“Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults

Lilley, R., Lawson, W., Hall, G., Mahony, J., Clapham, H., Heyworth, M., Arnold, S. R. C., Trollor, J. N., Yudell, M., & Pellicano, E. (2022). “Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults. Journal of Autism and Developmental Disorders, 53(3), 1146-1161. https://doi.org/10.1007/s10803-022-05667-z

Publication date: 14 Jul 2022 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English

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Publication authors
10
Publication authors identified as autistic
4 / 10 (40.0%)

Abstract

In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: 'conceptualising the Autistic family', 'creating Autistic community', and 'contesting Autistic identity'. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.

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Cited references
138
Total cited references integrated for this publication.
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Cited author occurrences identified as autistic
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Cited author occurrences linked to AutiHub author records
210 / 439 (47.8%)
Distinct linked cited authors: 118 / 333 (35.4%)
Linked cited-author occurrences not identified as autistic
169 / 210 (80.5%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 169 / 439 (38.5%). Distinct linked cited authors not identified as autistic: 96 / 118 (81.4%).
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