Mettre au jour les perceptions du langage chinois lié à l’autisme au sein de la communauté de l’autisme et du grand public

Titre original en anglais : Unveiling the Perceptions of Autism-Related Chinese Language Among the Autism Community and the General Public

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Lao, U., Dai, J., Liang, F., Chen, Q., Cao, W., Pan, Y., Zou, X., & Zhu, H. (2024). Unveiling the Perceptions of Autism-Related Chinese Language Among the Autism Community and the General Public. Autism in Adulthood, 8(3), 423-442. https://doi.org/10.1089/aut.2024.0001

Titre de la revue ou du livre
Autism in Adulthood
Éditeur
SAGE Publications
Volume
8
Numéro
3
Pages
423-442
Date de publication: 21/11/2024 Ajout dans AutiHub: 22/09/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
1 / 8 (12,5 %)
  1. Uchong Lao *
  2. Jiamin Dai
  3. Fengjing Liang
  4. Qian Chen
  1. Wei Cao
  2. Yueran Pan
  3. Xiaobing Zou
  4. Huilin Zhu

Résumé

Contexte : Récemment, la discussion autour du langage lié à l’autisme a gagné en importance au sein des communautés occidentales de l’autisme, mais les études portant sur la manière dont les personnes perçoivent le langage chinois lié à l’autisme sont particulièrement rares. Méthodes : Nous avons mené une enquête en ligne entre le 23 juin et le 29 juillet 2023, ciblant des utilisateurs de la langue chinoise, majoritairement originaires de Chine continentale, au moyen d’un échantillonnage de convenance. À l’aide d’échelles en 7 points, notre étude visait à évaluer les préférences, la perception du caractère offensant et la familiarité à l’égard de 13 termes liés à l’autisme, classés en terminologies formelles, étiquettes de fonctionnement et termes communautaires. Un échantillon diversifié de 1 016 personnes, âgées de 14,75 à 72,49 ans, a participé. Nous avons utilisé des modèles d’analyse de la variance afin d’analyser les différences et les similitudes entre les groupes identitaires, y compris les parties prenantes de l’autisme et le grand public. Afin d’explorer davantage les attitudes sous-jacentes, nous avons employé une analyse par grappes pour regrouper les personnes selon leur adhésion aux termes. Résultats : Parmi les répondants, les traductions chinoises de Neurodiversité, Spectre et Trouble du spectre de l’autisme1 se sont révélées être des termes très appréciés et peu offensants, en particulier chez les personnes autistes et les parents d’enfants autistes. En revanche, les répondants considéraient généralement Enfant renfermé, Haut/bas fonctionnement, Autisme2 et Trouble du spectre de l’autisme2 comme moins appréciés et plus offensants. L’analyse par grappes a identifié des grappes d’attitudes variables, ne révélant aucune perception uniforme entre les différents groupes identitaires ni au sein de ceux-ci. Conclusions : Bien que les différents groupes identitaires aient montré certaines similitudes dans leur perception des termes liés à l’autisme, nos résultats mettent en évidence l’absence d’approche universellement acceptée pour parler des termes chinois liés à l’autisme. Cette recherche étend le débat sur la terminologie liée à l’autisme au-delà des contextes occidentaux et met en évidence les aspects liés à l’identité sociale et à la culture dans la traduction et la construction des terminologies liées à l’autisme.

Background: Recently, the discussion surrounding autism-related language has gained prominence within Western autism communities, but studies about how people perceive Chinese autism-related language are notably scarce. Methods: We conducted an online survey between June 23 and July 29, 2023, targeting Chinese language users (mostly from the Chinese mainland) using convenience sampling. Utilizing 7-point scales, our study aimed to assess preferences, perceptions of offensiveness, and familiarity with 13 autism-related terms categorized into formal terminologies, functioning labels, and community terms. A diverse sample of 1,016 individuals, aged 14.75 to 72.49 years, participated. We employed analysis of variance models to analyze distinctions and similarities across identity groups, including autism stakeholders and the general public. To further explore the underlying attitudes, we employed cluster analysis to group individuals based on their endorsements of the terms. Results: Among the respondents, the Chinese translations of Neurodiversity (神经多样性), Spectrum (谱系), and Autism1 spectrum disorder (孤独症谱系障碍) emerged as highly favored and low offensive terms, particularly among autistic individuals and parents of autistic children. In contrast, the respondents generally considered Closed-off kid (闭娃), High/low function (高/低功能), Autism2 (自闭症), and Autism2 spectrum disorder (自闭症谱系障碍) less favored and more offensive. Cluster analysis identified variable attitude clusters, revealing no uniform perception across and within different identity groups. Conclusions: While different identity groups demonstrated some similarities in their perception of autism-related terms, our findings highlight the lack of a universally accepted approach to discussing Chinese autism-related terms. This research extends the discourse on autism-related terminology beyond Western contexts and highlights the social identity and cultural aspects in the translation and construction of autism-related terminologies.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 03/10/2026 08:20.

Références citées
106
Avec un DOI
67
Sans DOI, à partir du texte brut de la bibliographie
37
19 / 106 (17,9 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
16 / 106 (15,1 %)
Références avec noms d’auteurices détectés
90 / 106 (84,9 %)
Sans nom d’auteurice détecté
16
Sans titre structuré
14
Sans identifiant stable
36
Références avec noms bruts d’auteurices restant à vérifier
14
Références avec problème de récupération des métadonnées externes
4
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
376
À partir du DOI ou de métadonnées externes
376
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
16
203 / 376 (54,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 173 / 376 (46,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
63 / 376 (16,8 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 63 / 203 (31,0 %). Personnes distinctes identifiées comme autistes : 49 / 333 (14,7 %).
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