« Je veux m’intégrer… mais je ne veux pas me changer fondamentalement » : une exploration qualitative de la relation entre le masquage et la santé mentale chez les adolescents autistes

Titre original en anglais : “I want to fit in… but I don’t want to change myself fundamentally”: A qualitative exploration of the relationship between masking and mental health for autistic teenagers

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Chapman, L., Rose, K., Hull, L., & Mandy, W. (2022). “I want to fit in… but I don’t want to change myself fundamentally”: A qualitative exploration of the relationship between masking and mental health for autistic teenagers. Research in Autism Spectrum Disorders, 99, 102069. https://doi.org/10.1016/j.rasd.2022.102069

Date de publication: 01/11/2022 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Louise Chapman
  2. Kieran Rose *
  3. Laura Hull
  4. Will Mandy

Résumé

Des recherches antérieures ont identifié une association entre le masquage et la santé mentale chez les personnes autistes. Cependant, le sens de la causalité et les mécanismes impliqués dans cette relation sont mal compris. Cette étude qualitative visait à examiner les expériences des adolescents autistes concernant le masquage, la santé mentale, ainsi que la manière dont ces deux éléments se développent et interagissent. Vingt adolescents autistes ont participé à un entretien semi-structuré. Les entretiens ont été analysés à l’aide de l’analyse thématique réflexive. À partir de l’analyse, un thème a été identifié afin de conceptualiser le masquage tel qu’il était décrit par les participants. Cinq autres thèmes interdépendants ont été identifiés, chacun étant impliqué à la fois dans la relation entre le masquage et la santé mentale et, inversement, dans la relation entre l’authenticité et la santé mentale. Les participants ont décrit comment le masquage et la santé mentale s’influencent mutuellement, et comment tous deux sont influencés par des facteurs sociaux et environnementaux. Les résultats concordent avec des recherches antérieures indiquant que le masquage est associé à des difficultés de santé mentale. Notre analyse présente une conceptualisation plus large du masquage que celle précédemment définie dans la littérature, plaçant l’oppression sociale des personnes autistes au cœur de la relation entre le masquage et la santé mentale. Les résultats ont des implications pour les services diagnostiques, le soutien post-diagnostique et les interventions thérapeutiques, soulignant la nécessité de remettre en question les discours sur l’autisme fondés sur le déficit.

Previous research has identified an association between masking and mental health for autistic people. However, the direction of causality and mechanisms involved in this relationship are not well understood. This qualitative study aimed to investigate autistic teenagers’ experiences of masking, mental health and how the two develop and interact. Twenty autistic teenagers took part in a semi-structured interview. The interviews were analysed using Reflexive Thematic Analysis. From the analysis, one theme was identified to conceptualise masking as described by participants. Five more inter-related themes were identified, each involved both in the relationship between masking and mental health and conversely in the relationship between authenticity and mental health. Participants described how masking and mental health both influence each other, and both are influenced by social and environmental factors. The findings are consistent with previous research indicating that masking is associated with mental health difficulties. Our analysis presents a broader conceptualisation of masking than previously defined in the literature, placing social oppression of autistic people at the heart of the relationship between masking and mental health. The findings have implications for diagnostic services, post-diagnostic support and therapeutic interventions, highlighting the need to challenge deficit-based narratives of autism.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
72
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
11 / 72 (15,3 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
14 / 260 (5,4 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 14 / 137 (10,2 %). Auteurices cité·es distinct·es identifié·es comme autistes : 11 / 192 (5,7 %).
Occurrences citées rattachées à la base AutiHub
137 / 260 (52,7 %)
Auteurices cité·es distinct·es rattaché·es : 78 / 192 (40,6 %)
Occurrences rattachées, non identifiées comme autistes
123 / 137 (89,8 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 123 / 260 (47,3 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 67 / 78 (85,9 %).
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