Autistic identity: A systematic review of quantitative research

Davies, J., Cooper, K., Killick, E., Sam, E., Healy, M., Thompson, G., Mandy, W., Redmayne, B. J. M., & Crane, L. (2024). Autistic identity: A systematic review of quantitative research. Autism Research, 17(5), 874-897. https://doi.org/10.1002/aur.3105

Publication date: 9 Feb 2024 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
9
Publication authors identified as autistic
1 / 9 (11.1%)

Abstract

Autism can be considered both a personal and social identity. Identifying the factors contributing to positive Autistic identity development is crucial given the potential implications for mental health and wellbeing. In this systematic review, we aimed to synthesize quantitative literature on Autistic identity to identify the (individual and environmental) factors associated with Autistic identity, and to ascertain the relationship between Autistic identity and mental health and wellbeing. A total of 3,617 studies were screened and 20 met our inclusion criteria. Results indicated that people developed a more positive Autistic identity when receiving external autism acceptance and external support. The association between individual factors and Autistic identity were largely nonsignificant or inconclusive, highlighting the need for broad support that meets the needs of a range of Autistic people, rather than specific subgroups. Importantly, positive Autistic identity was associated with improved mental health and wellbeing. Peer support and/or self-directed support resources may be valuable mechanisms for supporting Autistic people to cultivate a positive Autistic identity. The evaluation of such support, including the long-term impacts on identity development, will be a critical avenue for future research.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.

Cited references
123
Total cited references integrated for this publication.
Cited references with an identified autistic author
17 / 123 (13.8%)
Cited author occurrences identified as autistic
25 / 456 (5.5%)
Among occurrences linked to AutiHub author records: 25 / 172 (14.5%). Distinct cited authors identified as autistic: 15 / 373 (4.0%).
Cited author occurrences linked to AutiHub author records
172 / 456 (37.7%)
Distinct linked cited authors: 100 / 373 (26.8%)
Linked cited-author occurrences not identified as autistic
147 / 172 (85.5%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 147 / 456 (32.2%). Distinct linked cited authors not identified as autistic: 85 / 100 (85.0%).
  1. Colleen Kidney (2000). Rethinking Autism, Communication, and Community Involvement: Exploring Involvement in Online Communities, Communication Preference, Autistic Identity, and Self-Determination . Portland State University Library.
    OpenAlex
  2. Bappaditya Adak , Santoshi Halder (2017). Systematic Review on Prevalence for Autism Spectrum Disorder with Respect to Gender and Socio-Economic Status . Journal of Mental Disorders and Treatment, 03(01). OMICS Publishing Group.
    Crossref OpenAlex OpenCitations
  3. Mary Jo Hatch , Majken Schultz (2004). Organizational identity: a reader .
    Type: Book OpenAlex: https://openalex.org/W1513067964
    OpenAlex
  4. Flavia Albarello , Elisabetta Crocetti , Monica Rubini (2018). I and Us: A Longitudinal Study on the Interplay of Personal and Social Identity in Adolescence . Journal of Youth and Adolescence, 47(4), 689-702. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  5. Shannon D. Snapp , Ryan J. Watson , Stephen T. Russell , Rafael M. Diaz , Caitlin Ryan (2015). Social Support Networks for LGBT Young Adults: Low Cost Strategies for Positive Adjustment . Family Relations, 64(3), 420-430. Wiley.
    Crossref OpenAlex OpenCitations
  6. Arnold S. Huang Y. Higgins J. Hwang Y. I. Richdale A. Trollor J. &Lawson L. P. (2021). The Impact of Diagnosis Scale–Revised (IODS‐R). International Society for Autism Research 2021 Virtual Annual Meeting.
    Type: Other
    Crossref
  7. David S. Mandell , JOHN LISTERUD , SUSAN E. LEVY , JENNIFER A. PINTO-MARTIN (2002). Race Differences in the Age at Diagnosis Among Medicaid-Eligible Children With Autism . Journal of the American Academy of Child & Adolescent Psychiatry, 41(12), 1447-1453. Elsevier BV.
    Crossref OpenAlex OpenCitations
  8. Carol J. Gill (1997). Four types of integration in disability identity development . Journal of Vocational Rehabilitation, 9(1), 39-46. SAGE Publications.
    Crossref OpenAlex OpenCitations
  9. Samuel R. C. Arnold , Yunhe Huang , Ye In Hwang , Amanda L. Richdale , Julian N Trollor , Lauren P. Lawson (2020). “The Single Most Important Thing That Has Happened to Me in My Life”: Development of the Impact of Diagnosis Scale—Preliminary Revision . Autism in Adulthood, 2(1), 34-41. SAGE Publications.
    Crossref OpenAlex OpenCitations
  10. Yunhe Huang , Samuel R. C. Arnold , Kitty‐Rose Foley , Julian N Trollor (2020). Diagnosis of autism in adulthood: A scoping review . Autism, 24(6), 1311-1327. SAGE Publications.
    Crossref OpenAlex OpenCitations
  11. Michelle R. Nario-Redmond , Jeffrey G. Noel , Emily Fern (2013). Redefining Disability, Re-imagining the Self: Disability Identification Predicts Self-esteem and Strategic Responses to Stigma . Self and Identity, 12(5), 468-488. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  12. Asperger H. (1944). Autism and Asperger Syndrome . Autism and Asperger syndrome.
    Type: Other
    Crossref
  13. Simon M. Bury , Alex Haschek , Michael Wenzel , Jennifer R. Spoor , Darren Hedley (2024). Brief Report: Learning About Autism: Is the Source of Autism Knowledge Associated with Differences in Autism Knowledge, Autism Identity, and Experiences of Stigma . Journal of Autism and Developmental Disorders, 54(11), 4346-4353. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  14. Gayathri Embuldeniya , Paula Veinot , Emma Bell , Mary Bell , Joyce Nyhof-Young , Joanna E.M. Sale et al. (2013). The experience and impact of chronic disease peer support interventions: A qualitative synthesis . Patient Education and Counseling, 92(1), 3-12. Elsevier BV.
    Crossref OpenAlex OpenCitations
  15. Sarah Bargiela , Robyn Steward *Autistic author. Learn more… , Will Mandy (2016). The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype . Journal of Autism and Developmental Disorders, 46(10), 3281-3294. Springer Science and Business Media LLC.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  16. Allison B. Ratto , J. Steven Reznick , Lauren Turner-Brown (2016). Cultural Effects on the Diagnosis of Autism Spectrum Disorder Among Latinos . Focus on Autism and Other Developmental Disabilities, 31(4), 275-283. SAGE Publications.
    Crossref OpenAlex OpenCitations
  17. Leon Eisenberg (1992). Autism and Asperger syndrome . The Lancet, 339(8786), 186. Elsevier BV.
    OpenAlex
  18. Jessica L. Benham , James S. Kizer (2016). Aut-ors of our Experience: Interrogating Intersections of Autistic Identity . Canadian Journal of Disability Studies, 5(3), 77. University of Waterloo.
    Crossref OpenAlex OpenCitations
  19. D. Maxwell-McCaw , M. C. Zea (2011). The Deaf Acculturation Scale (DAS): Development and Validation of a 58-Item Measure . Journal of Deaf Studies and Deaf Education, 16(3), 325-342. Oxford University Press (OUP).
    Crossref OpenAlex OpenCitations
  20. Bryony Beresford , Suzanne Mukherjee , Emese Mayhew , Emily Heavey , A‐La Park , Lucy Stuttard et al. (2020). Evaluating specialist autism teams’ provision of care and support for autistic adults without learning disabilities: the SHAPE mixed-methods study . Health Services and Delivery Research, 8(48), 1-200. National Institute for Health and Care Research.
    Crossref OpenAlex OpenCitations
  21. Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.
    Crossref OpenAlex OpenCitations
  22. Michelle R. Nario-Redmond , Kathryn C. Oleson (2016). Disability Group Identification and Disability-Rights Advocacy . Emerging Adulthood, 4(3), 207-218. SAGE Publications.
    Crossref OpenAlex OpenCitations
  23. Jan Blacher , Connie Kasari (2016). The intersection of autism spectrum disorder and intellectual disability . Journal of Intellectual Disability Research, 60(5), 399-400. Wiley.
    Crossref OpenAlex OpenCitations
  24. Riia Luhtanen , Jennifer Crocker (1992). A Collective Self-Esteem Scale: Self-Evaluation of One's Social Identity . Personality and Social Psychology Bulletin, 18(3), 302-318. SAGE Publications.
    Crossref OpenAlex OpenCitations
  25. Borthwick J. Jaffey L. &Snell J. (2020). Exploration of Peer Support Models to Support LGBTQ+ People with their Mental Health. In Centre for Mental Health.
    Type: Other
    Crossref
  26. C. Punshon , P. Skirrow , Glynis Murphy (2009). The `not guilty verdict' . Autism, 13(3), 265-283. SAGE Publications.
    Crossref OpenAlex OpenCitations
  27. Botha M. (2020). Autistic community connectedness as a buffer against the effects of minority stress. University of Surrey.
    Type: Other
    Crossref
  28. Samuel Tromans , Verity Chester , Eli Gemegah , Kristian Roberts , Zoe Morgan , Guiqing Lily Yao et al. (2021). Autism identification across ethnic groups: a narrative review . Advances in Autism, 7(3), 241-255. Emerald.
    Crossref OpenAlex OpenCitations
  29. Opal Ousley , Tracy Cermak (2014). Autism Spectrum Disorder: Defining Dimensions and Subgroups . Current Developmental Disorders Reports, 1(1), 20-28. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  30. Eya‐Mist Rødgaard , Kristian Jensen , Kamilla Woznica Miskowiak , Laurent Mottron (2022). Representativeness of autistic samples in studies recruiting through social media . Autism Research, 15(8), 1447-1456. Wiley.
    Type: Article DOI: 10.1002/aur.2777 OpenAlex: https://openalex.org/W4284991023
    Crossref OpenAlex OpenCitations
  31. Andrea W. M. Evers , Floris W. Kraaimaat , Wim van Lankveld , Peter J. H. Jongen , Johannes W. G. Jacobs , Johannes W. J. Bijlsma (2001). Beyond unfavorable thinking: The Illness Cognition Questionnaire for chronic diseases. Journal of Consulting and Clinical Psychology, 69(6), 1026-1036. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  32. James E. Marcia , Alan S. Waterman , David R. Matteson , Sally L. Archer , Jacob L. Orlofsky (1993). Ego Identity . Springer New York.
    Crossref OpenAlex OpenCitations
  33. Luisa Ruiz Calzada , Nancy Pistrang , Will Mandy (2012). High-Functioning Autism and Asperger’s Disorder: Utility and Meaning for Families . Journal of Autism and Developmental Disorders, 42(2), 230-243. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  34. Jennifer Boyd Ritsher , Poorni G Otilingam , Monica Grajales (2003). Internalized stigma of mental illness: psychometric properties of a new measure . Psychiatry Research, 121(1), 31-49. Elsevier BV.
    Crossref OpenAlex OpenCitations
  35. Tiago S. Jesus (2022). Rigour and transparency in the family of systematic reviews: The International Journal of Health Planning and Management encourages prospective protocol registration . The International Journal of Health Planning and Management, 37(5), 2523-2527. Wiley.
    Type: Article DOI: 10.1002/hpm.3510 OpenAlex: https://openalex.org/W4281772564
    OpenCitations
  36. Rosalyn B. Darling , D. Alex Heckert (2010). Orientations Toward Disability: Differences over the lifecourse . International Journal of Disability, Development and Education, 57(2), 131-143. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  37. Cindy J. Chang , Brian A. Feinstein , Steven Meanley , Dalmacio D. Flores , Ryan J. Watson (2021). The Role of LGBTQ Identity Pride in the Associations among Discrimination, Social Support, and Depression in a Sample of LGBTQ Adolescents . Annals of LGBTQ Public and Population Health, 2(3), 203-219. Springer Publishing Company.
    Crossref OpenAlex OpenCitations
  38. Colin Wayne Leach , Martijn van Zomeren , Sven Zebel , Michael L. W. Vliek , Sjoerd F. Pennekamp , Bertjan Doosje et al. (2008). Group-level self-definition and self-investment: A hierarchical (multicomponent) model of in-group identification. Journal of Personality and Social Psychology, 95(1), 144-165. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  39. James E. Marcia (1966). Development and validation of ego-identity status. Journal of Personality and Social Psychology, 3(5), 551-558. American Psychological Association (APA).
    Type: Article DOI: 10.1037/h0023281 OpenAlex: https://openalex.org/W2117009621
    Crossref OpenAlex OpenCitations
  40. Eilidh Cage , Jessica Di Monaco , Victoria Newell (2018). Experiences of Autism Acceptance and Mental Health in Autistic Adults . Journal of Autism and Developmental Disorders, 48(2), 473-484. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  41. Neil Humphrey , Sarah Lewis (2008). `Make me normal' . Autism, 12(1), 23-46. SAGE Publications.
    Crossref OpenAlex OpenCitations
  42. Eilidh Cage , Zoe Troxell-Whitman (2020). Understanding the Relationships Between Autistic Identity, Disclosure, and Camouflaging . Autism in Adulthood, 2(4), 334-338. SAGE Publications.
    Crossref OpenAlex OpenCitations
  43. Laura Foran Lewis (2017). A Mixed Methods Study of Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults . Journal of Autism and Developmental Disorders, 47(8), 2410-2424. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  44. Judith Hebron , Neil Humphrey (2014). Mental health difficulties among young people on the autistic spectrum in mainstream secondary schools: a comparative study . Journal of Research in Special Educational Needs, 14(1), 22-32. Wiley.
    Crossref OpenAlex OpenCitations
  45. Mhairi Campbell , Joanne E McKenzie , Amanda Sowden , Srinivasa Vittal Katikireddi , Sue E Brennan , Simon Ellis et al. (2020). Synthesis without meta-analysis (SWiM) in systematic reviews: reporting guideline . BMJ, 368, l6890. BMJ.
    Crossref OpenAlex OpenCitations
  46. Ilan H. Meyer (2003). Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: Conceptual issues and research evidence. Psychological Bulletin, 129(5), 674-697. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  47. E. James Anthony (1969). Identity—Youth and Crisis . Journal of the American Academy of Child Psychiatry, 8(3), 559-562. Elsevier BV.
    OpenAlex
  48. Kate Cooper , Will Mandy , Catherine Butler , Ailsa Russell (2023). Phenomenology of gender dysphoria in autism: a multiperspective qualitative analysis . Journal of Child Psychology and Psychiatry, 64(2), 265-276. Wiley.
    Crossref OpenAlex OpenCitations
  49. Kate Cooper , Ailsa Russell , Jiedi Lei , Laura GE Smith (2023). The impact of a positive autism identity and autistic community solidarity on social anxiety and mental health in autistic young people . Autism, 27(3), 848-857. SAGE Publications.
    Crossref OpenAlex OpenCitations
  50. Amal M Hussein , Elizabeth Pellicano , Laura Crane (2019). Understanding and awareness of autism among Somali parents living in the United Kingdom . Autism, 23(6), 1408-1418. SAGE Publications.
    Crossref OpenAlex OpenCitations
  51. Mark Rubin , Miles Hewstone (1998). Social Identity Theory's Self-Esteem Hypothesis: A Review and Some Suggestions for Clarification . Personality and Social Psychology Review, 2(1), 40-62. SAGE Publications.
    Crossref OpenAlex OpenCitations
  52. Rosalind Cooper , Kate Cooper , Ailsa Russell , Laura G. E. Smith (2021). “I’m Proud to be a Little Bit Different”: The Effects of Autistic Individuals’ Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem . Journal of Autism and Developmental Disorders, 51(2), 704-714. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  53. Jennifer L. Jones , Kami L. Gallus , Kacey L. Viering , Lauren M. Oseland (2015). ‘Are you by chance on the spectrum?’ Adolescents with autism spectrum disorder making sense of their diagnoses . Disability & Society, 30(10), 1490-1504. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  54. Kirsten Corden , Rebecca Brewer , Eilidh Cage (2021). Personal Identity After an Autism Diagnosis: Relationships With Self-Esteem, Mental Wellbeing, and Diagnostic Timing . Frontiers in Psychology, 12, 699335-699335. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  55. Ella Perry , Will Mandy , Laura Hull , Eilidh Cage (2022). Understanding Camouflaging as a Response to Autism-Related Stigma: A Social Identity Theory Approach . Journal of Autism and Developmental Disorders, 52(2), 800-810. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  56. Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.
    Crossref OpenAlex OpenCitations
  57. Léo Kanner (1943). Autistic disturbances of affective contact . Nervous Child, 2(3), 217.
    Type: Article OpenAlex: https://openalex.org/W2255119171
    Crossref OpenAlex
  58. Crenshaw K. (1989). Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine. Feminist Theory and Antiracist Politics University of Chicago Legal Forum.
    Type: Other
    Crossref
  59. Audrey Thurm , Cristan Farmer , Emma Salzman , Catherine Lord , Somer Bishop (2019). State of the Field: Differentiating Intellectual Disability From Autism Spectrum Disorder . Frontiers in Psychiatry, 10, 526. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  60. Leen Oris , Jessica Rassart , Sofie Prikken , Margaux Verschueren , Liesbet Goubert , Philip Moons et al. (2016). Illness Identity in Adolescents and Emerging Adults With Type 1 Diabetes: Introducing the Illness Identity Questionnaire . Diabetes Care, 39(5), 757-763. American Diabetes Association.
    Crossref OpenAlex OpenCitations
  61. Lily Cresswell , Eilidh Cage (2019). ‘Who Am I?’: An Exploratory Study of the Relationships Between Identity, Acculturation and Mental Health in Autistic Adolescents . Journal of Autism and Developmental Disorders, 49(7), 2901-2912. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  62. Trevor Davis , Kim Gorgens , Janet Shriberg , Matthew Godleski , Laura Meyer (2014). Making Meaning in a Burn Peer Support Group . Journal of Burn Care & Research, 35(5), 416-425. Oxford University Press (OUP).
    Crossref OpenAlex OpenCitations
  63. Elisabetta Crocetti (2017). Identity Formation in Adolescence: The Dynamic of Forming and Consolidating Identity Commitments . Child Development Perspectives, 11(2), 145-150. Oxford University Press (OUP).
    Crossref OpenAlex OpenCitations
  64. Despina Papoudi , Clara Rübner Jørgensen , Karen Guldberg , Hedda Meadan (2021). Perceptions, Experiences, and Needs of Parents of Culturally and Linguistically Diverse Children with Autism: a Scoping Review . Review Journal of Autism and Developmental Disorders, 8(2), 195-212. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  65. Laura Foran Lewis (2016). Exploring the Experience of Self-Diagnosis of Autism Spectrum Disorder in Adults . Archives of Psychiatric Nursing, 30(5), 575-580. Elsevier BV.
    Crossref OpenAlex OpenCitations
  66. Emeline Han , Katrina Scior , Kana Grace , Eric Loveland Heath , Simone Rae Dufresne , Laura Crane (2023). Who, When, How to Share: Pilot study of a new disclosure decision-making programme for autistic adults . Center for Open Science.
    Crossref OpenAlex OpenCitations
  67. Ye In Hwang , Kitty‐Rose Foley , Julian N Trollor (2017). Aging well on the autism spectrum: the perspectives of autistic adults and carers . International Psychogeriatrics, 29(12), 2033-2046. Elsevier BV.
    Crossref OpenAlex OpenCitations
  68. Joseph H. Hammer , Michael D. Toland (2017). Internal structure and reliability of the Internalized Stigma of Mental Illness Scale (ISMI-29) and Brief Versions (ISMI-10, ISMI-9) among Americans with depression. Stigma and Health, 2(3), 159-174. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  69. Ilan H. Meyer , Laura Dean *Autistic author. Learn more… (1998). Internalized Homophobia, Intimacy, and Sexual Behavior among Gay and Bisexual Men . In Stigma and Sexual Orientation: Understanding Prejudice against Lesbians, Gay Men, and Bisexuals (pp. 160-186). SAGE Publications, Inc..
    Crossref OpenAlex OpenCitations
  70. Dawn Ee , Ye In Hwang , Simone Reppermund , Preeyaporn Srasuebkul , Julian N Trollor , Kitty‐Rose Foley et al. (2019). Loneliness in Adults on the Autism Spectrum . Autism in Adulthood, 1(3), 182-193. SAGE Publications.
    Crossref OpenAlex OpenCitations
  71. Mette Elmose (2020). Understanding loneliness and social relationships in autism: The reflections of autistic adults . Nordic Psychology, 72(1), 3-22. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  72. Rosemarie B. Wilson , Andrew R. Thompson , Georgina Rowse , Megan Freeth (2023). The experience of seeking, receiving, and reflecting upon a diagnosis of autism in the UK: A meta-synthesis of qualitative studies conducted with autistic individuals . Research in Autism Spectrum Disorders, 103, 102135. Elsevier BV.
    Crossref OpenAlex OpenCitations
  73. Erikson E. H. (1950). Childhood and society . Childhood and society.
    Type: Other
    Crossref
  74. Erikson E. H. (1968). Identity, youth and crisis . Identity: Youth and crisis.
    Type: Other
    Crossref
  75. Kinga Ferenc , Mateusz Płatos , Katarzyna Byrka , Magdalena Ewa Król (2023). Looking through rainbow-rimmed glasses: Taking neurodiversity perspective is related to subjective well-being of autistic adults . Autism, 27(5), 1348-1361. SAGE Publications.
    Crossref OpenAlex OpenCitations
  76. Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . The Lancet Psychiatry, 6(10), 819-829. Elsevier BV.
    Crossref OpenAlex OpenCitations
  77. Liron Lamash , Sonya Meyer (2022). Work-Related Self-Efficacy and Illness Identity in Adults with Autism . International Journal of Environmental Research and Public Health, 20(1), 122. MDPI AG.
    Crossref OpenAlex OpenCitations
  78. Helen McConachie , David Mason , Jeremy R. Parr , Deborah Garland , Colin Wilson , Jacqui Rodgers (2018). Enhancing the Validity of a Quality of Life Measure for Autistic People . Journal of Autism and Developmental Disorders, 48(5), 1596-1611. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  79. Emeline Han , Katrina Scior , Eric Heath , Kana Grace , Laura Crane (2023). Development of stigma-related support for autistic adults: Insights from the autism community . Autism, 27(6), 1676-1689. SAGE Publications.
    Crossref OpenAlex OpenCitations
  80. Yunhe Huang , Julian N Trollor , Kitty‐Rose Foley , Samuel R. C. Arnold (2023). “I've Spent My Whole Life Striving to Be Normal”: Internalized Stigma and Perceived Impact of Diagnosis in Autistic Adults . Autism in Adulthood, 5(4), 423-436. SAGE Publications.
    Crossref OpenAlex OpenCitations
  81. Ginny Russell , Will Mandy , Daisy Elliott , Rhianna White , Tom Pittwood , Tamsin Ford (2019). Selection bias on intellectual ability in autism research: a cross-sectional review and meta-analysis . Molecular Autism, 10(1), 9. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  82. Catherine D. Tan (2018). “I'm a normal autistic person, not an abnormal neurotypical”: Autism Spectrum Disorder diagnosis as biographical illumination . Social Science & Medicine, 197, 161-167. Elsevier BV.
    Crossref OpenAlex OpenCitations
  83. Miriam Harmens , Felicity Sedgewick , Hannah Hobson (2022). Autistic women’s diagnostic experiences: Interactions with identity and impacts on well-being . Women's Health, 18, 17455057221137477-17455057221137477. SAGE Publications.
    Crossref OpenAlex OpenCitations
  84. Kari McDonald (2018). Social Support and Mental Health in LGBTQ Adolescents: A review of the literature . Issues in Mental Health Nursing, 39(1), 16-29. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  85. Lindsey M. Weiler , Annie K. Goerdt , Kalli B. Kremer , Emily Goldberg , Rebekah L. Hudock (2022). Social Validity and Preliminary Outcomes of a Mentoring Intervention for Adolescents and Adults With Autism . Focus on Autism and Other Developmental Disabilities, 37(4), 215-226. SAGE Publications.
    Crossref OpenAlex OpenCitations
  86. Vasiliki Kentrou , Danielle MJ de Veld , Kawita JK Mataw , Sander Begeer (2019). Delayed autism spectrum disorder recognition in children and adolescents previously diagnosed with attention-deficit/hyperactivity disorder . Autism, 23(4), 1065-1072. SAGE Publications.
    Crossref OpenAlex OpenCitations
  87. Quan Nha Hong , Sergi Fàbregues , Gillian Bartlett , Felicity Boardman , Margaret Cargo , Pierre Dagenais et al. (2018). The Mixed Methods Appraisal Tool (MMAT) version 2018 for information professionals and researchers . Education for Information, 34(4), 285-291. SAGE Publications.
    Crossref OpenAlex OpenCitations
  88. Florence YN Leung , Punit Shah , David Mason , Lucy A Livingston (2024). Re-examining the association between the age of learning one is autistic and adult outcomes . Autism, 28(2), 433-448. SAGE Publications.
    Crossref OpenAlex OpenCitations
  89. Austin H. Johnson , Baker A. Rogers (2020). “We're the Normal Ones Here”: Community Involvement, Peer Support, and Transgender Mental Health . Sociological Inquiry, 90(2), 271-292. Wiley.
    Crossref OpenAlex OpenCitations
  90. Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135-146. SAGE Publications.
    Crossref OpenAlex OpenCitations
  91. Kidney C. A. (2015). Rethinking Autism Communication and Community Involvement: Exploring Involvement in Online Communities Communication Preference Autistic Identity and Self‐Determination. Portland State University.
    Type: Other
    Crossref
  92. Lisa D. Wiggins , Maureen Durkin , Amy Esler , Li‐Ching Lee , Walter Zahorodny , Catherine Rice et al. (2020). Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors . Autism Research, 13(3), 464-473. Wiley.
    Type: Article DOI: 10.1002/aur.2255 OpenAlex: https://openalex.org/W2995074616
    Crossref OpenAlex OpenCitations
  93. P. B. Kuld , N. Frielink , M. Zijlmans , C. Schuengel , P. J. C. M. Embregts (2023). Promoting self‐determination of persons with severe or profound intellectual disabilities: a systematic review and meta‐analysis . Journal of Intellectual Disability Research, 67(7), 589-629. Wiley.
    Crossref OpenAlex OpenCitations
  94. T.A.M. McDonald (2020). Autism Identity and the “Lost Generation”: Structural Validation of the Autism Spectrum Identity Scale and Comparison of Diagnosed and Self-Diagnosed Adults on the Autism Spectrum . Autism in Adulthood, 2(1), 13-23. SAGE Publications.
    Crossref OpenAlex OpenCitations
  95. Dean M. Thompson , Lesley Booth , David Moore , Jonathan Mathers (2022). Peer support for people with chronic conditions: a systematic review of reviews . BMC Health Services Research, 22(1), 427-427. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  96. William Nguyen , Tamara Ownsworth , Chelsea Nicol , David Zimmerman (2020). How I See and Feel About Myself: Domain-Specific Self-Concept and Self-Esteem in Autistic Adults . Frontiers in Psychology, 11, 913-913. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  97. Monique Botha *Autistic author. Learn more… (2020). Autistic community connectedness as a buffer against the effects of minority stress. Surrey Research Insight Open Access (The University of Surrey). University of Surrey.
  98. Cameron A Maitland , Sinéad Rhodes , Anne O’Hare , Mary E. Stewart (2021). Social identities and mental well-being in autistic adults . Autism, 25(6), 1771-1783. SAGE Publications.
    Crossref OpenAlex OpenCitations
  99. Eric Rubenstein , Sarah Furnier (2021). #Bias: The Opportunities and Challenges of Surveys That Recruit and Collect Data of Autistic Adults Online . Autism in Adulthood, 3(2), 120-128. SAGE Publications.
    Crossref OpenAlex OpenCitations
  100. Gayle L. Overton , Ferran Marsà-Sambola , Rachael Martin , Penny Cavenagh (2024). Understanding the Self-identification of Autism in Adults: a Scoping Review . Review Journal of Autism and Developmental Disorders, 11(4), 682-702. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  101. Heiko Schmengler , David Cohen , Sylvie Tordjman , Maria Melchior (2021). Autism Spectrum and Other Neurodevelopmental Disorders in Children of Immigrants: A Brief Review of Current Evidence and Implications for Clinical Practice . Frontiers in Psychiatry, 12, 566368-566368. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  102. McDonald T. A. M. (2016). Identity as a Mediator between Stigma and Stereotype Threat on Postsecondary Outcomes for Adults on the Autism Spectrum. University of Wisconsin‐Madison.
    Type: Other
    Crossref
  103. Matthew J. Page , Joanne E. McKenzie , Patrick M. Bossuyt , Isabelle Boutron , Tammy C. Hoffmann , Cynthia D. Mulrow et al. (2021). The PRISMA 2020 statement: An updated guideline for reporting systematic reviews . International Journal of Surgery, 88, 105906. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex
  104. Lise Mogensen , Jan Mason (2015). The meaning of a label for teenagers negotiating identity: experiences with autism spectrum disorder . In Children, Health and Well‐being (pp. 83-97). Wiley.
    Crossref OpenAlex OpenCitations
  105. Ari Ne'eman *Autistic author. Learn more… , Elizabeth Pellicano (2022). Neurodiversity as Politics . Human Development, 66(2), 149-157. S. Karger AG.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  106. Kana Grace , Anna Remington , Brynmor Lloyd‐Evans , Jade Davies , Laura Crane (2022). Loneliness in autistic adults: A systematic review . Autism, 26(8), 2117-2135. SAGE Publications.
    Crossref OpenAlex OpenCitations
  107. Tajfel H. (1979). Organizational Identity: A Reader . Organizational Identity: A Reader, 56.
    Type: Other
    Crossref
  108. Walker N. (2014). Neurodiversity: Some basic terms & definitions. Neuroqueer Https://Neuroqueer . Com/Neurodiversity-Terms-and-Definitions
    Type: Other
    Crossref
  109. Marcia, James E. 1937- , Waterman, Alan S. , Matteson, David R. , Archer, Sally L. , Orlofsky, Jacob L. (1993). Ego identity a handbook for psychosocial research .
    Type: Article OpenAlex: https://openalex.org/W7046912564
    OpenAlex
  110. Zeldovich L. (2018). How History Forgot the Woman Who Defined Autism‐Scientific American. https://www.scientificamerican.com/article/how-history-forgot-the-woman-who-defined-autism/
    Type: Other
    Crossref