Préférences pour le langage centré sur l’identité et le langage centré sur la personne : une revue systématique des recherches menées auprès d’adultes autistes/adultes avec autisme

Titre original en anglais : Preferences for Identity-First and Person-First Language: A Systematic Review of Research With Autistic Adults/Adults With Autism

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Schuck, R. K., Chetcuti, L., Dwyer, P., Milosavljevic, K., Bury, S. M., Hedley, D., Begeer, S., Vivanti, G., & Uljarević, M. (2025). Preferences for Identity-First and Person-First Language: A Systematic Review of Research With Autistic Adults/Adults With Autism. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-025-07174-3

Date de publication: 13/12/2025 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
9
Auteur·ices de la publication identifié·es comme autistes
1 / 9 (11,1 %)
  1. Rachel K. Schuck
  2. Lacey Chetcuti
  3. Patrick Dwyer *
  4. Katarina Milosavljevic
  5. Simon M. Bury
  1. Darren Hedley
  2. Sander Begeer
  3. Giacomo Vivanti
  4. Mirko Uljarević

Résumé

OBJECTIF : Les recommandations concernant le langage utilisé pour décrire l’autisme portent principalement sur les préférences pour le langage centré sur la personne (PFL ; par exemple, personne avec autisme) ou le langage centré sur l’identité (IFL ; par exemple, personne autiste). La recherche empirique sur ce sujet a récemment proliféré, mais il n’existe pas de consensus clair. Dans cette étude, nous avons systématiquement passé en revue les recherches antérieures sur les préférences linguistiques de la communauté autiste. MÉTHODES : Notre recherche a généré 2483 articles. Dix-neuf études (N = 6350) ont évalué quantitativement les perspectives des personnes autistes concernant les termes relatifs au langage de l’autisme. Nous avons extrait des données concernant les termes les plus préférés et les termes considérés comme acceptables à utiliser. RÉSULTATS : Toutes les études ont été menées en ligne. Quatorze ont évalué la terminologie préférée ; 10 ont constaté que davantage de participants préféraient l’IFL au PFL, bien qu’il y ait également eu une adhésion considérable au PFL (4-39 % des participants) dans ces études. Deux études ayant constaté une préférence pour le PFL plutôt que l’IFL ont été menées en néerlandais. Lorsqu’ils pouvaient choisir « aucune préférence/l’un ou l’autre » (6 études), 4-37 % des participants ont choisi cette option. Sept études ont évalué les termes acceptables ; les termes IFL ont été jugés acceptables par environ 40-97 % des participants, les termes PFL par 5-53 %, et « sur le spectre » par 8-45 %. Dans l’ensemble des études, les participants n’étaient pas représentatifs de l’ensemble du spectre de l’autisme (par exemple, probablement peu de participants présentant une déficience intellectuelle). CONCLUSION : Les résultats des études varient largement et ne suggèrent aucun consensus quant à savoir si les personnes avec autisme préfèrent l’IFL ou le PFL, ni entre les cultures et les langues, ni nécessairement même au sein de celles-ci. Nous présentons plusieurs considérations à l’intention des membres de la communauté de l’autisme (par exemple, chercheurs, cliniciens, etc.) concernant l’utilisation du PFL et de l’IFL, dans le but ultime de garantir que les préférences individuelles soient respectées.

PURPOSE: Recommendations concerning the language used to describe autism center primarily around preferences for person-first language (PFL; e.g., person with autism) or identity-first language (IFL; e.g.., autistic person). Empirical research on this topic has recently proliferated, yet there is no clear consensus. In this study, we systematically reviewed prior research on the autistic community's language preferences. METHODS: Our search generated 2483 articles. Nineteen studies (N = 6350) quantitatively assessed autistic people's perspectives of autism language terms. We extracted data regarding most preferred terms and terms deemed acceptable for use. RESULTS: All studies were conducted online. Fourteen assessed preferred terminology; 10 found that more participants preferred IFL than PFL, though there was also considerable PFL endorsement (4-39% of participants) in these studies. Two studies that found a preference for PFL over IFL were conducted in Dutch. When able to choose "no preference/either" (6 studies), 4-37% of participants chose this option. Seven studies assessed acceptable terms; IFL terms were endorsed as acceptable by ~ 40-97% of participants, PFL terms by 5-53%, and "on the spectrum" by 8-45%. Across studies, participants were not representative of the entire autism spectrum (e.g., likely few participants with intellectual disability). CONCLUSION: Study results vary widely and suggest no consensus as to whether individuals with autism prefer IFL or PFL, neither across nor necessarily even within cultures and languages. We present several considerations for members of the autism community (e.g., researchers, clinicians, etc.) regarding use of PFL and IFL, with the ultimate goal of ensuring individual preferences are respected.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
72
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
21 / 72 (29,2 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
31 / 188 (16,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 31 / 124 (25,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 21 / 153 (13,7 %).
Occurrences citées rattachées à la base AutiHub
124 / 188 (66,0 %)
Auteurices cité·es distinct·es rattaché·es : 90 / 153 (58,8 %)
Occurrences rattachées, non identifiées comme autistes
93 / 124 (75,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 93 / 188 (49,5 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 69 / 90 (76,7 %).
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