Connaissances, attitudes et comportements des parents à l’égard de l’autisme : une enquête auprès de familles chinoises ayant des enfants atteints de trouble du spectre de l’autisme

Titre original en anglais : Parents’ knowledge and attitude and behavior toward autism: a survey of Chinese families having children with autism spectrum disorder

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Wang, F., Lao, U., Xing, Y. P., Zhou, P., Deng, W. L., Wang, Y., Ji, Y., Chen, M. Y., Li, H., & Zou, X. (2022). Parents’ knowledge and attitude and behavior toward autism: a survey of Chinese families having children with autism spectrum disorder. Translational Pediatrics, 11(9), 1445-1457. https://doi.org/10.21037/tp-22-113

Titre de la revue ou du livre
Translational Pediatrics
Éditeur
AME Publishing Company
Volume
11
Numéro
9
Pages
1445-1457
Date de publication: 01/09/2022 Ajout dans AutiHub: 22/09/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
10
Auteur·ices de la publication identifié·es comme autistes
1 / 10 (10,0 %)
  1. Fang Wang
  2. Uchong Lao *
  3. Yi-Pei Xing
  4. Ping Zhou
  5. Wen-Lin Deng
  1. Yu Wang
  2. Yue Ji
  3. Miao-Ying Chen
  4. Hai Li
  5. Xiaobing Zou

Résumé

CONTEXTE : Ces dernières années, les interventions médiatisées par les parents pour les enfants atteints de trouble du spectre de l'autisme (TSA) ont augmenté. Par conséquent, la mise en œuvre de programmes efficaces de formation des parents d'enfants autistes est d'une importance capitale, en particulier dans les pays à revenu faible et intermédiaire. Cependant, on sait peu de choses sur l'état et les lacunes des connaissances des parents concernant le TSA, ce qui peut entraver l'élaboration de programmes valides de formation parentale. Dans cette étude, nous avons cherché à explorer l'état des connaissances, des attitudes et des comportements des parents chinois à l'égard du TSA, ainsi que les facteurs potentiels influençant l'acquisition de connaissances correctes. MÉTHODES : Cette étude a utilisé un questionnaire auto-conçu sur les connaissances parentales relatives à l'autisme (PKQA) comprenant 20 questions, ainsi qu'un autre questionnaire comprenant 17 questions supplémentaires couvrant les aspects démographiques familiaux, les attitudes et les comportements des parents. Au total, nous avons inclus 394 parents ayant consulté au service ambulatoire du Centre du développement et du comportement de l'enfant du troisième hôpital affilié de l'université Sun Yat-Sen entre décembre 2018 et mai 2019, dont les enfants répondaient aux critères diagnostiques du Manuel diagnostique et statistique des troubles mentaux, cinquième édition (DSM-5), pour le TSA. RÉSULTATS : Le score médian de connaissances au PKQA était de 15 [intervalle interquartile (IQR), 13-17]. Un âge paternel plus avancé et un intervalle plus long entre le diagnostic et l'inscription au programme de formation parentale étaient associés à un score total de connaissances plus faible (tous P<0,001). Un niveau d'études maternel plus élevé, un revenu familial plus élevé, le fait que l'enfant bénéficie actuellement d'une intervention et le fait que les membres de la famille partagent une perception commune du diagnostic étaient associés à un score total de connaissances plus élevé (tous P<0,01). La lecture de livres liés à l'autisme (P<0,001) ou la participation à des conférences professionnelles (P=0,019) étaient également associées à un score total de connaissances plus élevé. CONCLUSIONS : Dans l'ensemble, cette étude a révélé que les caractéristiques démographiques familiales ainsi que les attitudes et les comportements des parents à l'égard du TSA peuvent influencer significativement leurs connaissances sur l'autisme, ce qui suggère la nécessité de promouvoir des programmes de formation aux compétences parentales davantage ciblés.

BACKGROUND: In recent years, parent-mediated intervention for children with autism spectrum disorder (ASD) has increased. Therefore, implementing effective parent training programs for parents of children with autism is of paramount importance, particularly in low- and middle-income countries. However, little is known about the status of and gaps in parents' knowledge on ASD, which may hinder the development of valid parental training programs. Herein, we aimed at exploring the status of Chinese parents' knowledge, attitude and behavior toward ASD, and potential factors affecting the acquisition of correct knowledge. METHODS: This study used a self-designed parental knowledge questionnaire of autism (PKQA) comprising 20 questions alongside another questionnaire comprising additional 17 questions covering the aspects of family demographics, attitudes, and behaviors of parents. In total, we included 394 parents who visited the outpatient department of the Child's Development and Behavior Center of the Third Affiliated Hospital of Sun Yat-Sen University between December 2018 and May 2019, with their children meeting the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) diagnostic criteria for ASD. RESULTS: The median knowledge score in the PKQA was 15 [interquartile range (IQR), 13-17]. Advanced paternal age and longer time interval from diagnosis to enrolling into the parent training program were associated with a lower total knowledge score (all P<0.001). Higher maternal education attainment, higher family income, child being currently under intervention, and family members sharing a common perception of the diagnosis were associated with a higher total knowledge score (all P<0.01). Reading autism-related books (P<0.001) or attending professional lectures (P=0.019) were also associated with a higher total knowledge score. CONCLUSIONS: Taken together, this study revealed that family demographics and parents' attitudes and behaviors toward ASD may significantly influence their knowledge about autism, suggesting the need for promoting more targeted parental skills training programs.

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Références citées
50
Avec un DOI
49
Sans DOI, à partir du texte brut de la bibliographie
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1 / 50 (2,0 %) références citées comprennent au moins une personne identifiée comme autiste.
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49 / 50 (98,0 %)
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1
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Noms d’auteurices détectés dans la bibliographie citée
277
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277
À partir du texte brut validé de la bibliographie
0
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0
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0
41 / 277 (14,8 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 236 / 277 (85,2 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
1 / 277 (0,4 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 1 / 41 (2,4 %). Personnes distinctes identifiées comme autistes : 1 / 255 (0,4 %).
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