« Je veux m’intégrer… mais je ne veux pas me changer fondamentalement » : une exploration qualitative de la relation entre le masquage et la santé mentale chez les adolescents autistes

Titre original en anglais : “I want to fit in… but I don’t want to change myself fundamentally”: A qualitative exploration of the relationship between masking and mental health for autistic teenagers

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Chapman, L., Rose, K., Hull, L., & Mandy, W. (2022). “I want to fit in… but I don’t want to change myself fundamentally”: A qualitative exploration of the relationship between masking and mental health for autistic teenagers. Research in Autism Spectrum Disorders, 99, 102069. https://doi.org/10.1016/j.rasd.2022.102069

Date de publication: 01/11/2022 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Louise Chapman
  2. Kieran Rose *
  3. Laura Hull
  4. Will Mandy

Résumé

Des recherches antérieures ont identifié une association entre le masquage et la santé mentale chez les personnes autistes. Cependant, le sens de la causalité et les mécanismes impliqués dans cette relation sont mal compris. Cette étude qualitative visait à examiner les expériences des adolescents autistes concernant le masquage, la santé mentale, ainsi que la manière dont ces deux éléments se développent et interagissent. Vingt adolescents autistes ont participé à un entretien semi-structuré. Les entretiens ont été analysés à l’aide de l’analyse thématique réflexive. À partir de l’analyse, un thème a été identifié afin de conceptualiser le masquage tel qu’il était décrit par les participants. Cinq autres thèmes interdépendants ont été identifiés, chacun étant impliqué à la fois dans la relation entre le masquage et la santé mentale et, inversement, dans la relation entre l’authenticité et la santé mentale. Les participants ont décrit comment le masquage et la santé mentale s’influencent mutuellement, et comment tous deux sont influencés par des facteurs sociaux et environnementaux. Les résultats concordent avec des recherches antérieures indiquant que le masquage est associé à des difficultés de santé mentale. Notre analyse présente une conceptualisation plus large du masquage que celle précédemment définie dans la littérature, plaçant l’oppression sociale des personnes autistes au cœur de la relation entre le masquage et la santé mentale. Les résultats ont des implications pour les services diagnostiques, le soutien post-diagnostique et les interventions thérapeutiques, soulignant la nécessité de remettre en question les discours sur l’autisme fondés sur le déficit.

Previous research has identified an association between masking and mental health for autistic people. However, the direction of causality and mechanisms involved in this relationship are not well understood. This qualitative study aimed to investigate autistic teenagers’ experiences of masking, mental health and how the two develop and interact. Twenty autistic teenagers took part in a semi-structured interview. The interviews were analysed using Reflexive Thematic Analysis. From the analysis, one theme was identified to conceptualise masking as described by participants. Five more inter-related themes were identified, each involved both in the relationship between masking and mental health and conversely in the relationship between authenticity and mental health. Participants described how masking and mental health both influence each other, and both are influenced by social and environmental factors. The findings are consistent with previous research indicating that masking is associated with mental health difficulties. Our analysis presents a broader conceptualisation of masking than previously defined in the literature, placing social oppression of autistic people at the heart of the relationship between masking and mental health. The findings have implications for diagnostic services, post-diagnostic support and therapeutic interventions, highlighting the need to challenge deficit-based narratives of autism.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 07:50.

Références citées
72
Avec un DOI
59
Sans DOI, à partir du texte brut de la bibliographie
12
11 / 72 (15,3 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
5 / 72 (6,9 %)
Références avec noms d’auteurices détectés
67 / 72 (93,1 %)
Sans nom d’auteurice détecté
5
Sans titre structuré
4
Sans identifiant stable
10
Références avec noms bruts d’auteurices restant à vérifier
4
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
260
À partir du DOI ou de métadonnées externes
260
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
19
163 / 260 (62,7 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 97 / 260 (37,3 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
15 / 260 (5,8 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 15 / 163 (9,2 %). Personnes distinctes identifiées comme autistes : 12 / 192 (6,2 %).
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