La validité sociale des interventions comportementales : recueillir l'avis d'adultes autistes

Titre original en anglais : The Social Validity of Behavioral Interventions: Seeking Input from Autistic Adults

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Baiden, K. M. P., Williams, Z. J., Schuck, R. K., Dwyer, P., & Wang, M. (2024). The Social Validity of Behavioral Interventions: Seeking Input from Autistic Adults. Journal of Autism and Developmental Disorders, 55(4), 1172-1186. https://doi.org/10.1007/s10803-024-06297-3

Date de publication: 12/03/2024 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
2 / 5 (40,0 %)
  1. Kaitlynn M. P. Baiden
  2. Zachary J. Williams *
  3. Rachel K. Schuck
  4. Patrick Dwyer *
  5. Mian Wang

Résumé

De nombreuses personnes de la communauté autiste ont exprimé des préoccupations concernant l'utilisation d'interventions comportementales auprès d'enfants autistes, suggérant que ces interventions pourraient ne pas être socialement valides. Bien que les interventions comportementales aient évolué pour devenir plus naturalistes et centrées sur l'enfant, peu de recherches structurées ont été menées afin de solliciter explicitement les perspectives autistes sur l'acceptabilité de composantes spécifiques des interventions comportementales. Des adultes autistes (N = 235) ont été recrutés en ligne pour répondre à l'Autism Intervention Attitudes Scale (AIAS), un questionnaire conçu pour recueillir des commentaires sur des objectifs et pratiques d'intervention courants. Les résultats indiquent que les participants jugent acceptables les objectifs et pratiques qui mettent l'accent sur la qualité de vie, la sécurité et les interactions autistes, tandis que ceux qui se concentrent sur la normalisation fondée sur des normes neurotypiques ne le sont pas. Une analyse exploratoire de graphes a révélé trois communautés d'objectifs (« objectifs non controversés », « objectifs controversés » et « objectifs sociaux »). La comparaison entre les composantes d'intervention naturalistes et structurées a en outre montré que les participants autistes privilégiaient les stratégies naturalistes. Ces résultats concordent avec les critiques connues des interventions comportementales formulées par des adultes autistes, mais fournissent également davantage d'informations sur les manières précises dont les interventions comportementales peuvent être réformées. Ces informations peuvent guider les professionnels dans l'élaboration d'objectifs appropriés et les décisions relatives à la planification des interventions.

Many in the autistic community have expressed concerns regarding the use of behavioral interventions with autistic children, suggesting that these interventions may not be socially valid. Though behavioral interventions have evolved to be more naturalistic and child-centered, little structured research has been done to explicitly seek autistic perspectives on the acceptability of specific components of behavioral interventions. Autistic adults (N = 235) were recruited online to take the Autism Intervention Attitudes Scale (AIAS), a questionnaire designed to gather feedback on common intervention goals and practices. Results indicate that participants find goals and practices that highlight quality of life, safety, and autistic interactions acceptable, while those that focus on normalization based on neurotypical standards are not. An exploratory graph analysis revealed three communities of goals ("uncontroversial goals", "controversial goals", and "social goals"). Comparison between naturalistic and structured intervention components additionally showed that autistic participants favored naturalistic strategies. These findings are in line with known criticisms of behavioral intervention from autistic adults, but also provide more information on the specific ways in which behavioral interventions can be reformed. This information can guide professionals in the development of appropriate goals and decisions around intervention planning.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
92
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
11 / 92 (12,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
23 / 307 (7,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 23 / 106 (21,7 %). Auteurices cité·es distinct·es identifié·es comme autistes : 19 / 276 (6,9 %).
Occurrences citées rattachées à la base AutiHub
106 / 307 (34,5 %)
Auteurices cité·es distinct·es rattaché·es : 83 / 276 (30,1 %)
Occurrences rattachées, non identifiées comme autistes
83 / 106 (78,3 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 83 / 307 (27,0 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 64 / 83 (77,1 %).
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