« Faire son coming out » avec l’autisme : identité chez les personnes ayant reçu un diagnostic d’Asperger après le DSM-5
Titre original en anglais : ‘Coming Out’ with Autism: Identity in People with an Asperger’s Diagnosis After DSM-5
Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.
À propos de la mention auteur·ice autisteSmith, O. A. & Jones, S. C. (2019). ‘Coming Out’ with Autism: Identity in People with an Asperger’s Diagnosis After DSM-5. Journal of Autism and Developmental Disorders, 50(2), 592-602. https://doi.org/10.1007/s10803-019-04294-5
- Titre de la revue ou du livre
- Journal of Autism and Developmental Disorders
- Éditeur
- Springer Science and Business Media LLC
- Volume
- 50
- Problème
- 2
- Pages
- 592-602
Cette publication est intégrée dans AutiHub via :
Auteurs
Résumé
Le syndrome d’Asperger a été introduit comme catégorie diagnostique distincte dans le DSM-4 (1994). Son absorption ultérieure dans le trouble du spectre de l’autisme dans le DSM-5 (2013) a suscité un débat vigoureux et des inquiétudes quant à la perte de l’identité Asperger unique. Les recherches existantes ont montré que des adultes ayant précédemment reçu un diagnostic d’Asperger ont exprimé un éventail diversifié d’opinions concernant les changements apportés par le DSM-5. Cette étude australienne a exploré le rôle du développement de l’identité liée au handicap dans les réponses à ce changement au moyen d’entretiens semi-structurés avec 12 adultes ayant reçu un diagnostic d’Asperger selon le DSM-4. Leurs points de vue différents ne semblaient pas être fonction de variables démographiques ; un lien a été identifié entre les points de vue des participants sur ce changement et des stades différents d’intégration aux identités Asperger et/ou autistique.
Bibliographie citée par cette référence
Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.
Vue d’ensemble de la bibliographie citée
Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 17:07.
- Avec un DOI
- 46
- Sans DOI, à partir du texte brut de la bibliographie
- 14
- Références avec noms d’auteurices détectés
- 49 / 61 (80,3 %)
- Sans nom d’auteurice détecté
- 12
- Sans titre structuré
- 13
- Sans identifiant stable
- 14
- Références avec noms bruts d’auteurices restant à vérifier
- 11
- Références avec problème de récupération des métadonnées externes
- 1
- À partir du DOI ou de métadonnées externes
- 113
- À partir du texte brut validé de la bibliographie
- 0
- Noms bruts déjà validés
- 0
- Noms bruts restant à vérifier
- 11
-
Henri Tajfel , John Turner (2000). An Integrative Theory of Intergroup Conflict . Dans Organizational Identity (pp. 56-65). Oxford University PressOxford.Type: Chapitre de livre DOI: 10.1093/oso/9780199269464.003.0005 OpenAlex: https://openalex.org/W90970949OpenAlex
-
American Psychiatric Association. (2013). DSM-5 Autism Spectrum Disorder Fact Sheet. Retrieved March 10, 2019, from www.dsm5.org/Documents/Autism%20Spectrum%20Disorder%20Fact%20Sheet.pdfType: AutreCrossref
-
Kristen F. Linton (2014). Clinical Diagnoses Exacerbate Stigma and Improve Self-Discovery According to People With Autism . Social Work in Mental Health, 12(4), 330-342. Informa UK Limited.Crossref OpenAlex OpenCitations
-
William G. Austin , Stephen Worchel (1979). The Social psychology of intergroup relations .Type: Livre OpenAlex: https://openalex.org/W386986494OpenAlex
-
Hans Asperger (1991). ‘Autistic psychopathy’ in childhood . Dans Autism and Asperger syndrome (pp. 37-92). Cambridge University Press.Type: Chapitre de livre DOI: 10.1017/cbo9780511526770.002 OpenAlex: https://openalex.org/W1600568800Crossref OpenAlex OpenCitations
-
Gill (1997). Gill, C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation,9, 39–46. https://doi.org/10 . 1016/S1052-2263(97)00020-2. Journal of Vocational Rehabilitation, 9, 39. Elsevier BV.Crossref OpenAlex OpenCitations
-
Jeneva L. Ohan , Sarah E. Ellefson , Patrick W. Corrigan (2015). Brief Report: The Impact of Changing from DSM-IV ‘Asperger’s’ to DSM-5 ‘Autistic Spectrum Disorder’ Diagnostic Labels on Stigma and Treatment Attitudes . Journal of Autism and Developmental Disorders, 45(10), 3384-3389. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Australian Bureau of Statistics. (2014). Autism in Australia, 2012 (No. 4428. 0). http://www.abs.gov.au/AUSSTATS/abs@.nsf/Latestproducts/4428 . 0Main%20Features12012?opendocument&tabname=Summary&prodno=4428. 0&issue=2012&num=&view=Type: AutreCrossref
-
Dana S. Dunn , Shane Burcaw (2013). Disability identity: Exploring narrative accounts of disability. Rehabilitation Psychology, 58(2), 148-157. American Psychological Association (APA).OpenAlex OpenCitations
-
Bourgeault, Ivy Lynn 1967- , Dingwall, Robert , De Vries, Raymond G. (2011). The SAGE handbook of qualitative methods in health research . Choice Reviews Online, 48(09), 48-4837-48-4837. American Library Association.OpenAlex
-
J. B. Barahona-Corrêa , Carlos N. Filipe (2016). A Concise History of Asperger Syndrome: The Short Reign of a Troublesome Diagnosis . Frontiers in Psychology, 6, 2024. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
Barnett, N. A. (2014). The process of diagnosis delivery of autism spectrum disorders (University of New Mexico). https://search-proquest-com.ezproxy1.acu.edu.au/docview/1656169536/Type: AutreCrossref
-
Jennifer S. Singh (2011). The Vanishing Diagnosis of Asperger's Disorder . Dans Advances in Medical Sociology (pp. 235-257). Emerald Group Publishing Limited.Type: Chapitre de livre DOI: 10.1108/s1057-6290(2011)0000012015 OpenAlex: https://openalex.org/W2482847499Crossref OpenAlex OpenCitations
-
Carol J. Gill (1997). Four types of integration in disability identity development . Journal of Vocational Rehabilitation, 9(1), 39-46. SAGE Publications.OpenAlex
-
Ivy Bourgeault , Robert Dingwall , Raymond De Vries (2010). The SAGE Handbook of Qualitative Methods in Health Research . SAGE Publications Ltd.Crossref OpenAlex OpenCitations
-
Sarah M. Parsloe , Austin S. Babrow (2016). Removal of Asperger’s syndrome from the DSM V: community response to uncertainty . Health Communication, 31(4), 485-494. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Joseph D Buxbaum , Simon Baron-Cohen (2013). DSM-5: the debate continues . Molecular Autism, 4(1), 11. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Isaac C. Smith , Brian Reichow , Fred R. Volkmar (2015). The Effects of DSM-5 Criteria on Number of Individuals Diagnosed with Autism Spectrum Disorder: A Systematic Review . Journal of Autism and Developmental Disorders, 45(8), 2541-2552. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Michelle R. Nario-Redmond , Jeffrey G. Noel , Emily Fern (2013). Redefining Disability, Re-imagining the Self: Disability Identification Predicts Self-esteem and Strategic Responses to Stigma . Self and Identity, 12(5), 468-488. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Heather J. Carmack (2014). Social and Tertiary Health Identities as Argument in the DSM-V Asperger's/Autism Debate . Western Journal of Communication, 78(4), 462-479. Informa UK Limited.Crossref OpenAlex OpenCitations
-
David J. Connor (2013). Kiss my Asperger's: turning the tables of knowledge . International Journal of Inclusive Education, 17(2), 111-129. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Donna M. Kite , Judith Gullifer , Graham A. Tyson (2013). Views on the Diagnostic Labels of Autism and Asperger’s Disorder and the Proposed Changes in the DSM . Journal of Autism and Developmental Disorders, 43(7), 1692-1700. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Bethan Chambers , Clodagh M. Murray , Zoe V. R. Boden , Michelle P. Kelly (2020). ‘Sometimes labels need to exist’: exploring how young adults with Asperger’s syndrome perceive its removal from the diagnostic and statistical manual of mental disorders fifth edition . Dis Soc, 35(4), 589. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.OpenAlex
-
AM Colman (2014). A dictionary of psychology . A dictionary of psychology.Type: AutreCrossref
-
Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.Crossref OpenAlex OpenCitations
-
Rosalyn Benjamin Darling (2003). Toward a model of changing disability identities: a proposed typology and research agenda . Disability & Society, 18(7), 881-895. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Kristen Faye Linton , Taylor E. Krcek , Leonard M. Sensui , Jessica L. H. Spillers (2014). Opinions of people who self-identify with autism and asperger’s on DSM-5 criteria . Res Soc Work Pract, 24(1), 67. SAGE Publications.Crossref OpenAlex OpenCitations
-
T. A. M. McDonald (2017). Discriminative and Criterion Validity of the Autism Spectrum Identity Scale (ASIS) . Journal of Autism and Developmental Disorders, 47(10), 3018-3028. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Mohammad Ghaziuddin (2008). Defining the Behavioral Phenotype of Asperger Syndrome . Journal of Autism and Developmental Disorders, 38(1), 138-142. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Rosalyn B. Darling , D. Alex Heckert (2010). Orientations Toward Disability: Differences over the lifecourse . International Journal of Disability, Development and Education, 57(2), 131-143. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Jessica L. H. Spillers , Leonard M. Sensui , Kristen F. Linton (2014). Concerns about identity and services among people with autism and Asperger’s regarding DSM–5 changes . J Soc Work Disabil Rehab, 13(3), 247-260. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Dana S. Dunn , Erin E. Andrews (2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70(3), 255-264. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
D Dunn (2013). Dunn, D., & Burcaw, S. (2013). Disability identity: Exploring narrative accounts of disability. Rehabilitation Psychology,58, 148–157. https://doi.org/10 . 1037/0031691. Rehabilitation Psychology, 58, 148.Type: Autre DOI: 10.1037/0031691Crossref
-
Morton Ann Gernsbacher (2017). Editorial Perspective: The use of person‐first language in scholarly writing may accentuate stigma . Journal of Child Psychology and Psychiatry, 58(7), 859-861. Wiley.Crossref OpenAlex OpenCitations
-
Lise Mogensen , Jan Mason (2015). The meaning of a label for teenagers negotiating identity: experiences with autism spectrum disorder . Sociology of Health & Illness, 37(2), 255-269. Wiley.Crossref OpenAlex OpenCitations
-
Deborah Fein , Marianne Barton , Inge‐Marie Eigsti , Elizabeth Kelley , Letitia Naigles , Robert T. Schultz et al. (2013). Optimal outcome in individuals with a history of autism . Journal of Child Psychology and Psychiatry, 54(2), 195-205. Wiley.Crossref OpenAlex OpenCitations
-
Anjali J. Forber-Pratt , Dominique A. Lyew , Carlyn Mueller , Leah B. Samples (2017). Disability identity development: A systematic review of the literature. Rehabilitation Psychology, 62(2), 198-207. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
Steven K. Kapp *Auteur·ice autiste. En savoir plus… , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Anjali J. Forber-Pratt , Marianne P. Zape (2017). Disability identity development model: Voices from the ADA-generation . Disability and Health Journal, 10(2), 350-355. Elsevier BV.Crossref OpenAlex OpenCitations
-
G. Highet (2003). Cannabis and smoking research: interviewing young people in self-selected friendship pairs . Health Education Research, 18(1), 108-118. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
Fusco, G. (2014). Perceptions of the shift in Asperger’s Syndrome nosology in DSM-5. http://ezproxy.acu.edu.au/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=psyh&AN=2014-99140-099&site=ehost-liveType: AutreCrossref
-
Phillip L. Hammack (2008). Narrative and the Cultural Psychology of Identity . Personality and Social Psychology Review, 12(3), 222-247. SAGE Publications.Crossref OpenAlex OpenCitations
-
David C Giles (2014). DSM-V is taking away our identity”: the reaction of the online community to the proposed changes in the diagnosis of Asperger’s disorder . Health (London), 18(2), 179-195. SAGE Publications.Crossref OpenAlex OpenCitations
-
Johnny L. Matson , Megan A. Hattier , Lindsey W. Williams (2012). How Does Relaxing the Algorithm for Autism Affect DSM-V Prevalence Rates? Journal of Autism and Developmental Disorders, 42(8), 1549-1556. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Laura Hull , K.V. Petrides , Carrie T. Allison , P. Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Carlye Vroom (2013). The End of Asperger’s: An Analysis of the Decision to Remove Asperger’s Disorder from the DSM-5 . SFU Educational Review, 6. Simon Fraser University Library.Crossref OpenAlex OpenCitations
-
Jones, S. (2019). We need to stop perpetuating the myth that children grow out of autism. The Conversation. https://theconversation.com/we-need-to-stop-perpetuating-the-myth-that-children-grow-out-of-autism-119540Type: AutreCrossref
-
Stephen M. Thielke (2004). Handbook of Self and Identity . Psychiatric Services, 55(9), 1071-1072. American Psychiatric Association Publishing.OpenAlex
-
Damian Milton *Auteur·ice autiste. En savoir plus… , Tara Sims (2016). How is a sense of well-being and belonging constructed in the accounts of autistic adults? Disability & Society, 31(4), 520-534. Informa UK Limited.AutiHub · Contributions académiques de personnes autistes sur l’autisme Crossref OpenAlex OpenCitations
-
Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.Crossref OpenAlex OpenCitations
-
Marco, P. F. (2010). Disclosing a diagnosis of autism spectrum disorder to parents: Guidelines for professionals (Massachusetts School of Professional Psychology). https://search-proquest-com.ezproxy1.acu.edu.au/docview/734659283Type: AutreCrossref
-
Plank, A. (2013). WrongPlanet.net: The online resource and community for autism and Asperger’s. Retrieved April 12, 2019, from www.wrongplanet.net/forums.htmlType: AutreCrossref
-
(2015). A dictionary of psychology . Choice Reviews Online, 53(01), 53-0025-53-0025. American Library Association.OpenAlex
-
RM Ryan (2014). Handbook of self and identity . Handbook of self and identity, 224.Type: AutreCrossref
-
Sandra C. Jones *Auteur·ice autiste. En savoir plus… (2019). We need to stop perpetuating the myth that children grow out of autism . The Conversation.OpenAlex
-
H Tajfel (1979). The social psychology of intergroup relations . The social psychology of intergroup relations, 33.Type: AutreCrossref
-
Weeber, J. E. (2004). Disability community leaders’ disability identity development: A journey of integration and expansion (North Carolina State University). https://search-proquest-com.ezproxy1.acu.edu.au/docview/305166629Type: AutreCrossref
-
World Health Organisation. (2015). F84. 5 Asperger syndrome. In ICD-10 Version: 2015. https://icd.who.int/browse10/2015/en#/F84 .Type: AutreCrossref
-
World Health Organisation. (2018). WHO releases new International Classification of Diseases (ICD11). https://www.who.int/news-room/detail/18-06-2018-who-releases-new-international-classification-of-diseases-(icd-11 )Type: AutreCrossref
-
World Health Organisation. (2019). 6A02 Autism spectrum disorder. In ICD-11 for Mortality and Morbidity Statistics. https://icd.who.int/browse11/l-m/enType: AutreCrossref