Voix autistique : partage des expériences et des points de vue d’enfants autistes

Titre original en anglais : Autistic voice: Sharing autistic children’s experiences and insights

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». deux auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

À propos de la mention auteur·ice autiste

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Mullally, S. L., Wood, A., Edwards, C. C., Connolly, S. E., Constable, H., Watson, S., Rodgers, J., Rose, K., & King, N. (2024). Autistic voice: Sharing autistic children’s experiences and insights [Preprint]. openRxiv. https://doi.org/10.1101/2024.07.22.24310796

Titre de la revue ou du livre
medRxiv
Éditeur
openRxiv
Date de publication: 24/07/2024 Ajout dans AutiHub: 06/07/2026 Type: Prépublication Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
9
Auteur·ices de la publication identifié·es comme autistes
2 / 9 (22,2 %)
  1. Sinéad L. Mullally
  2. Alice Wood
  3. Cherice C. Edwards
  4. Sophie E. Connolly
  5. Hannah Constable
  1. Stuart Watson
  2. Jacqui Rodgers
  3. Kieran Rose *
  4. Nic King *

Résumé

Résumé Il existe un manque critique d’exploration des expériences directes des enfants autistes dans la littérature psychologique. Nous avons cherché à y remédier en utilisant des données de référence issues d’une étude plus large à méthodes mixtes. 136 enfants autistes (âge moyen = 10,35) ont répondu à un questionnaire en ligne. Les questions exploraient la compréhension qu’avaient les enfants de l’autisme, leurs sentiments à propos du fait d’être autistes dans différents contextes, ainsi que les difficultés rencontrées. Les données quantitatives ont révélé, chez certains, des connaissances et une compréhension limitées de l’autisme. Les difficultés comprenaient le fait de parler du fait d’être autiste et de défendre soi-même ses besoins, en particulier avec des personnes ne faisant pas partie de la famille. Les enfants reconnaissaient généralement à la fois les forces et les difficultés liées au fait d’être autiste, bien que les préoccupations concernant le fait de se sentir ou d’être différent soient répandues, et que le camouflage soit courant. Fait marquant, bien que la plupart des enfants se sentent positifs à propos du fait d’être autistes à la maison, un nombre significativement moindre ressentait cela en présence de pairs ou d’enseignants. À l’aide d’une analyse thématique réflexive, quatre thèmes principaux ont été élaborés : (1) Expériences accablantes, (2) Personnes dangereuses, (3) Sanctuaire, (4) Identité autistique. Globalement, les enfants se sentaient le plus en sécurité à la maison avec leur famille et/ou avec des amis autistes/neurodivergents/compréhensifs, mais le moins en sécurité à l’école avec leurs enseignants et leurs pairs neurotypiques, où la victimisation était généralisée. Ces résultats offrent des éclairages précieux sur la vie des enfants autistes et exigent que nous examinions comment les lieux d’éducation peuvent être transformés en espaces sûrs pour les enfants autistes.

Abstract There is a critical lack of exploration into the first-hand experiences of autistic children in the psychological literature. We sought to address this using baseline data from a wider mixed-methods study. 136 autistic children (mean age=10.35) completed an online questionnaire. Questions explored children’s understanding of autism, their feelings about being autistic in different contexts, and challenges experienced. Quantitative data revealed limited autism knowledge and understanding in some. Challenges included talking about being autistic and self-advocating for needs, especially with non-family members. Children generally recognised both strengths and challenges of being autistic, although concerns about feeling/being different were widespread, and masking common. Strikingly, although most children felt positive about being autistic at home, significantly fewer felt this to be true when around peers or teachers. Using reflexive thematic analysis, four main themes were developed: (1) Overwhelming Experiences, (2) Unsafe People, (3) Sanctuary, (4) Autistic Identity. Overall, the children felt safest at home with family and/or with autistic/neurodivergent/understanding friends, but most unsafe at school with their teachers and neurotypical peers, where victimization was rife. These findings offer valuable insights into the lives of autistic children, and demand we explore how places of education can be transformed into safe spaces for autistic children.

Publications liées

Ces liens indiquent les prépublications, protocoles, versions publiées ou notices liées identifiés dans AutiHub.

Version publiée

Version publiée associée à cette prépublication
Growing-up autistic: Sharing autistic children’s experiences and insights
Confirmé Niveau de fiabilité: Moyen Manuel

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 03/10/2026 01:00.

Références citées
111
Avec un DOI
104
Sans DOI, à partir du texte brut de la bibliographie
6
26 / 111 (23,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
7 / 111 (6,3 %)
Références avec noms d’auteurices détectés
104 / 111 (93,7 %)
Sans nom d’auteurice détecté
7
Sans titre structuré
6
Sans identifiant stable
4
Références avec noms bruts d’auteurices restant à vérifier
3
Références avec problème de récupération des métadonnées externes
4
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
370
À partir du DOI ou de métadonnées externes
370
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
9
205 / 370 (55,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 165 / 370 (44,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
47 / 370 (12,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 47 / 205 (22,9 %). Personnes distinctes identifiées comme autistes : 36 / 300 (12,0 %).
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