Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs

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Kapp, S. K. (2023). Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs. Education Sciences, 13(2), 106. https://doi.org/10.3390/educsci13020106

Publication date: 19 Jan 2023 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
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  1. Steven K. Kapp *

Abstract

Recently the Lancet published a Commission on the future of care and clinical research of autism, which included a side panel arguing for the adoption of “profound autism”, a term in- tended to describe autistic people who require constant supervision or care, thought to usually have significant intellectual disability, limited or no language, and an inability to advocate for themselves. This state-of-the-art review deconstructs problems with autism sublabels such as “profound autism” and low- and high-functioning labels. It then examines the communicative and cognitive capacities of minimally speaking autistic people, finding that such individuals can communicate (especially with responsive partners) and need nonverbal testing that allows them to demonstrate their potential strengths. It concludes with the ability of minimally speaking autistic people to self-advocate, and the influences of other people to both support and frustrate their communication.

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Cited references
225
Total cited references integrated for this publication.
Cited references with an identified autistic author
27 / 225 (12.0%)
Cited author occurrences identified as autistic
70 / 864 (8.1%)
Among occurrences linked to AutiHub author records: 70 / 268 (26.1%). Distinct cited authors identified as autistic: 52 / 686 (7.6%).
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268 / 864 (31.0%)
Distinct linked cited authors: 182 / 686 (26.5%)
Linked cited-author occurrences not identified as autistic
198 / 268 (73.9%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 198 / 864 (22.9%). Distinct linked cited authors not identified as autistic: 130 / 182 (71.4%).
4 cited bibliography entries could not be fully enriched from DOI metadata.
Crossref: not found (2) · DataCite: not found (2)
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