Une étude qualitative par entretiens sur la qualité de vie et les expériences du vieillissement chez des adultes autistes

Titre original en anglais : A qualitative interview study on quality of life and ageing experiences of autistic adults

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Viner, H., Yuill, N., Costa, A. P., Radford, H., & Kornadt, A. E. (2024). A qualitative interview study on quality of life and ageing experiences of autistic adults. Communications Psychology, 2(1), 99-99. https://doi.org/10.1038/s44271-024-00142-0

Date de publication: 25/10/2024 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Hannah Viner
  2. Nicola Yuill
  3. Andreia Pinto Costa
  4. Holly Radford *
  5. Anna E. Kornadt

Résumé

La qualité de vie tout au long de la vie a été établie comme une priorité majeure de recherche par la communauté de l’autisme. Pourtant, relativement peu de choses sont encore connues sur la qualité de vie et les expériences du vieillissement des adultes autistes plus âgés. La plupart des études réalisées à ce jour ont utilisé des mesures génériques de la qualité de vie qui peuvent ne pas rendre compte avec précision des expériences des personnes autistes. L’objectif de cette étude qualitative était de comprendre comment les adultes autistes vivent et définissent la qualité de vie à mesure qu’ils vieillissent. Nous avons mené des entretiens semi-structurés avec 16 adultes autistes âgés de 40 ans et plus, originaires du Royaume-Uni et du Luxembourg. À l’aide d’une analyse thématique réflexive, nous avons identifié cinq thèmes qui contribuent à la qualité de vie : (1) Le diagnostic est déterminant, (2) La connexion avec les autres, (3) L’autonomie concernant l’espace et le temps, (4) « Les formalités de la vie », (5) La vulnérabilité. Cette étude identifie des aspects de la qualité de vie spécifiques à l’autisme et met en évidence les manières dont le vieillissement et l’autisme s’entrecroisent et ont un impact sur la qualité de vie.

Quality of life across the lifespan has been established as a key research priority by the autism community. Still relatively little is known about the quality of life and ageing experiences of older autistic adults. Most studies to date have used generic measures of quality of life which may not accurately capture the experiences of autistic people. The aim of this qualitative study was to understand how autistic adults experience and define quality of life as they age. We conducted semi-structured interviews with 16 autistic adults aged 40+ from the UK and Luxembourg. Using reflexive thematic analysis, we identified five themes that contribute to quality of life: (1) Diagnosis is pivotal, (2) Connection with others, (3) Autonomy over space and time, (4) 'Paperwork of life', (5) Vulnerability. This study identifies autism-specific aspects of quality of life and highlights ways in which ageing and autism intersect and impact quality of life.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 16:12.

Références citées
96
Avec un DOI
89
Sans DOI, à partir du texte brut de la bibliographie
7
30 / 96 (31,2 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
7 / 96 (7,3 %)
Références avec noms d’auteurices détectés
92 / 96 (95,8 %)
Sans nom d’auteurice détecté
4
Sans titre structuré
7
Sans identifiant stable
7
Références avec noms bruts d’auteurices restant à vérifier
4
Références avec problème de récupération des métadonnées externes
0
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Noms d’auteurices détectés dans la bibliographie citée
450
À partir du DOI ou de métadonnées externes
450
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
5
267 / 450 (59,3 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 183 / 450 (40,7 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
58 / 450 (12,9 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 58 / 267 (21,7 %). Personnes distinctes identifiées comme autistes : 40 / 362 (11,0 %).
  1. Paul B. Baltes , Margret M. Baltes (1990). Psychological perspectives on successful aging: The model of selective optimization with compensation . Dans Successful Aging (pp. 1-34). Cambridge University Press.
    Type: Chapitre de livre DOI: 10.1017/cbo9780511665684.003 OpenAlex: https://openalex.org/W1495445608
    Crossref OpenAlex OpenCitations
  2. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Type: Livre DOI: 10.1176/appi.books.9780890425596 OpenAlex: https://openalex.org/W4247665917
    Crossref OpenAlex OpenCitations
  3. Yunhe Huang , Samuel R. C. Arnold , Kitty-Rose Foley , Julian Trollor (2020). Diagnosis of autism in adulthood: A scoping review . Autism, 24(6), 1311-1327. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320903128 OpenAlex: https://openalex.org/W3008810253
    Crossref OpenAlex OpenCitations
  5. Francesca Happé , Uta Frith (2020). Annual Research Review: Looking back to look forward – changes in the concept of autism and implications for future research . Journal of Child Psychology and Psychiatry, 61(3), 218-232. Wiley.
    Type: Article DOI: 10.1111/jcpp.13176 OpenAlex: https://openalex.org/W3003423347
    Crossref OpenAlex OpenCitations
  6. Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/bjp.bp.114.160192 OpenAlex: https://openalex.org/W2168424072
    Crossref OpenAlex OpenCitations
  7. Cornelia Wrzus , Martha Hänel , Jenny Wagner , Franz J. Neyer (2013). Social network changes and life events across the life span: A meta-analysis. Psychological Bulletin, 139(1), 53-80. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0028601 OpenAlex: https://openalex.org/W1974065980
    Crossref OpenAlex OpenCitations
  9. Rebecca A. Charlton , Goldie A. McQuaid , Gregory L. Wallace (2023). Social support and links to quality of life among middle-aged and older autistic adults . Autism, 27(1), 92-104. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221081917 OpenAlex: https://openalex.org/W4220740604
    Crossref OpenAlex OpenCitations
  10. Patricia Howlin , Susan Goode , Jane Hutton , Michael Rutter (2004). Adult outcome for children with autism . Journal of Child Psychology and Psychiatry, 45(2), 212-229. Wiley.
    Type: Article DOI: 10.1111/j.1469-7610.2004.00215.x OpenAlex: https://openalex.org/W2046265374
    Crossref OpenAlex OpenCitations
  12. Mats Cederlund , Bibbi Hagberg , Eva Billstedt , I. Carina Gillberg , Christopher Gillberg (2008). Asperger Syndrome and Autism: A Comparative Longitudinal Follow-Up Study More than 5 Years after Original Diagnosis . Journal of Autism and Developmental Disorders, 38(1), 72-85. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-007-0364-6 OpenAlex: https://openalex.org/W2074156112
    Crossref OpenAlex OpenCitations
  13. The WHOQOL-Dis Group , M. J. Power , A. M. Green (2010). Development of the WHOQOL disabilities module . Quality of Life Research, 19(4), 571-584. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11136-010-9616-6 OpenAlex: https://openalex.org/W2064643935
    OpenAlex
  14. Meng-Chuan Lai , Simon Baron-Cohen (2015). Identifying the lost generation of adults with autism spectrum conditions . The Lancet Psychiatry, 2(11), 1013. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(15)00277-1 OpenAlex: https://openalex.org/W2128937542
    Crossref OpenAlex OpenCitations
  15. Laura Hull , Shravani Rane , Samman Hang-Lai Lee , Felicity Sedgewick (2025). “Just Ask What Support We Need”: Autistic Adults' Feedback on Social Skills Training . Autism in Adulthood, 7(3), 283-292. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2023.0136 OpenAlex: https://openalex.org/W4393080071
    Crossref OpenAlex OpenCitations
  16. Scott D. Wright , Cheryl A. Wright , Valerie D’Astous , Amy Maida Wadsworth (2019). Autism aging . Gerontology & Geriatrics Education, 40(3), 322-338. Informa UK Limited.
    Type: Article DOI: 10.1080/02701960.2016.1247073 OpenAlex: https://openalex.org/W4211023613
    Crossref OpenAlex OpenCitations
  18. Eva Billstedt , Carina Gillberg , Christopher Gillberg (2005). Autism after Adolescence: Population-based 13- to 22-year Follow-up Study of 120 Individuals with Autism Diagnosed in Childhood . Journal of Autism and Developmental Disorders, 35(3), 351-360. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-005-3302-5 OpenAlex: https://openalex.org/W2094623935
    Crossref OpenAlex OpenCitations
  19. Ginny Russell , Sal Stapley , Tamsin Newlove‐Delgado , Andrew Salmon , Rhianna White , Fiona Warren et al. (2022). Time trends in autism diagnosis over 20 years: a UK population‐based cohort study . Journal of Child Psychology and Psychiatry, 63(6), 674-682. Wiley.
    Type: Article DOI: 10.1111/jcpp.13505 OpenAlex: https://openalex.org/W3193769374
    Crossref OpenAlex OpenCitations
  20. Elizabeth O'Nions , Irene Petersen , Joshua E.J. Buckman , Rebecca A. Charlton , Claudia Cooper , Anne Corbett et al. (2023). Autism in England: assessing underdiagnosis in a population-based cohort study of prospectively collected primary care data . The Lancet Regional Health - Europe, 29, 100626. Elsevier BV.
    Type: Article DOI: 10.1016/j.lanepe.2023.100626 OpenAlex: https://openalex.org/W4362579857
    Crossref OpenAlex OpenCitations
  21. Petra S. Barneveld , Hanna Swaab , Selene Fagel , Herman van Engeland , Leo M.J. de Sonneville (2014). Quality of life: A case-controlled long-term follow-up study, comparing young high-functioning adults with autism spectrum disorders with adults with other psychiatric disorders diagnosed in childhood . Comprehensive Psychiatry, 55(2), 302-310. Elsevier BV.
    Type: Article DOI: 10.1016/j.comppsych.2013.08.001 OpenAlex: https://openalex.org/W2110046259
    Crossref OpenAlex OpenCitations
  26. Ilan H. Meyer (2003). Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: Conceptual issues and research evidence. Psychological Bulletin, 129(5), 674-697. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0033-2909.129.5.674 OpenAlex: https://openalex.org/W2125568653
    Crossref OpenAlex OpenCitations
  27. Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319853442 OpenAlex: https://openalex.org/W2947577397
    Crossref OpenAlex OpenCitations
  28. Susanna Crowson , Daniel Poole , Kelly Scargill , Megan Freeth (2024). Understanding the post-diagnostic support priorities of autistic adults in the United Kingdom: A co-produced modified Delphi study . Autism, 28(4), 854-865. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231196805 OpenAlex: https://openalex.org/W4387210032
    Crossref OpenAlex OpenCitations
  30. Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.
    Type: Article DOI: 10.1002/ejsp.2297 OpenAlex: https://openalex.org/W2593228649
    Crossref OpenAlex OpenCitations
  31. Barbara FC van Heijst , Hilde M. Geurts (2015). Quality of life in autism across the lifespan: A meta-analysis . Autism, 19(2), 158-167. SAGE Publications.
    Type: Article DOI: 10.1177/1362361313517053 OpenAlex: https://openalex.org/W2150681219
    Crossref OpenAlex OpenCitations
  32. Tiffany D. Johnson , Aparna Joshi (2016). Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. Journal of Applied Psychology, 101(3), 430-449. American Psychological Association (APA).
    Type: Article DOI: 10.1037/apl0000058 OpenAlex: https://openalex.org/W2398172144
    Crossref OpenAlex OpenCitations
  33. The Whoqol Group (1998). The World Health Organization quality of life assessment (WHOQOL): Development and general psychometric properties . Social Science & Medicine, 46(12), 1569-1585. Elsevier BV.
    Type: Article DOI: 10.1016/s0277-9536(98)00009-4 OpenAlex: https://openalex.org/W2153037374
    Crossref OpenAlex OpenCitations
  34. Grace Trundle , Katy A. Jones , Danielle Ropar , Vincent Egan (2023). Prevalence of Victimisation in Autistic Individuals: A Systematic Review and Meta-Analysis . Trauma, Violence, & Abuse, 24(4), 2282-2296. SAGE Publications.
    Type: Article DOI: 10.1177/15248380221093689 OpenAlex: https://openalex.org/W4229017466
    Crossref OpenAlex OpenCitations
  36. Gema P. Sáez-Suanes , María Álvarez-Couto (2022). Factors Associated with Quality of Life in Adults with Autism Spectrum Disorder: A Systematic Review . Review Journal of Autism and Developmental Disorders, 9(3), 307-319. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-021-00254-x OpenAlex: https://openalex.org/W3155367870
    Crossref OpenAlex OpenCitations
  37. Jinkuk Hong , Lauren Bishop-Fitzpatrick , Leann E. Smith , Jan S. Greenberg , Marsha R. Mailick (2016). Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports . Journal of Autism and Developmental Disorders, 46(4), 1368-1378. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2678-0 OpenAlex: https://openalex.org/W2203061867
    Crossref OpenAlex OpenCitations
  38. (s. d.). Walker, N. Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities. (Autonomous Press, 2021).
    Type: Autre
    Crossref
  39. Sally Lindsay , Victoria Osten , Mana Rezai , Sunny Bui (2021). Disclosure and workplace accommodations for people with autism: a systematic review . Disability and Rehabilitation, 43(5), 597-610. Informa UK Limited.
    Type: Article DOI: 10.1080/09638288.2019.1635658 OpenAlex: https://openalex.org/W2953880694
    Crossref OpenAlex OpenCitations
  40. Michael Oliver (1990). The Politics of Disablement — New Social Movements . Dans The Politics of Disablement (pp. 112-131). Macmillan Education UK.
    Type: Chapitre de livre DOI: 10.1007/978-1-349-20895-1_8 OpenAlex: https://openalex.org/W2411810162
    Crossref OpenAlex OpenCitations
  43. Tanya St. John , Sara Woods , Tammara Bode , Cassidy Ritter , Annette M. Estes (2022). A review of executive functioning challenges and strengths in autistic adults . The Clinical Neuropsychologist, 36(5), 1116-1147. Informa UK Limited.
    Type: Article DOI: 10.1080/13854046.2021.1971767 OpenAlex: https://openalex.org/W3198386340
    Crossref OpenAlex OpenCitations
  44. Aoife Hickey , Jason Crabtree , Joshua Stott (2018). ‘Suddenly the first fifty years of my life made sense’: Experiences of older people with autism . Autism, 22(3), 357-367. SAGE Publications.
    Type: Article DOI: 10.1177/1362361316680914 OpenAlex: https://openalex.org/W2588184259
    Crossref OpenAlex OpenCitations
  45. Gray Atherton , Emma Edisbury , Andrea Piovesan , Liam Cross (2022). Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life . Journal of Autism and Developmental Disorders, 52(8), 3639-3654. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05235-x OpenAlex: https://openalex.org/W3191831555
    Crossref OpenAlex OpenCitations
  46. Laura Hull , Lily Levy , Meng-Chuan Lai , K.V. Petrides , Simon Baron-Cohen , Carrie T. Allison et al. (2021). Is social camouflaging associated with anxiety and depression in autistic adults? Molecular Autism, 12(1), 13. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-021-00421-1 OpenAlex: https://openalex.org/W3132619758
    Crossref OpenAlex OpenCitations
  47. Philippa Moss , Will Mandy , Patricia Howlin (2017). Child and Adult Factors Related to Quality of Life in Adults with Autism . Journal of Autism and Developmental Disorders, 47(6), 1830-1837. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3105-5 OpenAlex: https://openalex.org/W2598640917
    Crossref OpenAlex OpenCitations
  51. Eilidh Cage , Jessica Di Monaco , Victoria Newell (2018). Experiences of autism acceptance and mental health in autistic adults . J Autism Dev Disord, 48(2), 473-484. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3342-7 OpenAlex: https://openalex.org/W2766434912
    Crossref OpenAlex OpenCitations
  54. Darren Hedley , Mirko Uljarevic (2018). Systematic Review of Suicide in Autism Spectrum Disorder: Current Trends and Implications . Current Developmental Disorders Reports, 5(1), 65-76. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40474-018-0133-6 OpenAlex: https://openalex.org/W2788605551
    Crossref OpenAlex OpenCitations
  55. Erin Harmuth , Emerald Silletta , Anthony Bailey , Tracy Adams , Charlotte Beck , Skye Pamela Barbic (2018). Barriers and Facilitators to Employment for Adults With Autism: A Scoping Review . Annals of International Occupational Therapy, 1(1), 31-40. SLACK, Inc..
    Type: Article DOI: 10.3928/24761222-20180212-01 OpenAlex: https://openalex.org/W2796368235
    Crossref OpenAlex OpenCitations
  60. Eva-Marie Kessler , Christin Blachetta (2020). Age cues in patients’ descriptions influence treatment attitudes . Aging & Mental Health, 24(1), 193-196. Informa UK Limited.
    Type: Article DOI: 10.1080/13607863.2018.1515889 OpenAlex: https://openalex.org/W2899388642
    Crossref OpenAlex OpenCitations
  61. Jessica Saffer , Lizette Nolte , Simon Duffy (2018). Living on a knife edge: the responses of people with physical health conditions to changes in disability benefits . Disability & Society, 33(10), 1555-1578. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2018.1514292 OpenAlex: https://openalex.org/W2900034912
    Crossref OpenAlex OpenCitations
  62. Bethany Oakley , Julian Tillmann , Jumana Ahmad , Daisy Crawley , Antonia San José Cáceres , R. J. Holt et al. (2021). How do core autism traits and associated symptoms relate to quality of life? Findings from the Longitudinal European Autism Project . Autism, 25(2), 389-404. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320959959 OpenAlex: https://openalex.org/W3092212229
    Crossref OpenAlex OpenCitations
  64. Jorge Lugo-Marín , María Magán-Maganto , Amado Rivero-Santana , Leticia Cuellar-Pompa , Montserrat Alviani , Cristina Jenaro-Rio et al. (2019). Prevalence of psychiatric disorders in adults with autism spectrum disorder: A systematic review and meta-analysis . Research in Autism Spectrum Disorders, 59, 22-33. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2018.12.004 OpenAlex: https://openalex.org/W2907744220
    Crossref OpenAlex OpenCitations
  65. Amanda Roestorf , Dermot Bowler , M.K. Deserno , Patricia Howlin , L. Klinger , Helen McConachie et al. (2019). “Older Adults with ASD: The Consequences of Aging.” Insights from a series of special interest group meetings held at the International Society for Autism Research 2016–2017 . Research in Autism Spectrum Disorders, 63, 3-12. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2018.08.007 OpenAlex: https://openalex.org/W2908068945
    Crossref OpenAlex OpenCitations
  66. Eilidh Cage , Zoe Troxell-Whitman (2019). Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults . Journal of Autism and Developmental Disorders, 49(5), 1899-1911. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-018-03878-x OpenAlex: https://openalex.org/W2909219349
    Crossref OpenAlex OpenCitations
  67. Samuel R. C. Arnold , Yunhe Huang , Ye In (Jane) Hwang , Amanda Richdale , Julian Trollor , Lauren P Lawson (2020). “The Single Most Important Thing That Has Happened to Me in My Life”: Development of the Impact of Diagnosis Scale—Preliminary Revision . Autism in Adulthood, 2(1), 34-41. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2019.0059 OpenAlex: https://openalex.org/W3012051930
    Crossref OpenAlex OpenCitations
  68. Lily Cresswell , Rebecca Hinch , Eilidh Cage (2019). The experiences of peer relationships amongst autistic adolescents: A systematic review of the qualitative evidence . Research in Autism Spectrum Disorders, 61, 45. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2019.01.003 OpenAlex: https://openalex.org/W2915848368
    Crossref OpenAlex OpenCitations
  72. MJ Power (2010). Power, M. J. & Green, A. M. & WHOQOL-Dis Group. Development of the WHOQOL disabilities module. Qual. Life Res. Int. J. Qual. Life Asp. Treat. Care Rehabil. 19, 571–584 (2010). Qual. Life Res. Int. J. Qual. Life Asp. Treat. Care Rehabil., 19, 571.
    Type: Autre
    Crossref
  74. Esra Zıvralı Yarar , Amanda Roestorf , Debbie Spain , Patricia Howlin , Dermot Bowler , Rebecca A. Charlton et al. (2022). Aging and autism: Do measures of autism symptoms, co‐occurring mental health conditions, or quality of life differ between younger and older autistic adults? Autism Research, 15(8), 1482-1494. Wiley.
    Type: Article DOI: 10.1002/aur.2780 OpenAlex: https://openalex.org/W4283825353
    Crossref OpenAlex OpenCitations
  75. Julian Christensen , Lene Aarøe , Martin Baekgaard , Pamela Herd , Donald P. Moynihan (2020). Human Capital and Administrative Burden: The Role of Cognitive Resources in Citizen‐State Interactions . Public Administration Review, 80(1), 127-136. Wiley.
    Type: Article DOI: 10.1111/puar.13134 OpenAlex: https://openalex.org/W2996345146
    Crossref OpenAlex OpenCitations
  78. LL Carstensen (1991). Carstensen, L. L. Socioemotional selectivity theory: Social activity in life-span context. Annu. Rev. Gerontol. Geriatr. 11, 195 (1991). Annu. Rev. Gerontol. Geriatr., 11, 195.
    Type: Autre
    Crossref
  79. R Kahn (1980). Kahn, R. & Antonucci, T. Convoys over the life course: attachment roles and social support. in Life Span Dev. 3, 253–267 (1980). in Life Span Dev., 3, 253.
    Type: Autre
    Crossref
  80. Checkliste für Studien – Autismusfreundliche Forschung – Autismus-Forschungs-Kooperation. https://www.autismus-forschungs-kooperation.de/projekte-der-afk/checkliste-autismusfreundliche-studien/ (2019).
    Type: Autre
    Crossref
  81. Gregory Guest , Emily Namey , Amy O'Regan , Chrissy Godwin , Jamilah Taylor (2020). Comparing Interview and Focus Group Data Collected in Person and Online . Patient-Centered Outcomes Research Institute® (PCORI).
    Type: Rapport DOI: 10.25302/05.2020.me.1403117064 OpenAlex: https://openalex.org/W3024337201
    Crossref OpenAlex OpenCitations
  82. (s. d.). Braun, V. & Clarke, V. Thematic Analysis. A Practical Guide. (SAGE Publications, Ltd, 2021).
    Type: Autre
    Crossref
  84. Gavin Robert Stewart , Emily Luedecke , Will Mandy , Rebecca A. Charlton , Francesca Happé (2024). Experiences of social isolation and loneliness in middle-aged and older autistic adults . Neurodiversity, 2, 1. SAGE Publications.
    Type: Article DOI: 10.1177/27546330241245529 OpenAlex: https://openalex.org/W4394881713
    Crossref OpenAlex OpenCitations
  85. Clarissa A Shaw , Jean K Gordon (2021). Understanding Elderspeak: An Evolutionary Concept Analysis . Innovation in Aging, 5(3), igab023. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/geroni/igab023 OpenAlex: https://openalex.org/W3113854371
    Crossref OpenAlex OpenCitations
  86. Maria Luisa Scattoni , Martina Micai , Antonio Ciaramella , Tommaso Salvitti , Francesca Fulceri , Laura Maria Fatta et al. (2021). Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study . Journal of Autism and Developmental Disorders, 51(11), 4129-4146. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-04873-5 OpenAlex: https://openalex.org/W3122097099
    Crossref OpenAlex OpenCitations
  87. Ingrid Kiehl , Ruby Pease , Corinna Hackmann (2024). The adult experience of being diagnosed with autism spectrum disorder: A qualitative meta-synthesis . Autism, 28(5), 1060-1074. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231220419 OpenAlex: https://openalex.org/W4391880189
    Crossref OpenAlex OpenCitations
  88. Coline Crutzen , Pierre Missotten , Stéphane Adam , Sarah Schroyen (2022). Does caring lead to stigmatisation? The perception of older people among healthcare professionals and the general population: A cross‐sectional study . International Journal of Older People Nursing, 17(5), e12457. Wiley.
    Type: Article DOI: 10.1111/opn.12457 OpenAlex: https://openalex.org/W4221135983
    Crossref OpenAlex OpenCitations
  89. Kirsten Corden , Rebecca Brewer , Eilidh Cage (2021). Personal identity after an autism diagnosis: relationships with self-esteem, mental wellbeing, and diagnostic timing . Front Psychol, 12, 699335-699335. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2021.699335 OpenAlex: https://openalex.org/W3161811598
    Crossref OpenAlex OpenCitations
  90. Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2021). Autistic Adults' Experiences of Camouflaging and Its Perceived Impact on Mental Health . Autism in Adulthood, 3(4), 320-329. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.0071 OpenAlex: https://openalex.org/W3170765972
    Crossref OpenAlex OpenCitations
  91. Dara Chan , Julie D. Doran , Osly D. Galobardi (2023). Beyond Friendship: The Spectrum of Social Participation of Autistic Adults . Journal of Autism and Developmental Disorders, 53(1), 424-437. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-022-05441-1 OpenAlex: https://openalex.org/W4207008501
    Crossref OpenAlex OpenCitations
  92. Damian Milton * , Emine Gurbuz , Beatriz López (2022). The ‘double empathy problem’: Ten years on . Autism, 26(8), 1901-1903. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221129123 OpenAlex: https://openalex.org/W4306860573
    Crossref OpenAlex OpenCitations
  93. Kiley McLean , Meghan Haas , Jamie Koenig , Megan Horvath , Mariah Vigil , Nicole E Werner et al. (2024). “I’m dealing with a health care system that doesn’t get it”: Barriers and facilitators to inclusive healthcare for autistic adults . Autism, 28(6), 1382-1393. SAGE Publications.
    Type: Article DOI: 10.1177/13623613241236380 OpenAlex: https://openalex.org/W4392709520
    Crossref OpenAlex OpenCitations
  94. vicki gibbs , Elizabeth Pellicano (2023). ‘Maybe we just seem like easy targets’: A qualitative analysis of autistic adults’ experiences of interpersonal violence . Autism, 27(7), 2021-2034. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221150375 OpenAlex: https://openalex.org/W4317868786
    Crossref OpenAlex OpenCitations
  95. Samuel Tromans , Zandrea Stewart , Traolach Brugha (2023). Autism: social care, reasonable adjustments and the personal passport . BJPsych Advances, 29(5), 354-357. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/bja.2023.2 OpenAlex: https://openalex.org/W4319318373
    Crossref OpenAlex OpenCitations
  96. Harper, G. et al. Autistica Action Briefing: Health Checks. https://www.autistica.org.uk/downloads/ (2019).
    Type: Autre
    Crossref