Ameliorer la validite d'une mesure de la qualite de vie pour les personnes autistes

Titre original en anglais : Enhancing the Validity of a Quality of Life Measure for Autistic People

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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McConachie, H., Mason, D., Parr, J. R., Garland, D., Wilson, C., & Rodgers, J. (2017). Enhancing the Validity of a Quality of Life Measure for Autistic People. Journal of Autism and Developmental Disorders, 48(5), 1596-1611. https://doi.org/10.1007/s10803-017-3402-z

Date de publication: 29/11/2017 Ajout dans AutiHub: 18/09/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)
  1. Helen McConachie
  2. David Mason *
  3. Jeremy R. Parr
  1. Deborah Garland
  2. Colin Wilson
  3. Jacqui Rodgers

Résumé

Une mesure exacte de la qualite de vie (QoL) est importante pour l'evaluation des services relatifs a l'autisme et des essais d'interventions. Nous avons entrepris la validation psychometrique de la mesure de l'Organisation mondiale de la Sante, WHOQoL-BREF, examine la validite de construit du module WHO Disabilities et developpe neuf elements supplementaires specifiques a l'autisme (ASQoL) a partir d'une vaste consultation de la communaute de l'autisme. L'echantillon de 309 personnes autistes a ete recrute au sein de l'Adult Autism Spectrum Cohort-UK. Le WHOQoL-BREF presentait de bonnes proprietes psychometriques, notamment une validite de critere, convergente, divergente et discriminante. Le module WHO Disabilities a montre une validite de construit et une fiabilite adequates. Les elements ASQoL forment un facteur unitaire de QoL, avec un element global. Les etudes futures peuvent utiliser les mesures WHO conjointement aux elements ASQoL pour mesurer la QoL des personnes autistes.

Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure-WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had good psychometric properties, including criterion, convergent, divergent and discriminant validity. The WHO Disabilities module showed adequate construct validity and reliability. The ASQoL items form a unitary factor of QoL, with one global item. Future studies can use the WHO measures alongside the ASQoL items to measure QoL of autistic people.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 01:01.

Références citées
74
Avec un DOI
61
Sans DOI, à partir du texte brut de la bibliographie
11
4 / 74 (5,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
10 / 74 (13,5 %)
Références avec noms d’auteurices détectés
68 / 74 (91,9 %)
Sans nom d’auteurice détecté
6
Sans titre structuré
9
Sans identifiant stable
11
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
3
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
228
À partir du DOI ou de métadonnées externes
228
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
53 / 228 (23,2 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 175 / 228 (76,8 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
4 / 228 (1,8 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 4 / 53 (7,5 %). Personnes distinctes identifiées comme autistes : 3 / 211 (1,4 %).
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