Autistic identity: A systematic review of quantitative research

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Davies, J., Cooper, K., Killick, E., Sam, E., Healy, M., Thompson, G., Mandy, W., Redmayne, B., & Crane, L. (2024). Autistic identity: A systematic review of quantitative research. Autism Research, 17(5), 874-897. https://doi.org/10.1002/aur.3105

Publication date: 9 Feb 2024 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
9
Publication authors identified as autistic
2 / 9 (22.2%)
  1. Jade Davies
  2. Kate Cooper
  3. Estelle Killick
  4. Evelyn Sam
  5. Molly Healy *
  1. Grace Thompson *
  2. Will Mandy
  3. Ben Redmayne
  4. Laura Crane

Abstract

Autism can be considered both a personal and social identity. Identifying the factors contributing to positive Autistic identity development is crucial given the potential implications for mental health and wellbeing. In this systematic review, we aimed to synthesize quantitative literature on Autistic identity to identify the (individual and environmental) factors associated with Autistic identity, and to ascertain the relationship between Autistic identity and mental health and wellbeing. A total of 3,617 studies were screened and 20 met our inclusion criteria. Results indicated that people developed a more positive Autistic identity when receiving external autism acceptance and external support. The association between individual factors and Autistic identity were largely nonsignificant or inconclusive, highlighting the need for broad support that meets the needs of a range of Autistic people, rather than specific subgroups. Importantly, positive Autistic identity was associated with improved mental health and wellbeing. Peer support and/or self-directed support resources may be valuable mechanisms for supporting Autistic people to cultivate a positive Autistic identity. The evaluation of such support, including the long-term impacts on identity development, will be a critical avenue for future research.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 01:40.

Cited references
123
With a DOI
108
Without a DOI, from raw bibliography text
13
23 / 123 (18.7%) cited references include at least one author identified as autistic.
References with data to complete
8 / 123 (6.5%)
References with detected author names
115 / 123 (93.5%)
Without detected author names
8
Without a structured title
8
Without a stable identifier
12
References with raw author names still to review
6
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
456
From DOI or external metadata
456
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
12
196 / 456 (43.0%) names are linked to an author already present in AutiHub. 260 / 456 (57.0%) names are not yet linked.
Names linked to a person identified as autistic
35 / 456 (7.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 35 / 196 (17.9%). Distinct people identified as autistic: 21 / 371 (5.7%).
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