlex OpenCitations
  10. Roisin Finnegan , Tim Trimble , Jonathan Egan (2014). Irish parents' lived experience of learning about and adapting to their child's autistic spectrum disorder diagnosis and their process of telling their child about their diagnosis . The Irish Journal of Psychology, 35(2-3), 78-90. Informa UK Limited.
    Type: Article DOI: 10.1080/03033910.2014.982143 OpenAlex: https://openalex.org/W1994825145
    Crossref OpenAlex OpenCitations
  11. A. Baghdadli , F. Russet , Laurent Mottron (2017). Measurement properties of screening and diagnostic tools for autism spectrum adults of mean normal intelligence: A systematic review . European Psychiatry, 44, 104-124. Cambridge University Press (CUP).
    Type: Article DOI: 10.1016/j.eurpsy.2017.04.009 OpenAlex: https://openalex.org/W2614849798
    Crossref OpenAlex OpenCitations
  12. Yunhe Huang , Samuel R. C. Arnold , Kitty‐Rose Foley , Julian N Trollor (2020). Diagnosis of autism in adulthood: A scoping review . Autism, 24(6), 1311-1327. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320903128 OpenAlex: https://openalex.org/W3008810253
    Crossref OpenAlex OpenCitations
  13. Anna Dennis , Susan Howell , Lisa Cordeiro , Nicole Tartaglia (2015). “How Should I Tell my Child?” Disclosing the Diagnosis of Sex Chromosome Aneuploidies . Journal of Genetic Counseling, 24(1), 88-103. Wiley.
    Type: Article DOI: 10.1007/s10897-014-9741-4 OpenAlex: https://openalex.org/W2001572540
    Crossref OpenAlex OpenCitations
  14. Daniel J. Benjamin , James O. Berger (2019). Three Recommendations for Improving the Use of p -Values . The American Statistician, 73(sup1), 186-191. Informa UK Limited.
    Type: Article DOI: 10.1080/00031305.2018.1543135 OpenAlex: https://openalex.org/W2923323049
    Crossref OpenAlex OpenCitations
  15. Nancy L. Kondracki , Nancy S. Wellman , Daniel R. Amundson (2002). Content Analysis: Review of Methods and Their Applications in Nutrition Education . Journal of Nutrition Education and Behavior, 34(4), 224-230. Elsevier BV.
    Type: Article DOI: 10.1016/s1499-4046(06)60097-3 OpenAlex: https://openalex.org/W2012778613
    Crossref OpenAlex OpenCitations
  17. Steven D. Stagg , Hannah Belcher (2019). Living with autism without knowing: receiving a diagnosis in later life . Health Psychology and Behavioral Medicine, 7(1), 348-361. Informa UK Limited.
    Type: Article DOI: 10.1080/21642850.2019.1684920 OpenAlex: https://openalex.org/W2988639281
    Crossref OpenAlex OpenCitations
  18. Lise Mogensen , Jan Mason (2015). The meaning of a label for teenagers negotiating identity: experiences with autism spectrum disorder . Sociology of Health & Illness, 37(2), 255-269. Wiley.
    Type: Article DOI: 10.1111/1467-9566.12208 OpenAlex: https://openalex.org/W2019639281
    Crossref OpenAlex OpenCitations
  21. Tamara C. Daley , Thomas S. Weisner (2003). "I Speak a Different Dialect": Teen Explanatory Models of Difference and Disability . Medical Anthropology Quarterly, 17(1), 25-48. Wiley.
    Type: Article DOI: 10.1525/maq.2003.17.1.25 OpenAlex: https://openalex.org/W2021118493
    Crossref OpenAlex OpenCitations
  22. Cadogan S. (2015). Parent reported impacts of their disclosure of their child’s ASD diagnosis to their children [Master’s thesis, Graduate Studies]. http://theses.ucalgary.ca/bitstream/11023/2298/4/ucalgary_2015_cadogan_sarah.pdf
    Type: Autre
    Crossref
  23. Tiffany D. Johnson , Aparna Joshi (2016). Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. Journal of Applied Psychology, 101(3), 430-449. American Psychological Association (APA).
    Type: Article DOI: 10.1037/apl0000058 OpenAlex: https://openalex.org/W2398172144
    Crossref OpenAlex OpenCitations
  24. Agatha M. Gallo , Denise B. Angst , Kathleen A. Knafl (2009). Disclosure of Genetic Information Within Families . AJN, American Journal of Nursing, 109(4), 65-69. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/01.naj.0000348607.31983.6e OpenAlex: https://openalex.org/W2025699298
    Crossref OpenAlex OpenCitations
  25. Eilidh Cage , Zoe Troxell-Whitman (2019). Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults . Journal of Autism and Developmental Disorders, 49(5), 1899-1911. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-018-03878-x OpenAlex: https://openalex.org/W2909219349
    Crossref OpenAlex OpenCitations
  26. Patricia O. Towle , Patricia A. Patrick , Tamique Ridgard , Sofia Pham , Jaime Marrus (2020). Is Earlier Better? The Relationship between Age When Starting Early Intervention and Outcomes for Children with Autism Spectrum Disorder: A Selective Review . Autism Research and Treatment, 2020, 1-17. Wiley.
    Type: Article DOI: 10.1155/2020/7605876 OpenAlex: https://openalex.org/W3046234877
    Crossref OpenAlex OpenCitations
  27. C. Punshon , P. Skirrow , Glynis Murphy (2009). The `not guilty verdict' . Autism, 13(3), 265-283. SAGE Publications.
    Type: Article DOI: 10.1177/1362361309103795 OpenAlex: https://openalex.org/W2030351972
    Crossref OpenAlex OpenCitations
  28. Sarah Cassidy , K. Gould , E. Townsend , Mirabel Pelton , Ashley Robertson , Jacqui Rodgers (2020). Is Camouflaging Autistic Traits Associated with Suicidal Thoughts and Behaviours? Expanding the Interpersonal Psychological Theory of Suicide in an Undergraduate Student Sample . Journal of Autism and Developmental Disorders, 50(10), 3638-3648. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-019-04323-3 OpenAlex: https://openalex.org/W2993272702
    Crossref OpenAlex OpenCitations
  29. Schieve, Laura A. , Daniels, Julie , Christensen, Deborah , Yeargin-Allsopp, Marshalyn , Imm, Pamela , Baio, Jon et al. (2017). Autism Spectrum Disorder Among US Children (2002–2010): Socioeconomic, Racial, and Ethnic Disparities . UNC Libraries. The University of North Carolina at Chapel Hill University Libraries.
    Type: Article DOI: 10.17615/rbdp-n598 OpenAlex: https://openalex.org/W4299966533
    OpenCitations
  30. Lydia Jones , Lorna Goddard , Elisabeth L. Hill , Lucy A. Henry , Laura Crane (2014). Experiences of Receiving a Diagnosis of Autism Spectrum Disorder: A Survey of Adults in the United Kingdom . Journal of Autism and Developmental Disorders, 44(12), 3033-3044. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-014-2161-3 OpenAlex: https://openalex.org/W2032693111
    Crossref OpenAlex OpenCitations
  31. Shinichi Nakagawa , Innes C. Cuthill (2007). Effect size, confidence interval and statistical significance: a practical guide for biologists . Biological Reviews, 82(4), 591-605. Wiley.
    Type: Article DOI: 10.1111/j.1469-185x.2007.00027.x OpenAlex: https://openalex.org/W2055757491
    Crossref OpenAlex OpenCitations
  32. Kyle M. Frost , Kathryn M. Bailey , Brooke R. Ingersoll (2019). “I Just Want Them to See Me As…Me”: Identity, Community, and Disclosure Practices Among College Students on the Autism Spectrum . Autism in Adulthood, 1(4), 268-275. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2018.0057 OpenAlex: https://openalex.org/W2976484598
    Crossref OpenAlex OpenCitations
  33. Jaci C. Huws , Robert S. P. Jones (2008). Diagnosis, disclosure, and having autism: An interpretative phenomenological analysis of the perceptions of young people with autism . Journal of Intellectual & Developmental Disability, 33(2), 99-107. Informa UK Limited.
    Type: Article DOI: 10.1080/13668250802010394 OpenAlex: https://openalex.org/W2072336624
    Crossref OpenAlex OpenCitations
  34. Kirsten Corden , Rebecca Brewer , Eilidh Cage (2021). Personal Identity After an Autism Diagnosis: Relationships With Self-Esteem, Mental Wellbeing, and Diagnostic Timing . Frontiers in Psychology, 12, 699335-699335. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2021.699335 OpenAlex: https://openalex.org/W3161811598
    Crossref OpenAlex OpenCitations
  35. Jonna M Eriksson , Lisa MJ Andersen , Susanne Bejerot (2013). RAADS-14 Screen: validity of a screening tool for autism spectrum disorder in an adult psychiatric population . Molecular Autism, 4(1), 49. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/2040-2392-4-49 OpenAlex: https://openalex.org/W2106068095
    Crossref OpenAlex OpenCitations
  36. Laura Crane , Richard Batty , Hanna Adeyinka , Lorna Goddard , Lucy A. Henry , Elisabeth L. Hill (2018). Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals . Journal of Autism and Developmental Disorders, 48(11), 3761-3772. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-018-3639-1 OpenAlex: https://openalex.org/W2808369589
    Crossref OpenAlex OpenCitations
  37. Jacquiline den Houting * , Monique Botha * , Eilidh Cage , Desiree R. Jones , So Yoon Kim (2021). Shifting stigma about autistic young people . The Lancet Child & Adolescent Health, 5(12), 839-841. Elsevier BV.
    Type: Article DOI: 10.1016/s2352-4642(21)00309-6 OpenAlex: https://openalex.org/W3203457579
    Crossref OpenAlex OpenCitations
  38. Jaci C Huws , Robert SP Jones (2015). ‘I’m really glad this is developmental’: Autism and social comparisons – an interpretative phenomenological analysis . Autism, 19(1), 84-90. SAGE Publications.
    Type: Article DOI: 10.1177/1362361313512426 OpenAlex: https://openalex.org/W2106927442
    Crossref OpenAlex OpenCitations
  39. Sue Mesa , Lorna Hamilton (2022). “We are different, that’s a fact, but they treat us like we’re different-er”: understandings of autism and adolescent identity development . Advances in Autism, 8(3), 217-231. Emerald.
    Type: Article DOI: 10.1108/aia-12-2020-0071 OpenAlex: https://openalex.org/W3192645511
    Crossref OpenAlex OpenCitations
  40. Neil Humphrey , Sarah Lewis (2008). `Make me normal' . Autism, 12(1), 23-46. SAGE Publications.
    Type: Article DOI: 10.1177/1362361307085267 OpenAlex: https://openalex.org/W2119717901
    Crossref OpenAlex OpenCitations
  41. Ruth Tennant , Louise Hiller , Ruth Fishwick , Stephen Platt , Stephen Joseph , Scott Weich et al. (2007). The Warwick-Edinburgh Mental Well-being Scale (WEMWBS): development and UK validation . Health and Quality of Life Outcomes, 5(1), 63-63. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/1477-7525-5-63 OpenAlex: https://openalex.org/W2123552131
    Crossref OpenAlex OpenCitations
  42. Laura Crane , Lok Man Lui , Jade Davies , Elizabeth Pellicano (2021). Autistic parents’ views and experiences of talking about autism with their autistic children . Autism, 25(4), 1161-1167. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320981317 OpenAlex: https://openalex.org/W3120478003
    Crossref OpenAlex OpenCitations
  43. Anke Scheeren , J Marieke Buil , Patricia Howlin , Meike Bartels , Sander Begeer (2022). Objective and subjective psychosocial outcomes in adults with autism spectrum disorder: A 6-year longitudinal study . Autism, 26(1), 243-255. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211027673 OpenAlex: https://openalex.org/W3174758031
    Crossref OpenAlex OpenCitations
  44. Steven K. Kapp * , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0028353 OpenAlex: https://openalex.org/W2124715426
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  46. Jacqui Rodgers (2022). Re: Caron et al., 2021, sociocultural context and autistics quality of life: A comparison between Quebec and France . Autism, 26(2), 560-561. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211051831 OpenAlex: https://openalex.org/W4226139604
    Crossref OpenAlex OpenCitations
  47. Hsiu-Fang Hsieh , Sarah E. Shannon (2005). Three Approaches to Qualitative Content Analysis . Qualitative Health Research, 15(9), 1277-1288. SAGE Publications.
    Type: Article DOI: 10.1177/1049732305276687 OpenAlex: https://openalex.org/W2142225512
    Crossref OpenAlex OpenCitations
  48. Trevor Powell , Louise Acker (2016). Adults’ Experience of an Asperger Syndrome Diagnosis . Focus on Autism and Other Developmental Disabilities, 31(1), 72-80. SAGE Publications.
    Type: Article DOI: 10.1177/1088357615588516 OpenAlex: https://openalex.org/W2266169933
    Crossref OpenAlex OpenCitations
  49. Isaac C. Smith , Jeffrey Edelstein , Bradley E. Cox * , Susan W. White (2018). Parental Disclosure of ASD Diagnosis to the Child: A Systematic Review . Evidence-Based Practice in Child and Adolescent Mental Health, 3(2), 98-105. Informa UK Limited.
    Type: Article DOI: 10.1080/23794925.2018.1435319 OpenAlex: https://openalex.org/W2792276740
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  50. Elena Ilioi , Lucy Blake , Vasanti Jadva , Gabriela Roman , Susan Golombok (2017). The role of age of disclosure of biological origins in the psychological wellbeing of adolescents conceived by reproductive donation: a longitudinal study from age 1 to age 14 . Journal of Child Psychology and Psychiatry, 58(3), 315-324. Wiley.
    Type: Article DOI: 10.1111/jcpp.12667 OpenAlex: https://openalex.org/W2557822324
    Crossref OpenAlex OpenCitations
  51. THE WHOQOL GROUP (1998). Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment . Psychological Medicine, 28(3), 551-558. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s0033291798006667 OpenAlex: https://openalex.org/W2429180991
    Crossref OpenAlex OpenCitations
  52. Maureen S. Durkin , Matthew J. Maenner , Jon Baio , Deborah Christensen , Julie Daniels , Robert Fitzgerald et al. (2017). Autism Spectrum Disorder Among US Children (2002–2010): Socioeconomic, Racial, and Ethnic Disparities . American Journal of Public Health, 107(11), 1818-1826. American Public Health Association.
    Type: Article DOI: 10.2105/ajph.2017.304032 OpenAlex: https://openalex.org/W2757083081
    Crossref OpenAlex
  53. Aoife Hickey , Jason Crabtree , Joshua Stott (2018). ‘Suddenly the first fifty years of my life made sense’: Experiences of older people with autism . Autism, 22(3), 357-367. SAGE Publications.
    Type: Article DOI: 10.1177/1362361316680914 OpenAlex: https://openalex.org/W2588184259
    Crossref OpenAlex OpenCitations
  54. Priyanka Fernandes , Madeline Haley , Kevin Eagan , Paul Shattuck , Alice A. Kuo (2021). Health Needs and College Readiness in Autistic Students: The Freshman Survey Results . Journal of Autism and Developmental Disorders, 51(10), 3506-3513. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04814-8 OpenAlex: https://openalex.org/W3114306461
    Crossref OpenAlex OpenCitations
  55. Meng-Chuan Lai , Péter Szatmári (2020). Sex and gender impacts on the behavioural presentation and recognition of autism . Current Opinion in Psychiatry, 33(2), 117-123. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/yco.0000000000000575 OpenAlex: https://openalex.org/W2996084520
    Crossref OpenAlex OpenCitations
  56. Laura Fusar-Poli , Natascia Brondino , Pierluigi Politi , Eugenio Aguglia (2022). Missed diagnoses and misdiagnoses of adults with autism spectrum disorder . European Archives of Psychiatry and Clinical Neuroscience, 272(2), 187-198. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s00406-020-01189-w OpenAlex: https://openalex.org/W3083547431
    Crossref OpenAlex OpenCitations
  57. Christina G. McDonnell , Elizabeth A. DeLucia , Elizabeth P. Hayden , Melanie Penner , Kristina Curcin , Evdokia Anagnostou et al. (2021). Sex Differences in Age of Diagnosis and First Concern among Children with Autism Spectrum Disorder . Journal of Clinical Child & Adolescent Psychology, 50(5), 645-655. Informa UK Limited.
    Type: Article DOI: 10.1080/15374416.2020.1823850 OpenAlex: https://openalex.org/W3095487841
    Crossref OpenAlex OpenCitations
  58. Helen McConachie , David Mason , Jeremy R. Parr , Deborah Garland , Colin Wilson , Jacqui Rodgers (2018). Enhancing the Validity of a Quality of Life Measure for Autistic People . Journal of Autism and Developmental Disorders, 48(5), 1596-1611. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3402-z OpenAlex: https://openalex.org/W2768942203
    Crossref OpenAlex OpenCitations
  59. Kristen Gillespie-Lynch , Nidal Daou , Rita Obeid , Siobhan Reardon , Spogmay Khan , Emily J. Goldknopf (2021). What Contributes to Stigma Towards Autistic University Students and Students with Other Diagnoses? Journal of Autism and Developmental Disorders, 51(2), 459-475. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04556-7 OpenAlex: https://openalex.org/W3033698503
    Crossref OpenAlex OpenCitations
  60. Catherine D. Tan (2018). “I'm a normal autistic person, not an abnormal neurotypical”: Autism Spectrum Disorder diagnosis as biographical illumination . Social Science & Medicine, 197, 161-167. Elsevier BV.
    Type: Article DOI: 10.1016/j.socscimed.2017.12.008 OpenAlex: https://openalex.org/W2774655211
    Crossref OpenAlex OpenCitations
  61. Gabrielle B. Gunin , Amy Gravino , Vanessa Bal (2021). Advancing Mental Health Supports for Autistic Postsecondary Students: A Call for Research . Autism in Adulthood, 3(1), 30-36. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.0044 OpenAlex: https://openalex.org/W3126894360
    Crossref OpenAlex OpenCitations
  62. Amanda D. Smith-Demers (2018). The Elephant in the Room: The Lived Experience of Talking to Children with ASD about their Diagnosis . Libraries and Cultural Resources (University of Calgary). Graduate Studies.
    Type: Thèse DOI: 10.11575/prism/32049 OpenAlex: https://openalex.org/W2810442754
    OpenAlex
  63. Adam W. McCrimmon , Shawna M. Gray (2021). A Systematic Review of Factors Relating to Parental Satisfaction with the Diagnostic Process for Autism Spectrum Disorder . Review Journal of Autism and Developmental Disorders, 8(3), 334-349. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-020-00224-9 OpenAlex: https://openalex.org/W3107010671
    Crossref OpenAlex OpenCitations
  65. Alexandra Sturm , Connie Kasari (2019). Academic and psychosocial characteristics of incoming college freshmen with autism spectrum disorder: The role of comorbidity and gender . Autism Research, 12(6), 931-940. Wiley.
    Type: Article DOI: 10.1002/aur.2099 OpenAlex: https://openalex.org/W2936746587
    Crossref OpenAlex OpenCitations
  66. Jones G. (2001). bibr40-13623613221086700 Good Autism Practice, 2(2), 65.
    Type: Autre
    Crossref
  67. Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135-146. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319853442 OpenAlex: https://openalex.org/W2947577397
    Crossref OpenAlex OpenCitations
  69. Sandy Thompson-Hodgetts , Chantal Labonte , Rinita Mazumder , Shanon Phelan (2020). Helpful or harmful? A scoping review of perceptions and outcomes of autism diagnostic disclosure to others . Research in Autism Spectrum Disorders, 77, 101598. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2020.101598 OpenAlex: https://openalex.org/W3038469061
    Crossref OpenAlex OpenCitations
  71. Marriage S. (2009). bibr47-13623613221086700 Journal of the Canadian Academy of Child and Adolescent Psychiatry, 18(4), 322.
    Type: Autre
    Crossref
  72. Singer J (2016). Neurodiversity: The birth of an idea . Neurodiversity: The birth of an idea.
    Type: Autre
    Crossref
  73. Smith-Demers A. D. (2018). The elephant in the room: The lived experience of talking to children with ASD about their diagnosis [Unpublished doctoral thesis]. University of Calgary. https://doi.org/10 . 11575/PRISM/32049
    Type: Autre
    Crossref
  74. Ward E. (2014). Parental accounts of sharing an autism spectrum diagnosis with their child: A thematic analysis [Doctoral dissertation], University of Nottingham.
    Type: Autre
    Crossref