« Il y a tout simplement trop de choses qui s’y passent » : expériences de communication non verbale chez les adultes autistes

Titre original en anglais : “There is just too much going on there”: Nonverbal communication experiences of autistic adults

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». deux auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Radford, H., Reidinger, B., Kapp, S. K., & Marchena, A. d. (2025). “There is just too much going on there”: Nonverbal communication experiences of autistic adults. PLOS One, 20(7), e0325465. https://doi.org/10.1371/journal.pone.0325465

Date de publication: 11/07/2025 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
2 / 4 (50,0 %)
  1. Holly Radford *
  2. Bronte Reidinger
  3. Steven K. Kapp *
  4. Ashley de Marchena

Résumé

CONTEXTE : Une communication non verbale atypique est requise pour un diagnostic d’autisme, mais on sait peu de choses sur la manière dont les adultes autistes utilisent les gestes, les expressions faciales et d’autres comportements non verbaux dans les interactions sociales, en particulier du point de vue des adultes autistes. Les objectifs de cette étude étaient de comprendre : (1) les expériences des adultes autistes concernant l’utilisation de la communication non verbale dans les interactions, (2) la manière dont la communication non verbale affecte la vie des personnes autistes, et (3) la manière dont les adultes autistes gèrent les différences de communication non verbale. MÉTHODES : 27 fils de discussion issus du forum de discussion Internet wrongplanet.net, contenant tous des dialogues centrés sur la communication non verbale, ont été soumis à une analyse qualitative. Un codage inductif et déductif a été utilisé afin d’identifier des extraits pertinents concernant les expériences de mauvaise communication, les forces en communication et les stratégies compensatoires. Au total, 362 extraits ont été codés (kappa = .79). Les extraits codés ont ensuite été extraits et examinés afin d’identifier des thèmes, au moyen d’une validation auprès des participants. RÉSULTATS : Les principaux thèmes comprenaient : (1) des différences cognitives conduisant les adultes autistes à nécessiter davantage de temps et d’énergie pour gérer la communication non verbale dans les interactions ; (2) la mauvaise communication liée à la communication non verbale est bidirectionnelle ; (3) les différences de communication non verbale peuvent avoir une incidence négative sur la vie et le bien-être des adultes autistes ; (4) les adultes autistes utilisent un éventail de compétences et de stratégies pour gérer la communication non verbale ; et (5) les adultes autistes présentent une variabilité dans la production et l’interprétation des signaux non verbaux. CONCLUSION : Plusieurs de nos thèmes, notamment la mauvaise communication mutuelle et les incidences négatives d’une communication atypique, concordent avec des travaux qualitatifs antérieurs sur les expériences de communication des adultes autistes. Les résultats actuels apportent un nouvel éclairage sur les facteurs internes et externes influençant les expériences de communication non verbale des adultes autistes, en particulier les processus cognitifs impliqués. Nous plaidons en faveur de solutions qui font reposer la responsabilité d’une communication efficace sur tous les membres de la société. Par exemple, partager et accepter les modalités de communication préférées, et vérifier si un message a été correctement reçu au lieu de faire des suppositions.

BACKGROUND: Atypical nonverbal communication is required for a diagnosis of autism, yet little is known about how autistic adults use gestures, facial expressions, and other nonverbal behaviours in social interactions, especially from autistic adults' perspectives. The objectives of this study were to understand: (1) autistic adults' experiences of using nonverbal communication in interactions, (2) how nonverbal communication impacts autistic people's lives, and (3) how autistic adults manage nonverbal communication differences. METHODS: 27 threads from the internet discussion forum wrongplanet.net, all containing dialogue focused on nonverbal communication, were subjected to qualitative analysis. Inductive and deductive coding were used to identify excerpts relevant to miscommunication experiences, communication strengths, and compensatory strategies. A total of 362 excerpts were coded (kappa =.79). Coded excerpts were then extracted and examined for themes, using member checking. RESULTS: Major themes included: (1) Cognitive differences resulting in autistic adults requiring more time and energy to manage nonverbal communication in interactions; (2) Miscommunication related to nonverbal communication is bilateral; (3) Nonverbal communication differences can negatively impact the lives and wellbeing of autistic adults; (4) autistic adults use a range of skills and strategies to manage nonverbal communication; and (5) Autistic adults demonstrate variability in the production and interpretation of nonverbal cues. CONCLUSION: Several of our themes, including mutual miscommunication and negative impacts of atypical communication, are consistent with previous qualitative work on communication experiences of autistic adults. The current findings provide new insight into the internal and external factors influencing the nonverbal communication experiences of autistic adults, in particular the cognitive processes involved. We advocate for solutions that shift the responsibility for effective communication onto all members of society. For example, sharing and accepting preferred communication modalities, and checking in about whether a message was received correctly instead of making assumptions.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 11:54.

Références citées
97
Avec un DOI
88
Sans DOI, à partir du texte brut de la bibliographie
9
22 / 97 (22,7 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
7 / 97 (7,2 %)
Références avec noms d’auteurices détectés
95 / 97 (97,9 %)
Sans nom d’auteurice détecté
2
Sans titre structuré
6
Sans identifiant stable
9
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
0
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Noms d’auteurices détectés dans la bibliographie citée
384
À partir du DOI ou de métadonnées externes
384
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
212 / 384 (55,2 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 172 / 384 (44,8 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
40 / 384 (10,4 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 40 / 212 (18,9 %). Personnes distinctes identifiées comme autistes : 21 / 311 (6,8 %).
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