Les fondements de l'épanouissement autistique

Titre original en anglais : The Foundations of Autistic Flourishing

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

À propos de la mention auteur·ice autiste

Pellicano, E. & Heyworth, M. (2023). The Foundations of Autistic Flourishing. Current Psychiatry Reports, 25(9), 419-427. https://doi.org/10.1007/s11920-023-01441-9

Date de publication: 08/08/2023 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais

Auteurs

Auteur·ices des publications
2
Auteur·ices de la publication identifié·es comme autistes
1 / 2 (50,0 %)

Résumé

OBJECTIF DE LA REVUE : Toutes les personnes, y compris les personnes autistes, méritent de vivre une vie épanouissante. Mais à quoi ressemble une vie épanouissante pour les personnes autistes ? Nous suggérons que les biais cachés, les erreurs méthodologiques et les hypothèses clés de la science de l'autisme ont obscurci les réponses à cette question. Ici, nous cherchons à initier une discussion plus large sur ce que pourraient être les fondements d'une bonne vie autistique et sur la manière dont cette discussion pourrait être cadrée. RÉSULTATS RÉCENTS : Nous identifions cinq façons dont la science de l'autisme peut nous aider tous à assurer ces fondements, notamment en (1) accordant une place prépondérante au bien-être autistique dans la recherche, (2) renforçant l'autonomie des personnes autistes, (3) accordant une meilleure attention aux expériences quotidiennes, (4) reconnaissant le contexte et (5) travaillant en partenariat avec les personnes autistes, leurs familles et leurs alliés afin de veiller à ce qu'ils soient au cœur de la prise de décision en matière de recherche. Une telle approche orienterait la recherche sur l'autisme afin de contribuer à façonner de bonnes vies autistiques.

PURPOSE OF REVIEW: All people-including Autistic people-deserve to live flourishing lives. But what does a flourishing life look like for Autistic people? We suggest that the hidden biases, methodological errors, and key assumptions of autism science have obscured answers to this question. Here, we seek to initiate a broader discussion about what the foundations for a good Autistic life might be and how this discussion might be framed. RECENT FINDINGS: We identify five ways in which autism science can help us all to secure those foundations, including by (1) giving Autistic well-being prominence in research, (2) amplifying Autistic autonomy, (3) attending better to everyday experiences, (4) acknowledging context, and (5) working in partnership with Autistic people and their families and allies to ensure that they are at the heart of research decision-making. Such an approach would direct the focus of autism research to help shape good Autistic lives.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 02:38.

Références citées
108
Avec un DOI
89
Sans DOI, à partir du texte brut de la bibliographie
16
28 / 108 (25,9 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
14 / 108 (13,0 %)
Références avec noms d’auteurices détectés
97 / 108 (89,8 %)
Sans nom d’auteurice détecté
11
Sans titre structuré
14
Sans identifiant stable
16
Références avec noms bruts d’auteurices restant à vérifier
11
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
414
À partir du DOI ou de métadonnées externes
414
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
20
222 / 414 (53,6 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 192 / 414 (46,4 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
57 / 414 (13,8 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 57 / 222 (25,7 %). Personnes distinctes identifiées comme autistes : 35 / 347 (10,1 %).
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