Explorer les expériences d'adultes autistes transgenres et non binaires dans la recherche de soins de santé liés à l'identité de genre

Titre original en anglais : Exploring the Experiences of Autistic Transgender and Non-Binary Adults in Seeking Gender Identity Health Care

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Bruce, H., Munday, K., & Kapp, S. K. (2023). Exploring the Experiences of Autistic Transgender and Non-Binary Adults in Seeking Gender Identity Health Care. Autism in Adulthood, 5(2), 191-203. https://doi.org/10.1089/aut.2023.0003

Date de publication: 01/06/2023 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)
  1. Harley Bruce
  2. Katie Munday
  3. Steven K. Kapp *

Résumé

Contexte : Cette étude visait à acquérir une compréhension approfondie des expériences d'adultes autistes transgenres et/ou non binaires dans l'accès, ou la tentative d'accès, aux soins de santé liés à l'identité de genre (GIH). À notre connaissance, aucune étude antérieure n'a porté sur ce sujet. Méthodes : Au moyen d'entretiens semi-structurés, nous avons recueilli les expériences directes de 17 participants. H.B. (cisgenre, non autiste) a réalisé une analyse thématique réflexive selon une approche inductive, en collaboration avec K.M., chercheur autiste transgenre issu de la communauté des personnes handicapées, et sous la supervision de S.K.K., chercheur cisgenre autiste spécialisé dans l'autisme. Résultats : L'analyse thématique a déterminé que les connaissances insuffisantes des professionnels, les problèmes d'accessibilité et les obstacles bureaucratiques et économiques ont influencé les expériences des participants lors de l'accès aux GIH. Les participants ont fait l'expérience d'un manque perçu de connaissances professionnelles concernant l'autisme et les besoins en soins de santé des personnes de genres divers, de méthodes de communication et d'aménagements limités, ainsi que de diagnostics erronés de difficultés de santé mentale. Les problèmes d'accessibilité comprenaient des besoins sensoriels non satisfaits, des perturbations de la routine et un manque d'offre locale. En outre, les participants ont indiqué qu'ils avaient des difficultés avec des processus peu clairs, la standardisation des soins, de longues listes d'attente et une couverture d'assurance confuse ou inaccessible. Les recommandations d'amélioration ont souligné la nécessité d'écouter les usagers des services afin d'influencer positivement leurs expériences d'accès aux GIH. Conclusion : Cette étude suggère qu'une formation accrue doit être dispensée aux prestataires et aux professionnels de santé concernant l'expérience autiste afin d'améliorer les compétences des prestataires en matière de communication et de fourniture d'aménagements centrés sur la personne. Une formation accrue concernant les identités de genres divers est nécessaire, ainsi qu'une meilleure connaissance de la cooccurrence de l'autisme et des identités transgenres/non binaires, afin d'influencer positivement les expériences des patients et d'améliorer l'accès aux soins.

Background: This study sought to obtain an in-depth understanding of autistic transgender and/or non-binary adults' experiences in accessing, or trying to access, gender identity health care (GIH). To our knowledge, no prior study researched this topic. Methods: Through semi-structured interviews, we obtained the first-hand experiences of 17 participants. H.B. (cisgender, non-autistic) conducted a reflexive thematic analysis using an inductive approach, in collaboration with K.M., an autistic transgender disability community researcher, and under the supervision of S.K.K., a cisgender autistic autism researcher. Results: Thematic analysis determined that poor knowledge of professionals, accessibility issues, and bureaucratic and economic barriers impacted participants' experiences when accessing GIH. Participants experienced a perceived lack of professional knowledge around autism and gender diverse health care needs, limited communication methods and accommodations, and misdiagnosis of mental health difficulties. Accessibility issues included unmet sensory needs, disruption to routine, and a lack of local provision. Further, participants shared that they struggled with unclear processes, standardization of care, long waiting lists, and confusing or inaccessible insurance coverage. Recommendations for improvements highlighted the need to listen to service users to positively impact their experiences in accessing GIH. Conclusion: This study suggests that more training needs to be given to health care providers and professionals around autistic experience to help improve providers' competence in communication and providing person-centered accommodations. More training around gender diverse identities is needed, as well as increased knowledge on the co-occurrence of autism and transgender/non-binary identities, to positively impact patient experiences and help improve access to care.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
86
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
9 / 86 (10,5 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
24 / 476 (5,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 24 / 148 (16,2 %). Auteurices cité·es distinct·es identifié·es comme autistes : 14 / 430 (3,3 %).
Occurrences citées rattachées à la base AutiHub
148 / 476 (31,1 %)
Auteurices cité·es distinct·es rattaché·es : 107 / 430 (24,9 %)
Occurrences rattachées, non identifiées comme autistes
124 / 148 (83,8 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 124 / 476 (26,1 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 93 / 107 (86,9 %).
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