Neurodiversité 2.0 - Tirer parti des perspectives interdisciplinaires sur le handicap

Titre original en anglais : Neurodiversity 2.0 - Harnessing cross-disciplinary disability insights

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Srinivasan, H. (2025). Neurodiversity 2.0 - Harnessing cross-disciplinary disability insights. Research in Autism, 127, 202652. https://doi.org/10.1016/j.reia.2025.202652

Date de publication: 21/07/2025 Ajout dans AutiHub: 09/07/2026 Type: Article Langue de l’article: Anglais
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1 / 1 (100,0 %)
  1. Hari Srinivasan *

Résumé

Le mouvement de la neurodiversité a recadré les différences cognitives et comportementales comme des variations naturelles plutôt que comme des déficits, en plaidant pour l'inclusion sociale et le changement systémique. Cependant, à mesure que le mouvement a gagné en influence, il a également révélé des tensions concernant l'indépendance, la valorisation économique, la recherche médicale, la représentation des personnes ayant des besoins de soutien élevés et les handicaps qui se recoupent. Cet article présente la Neurodiversité 2.0, un cadre élargi qui intègre des perspectives issues des études sur le handicap, de la justice sociale et des politiques publiques afin de combler ces lacunes. En analysant les principales tensions, en s'appuyant sur des perspectives théoriques telles que l'autonomie relationnelle, la Crip Theory et la Disability Justice, et en proposant des changements systémiques de politiques publiques, l'article plaide pour une approche qui équilibre les opportunités (en tirant parti des forces) et les solutions (pour répondre aux difficultés). Le discours actuel présente souvent de fausses dichotomies - modèles sociaux contre médicaux, autonomie contre dépendance, forces contre déficits - alors qu'en réalité, l'inclusion exige une approche intégrée. Cet article plaide pour des systèmes proactifs, flexibles et participatifs dans les domaines de la recherche, de l'éducation, de l'emploi et des soins de santé, qui placent au centre à la fois l'accès et le pouvoir d'agir. En allant au-delà des aménagements réactifs vers une conception proactive des systèmes, la Neurodiversité 2.0 cherche à créer des structures qui reconnaissent et soutiennent l'ensemble du spectre des expériences neurodivergentes.

The neurodiversity movement has reframed cognitive and behavioral differences as natural variations rather than deficits, advocating for social inclusion and systemic change. However, as the movement has gained traction, it has also revealed tensions surrounding independence, economic valuation, medical research, the representation of high-support-needs individuals, and intersecting disabilities. This paper introduces Neurodiversity 2.0, an expanded framework that integrates insights from disability studies, social justice, and policy to address these gaps. By analyzing key tensions, drawing from theoretical perspectives such as relational autonomy, Crip Theory, and Disability Justice, and proposing systemic policy shifts, the paper argues for an approach that balances opportunities (leveraging strengths), with solutions (to address challenges). The current discourse often presents false binaries—social vs. medical models, autonomy vs. dependence, strengths vs. deficits—when, in reality, inclusion requires an integrated approach. This paper advocates for proactive, flexible, and participatory systems across research, education, employment, and healthcare that center both access and agency. By moving beyond reactive accommodations to proactive systems design, Neurodiversity 2.0 seeks to create structures that recognize and support the full spectrum of neurodivergent experiences.

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Vue d’ensemble de la bibliographie citée

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Références citées
127
Avec un DOI
78
Sans DOI, à partir du texte brut de la bibliographie
48
12 / 127 (9,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
19 / 127 (15,0 %)
Références avec noms d’auteurices détectés
108 / 127 (85,0 %)
Sans nom d’auteurice détecté
19
Sans titre structuré
18
Sans identifiant stable
44
Références avec noms bruts d’auteurices restant à vérifier
18
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
401
À partir du DOI ou de métadonnées externes
401
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
46
136 / 401 (33,9 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 265 / 401 (66,1 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
31 / 401 (7,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 31 / 136 (22,8 %). Personnes distinctes identifiées comme autistes : 26 / 382 (6,8 %).
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