Les expériences de femmes diagnostiquées tardivement avec des troubles du spectre de l'autisme : une étude du phénotype autistique féminin

Titre original en anglais : The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Bargiela, S., Steward, R., & Mandy, W. (2016). The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype. Journal of Autism and Developmental Disorders, 46(10), 3281-3294. https://doi.org/10.1007/s10803-016-2872-8

Date de publication: 25/07/2016 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)
  1. Sarah Bargiela
  2. Robyn Steward *
  3. Will Mandy

Résumé

Nous avons utilisé l'analyse par cadre pour étudier le phénotype autistique féminin et son impact sur la sous-reconnaissance des troubles du spectre de l'autisme (ASC) chez les filles et les femmes. Quatorze femmes avec un ASC (âgées de 22 à 30 ans), diagnostiquées à la fin de l'adolescence ou à l'âge adulte, ont fourni des récits approfondis sur : le fait de « prétendre être normale » ; la manière dont leur genre a conduit divers professionnels à ne pas identifier leur ASC ; et les conflits entre l'ASC et une identité féminine traditionnelle. Les expériences d'abus sexuels étaient répandues dans cet échantillon, reflétant en partie des vulnérabilités spécifiques liées au fait d'être une femme avec un ASC non diagnostiqué. Une formation améliorerait la reconnaissance des ASC chez les femmes par les enseignants et les cliniciens, afin qu'une identification en temps opportun puisse atténuer les risques et promouvoir le bien-être des filles et des femmes sur le spectre de l'autisme.

We used Framework Analysis to investigate the female autism phenotype and its impact upon the under-recognition of autism spectrum conditions (ASC) in girls and women. Fourteen women with ASC (aged 22-30 years) diagnosed in late adolescence or adulthood gave in-depth accounts of: 'pretending to be normal'; of how their gender led various professionals to miss their ASC; and of conflicts between ASC and a traditional feminine identity. Experiences of sexual abuse were widespread in this sample, partially reflecting specific vulnerabilities from being a female with undiagnosed ASC. Training would improve teachers' and clinicians' recognition of ASC in females, so that timely identification can mitigate risks and promote wellbeing of girls and women on the autism spectrum.

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Références citées
63
Avec un DOI
53
Sans DOI, à partir du texte brut de la bibliographie
7
2 / 63 (3,2 %) références citées comprennent au moins une personne identifiée comme autiste.
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4 / 63 (6,3 %)
Références avec noms d’auteurices détectés
60 / 63 (95,2 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
2
Sans identifiant stable
5
Références avec noms bruts d’auteurices restant à vérifier
1
Références avec problème de récupération des métadonnées externes
0
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Noms d’auteurices détectés dans la bibliographie citée
204
À partir du DOI ou de métadonnées externes
204
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
1
58 / 204 (28,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 146 / 204 (71,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
2 / 204 (1,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 2 / 58 (3,4 %). Personnes distinctes identifiées comme autistes : 2 / 185 (1,1 %).
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