L’inclusion doit être mondiale, décolonisée, culturellement et linguistiquement diverse, et anti-normative

Titre original en anglais : Inclusion Must Be Global, Decolonized, Culturally and Linguistically Diverse, and Anti‐Normative

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Srinivasan, H. B., Chan, T., Kim, S. Y., Obeid, R., Jones, D. R., Botha, M., Giwa Onaiwu, M., Tan, D. W., Waisman, T., Kapp, S. K., Kassous, I. Z., Mathaga, J., & Gillespie-Lynch, K. (2025). Inclusion Must Be Global, Decolonized, Culturally and Linguistically Diverse, and Anti‐Normative. Journal of Social Issues, 81(4). https://doi.org/10.1111/josi.70045

Date de publication: 01/12/2025 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
13
Auteur·ices de la publication identifié·es comme autistes
5 / 13 (38,5 %)
  1. Hari B. Srinivasan *
  2. Timothy Chan
  3. So Yoon Kim
  4. Rita Obeid
  5. Desiree R. Jones
  1. Monique Botha *
  2. Morénike Giwa Onaiwu *
  3. Diana Weiting Tan
  4. TC Waisman *
  5. Steven K. Kapp *
  1. Imene Zoulikha Kassous
  2. Jacqueline Mathaga
  3. Kristen Gillespie-Lynch

Résumé

RÉSUMÉ Dans ce commentaire conclusif pour notre numéro spécial, Approches intersectionnelles affirmant la neurodiversité qui ciblent les politiques publiques : déplacer l’attention du changement des individus vers le changement des systèmes de pouvoir, nous cherchons à atténuer l’omission généralisée des personnes Autistes non parlantes et de celles vivant hors du Nord global dans la recherche, les services et les politiques. Dans notre numéro spécial, nous avons essayé de nourrir les racines intersectionnelles souvent négligées du mouvement de la neurodiversité en amplifiant les perspectives de personnes Neurodivergentes marginalisées à de multiples titres. Cependant, les personnes non parlantes restent sous-représentées dans notre numéro spécial. Par conséquent, nous avons réuni des personnes ayant des liens divers avec la constellation de l’autisme, y compris des personnes non parlantes et peu parlantes ainsi que des personnes du Sud global, afin d’écrire ce texte conclusif. Ensemble, nous avons élaboré des politiques affirmant la neurodiversité et les avons organisées selon les thèmes suivants issus des articles de notre numéro spécial : justice, représentation et changement des systèmes. Afin de favoriser la justice, nous appelons à un accès complet à des soutiens à la communication individualisés et holistiques, à des alliances interhandicap et à des approches décoloniales. Afin d’améliorer la représentation, nous recommandons de combiner la conception universelle, la science ouverte et les cadres autochtones afin de soutenir la représentation des personnes Neurodivergentes dans tous les aspects de la recherche et de la défense des droits, en particulier dans les fonctions de direction. Afin de promouvoir le changement des systèmes, nous appelons à des ressources multimodales accessibles et à des évaluations valides. Dans l’ensemble des thèmes, nous soulignons l’équité technologique, la transparence et la supervision communautaire. Des résumés accessibles et détaillés de nos recommandations politiques, que les administrateurs, rédacteurs, cliniciens, éducateurs, chercheurs et défenseurs des droits peuvent adopter dès maintenant pour faire de l’inclusion la norme par défaut, sont fournis dans des tableaux (veuillez les partager largement). Pour les personnes les plus marginalisées, l’inclusion ne viendra pas d’ajustements progressifs, mais de solutions radicales et de refontes systémiques.

ABSTRACT In this concluding commentary for our special issue, Neurodiversity‐Affirming Intersectional Approaches that Target Public Policy: Moving the Focus from Changing Individuals to Changing Systems of Power, we seek to ameliorate the pervasive omission of nonspeaking Autistic people and those outside the Global North from research, services, and policy. In our special issue, we tried to nurture the often‐neglected intersectional roots of the neurodiversity movement by amplifying perspectives of multiply marginalized Neurodivergent people. However, nonspeaking people remain underrepresented in our special issue. Therefore, we assembled people with diverse connections to the autism constellation, including nonspeaking and minimally speaking people and people from the Global South, to write this concluding piece. Together, we generated neurodiversity‐affirming policies and organized them according to these themes arising from articles in our special issue: justice, representation, and systems change. To foster justice, we call for full access to individualized, holistic communication supports, cross‐disability alliances, and decolonial approaches. To improve representation, we recommend melding Universal Design, Open Scholarship, and indigenous frameworks to support Neurodivergent representation in all aspects of research and advocacy, particularly leadership. To promote systems change, we call for accessible multimodal resources and valid assessments. Across all themes we stress tech equity, transparency, and community oversight. Accessible and detailed summaries of our policy recommendations that administrators, editors, clinicians, educators, researchers, and advocates can adopt now to make inclusion the default are provided in tables (please share widely). For the most marginalized, inclusion will not come from incremental adjustments but from radical solutions and systemic overhauls.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
109
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
26 / 109 (23,9 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
42 / 274 (15,3 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 42 / 120 (35,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 25 / 239 (10,5 %).
Occurrences citées rattachées à la base AutiHub
120 / 274 (43,8 %)
Auteurices cité·es distinct·es rattaché·es : 88 / 239 (36,8 %)
Occurrences rattachées, non identifiées comme autistes
78 / 120 (65,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 78 / 274 (28,5 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 63 / 88 (71,6 %).
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